Jump to content

A blog is a personal journal of your daily life as a stroke survivor or stroke caregiver. Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations. You can make it private, just for your eyes or public and share your personal thoughts with your friends. Why not try it, create your blog and start writing and see if it helps you.

Blogs

Featured Entries

Living on angel time.

By swilkinson September 6, 2018

I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
- 12 comments
- 2,519 views

Time

Where does the time go? Why is it, that I started this journal of mine and never have time to write? Sure, I pop on every so often to read the new posts, but never have time to read as much as I want, or write anything. I think it's time to make some time for myself. I love to say that!! I know I'll never do it, but I love to say it! I'll do it when the time is right. Now is just not the time.

Guest

January 18, 2005

0

I went for a visit

Today, I went for a visit. 3pm. It took me till 3pm and lots of cussing to go and visit. I watched a Carol Burnett movie about AA, slam down the remote and storm out the door. I sit in the parking lot and smoked a cigarette. The greeter at the door suggested, due to a highly contagious rash spreading through the nursing home, I should come back January 19th. An out. I'm not turning back. I go to her room and the bed empty (except maybe behind the curtain, I sense there is a person, but I

Guest

January 18, 2005

0

A journey of 1000 miles begins with a single step

Hi there. This is the first in a long series of entries detialing my journey. To begin with, I will fill you all in on my history to this point. At approximately 5:00pm on Friday, Novemver 19, 2004, I suffered a stroke while driving back from Toledo, OH to our home in Monroe, Mi. My wife and I were in separate cars as we had just picked up her car from the Buick Dealership in Toldeo from being serviced. We had gone to Sam's Club to fill up both cars and pick up a few items and to pu

Guest

January 18, 2005

1

SOME THINGS WEREN'T MEANT TO BE...

There are just some things that weren't meant to be. I get on a roll that is fed by success of accomplishing one thing, I get all heady and cocky and think I can now rule the world. I decided to cook tonight. My choice was Shrimp Fetticini.But it would be helpful if I had the ALL the right ingredients. I didn't, but I cheated--- thank god for Bistro on the Go! Throw that baby in the microwave and within 10 minutes the kitchen smells as if I've been slaving there all day. OK, one obstacle overc

Guest

January 17, 2005

2

Unable to deal

Would you be angry that I'm selfish? I take all that she has been through and digest and swirl internally and then what do I do??...shut down, don't deal. How common is this? I was by her side every evening in intensive care...visited once when she was in acute rehab and have yet to visit her at the nursing home. Surely she knows...surely she is disappointed (as is my family) in that I've not visited her. Thank you Vicki for chatting with me in the Lobby of the chat rooms. I've been

Guest

January 16, 2005

0

Look what I did for chocolate!

I am 40 now and have discovered the merits of eating chocolate. I may be a late bloomer just finding this out, but I can claim brain damage, and the fact that I am now in menopause and have put the "P" in PMS. But it is simply amazing what I will now do for a Milky Way bar. The spouse buys Milky Ways in bulk now, because both kids and I love them. I don't need them, but a treat is nice every once in awhile. They reside on top of the fridge. Now when one has stroked and has a balence issue,

Guest

January 16, 2005

1

NeverQuit

Three years ago on Tuesday, I lost my brother. Well, I didn't really lose him. I know exactly where his ashes are, and his eyes now belong to a grandma, and his skin is still walking around on a burn victim. He couldn't give away most of his physical body. David had epilepsy and therefore, he was on a lot of drugs. David was a stand up comedian. He opened for everyone from The Temptations to Adam Sandler. He had been on Comedy Central's Comics Come Home three times (or was it four

Guest

January 15, 2005

0

I'm a big push over

So I quit my job - didn't do me much good. Now, I'm only working 8 hours a day! The joys of a family owned business. It's Saturday and I should be watching soap opera reruns on Soapnet and doing laundry. Relaxing, so to speak. Instead, at 6 am I was on the computer creating 108 tent cards for my neighbor Sandra's dinner-dance tonight. (That I couldn't attend if I wanted to, I do well if I'm walking straight - I can't imagine waltzing backwards!) I have got to finish the case study for Strokenet,

Guest

January 15, 2005

0

sam/boston's Blog

my mind's a spining

flood gates of things going on,got my new windows horray!! my ex boss calls me up out of the blue& said their pulling out of our old 401k program"coast to much to matain",,so i got to roll it over to a i.r.a.,wich got me thinking about WHAT i'm i gonna do? with working& stuff? my mind fine,i can get around& stuffcan't imagan collecting for 30 yearsintill i'm 62 witch is 30 years awaywhat to do?thats a nother life time,have to find out is it aganst som kind of law to have a ira if yo

Guest

January 13, 2005

0

Linda 315's Blog

Good to be Home

Well, I survived Florida. It was wonderful to see the parents but painful to witness the aging. Here, I was anxious about not being able to take them and do for them, and they have definitely slowed down themselves. Getting away from one's routine is good for the soul. I had time to examine really what's going on with me and I've come to the conclusion, that I still have not accepted having a stroke. Everyday I'm *beep* that my left side is weak and feeling weird. I'm expecting to wake up a

Guest

January 12, 2005

0

Living here

There are days I want to run away. Today is one of them. Since we have been here helping my parents, every thing seems ok on the outside. But deep down inside, I think we made a big mistake. Jay got a job at Home Depot and he is dealing with it ok. I know he isn't happy about it and I wish I was the one working. I need to work. I am going absolutely stir crazy. Last night my dad was drunk and he told my mom he hated what we were doing to them. That we only wanted their money. Man, that

