well it is officially NOV. , and we both have a stomach bug... ( personally i think we are both reacting to the flushot we got earlier this week) but we both have diarrhea ... now for me i can "run " to the bathroom, dan can't... so we are entertaining.. Dan is depressed and feels bad ( we have a bedpan) but that isent working so good either, poor guy is so embarrassed... it really doesent bother me , but i found a bedsore on his "bum" from all the irritation from washing and wiping.. hoping tha
I cared for Dan until I couldn't any more. I visit him,I love him -But man- o- man , this is hard. It is hard because I am his everything . He lights up when i walk into his room. But that responsibility is hard on anyone. It kinda like a toddler who has figured out the daycare routine, and dosent like mom leaving. But that stage passes as the child gets older.
I know this sounds critical of my husband, He is cognitively impaired, as well as hemi paralyzed. He has the worst case of OCD tha
I have a nice yard - but have been working on switching things around moving the flow of the yard so to speak… and that is requiring a lot… and those darn little wood chippy things the previous owner had are nuisance so i have been getting rid of those…… when i am done i will be able to have a garden … i got rid of the swimming pool don't need it - more things to maintain and i found a very happy family to give it to ( the family who bought our farm) so kids will enjoy it… Beth is a little bumme
Dans PT moved Dan from a severe fall risk while walking to a moderate risk today.... I also notice he is so much stronger and steady when walking with the quad cane of course.. the PT said he just seemed more balanced, and i do have to agree.. although factoring in the no antecedent seizure risk takes him right back to a severe fall risk... but all the PT is helping and we will be two years out from stroke date in March -- so yep progress will continue- plugging along slowly, but, at least we ar
OK folks --- here we go...Dan had another grandmal seizure ... and i have often wondered as we caregivers do. I wonder what i will do if ________ ( fill in the blank happens).... so now i know ... I and beth were in the bathroom with him... Dan has been refusing to drink or eat again .... day 3.... but we lost our wonderful friend ( wwII vet) and i wanted to go to the viewing to introduce this news to dan ... so he showered , had just finished brushing his teeth and BAM -- grandmal seizure. I a
Thats my Dan - hard working.... Right now he has rededicated himself to rehab... speech more than anything, but really enjoyed his PT visit... and we are putting in for more PT visits at the hospital with a aid so he can walk on the altra G .... thats what he needs most repetition .. The speech guy that comes to the house is excellent - young, hardworking and Dan literally lights up when he comes... we are appvd for 3 visits a week through March.... and Dan works and works on his iPad apps for s
ND is flat - and windy , nothing to stop the blow, not even trees for the most part…. so virtually everyday in ND is windy… but this spring has been colder than the norm as well making the things like stain the deck or paint the picnic table ( it is 23 yrs. old my dad made it days before he died so we have preserved it well- and we take good care of things ) so i have accomplished a lot between running back and forth checking on dan - watching the camera and cutting trimming hedges and cleaning
dan had a good nite... so i left and took my sis back to fargo to the airport, did a few errands in the big town... whie at the air port dans surgeon called and said dan has a compression hernia ( very visable on the outside) much less the inside now that it is marked.....and maybe this is his issue -- he i still running slight fever.... and tired...... so i am excited hooray the monster has a face !!! get back from fargo - he had been sleeping all day... woke him, cleaned him up. and then the
my poor Dan woke last night with the worst type of nueropathic pain centered in his foot/toes of his affected leg..... rubbed it, warmed ( with a heating pad) - in the end it took 15 mg of valium and 10 mg of oxycodone and 600 mg of gabepentin to knock it or him out.... and he was asking for more pain meds ( and he hates pills ) ... boy oh boy - he writhed in pain from 0330 to about 0700 .... i knew we would enter this stage of after affects of stroke - he has always had the nueropathic general
Dan had a little tantrum with his care worker today - and fell out of bed… He wanted her NOW - to clean the bathroom, but she was folding and had asked him to wait - Dan decided to "show her" he was going go do it himself.. i guess, she came in carrying towels and there he was sliding off the bed - end result he sprained his ankle.. He is hurting tonight - poor guy, and we have been planning a trip to AZ - now I don't know whats gonna happen… wait till morning, I guess to decide… so far his pai
So I had a seizure on the 4th of July…it was complex partial. Scarey as you know what. It started by feeling light headed then it made me twitch like every where i would look it would "flash". I was trying to lay my head down on the counter close my eyes. But the twitching wouldn't let me…. I did manage to say to my sister I think i am having a seizure. then my head shot back and i couldn't breathe for just a moment - emily was hollering for a friend to help her . They unplugged the neon light a
well dan is now refusing his meds-- and he will not drink his supplements or eat -- so i'm going to have to make a decision... do i have a g- tube put in? it would solve the hyderation,nutrition and medication problem.. but it takes away more control from dan who is already with none..is it right to impose a medical procedure on him cause i can ( i am his legal gaurdian with medical) so yes i can make it happen ---- but is is right?? It is a big dilema... a moral dilema... remember although d
so i got to go to fargo today with april and weston and wade.. to keep an eye on weston so wade and april could visit with wades family as his dad is very ill ( prayers please). It was good being grandma, and for once being able to be of use outside of him coming to our house. and he was a very good boy.. i enjoyed my time... Dan was home with his other 2 daughters. it was a IV day anyhow so he usually just stays in bed as the fall risk with the IV and the port being damaged are scary and instan
so where i blog -- and she i respond to my bog and even when i responded to linns blog under my name it says 0 warning points -- no one else appears to have this under their name … what is that about ??
