So after talking to my doctor about my Raynaud's and when he looked at my feet, after being in my thermal socks in a faux fur boots, my toes were already blue. So we're kinda thinking it's more stress related. Starting around July, I start wearing sock and slippers inside and warmer socks when temperatures change. We both were perplexed about my toes because , for most people and before it got worse, the pain only came when the blood returns, whether with clothing or in warm water, and that is
Well, I did a fast trip to Florida to attend my first grandchild gender. Apparently, I was the ONLY one who didn't know. But it was wonderful. I cried for I was looking at my baby and knowing he was a man and a daddy. They had a die dust bag they put under a truck tire to do a burn out, spinning a tire on concrete, which made a TON of smoke and burning rubber smell/ YUCK .
The travel down was interesting, to say the least. I flew from Philadelphia to Dallas/Ft Worth.. first. ( all i
This weekend was my family reunion. This one was harder than ever for it was the first year without both, if not one, of my grandparents. I was looking at my grandmother’s chair and imagining her sitting in it while my grandfather was next took hers, both drinking wine and it watching golf…. With the sound off. We never understand the sound off but who were we to question.
My family could sit around a couple of picnic tables…well maybe more for more little ones running around now. The thing
Well, this Sunday afternoon I fly to Florida to finally meet my grandson. It's so weird to say grandson. But I love that I'll be a Mimi. 🙂 This little guy has been through a terrible first month but he'll be two months this 18th.. I sadly won't be there for that but I'm eternally thankful for his grandparents opening their home to me. It'll be a good visit.. HOT.. yuck
Well Monday I go back to work for the first time in 9 years. As we all know, living on Social Security and single, is very difficult. It is so expensive to live in New Jersey, or any where for that matter. Don't get my wrong, I'm thankful for what I do get but it's so tight. I know when I finish with orientation, two weeks 70 hrs., I'll go to part-time so I'll have down time. I've been trying to stay busy everyday to get adjusted to staying focused and that hasn't really gone as I hoped. I'm go
'I really do care honest' is what I say to my friends and family I do not talk to on a regular basis. I often feel that I am the one who is distancing myself from others because I can't make plans nor care to do what I once did ( i.e. dancing, going out to eat) for I get sensory overload quite easy. Now, I know that my family and my dearest friends understand I am not the same me after all of these years.
Ok now I got that out of the way.
" I really do care honest" is wh
So while I was driving at night, around 11:30p leaving work last night, I saw flashing red and blue lights in my rear view window. As always I was very nervous because of having a hard time seeing at night. So the black and white had EXTREMELY bright spotlight shining in my side mirror that pointed directly in my eyes. I already had a head ache and super tired. I just worked 3-11 after working all weekend. The officer, or first officer of 4, yikes four, knocked on my driver side window and a
Well I finally have the Dragon software successfully added to my computer, which helps me with my posting for I have trouble getting my thoughts, no matter what size, from my brain to my fingertips .I wanted to make a blog entry for I am very excited for my mother and I are going to be traveling to North Carolina next week to make a surprise ambush on my sister for our birthday. She has two children, one of which is still in high school, who are bottomless pit. Basically meaning they eat everyth
I haven’t blogged in a while for it’s a struggle for me. I lose focus very easily and when I say that, I mean it may have taken me a few times to write this. I have always had an attention problem. “To much sugar” or “She is flighty” is what I always heard growing up from people but I actually had ADHD and comprehending challenges and they weren’t talked about in the 70’s and 80’s so the older I got I struggled in school and in social situations a lot. It was hard when I could do the class work
It’s been a while since I have made a block here. I am been in a funk. A funk that I don’t often talk about and I try not to talk about on the website. I try to always be happy and cheerful and I love to encourage other people. But as of late, I am been in a deep funk. Akin to a depression. In bed , can’t quite get out, however I do you go to work on the four days that I do strictly because you have to make ends meet. I guess it’s just the 810 year itch you could say. Coming to terms that I ha
So my father and I went to Philadelphia to visit my Neuro Ophthalmologist this afternoon . I always have a great time when I have my ‘Daddy/Daughter’ day trips. Most have been to doctor appointment but always a good time. So. I see a doctor who, in my opinion, is the greatest eye doctor ( But I’m Bias lol) and after going through a barrage of testing my vision we determined that NO prisim will ever correct my sight for I have Nystagmus ( eye bouncing) that basically makes seeing a single objec
