• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
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a Matter of Concentration.

A week of working on projects and some heavy stuff, like lifting those fence panels in to place to finish the north stall running pens, and pounding a few T bars into place, left me a bit tight and stiff at the end of the days.  I think I probably got it about right as I was ready to go the next days. Trying to notice returning function is harder now as the returns are pretty subtle. Some time its more a realization that some thing has gone. This week I had a feeling of pressure around my occipu

KevRider

KevRider in projects

A Virtual Camp for 2020

For the last 3 years I've attended a camp for  brain injuries.  This year the powers to be formatted the camp for us to stay in touch.  No doubt it was a logistical head banger and something I certainly couldn't handle.  Kudo's to all involved for pulling off the virtual camp.     They had an opening ceremony to explain the Zoom and times.  They mailed out a package with a T-shirt which they do every year for campers.  Supplies for the activities which you felt you could handle.  

Madade

Madade in Camp

God is so kind to us & I feel so grateful

Things are not finalized yet but its moving into right direction, so I have to share my joy.  hubby  has spent his first few years of his life in village in India with his family & is very fond of his native place, & even after moving to city in India his family has connection with village which has our very powerful community God we all believe in  & his whole family & extended family will gather their once a year for special prayer ceremony. Usually now in village there are mos

Fences

So this week i haven't had any notice improvements. Though perhaps my stamina is still improving. I have kept up my morning run back from the barn today additional incentive to get back quicker as we were down at 42F.  I'm still following the morning ride with some project work. This week it was getting the barns north side stalls ready for winter. Our predominant wind is from the south west , so for the with we move the horse to the lee side. To prep the running pens I had to take fencing down,

KevRider

KevRider in projects

Project

Well this week I can't identify any actual improvements. Of course they can be so subtle now I have to pay attention to spot one. I do catch my self slipping back to my safe walk and find myself having to coach myself , like "Come on a bit faster" as I continue to move more as I used to. This week I have been involved with installing a big drum composter. The screwing of nuts onto bolts was an exercise they used to have me do in rehab, and I found I was flashing back to that as i had to do it a

KevRider

KevRider

Feeling Loved

Yesterday I took Riley for a ride on Henry.  This morning Wayne was doing stuff in the shed, and had the dogs out the front. I had a doctor's appointment.  As I went up the driveway on Henry, Riley followed me. Wayne picked her up so I could leave. When I got almost to George rd (100 metres from home), my phone rang. I answered it on my watch; it was Wayne. I said to him: it's ok, she's here. Exactly as I answered, Riley jumped up onto Henry.  Apparently as soon as her put her back on th

GreenQueen

GreenQueen

Balance

My recent attempts to push for normal seem to be paying off. Most of my motion lately is normal, though I still have to concentrate on doing it. Often the first couple of steps may be slightly lacking, but then i push a little, focus and its back again. This recently re-learned motion gets me into new areas of balance challenge. But only small ones which trigger a little headiness for just a moment and I seem to be learning how to re-balance and haven't been anywhere near falling yet. Contr

KevRider

KevRider

Treadmill Battles

Personal Best For Speed & Time   6 years and this device has certainly been a large part of my recovery.     The photo was from 2019 March 5. Wearing ankle weights, compression pants and ab support.     I remember the first time was in a harness and on a treadmill with 3 therapist all working on instructing and guiding my legs on the treadmill.  Each session they lowered the harness and I put more weight on my legs.     I did mostly a recumbent bike fo

Madade

Madade

Thank you Steve Mallory

Why are you still on Strokenet my friends ask me. Why are you still talking about stroke nearly eight years after Ray died? Why haven't you moved on with your life? Well I have moved on but moving on does not mean you have to move away from those things that have been valuable to you in the past. . And to me Strokenet has been of huge value in my life and the lives of Ray and my family. Discovering Strokenet made a big difference to the way I lived my life, dealt with Ray's strokes and came out

swilkinson

swilkinson

Pushing for Normal

Those who may have read last weeks blog will know i'm pushing for normal. Generally its been working great! i'm estimating about an 85% rate and it feels good when I get it right as for a few minutes I fell no deficits. The slight down side it that occasionally on rougher ground i lose a little balance. and may stagger slightly for a stride or 2 it challenges my balance and may induce a little headiness. but I have not taken a fall yet, and believe that balance challenge is probably good neuro p

KevRider

KevRider

Some of my mental thoughs

I'm selfishly happy that school will be remote, till at least mid-October. That means that my son will still be able to come visit my on the weekends, as per regular, but when school starts, we  will have to go back to Face Time, Zoom and other ways because the county he is in has a higher amount of Covid-19 than mine and school is a cesspool of germs. It's funny how we would not be thinking about this like we are now.  We have to keep PPE where I work and conduct temp checks , masks, gloves dai

ksmith

ksmith

I've Been Quiet Here...Feeling Like an Update

Time has passed well slowly or is it rather quickly...hmm times are confusing these days. I suppose that question depends on the day. It's not hard to recognize that the world is a bit out of kilter this year and I hope going forward we as people take the best we can from it. Finding peace has never started out being calm most times. Change is hard but it is a good teacher or reminder. I suppose as for me, I am oddly calm inside...watching the world around me in a kind of slow motion...observing