well we made it the entire time in NY-- seizure free ( except for one night - dan might have had a small one) but dan had a grand mal seizure yesterday at 10 am.... I had gotten up at 4 am vomiting YUCK--- then the "runs" started,- more YUCK... my 16 yr old stayed home THANK GOD from school to help out- of course i blame her for the bug in the first place. LOL but i got both vomiting and the "runs" at the same time - decide to do a quick shower.... before the routine starts all over again... i
well we are here at the new condo--- still have things to do at the farm but the house out there is all cleared out..the farm hasent sold we have had offers a low ball and a young couple but fmha has changed the critera and the out buildings - quonset and barn make the place ineligable for that paticular loan ... sooo makes it a little tougher... but i have a dilema jamestown nd where i live has just been chosen as the site for a billion and a half dollar fertalizer plant ---- so this will chang
This will be quick, really, me, be quick ??? my trip to AZ awesome, awesome,awesome…. had some trouble at the airport ( in ND) but God even made that work out… Dan was ill mostly cause i was gone, i got home and he was asleep 20 mins after he knew i was home…. lol……. I met some amazing people on spiritual and personal levels…. Dan seriously got "taken care of" by MRS. North Dakota for a few hours… LOL - she crawled into bed with him and watched price is right… remember we have a dual split bed..
cant sleep, cant toss and turn or i will wake dan so i get up and check the internet out... i used to read or watch TV prestroke .. now i just dont have the concentration...s o i just thought i would share my sleeplessness with you all.... Hate this, i need the sleep and am tired but well, you know the feeling the millions of - what if's -that run through our minds... and to top it off i yawned and messed my neck up ,what the heck !!.... I do have my brief vacation planned -- more stress planni
for one day i wish "others" ( defined as former friends, family ect.) had to do what we do everyday..not only as the caregiver but the person who had a stroke.. if they knew how mean it is to see you there and walk the other way because it is to hard for "them" to say hello. if they knew how hard it was to go into the opposit sex'es bathroom to assit your loved one.. if they knew what it was like to constanly walk and only be seeing the world as hurdels like the lip is to high for the wheel chai
so it is sepsis.. and a bad one...... they had cultured his blood and got the class of bacteria identified but not the specific bacteria yet.. that will take a little more time... so they changed the cipro to some other drug i had never heard of but the doc said it should take care of the bacteria class... this is what i comprehended but trying to explain it to others a little more difficult... anyhow, his blood pressure is still a issue they bolus him it rises and then drops..they bolus him ( m
I know better than to say - all is good........ that is a karma set up - not really i am not that superstitious although i believe in the "judgement" after our death... enough ( way , way to controversial ) ... still learning about the hyderation issues with dan - it is like the more his body gets the more it wants/needs... his mood is OK - mine is in the dumps I am so sick of this weather.. and would love to just be in AZ but - the grand baby - is here.... yes i have another in MN but they are
So my darn little yip,yip ( dog) gets out again.... Yes it is a daily issue..he runs straight to the field and pasture.. And mostly just snoops around the area...but I got me a neighbor who has not enough to do.. He is fourtyish with his own health issues.. Obesity and diabetes.. We are both out shoveling snow.. Now mind you I pay 200.00 in condo fees A month
for this service?? But whatever it wasn't much and the exercise is good.. The guy comes over to me and starts yelling at me about the do
so april bought tickets for luke bryan ( country singer) and since everyone is kinda "sickly" around here it was a toss up between beth and i going. I although i wanted to spend time with april and erika it takes a lot out of me to go to a event like that. I do well up till about 11pm then i have got to go to bed... and i am sure it would be at least 1-2 am before we got home from fargo from the concert.... so in the end i convinced beth she should go, not to mention i want the girls to have "s
I haven't posted in a long time. I just can't hardly do the sadness anymore… Strokes like Dans are so all encompassing that it is for the most part all i have been living and breathing. And I think I have suffocated myself with it… so i have been going out more, doing more and unspoiling the baby as my girlfriend says… Dan has been getting his meds adjusted.. who new set of meds so he has been tired and despondent. I have no idea whether or not to expect light at the end of the latest medication
so the lexapro finally has the anxiety under control …… so i don't sit and just tingle and be hypervigilent all day… I went to the doc the other day who just gave me the most genuine smile and a sigh. H e said I wasn't sure I would see you again. Apparently many people who enter the blackness I did just never come out of it or commit suicide… I guess I have been suffering from the true black depression , not the blues but the kind that actually alters your reality..mine did… my body felt literal