I had my eye surgery that I have been waiting for since my stroke. Realignment of my eyes from double vision and hopefully correcting my nystagmus or bouncing of the eyes, mainly caused by nerve damage from stroke. Eight years of wishing came down an optometrist who referred me to a neurologist at University of Pennsylvania hospital who in turn referred me to a surgeon, also at UPENN, that for the first time gave me a glimmer of hope and a surgery date. You can only imagine how excited I was and
I know that I have been so excited for my eye surgery and I have to be patient but I have to admit I would have never done this if I knew how terrible it was going to make me feel. i have NEVER felt as sick as I do know..EVER. I had morning sickness ( what ex husband and parents told me) and they have collectively told me I was not that bad. I'm guessing because I wasn't a "Strokie" Well every time I look,move,eat,breathe I feel like I'm going to vomit. I hate to do that but I would rather vomit
So my parents invited me to see a concert of two bands that were big in their youths but I like as well. The Doobie Brothers & Steely Dan. I was worried it was going to be to over whelming. But then I remembered : 1. I was hanging with my parents ( who are very chill) 2. Most of the folks that were going to be there would be , generally, over 60. We arrived about two hours early for I had a doctors appointment before the concert so we decided to tailgate. Our tail gate entailed of hanging
I don't blog but as I sit here at 1:13a ( EST) my mind was thinking of how "easily" I was able to change my sleep pattern. I say easily with great skepticism. Why? Well I do have rough nights when I don't take my ADD medications.. ok so why can i do this? Coffee? Given. But I was always a night owl. Living on 2-3 hours of sleep ( mind you this was pre-stroke and pre ADD meds) and indulging a 'breakfast of champions" which consisted of a bag of Doritos and a can of Mt Dew. I later found out it wa
Thanks Sue for the push to write.
Blogging has always been hard for me. The words don't always make it from my brain to my fingers. HAHA. Some would argue that the word don't go from my brain to mouth. I would have to agree with that one. I never seem to have something to write about for the thought doesn't stay in my head long enough. But I'll try:
In March, my mom and I are driving to Florida, via North Carolina to stay with my sister and family. I was going to fly
I had my surgery December 14 and yes my mom was able to come into the waiting room and she was able to come back into the pre op room for a moment. She waited in the waiting room and my father sat in the car( his choice) and read . I think my surgery took roughly 2 1/2 hours. I think I saw her after my surgery . I think I messaged a friend, I was very medicated. I then was taken to a room for the night. Reason being I got out of surgery to late to fill my pain medicine. My pharmacy closed at 5p
Today was a great day, and to be honest, I don’t really comprehend it. I went to see my doctor who did my gastric sleeve surgery. The fact he came in and was very pleased made me feel better for I cheated BIG time on vacation. The only thing good about that is I can only eat so much before I get sick feelings. My stomach really isn’t that big any more so that helps because those Cheeses were amazing... (Thanks mom.)
My parents drove my son and me to the doctors, for I still can’t drive becaus
We all get unknown callers and thankfully our cell phones have caller ID. I haven't had a land line forever. I was paying for a land line and I understand in an emergency that is ideal to have but when I did ALL I got was spam. Back in the 90's and early 00's my family, who lived in another state(s) away, we often sent a fax .. ( remember those) for none of us, family, were into small talk. EVER. So we'll write it all down and say it in a note, If follow up was needed of course we'd call. Now, I
Well the day finally happened. My worst fear. I received a letter regarding my healthcare. I get a subsidy to help pay for my premiums to have insurance. I have to look at all my doctor’s share the same insurance, I also have to get a premium coverage that allows me to go out of state to a better hospital system that specializes in stroke. Well I have, as well as everyone who gets Social Security Disability, Medicare part A which basically covers hospital and other basic needs. I’ve never used M
I would like to a share story happened to me Thursday in my group meeting.
There were only a few people there but there was one woman in particular that caught my attention. She had suffered multiple TBI’s and I can’t remember if she had an aneurysm but I know that she was very upset and in pain. Her multiple TBI’s have basically left her walking as a cripple, let me explain, who has multiple sclerosis. On top of which, she broke her right ankle a few months ago and it still has not
We all know a Hypochondriac, I mean many people who have had a medical emergency often are said to become obsessed with their health afterward. People often accuse me as one but I have legitimate medical evidence from testing due to symptoms that usually come from these diagnosis. Ok…Lactose intolerance, soy intolerance, gluten intolerance and diverticulitis. The latter was pointed out to me from a colonoscopy for I had no idea. My doctor informed me it usually runs in families and my father has
