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  • A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
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Drowned Petunia's

Drowned Petunia's

Last evening I had to go on defense mode.  We have these planters and this year I over watered with all the heat.  Well more the drainage system I discovered had the drainage hole still with the punched out hole still in it.  I think it's  too late for the petunia's this year.  The rest may come back. Petunia's I doubt.     The little mini shears I find much easier since I did most dead heading by pinching.  Petunia's are sticky.  These are great and I have to wash them but its a game

Madade

Madade

Friday Morning

Friday Morning

Another week down.  Slipping treadmill routine. Only 3 days out of 7.  I'm getting my step goal in at 4000 but getting that cardiovascular workout that I should get from the treadmill is lacking.   Still notice small achievements everyday.     Hear its suppose to reach 100°F on local radio.  The humidity the worse part  most say.   Some of todays blooms, sunflowers, tiger lillies, russet sunflower.   Still learning on blogging or remembering how I did it t

Madade

Madade

Morning Walkabout

Morning Walkabout

Good Long sound sleep.  Morning walk around property check sunflower dwarf russet starting to bloom, zinnias not too perky and these I can't recall    First blog post so experimenting.   Got my half hour on the treadmill and did a mile at 2% incline.  Leg brace used today. Walk around today  Garden is pretty weedy.  First year using this mulch and it is a lot better.  At least we can see what we planted and where.     Been eating a lot of salad lately as i

Madade

Madade

Great Weather

Great Weather

This week is one of those gaps in the weather pattern. Usually spring is windy by mid mornings so we have to ride very early while its still chilly. This week however we have had lovely sunny mornings with no wind so been riding a little later. My left leg is still a little weak but its finally strong enough to posh him side ways so I've actually got back to the traing I was doing just before my stoke, the half pass. Done correctly the horse moves both forward and side ways, crossing his legs ov

KevRider

KevRider

 

I feel so sad for anyone who gives up the fight of their life

Recently in India very talented young 34 year old actor committed suicide. he was such young, lovable good-looking  guy & stupid guy just ended his life, he was depressed about loosing some good movie opportunities, breakup & so on which made him take that drastic step. It shook me up since he did that at the same age when I went through my own lean phase of life & had same bright ideas about it, but luckily had young family at home so had no courage to act on that bright stupid idea

HostAsha

HostAsha

A year on.

A year on.

A quiet week. Its been very windy so have passed the time more indoors. Arizona is having a major relapse with the Corona virus so we aren't going anywhere for a while. Perhaps even a long while! I was entertaining my self with planning a trip to the UK and Paris which we have been intending to take with Deb's parents for their 50th Wedding Anniversary next June 2021. Then yesterday we heard the Americans won't be allowed to fly to Europe! At the rate we are going we could still have that proble

KevRider

KevRider

Odd Jobs & toads. anniversary

Odd Jobs & toads. anniversary

So Wednesday around again so soon.! This week seems to be an odd job week. Which is in itself a good thing. These projects are quiet tiring as my stamina is far from what it used to me but I can balance, climb ladders (carefully ) and am dexterous enough again to handle power tools. Its also the anniversary of my stroke so its been a year. This time last year I was making a bucket list as I was not sure I would last much longer! I made Monument Valley & Carlsbad Caverns before the virus grou

KevRider

KevRider

 

fathers day 2020 special

as all of you aware of we have only one child & he has always been his dad's boy, love & bond between them is truly unconditional. mine is not as much, I love him but I also get mad at him when he does not listen  to me & argues back. Anyhow in this pandemic he had come & stayed with us few months when his college ws in lockdown, but summer came along & his paid internship  was starting & he was missing his friends so was itching to go back to college & left. while go

HostAsha

HostAsha

Medicare

Medicare

Its kind of sad when the most interesting topic of my week was applying for Medicare. I was covered by Deb ACA before but as she approached her 65th we have to convert over. One of the affects of getting older is that our health insurance just doubled! That seems a little crazy and even more so from some one who was brought up with Universal healthcare. Meanwhile our Blue Cross insurance still has not settled my bills form my stroke.  'Reduce your stress.' they tell me at Mayo then had me a bill

KevRider

KevRider

 

Missed Anniversary

Here it is the middle of June already, and I just realized that Gary's stroke anniversary came and went on June 1 and I totally forgot about it - maybe because he passed away in February, we're still dealing with the Coronavirus, and so much more in the news.   June 1 would have been his 16th stroke anniversary........but he only survived 15 years and 8 months following that devastating brain stem stroke in 2004.    I'll bet his Doctors from back then would be shocked and amazed that he lived th

SarahR

SarahR

 

