had a bonfire last night just dan and I ... beautifull night... dan was so relaxed and we just snuggled out there.. It was almost like old times... it makes me long for our old life... although i agree i can build on our new life but - i mourne the old ( still)... But if i want dan to learn to accept the new life, i need to accept it..and i have, it was just a bittersweet night it felt so almost right... but you sit there and look at the sights you have looked at before and it has all changed so
dan seems to be feeling a bit better.. we seem to be on a schedule of one day on one day off.. we did a lot of stuff yesterday.. and it was nice but today he is down not so much with depression but just plain tired.... I'm not really complaining - although it holds up the entire families life for a day and we pretty much live around dans unpredictable schedule... Sunday was also a good day though we had our grand sons first birthday party... lot of fun dan seemed to enjoy.. he roosted on the dec
dan has been sick for the past couple days with a terrible congested cough i had a girlfriend come out and take a listen and he is full up but it is still loose and if he would cough and deap breath he should be ok..... not deep breathing is what got us here.... a couple weeks back he had a seizure and his are of course grandmal so he seizes so hard he can actually hurt himself... well his left side has been hurting from the seizure so he doesent deep breath so here we are... gonna make him go o
well here i am again--- finally broke the food strike--- he had overheard me talking about his stroke - when it happened and the idiocity of the docs... and felt if the docs wanted him to die way back when then maybe i should... well finally got that talked out and as many of you know with aphasia this took hours-- got him up showered out the door. and then we go out to eat ( our only recreation -well one of few) and he forgot and returned to the old "locked in depression" i got him into the re
well here i am again... Dan is refusing to eat or drink...... he does drink his supplements and take his meds--- thank god ----- we even had a agreement today he would eat--- but no- not today... it is 90 some degrees ( yes in ND) and humid so this grounds us at home as well... i cant risk him becoming more dehyderated than the slow decline he is doing to himself...... bearing in mind with the stroke/braininjury he does not see it the same way... he gives no reason, demands nothing - not trying
those were the words my husband said this morning to me!!!! he has indicated his love for me for a couple months now but this is the first time i have heard my name ( spontaneously) in well over a year !!!! a lot of you know how severley dan is affected so you know my name is a big hurdle.. im so excited i called his speech lady who started to cry... Horray....
so we are cruisin along-- starting to accept things - dans doing everything he can-- meds, eating , drinking, therapies..... I'm doing everything i can all the same stuff PLUS ( as most of you know the PLUS of caregivers)... decide to let dan feel a little productive... he is happiest when he feels usefull--- then BAM here comes another seizure.... wipes him and me out physically and emotionally ( dan from the seizure itself me from the heart attack I almost give myself each time)..Oh we will ge
dan and i have both had terrible colds this weekend... he has therapies scheduled for today--- i hope i can get him to go... he has been in bed for 2 days laid up with this darn cold... me i've been napping off and on and my house is a pigsty.. funny how quick that stuff back slides.. i guess they will be laying cement over this coming week.... so it'll fix up my sidewalks and driveways - i'm calling this my year of destruction around the farm.. lots of changes going on to improve the palce and
dan has nueropathy... and it is what has been affecting his stomach and it is a big part of his phantom painb.... you know the we were at the ER 3 times ... i guess when i though of nueropahty i always thought extremities.. not really true it can pretty much go anywhere there are nerves and we have a lot of nerves in our abdominal area... so since at least last nov... he has had issues off and on with his stomach and depression and not eating...and not drinking... well without him able to artic
dan has had massive depression for months since november---- latley he is doing better after a 3 times in one week to the ER for stomach pain... now i knew his stomach , intestines have been partially paralyzed fro some time... i did not know that the drug regelan could help with that----- it keeps the guts moving essentially... the problem with relgelan is side effect tardive dysconegia ( very bad) and seizures ( already got that going on)... since staring the regelan he has been so much better
dan still is happy with purchase ,, went to casino today,, i'm getting 20 mpg no kidding .... which is almost as good as the acadia gets and better than my pickup..... i hope i'm doing the right thing--- feels like it today no buyers remorse yet... oh yah and 100.00 per yr to insure cant beat that!!
well hopefully i'm doing a smart thing or i'm gonna get an expensive lesson... bought a motor home for dan.... hoping to create it as a saftey zone for him when we go places he does not necessarily want to be... funny the lady i bought it from used it for the same purpose her husband had parkinsons... time will tell... since dan started the reglan he just seems to be doing better, physically and emotionally... i guess when you are always constipated how happy can you be right? sleeping better t
still no BM ( darn it) even with the glycerin suppositories no urge... i would be super concerned if he ate much but no food not much stool --- but still a whole week now ( over ) actually... nancyl
dan seems like he has had a better day today... went to therapies, went to his moms house picked up some baked goods for our daughters "fargo marathon bake sale" the kids participate in the marathon and have to fund raise to pay for hotels, fees and what not.... now we are home and plan to babysit tonight for baby weston... so today was just a better day... got that glimmer we all hope for ... its the only thing that keeps us going ... nancyl
dan has been in and out of the ER a couple times over the last week... he has this awfull lower rt pain.... everytest under the sun has been done... he just sleeps and sleeps.... I sure wish i knew ... did a scan of his organs nothing.... the man is just in so much pain and so tired ----- he is not exactley uncooperative and actually for once this isent behavioral....i just feel like more and more get taken from us all the time... the stroke and its effects won't go away i know this but can new
