Considering that Bill was released out of the Hospital to begin a new phase of Pallitive Care only.....it was a bittersweet Chrismas. We are sure or at least relative sure this will be our last Christmas...Christmas eve it looked like maybe that would not be but we got better control on the pain and we had a nice Christmas at our Grandaugters....Now we are looking to ring in the New Year much the same way We sleep as we can . I average 2 hours a night most nights if that The cancer has s
LeahI do know about all the knots in the stomach. Bill is now just starting what will be his last chemotherapy option I swore I could never go from being the cared for to the caregiver and slowly but surely that is what I have done. Out of necessity there was no one else to do it and it had to be done Now at last the home nurse comes to check on him every week now that he has this pump installed But again who would have dreamed that my beloved darling Bill could have survived his devastat
Today was Valentines day I am really getting emtionally drained wondering is the the last......fill in the blanks So we decided that unless something really stands out last years (fill in the blank) was the last The chemo went upside down the week before and we had a real scare but this last week we seem to be well enough they changed their mind and let us have the infusion of chemo Our Primary care does not feel that with everything all in all that there is the amount of time they mention
Bill siees to be tolerating the Chemo as well as to be expected. We are getting a food basket prepared for us once a week from the wonderful ladies in our church It all helps I am so NOT prepared to be a caregiver and yet I must not only step into the role I have to excel at it. Thursday we find out if they schedule another 3-4 weeks of chemotherapy for Bill. He is doing ok on it Each session leaves him a bit more vulnerable and less able to get through the drill
I have thought so m
We went to schedule the surgery and they took is in a little room and gave us the news the new catscan showed the cancer had metastasized to the liver in a big way with serveral lesions and tumors also the lung had a fair sized spot a suspicion in the throat and at this point with pancreatic cancer chemo is the only option left We are looking into holistic altertatives Their opinion is if the chemo works maybe 4-6 weeks if not less Please keep us in your prayers I am pretty much a mess a
Tomorrow we are to be at the hospital at 7:00 am and get the blood work out of the way then its off to meet the Gastroenterology surgeons to see if surgery can be an option or its inoperable The uo to get another MRI to see how the cancer has grown in this time of necessary delay. I am counting on your prayers being with us both Frankly emotionally its not been easy to reman positive all the time Human nature is sneaky that way and you find yourself asking the what if questions Love you
I promised that I would not write another blog until I had some kind of news one way or the other regarding the results of Bills Biopsy. It is confirmed my husband as Pancreatic Cancer They will meet with us to discuss the coming surgery They will be taking the mass in his liver which was benign and they will do their best to get what they can of the mass in the pancreas They will take all they can get and clean it up as best they can doing chemo and radiation for the rest They also wil
This is not FUNNY anymore. First of all let me tell you yesterday we were in a rear end collision accident that will most likely total our vehicle. Our Grandaughter was in her car seat in the back She wast getting over the Strep Throat so we took her to her Pediatrician Got another Script went to go to VA Hospital to ge Bills medication. Prayer for him please as he awaits the Biopsy That will be Dec 15th Then we will know if we are dealing witn a benign mass or Cancer. He still canno
Its the night before Thanksgiving and for the first time in years Bill and I did not make it to the soup supper at our church. Many things are different in our lives right now but I want you to know that you all are a huge part of our gratitude list this year I dont know where we would be without you all but we would not be in as good a place as we are in as we face Bill upcoming surgery and whatever that brings God Bless you all Love all good things to each and every one of you Karen
I have sat here for what maybe 10 minutes I have a million things running through my head. Bill has not had his biopsy yet his primary care doctor admitted that Gastroenterology must have messed up Its not scheduled and for certain the notation is there to do the Biopsy and refer on to all all appropirate departments based on results and decisions for continuance of care. This is my biggest road block ever in life The tallest hurdle the biggest test I have ever faced If its pancreatic
If you are very fortunate and meet and marry your lifes love you will build the years one on top of another year after year. Bill and I celebrated our 41st wedding anniversary yesterday on the 15th of June. Isnt that really something 41 years if you count dating 43 Love Karen
Each day I wake up wanting so bad to be able to do what I was before the latest stroke. Dont get me wrong, I am so grateful as well I should be. I am not quite as dead on the right side as I was. I thought Id try some juice without the thick'n and that was not really that great an idea. I am really glad that I have the scootie as even short distances are not managable without the walker and even that is too tiring. Even so with all of that it is the central pain issues that are getting to
Well life is settling down again once I saw my fried out the door. It seems almost immediately It was complication after complication for my darling Bill. If anyone ever deserved to get SSDI it is my Bill it is so difficult to manage with Post Polio and Palendromic RA and being deaf.