Venturing out again

I don't know about you but I am a bit scared about venturing out again. After 13 weeks my thoughts about being out in the community have changed so my question to anyone wanting me to go anywhere is : "Is it safe? And is it necessary?" Not that I am unwilling to go anywhere but I also want what I do to be for a purpose. I think before Covid-19 struck I just went out, anywhere, everywhere, filling in time, now I don't want to do that anymore.   I have actually grown used to being home a

swilkinson

swilkinson

 

why do we view change as bad

Its weekend so time to think deep thoughts. I was thinking about how we are all averse of changes in our life specially unplanned  or unexpected changes which shows up  in our life like illness,accidents or job-loss.  how all these changes rattles our boat & we get so unsettled, upset about it, without knowing future, we just hate all unwelcome change. I know I did it when I faced my stroke in my life. I thought my life was ruined & I will never find joy in living again.    I u

HostAsha

HostAsha

Emotional Containment

Emotional Containment

Little to note on the physical recovery this week. I haven't noticed any improvements but advancements are slight at this stage. On the other hand I have noticed a reduction in my ability to contain emotions across the full scale. This has been true since my stroke but seems to have been exacerbated by events around the Black Lives Matter protests. So I have been a bit down this week. I went looking for some comic relief  and found on Netflix 'Douglas' which was a show by an Australian comedian

KevRider

KevRider

Turmoil

Turmoil

I find the level of turmoil in the USA rather disturbing and it tends to affect my mood. So there's little I can do about that so I try and remember to enjoy each fay and that I almost left the planet. Things are growing rapidly now and we are already eating produce from the hoop house. Our first tomato was harvested this week , we ate it separate from any other food. The flavor was intense after a winter of shop bought ones. Many green ones will soon ripen and follow. Gardening still takes

KevRider

KevRider

 

today is very special day its my soumate my sarathi's birthday

I am so excited today is my soulmate's 60th birthday. We have been together for almost 30 years. we have spent 14 years o our pre-stroke life together &  16 years of post-stroke life together & still going strong. My hubby is very practical person  man of his words, if he said he will be there for our son's game or practice then I don't have to worry, I know he will be there. If he has to take me to my long list of doctors appts or fill in confusing paperwork, he will finish the job, &am

HostAsha

HostAsha

 

Hello on a cold winter day

It is the second day of winter, it is cold with a bitter wind, it is raining.I have enough of this already. I was planning on shopping today but can't see the logic of that. Life should be opening up for us now here in Australia, the numbers of people in hospital or locked down with the virus are very small, hardly any new cases, so we can go to cafes or to the BEACH (really? In this weather?) so we should be grateful. But because of the contrariness of life it is also the beginning of the snow
Warm

Warm

At 5500ft we can get freezes as late as May 28th. but it looks like we are clear now.  47F this morning and we will go to 80s lter in the day, Every thing is blooming and the nest built in our chicken coop is now home to newly hatched chics. My stamina seams to be increasing slightly as I get thru more in the day with less breaks. Some lovely sunny mornings which are prefect for long rides.  Recovery is small increments now and realizations. Like I went to mount the other morning and

KevRider

KevRider

 

whats the purpose of life

As you guys know hubby & I both have similar spiritual traits, though I feel he is ahead in his spiritual journey where I still have lot to learn, when kido was around lot of time discussion on our dinner table will be on lot of these spiritual topics, kido gets entertained by hubby & mine total different view points  about life& he will support me or hubby  based on who is winning the argument.   Our recent discussion recently made me see how right hubby is & with that

HostAsha

HostAsha

 

Happy Strokaversary

.GymSO THIS IS MY 6TH YEAR! I am blessed. I think. I am not much changed in the pandemic living in a nursing home. I see people every day so I'm not really isolated. So it's scary. But then again I am grateful for the help and Company. But they have us isolated from each other so I miss seeing my friends. But I see plenty of staff so I don't see how I am that much more protected because the staff are out in the world and my next door neighbor is not. So some of us have going into each other's ro
OK Bored Now

OK Bored Now

So the Governor's Stay Home Edict has now expired in Arizona but out covid-19 numbers are still steadily going up, so Deb an I are just staying home. We have a lot to be grateful for. 1. We are retired and so I don't have to work. 2 Our income is still pretty steady. 3 We don't have to go out much , perhaps once a week tp put trash in the dumpster and pick up mail parcels. 4 we are on a 40 acre, with 2 miles of track for riding the horses. 5 We have a hoop house to play

KevRider

KevRider

 

Is there a road ahead?

Hi everyone, how are you doing? I am trying to keep busy but I haven't got much to do now, except those fiddly jobs I don't really want to do. I do talk to a lot of people, by phone, on Messenger, even by Zoom now and everyone is struggling during this Pandemic. My friends are divided, some are just carrying on, we will get over this and come out stronger they say, some are frightened, they are alone and who will help me they ask. I have always tried to help people but I'm in self isolation so t
Critter nets

Critter nets

So the days slip into each other. I loose track of which is which. I couldn't tell you my regime any more I ride when the weather is good, work in the garden and walk on the treadmill it i'm not too tired. I haven't been here to the chat room for a while as it seems everyone does zoom at 1pm . Perhaps I 'll make it to day. There little improvement to note this week but the gardening pits me in more diverse movement and challenges my balance, which I think is a good thing. After my stroke I found

KevRider

KevRider

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