HostTracy

HostTracy

Breaking Habits

This week its been harder to note specific improvement. Rather I seem to have realized that I may have to push beyond habits i've fallen into. I had started , and continue to run back from barn to the house every morning after feeding the horses. Yet I realized that I walk in a very steady and cautious way which has now served me for several months. One evening my wife was calling me to the bathroom to take meds and I realized I use to walk much faster in such circumstance. I increased stride an

KevRider

KevRider

A big step forward!

Today is a big day.  On the 29th of this month, it has been 2 years since my stroke, and today I emailed my neurologist to ask permission to start driving again.  I am ready. Not for freeways, or highways, and that's okay. Just to be able to do little errands. It's a big step for me.  I have a professional instructor all lined up to assure me that I am still a safe driver. Onwards and upwards in my reclaiming my life!

SueC

SueC

feel like looser so just rambling here

ok today is not a good day feel like complete looser & failure in life  & always needing in help in all wakes of my life. I guess in life you will have both kind of days some good some bad, today is that kind of day feeling like complete looser. I recently lost my diamond erring for my one ear which is side I prefer to sleep on. also had fight with hubby about some some personal home related issue where I said some hurtful things to him & even said hurtful things about our family God

HostAsha

HostAsha

Cancer

Tomorrow is four months since my beloved cousin Jason died. Seems like a lifetime.  On Sunday, a lady I've known my whole life died after a very quick battle with ovarian cancer.  Last week I had a mammogram and a half (had to do one side twice) and two ultrasounds. I have a lump in my neck and one in my boob. As my mum is a breast cancer survivor , I always worry about things like that. I kept thinking that God has already given me more than I can handle. He wouldn't be that

GreenQueen

GreenQueen

Running

Improvement these days is in subtle increments and easily over looked. My fist consistent walk of  the day is over to the barn to feed the horses and I always use this to gauge progress. This morning I was most of the way to the barn when I realized I was thinking about something completely different and just walking naturally. Most of the time since the stoke I have to concentrate on every step I take. Another thing I added to my routine is I now run back from the barn , a distance of some

KevRider

KevRider

Harvesting

So this week I engaged in more work around the house and garden with some significant results. I offered to help with vacuuming the house. The to and thro motion of this induces a strange headiness as I transferred weight from one foot to the other. Later my walking changed to a longer stride and during my first walk of the day, which id from house to barn to feed horses, the walk felt vary natural and indistinguishable from my pre-stroke walk. It still gets a little wobbly as the day goes on an

KevRider

KevRider

Continuing on whether we like it or not.

Are we there yet? That used to be a familiar cry from the back seat of the car when the children were little. I wish we had some sort of road map with this Covid-19 so we could see where we are going. More cases in Victoria so they are going into stage 4 restrictions. Doesn't seem as if the general population are taking the virus precautions seriously and so it is spreading again. I guess with less than 200 deaths in Australua it doesn't seem much of a threat but I do wonder when we are over thi

swilkinson

swilkinson

Melting in Arizona

It's been sweltering hot this past week - shattered records two days in a row hitting 118 and then 116 the following day....cooling off a bit this weekend - maybe 112 today.... I've been spending a lot of time (mostly early morning or late evening) in the pool and occasionally have to toss the dogs in to cool them off.   🙂      I've been staying home pretty much, aside from occasional trip to store for milk and quick stop at local restaurant to sit back in my corner and order breakfast

SarahR

SarahR

Time sure does pass fast ( sometimes)

Wow -- once it got nice out here in ND then time sped up. Ive been outside puttering. stained our deck , lots of gardening... help get my brothers home together for a estate sale.. back to more or less FT work at the office. And Dan has played "nice". So I guess I'll keep him home vs. the nursing home. With Covid  there is no way we could have managed anyways. So he is here( home) and Ive got a massive remodel planned to make it nice for both of us... It was on my to do list anyhow.   

nancyl

nancyl

Just another week.

Well with Arizona been a Covid hot spot we continue our isolation, now almost 5 months. Days slide one into the other we have to mark them with meals to help keep track, Spaghetti Sunday, Wednesday Pizza and 'Friesday'. Can't complain to much were almost set up for it. I think about 60% of what we are eating comes off our land. We have plenty y of space to ride in the morning, in fact we have over 2miles of track on our own property. My stamina is slowly coming back. Used to be when I rode it wa

KevRider

KevRider