Guest

January 11, 2005

0

Rewriting for Idiot Computers

For many years I wrote letters and stories and they were disappeared. I don't know where they went, I was simply writing as I used to in a typewriter. Now I have learned how to write again on a computer and I am no longer an idiot. January 10, 2005 - 7:25 p.m. What is an idiot on computers? Whether you are a stroke/aphasiac, or a caregiver, or a "normal" person the best answer is about to paste messages, I get angry when I am writing to post a message and it disappears, even trying

Guest

January 11, 2005

0

sam/boston's Blog

happy monday

horray!,, finished putting my food away spent way too much,but i'm good for the month & that was the plan in the onset,i got my self a stewing pot YAY!!,now i can make stews yum.... lamb stew oh....boy!!,i finally get my new widows to morrow,the've been saying that since i moved here it's finally gonna happen,hope they don't make a mess

Guest

January 10, 2005

0

Angels in Dentists

January 10, 2005 Yesterday was my birthday and it was terrible. I usually do something special like going to a good restaurant or go to see movies, but yesterday I stayed home. The problem was my pain on the gums. Last Tuesday, I had to visit a periodonist in New Jersey, to check my gums and teeth as the expensive dentists told me to do in Long Island. I emailed 3 periodontists, and just one answered, his name Marc Gordon in Lakewood, N.J. I had emailed him that I live off from SSI

Guest

January 10, 2005

0

Surprise by Design

Today at 10a.m. the heating system guy was here. My head is swirling with facts of Propane vs. fuel oil. Not only that I also have to remember it is a small tiny little space I am working with. I have it in my head how I want the layout to be, the other half has his vision. These visions are not one and the same, not even close. I am trying to design it with my living in it alone, disabled, he is designing it with the speed of a slow day at a McDonald's drive thru in mind. He wants to get it

Guest

January 10, 2005

0

Thoughts on the day after a party

No wonder I want a divorce! It amazes me everytime the point is driven home, that I actually at one time stood in a chapel, knees shaking, heart pounding from excitement that I was about to marry this man I now can't wait to shed. It is hard to hold on to newfound understandings of my feelings. I am different now, true the stroke changed me. But I feel that every time I have a lightbulb moment where the light shines into the dark recesses of my mind and I see something for how it is now. I nee

Guest

January 10, 2005

0

The Morning after a Party

Well if you judge what my entry will based n the title.... No, I did not have a different partner in my bed this morning. And no, I did not have a hangover. Although the second could have easily been the reason. I did try a new shot last night called a "backslide", I only had one shot as it was potent stuff.But it tasted good and didn't cause me to shiver or grimace on its way down my throat. I can remember doing pitchers of Alabama Slammers and every shot I swallowed made me shiver. Backslides

Guest

January 9, 2005

0

Weirdness -

My entire left side is sore today. The joints hurt, the muscles ache, and I'm feeling a little lopsided ... it's weird because my right side was effected by the stroke. I don't even want to drive the three blocks to the grocery store, I have tuna in the house so, the cats will get fed, even if we've run out of cat food. Two more days to go and I hit the six month mark, maybe then I won't worry about every ache and pain. Every time my face "tingles" with the onset of a "hot flash," I want to call

Guest

January 8, 2005

1

sam/boston's Blog

whaaa!!

my little freind upstairs died(complcations from a seies of small strokes) she vouched for me to get in my place( don't know how much weight she had,but i got in so it musta had some bering right??, her goofy son didn't tell anyone,the main office or me(he's been spoungging of her for years now(he's got nowhere to live( 40+junkie loser!!) i saspect he'll be ring my buzzer at some point..it is winter,maybe this will force him to get his sh*t together,don't know if he's still using.but he's(sadly

Guest

January 7, 2005

0

louise.kenworthy's Blog

Appreciation

When I had my stroke, I had been with my boyfriend for only a month and has been there for me for the last 4 years. On October 2nd, it will be my 5th anniversay for that day. On the day every year, I do something just for me, just to remind me of how far I have come. This year, I want to do something for my boyfriend that will show how much he has supported me. Any ideas? Louise Kenworthy

Guest

January 7, 2005

1

time - and me

I've been thinking about botox lately. To lift my crooked smile and droopy right eye. The husband says no one can tell, but me, I know the face is different. I used to use creams and anti-aging potions, but now what the he**, my right eye looks like it has bags under it no matter what I do. Am I whining? - you bet. I cut my hair because I couldn't hold a curling iron, I haven't done my nails in 6 months, because I paint the cuticle and half my fingers, and I've switched to wearing pants everyday

Guest

January 7, 2005

0

louise.kenworthy's Blog

My story

Hello, my name is Louise. I had my stroke 4 years ago at the age of 17. The only thing I knew how to do was to get on with life. My stroke left me with speech problems, cognitive problems and mild perception problems. However, after 3 months of sleeping, I went back to work and managed with it. 11 months after my stroke I went back to college and then progreessed onto Uni doing occupational therapy. I have had diffuculties but just got on with 'normal' living. Well, that was until

Guest

January 7, 2005

1

Today- day one

Well history is being made, my first blog entry. It is 10 a.m. and I am showered and dressed. Wonders never cease! Well really we are refinancing our mortgage and today is the closing, so I had no choice but to be on the ball today. Once we refinance, I'll get a line of credit to renovate our small barn in our backyard into a small little house for me. I'm excited about renovating and designing and decorating the barn. It is a whole new life and chapter. I'm looking forward to it. Actually I'm

Guest

January 7, 2005

0

×

Browse
- Back
- Forums
- Blogs
- Gallery
- Events
- Guidelines
- Staff
- Online Users
Activity
- Back
- All Activity
- Search
Donate

×

Create New...