I dont know if you all have read either in chat or in the forums I am having a time of it with my new doctor. I have got to get this all resolved or tear out what little hair I have left. I went and got one
It has been far to long since I have blogged. Since I last Blogged our daughter in law went through Ankle surgery and our Grandson Robert has had a total knee reconstruction. I spent 6 weeks in Arizona and the same friend I went to visit has been here since a few days prior to Thanksgiving. My friend lost her job within a week of my arrival in Arizona and to say the least she has not been the same since. She suffers from Fibromyalgia. Apparently stress is very difficult for those who have F
I told you all about our grandson he will be having the surgery at Childrens here in Denver. Rest assured they do offer the very finest care.
Then not to be outdone Grandma tried to see to it that no one could outdo my foolishness and I stumbled, I did not even totally fall, but I reinjured the ACL and The MCL and all that so what they beleive will be recommended for my situation is a total knee replacement. What hurts most is the pride at the moment. I have a trip planned to see my
Whoa! The last weeks have been lemons and trying to ever be the positive thinker I have lemonade by the rivers full!! Bill is having increased issues with his Post Polio and it was recommended by the VA that he seek Disability though Soc Security. He has rapid deteroation at the spine due to the Polio when he was a child.
Of course this would run tandem to a bumper ...crop of lemons of my own. IE The toohache is still not resolved as they do not want the risk of surgery and that
Time to Blog. Whew its been a whirlwind with Bill issues and mine lately. We are persevering. Wesley got me all fired up and Bill and I went to the pool today. I have to tell you in the shallow end it was not to bad. I am not ready to swim. Thats okay if at first you dont succed try try again. . You all have a wonderful summer or what remains of it. Karen
Its been awhile since I have bloggedl For all the climbing I did the rollercoaster just poof to the bottom. After our sons collapsed lung our other son has been having some real difficulties. His wife remains unemployed and the finances are not stable in his line of work. Believe it or not we have not had the boat out even once yet this summer. We wont until something resloves itself regarding this tooth. We are having despite it all a wondeful time this year.
I am suffering from so
Yesterday afternoon we planted a tree in our yard. Let me back up and say we were serving many needs to plant this tree. Due to our neighbors complaints "Big Boy" was cut down his trunk was over 6 feet across from one side to the other. In other words his waist was bigger than mine!! He was a nice tree when we moved here 19 years ago But nothing like the day they cut his life short. We just celebrated our 40th anniversary and our great grand daugter was just born. So a new tree was in o
Bill and I will celebrate 40 years of marriage on June 15th. How is that possible we cant even be that old can we. Its been a wonderful forty years no matter what bumps were in the road. We have two wonderful sons and 3 grandkids and 1 brand new great grandaughter. I keep promising myself to get pictures of us one and all posted With all that goes on in our lives it seems I never really find the time. Its still on my to do list. Its times like this that make me so glad that I have the
Well we went camping in the Colorado High Country and believe it or not we made it back in time. Our Grandaughterwas admitted the day we got back They induced labor the next am At 5:22pm Madison Marie Packer came into the world and stole all our hearts We feel so blessed Mom Stephanie is doing great and so is the baby 6lb 9oz 18inches long and she has her mommies head of hair. I just posted this little darlings picture in the family section of our Gallarty Love Karen
This weekend I went to my Granddaughters Baby shower. I dont think she will go past her due date of June 8. We are getting excited although there is a difference when its not a Grand Child but a Great Grand for one thing it reveals our age. We know that it is supposed to be a girl Madison will be her name.
At the Shower I became over stimulated and could not pick up silverware or release it or do anything. Finally as frustrated as I was I started to cry. I did go off to be my mysel
Last week my husband took me out in the Motorhome unexpectedly and that is always a wonderful time. We thought it would be to cold for the boat but lots of Boaters were out on the water along with some really rough tuff Jet skiers. It was a wonderful time. We ate what and when we wanted and took some really nice short walks. If only every day could be like that. Its times like that I so appreciate my life long soul mate.
We got home just in time to do Mothers day. Wow everyone got me
Hi, This is my first shot at blogging. First let me say that I love reading the Blogs. Now if I can only rise to the occasion. We all need some help from our friends. The last few days I am been so very down hearted . Its a long story but I had long before my stoke joined a very divisive forum regading a situation close to my heart. This forum allows pretty much every thing. My life was so miserable becase of one the contributor members who does not agree with my position. Publically h
