My new roomie said it was nice I talk to everyone. I knew she meant that I talk to those with dementia. There is one lady who has a nice big smile fior me when I see her.Today she burst into laughter when I fussed over her. Then there is the lady I sit with until she falls asleep. I give her a piece of candy after bingo. I bring down women who cant talk to get nails done with me and let them pick nail polish color. It was so much fun getting my nails done.
Then,at night, a cna told me sudden
Taking time to remember 9/11 and what it means to be an American. We expect rights and freedoms and we fight for them. We respect diversity. We recognize we are a work in progress so we value our court system and democracy.
As much as I complain, I am proud to be and thankful to be an American.
Thank you to all Veterans,police,firefighters,
first responders.
Thank you to the ones who came to my home and took me to the hospital where my life was saved.
I believe 9/11 pulled all of us togeth
The man from bingo who was sore looser,who was so obnoxious came by my room to say hello. He said it is not the same without me,that he hopes I will come back to play before he leaves in 2 weeks. He said there is a void without me.
That is so nice. I again am surprised at the imact on another person. I would have thought he was happy I was not there winning,but he said me and this other lady who is my buddy I sat with were like tag team. He must have liked the competition. He is going to VA
Suffering is something I am good at. I ha ve constant pain, not chronic. I am always in pain. It is my life. I am able to color and watch movies and eat and do thngs that they determine are all signs that I am not having a 10 day.
I am in the hospital right now. I had to get myself to urgent care, then they sent me to the
ER and then IWAS put upstairs. cellulitis again in my legs, but this time my right heel has a bed sore. not a blister, this is agony, who will get me what I
Wow just browsing and found the American Stroke Association Magazine called Stroke Connection which is free publication and I was so happy to browse through the online magazine. Lots of info. I feel good reading updated stuff issues and the personal stories.
I often feel I do not have anyone around that understands stroke to teach me. In fact I am the one trying to get them to learn.
I got more PT hooray. I had a sub for one session and I walked on treadmill for second time. She toned it do
I am truly lucky to be both a stroke survivor and the Survivor of a major heart attack and I now have a heart full stance on the right and on the left pulmonary hypertension and lymphedema and and and and I realized that everyday I wake up it's a gift and that means so much now that I'm living in pandemic and I have thought so many times before that it would have been easier if I had not survived the stroke. But my children were angry and said couldn't I see if they were trying so hard to make m
I went to an expressive arts therapy workshop last night. Ok I thought it would be fingerpainting but it was all dance stuff. There I was with a walker right. So I took off my shoes and one foot felt the carpet underneath my foot. We were told to explore that feeling. All I could concentrate on was the other numb one that was getting tingly zaps even though I had taken the Gabapentin. I was on Norco too which is the only reason I can even function and move without pain. But it adds to my loo
Ever since I came out of my room now more often to visit my friends, one of the instigating men that caused the dining room horror,has been under my feet ever where I go. OK,so we are a community here,but he seems to come along to talk to whomever I am talking to,he rubber necks into the rooms I visit,he shows up to get his nails done talks to girl doing my nails,sits by the christmas tree while I had fallen asleep on the sofa right there.
Ok my gut has an uh-oh feeling. I am creeped out. I tho
On Nov 9th I will go in for the Electrode trial.
I am tired of pain.
Risky but I will bet all on table now. I live in agony in a world that sees only weakness in it not the strength it has taken to live since 2014 in pain.
And I need pain pills on time.
So the home has policy that pills given in room omly. I got stuck inthe showers and no pain pill given. Policy first.
I need freedom.
I go in the morning to try the thing.
I am scared.
I must shower tonite. Now this is a problem as usual.
I have new roommate. I have not seen her yet.
My admirer brought me a veggie drink that is horrid. Thought counts. He said old witch former roomie told him I had surgery tomorrow. I said No I did not. It is a procedure
I will be awake.
I will endure pain.
I will feel the nerve bundle awake as tūhey thread wire leads into my spine with a
I wonder if I am the only one who had to go into a nursing home and if I will ever get to live a normal life again. That is why I push and do not accept it when they say oh here is a cane now practice therapy at home. I need to get out of here and have my therapy days. This past therapy the PT said if I do these 3 exercises everyday I will improve. I was not impressed that some squats and headturns is enough. He hurried me along recommending a cane but I know I am even unsteady with my 3 wheeler
I wonder if I am the only one who had to go into a nursing home and if I will ever get to live a normal life again. That is why I push and do not accept it when they say oh here is a cane now practice therapy at home. I need to get out of here and have my therapy days. This past therapy the PT said if I do these 3 exercises everyday I will improve. I was not impressed that some squats and headturns is enough. He hurried me along recommending a cane but I know I am even unsteady with my 3 wheeler
One morning I sat in the chair talking to my roomie after a phone conversation and I was crying a real water shed of tears. Roomie is so kind and relates to me. I feel a sisterhood with her and we prayed together. Just then a maintenance man came in because we had reported our sink was backed up again despite the work they had done twice already. He walked in the middle of my waterworks looking awkward and asked is everything ok. I quickly wiped my eyes and choked back a sob as Roomie blurted ou
My medication was switched with my neighbor friend
But i caught it. Dint take her meds. She took mine. But the nurse said it was tylenol she took She vomited all night and says she cannot keep her eyes open. It was lyrica 300 and long acting opana 10 mg. Opana is not to be given unless prior opiates used.
The nurse said he had tylenol in the med cup and that my cup was still on the cart. I told the next nurse that came on and asked her to check on her as the nurse said she did not know anyt
A woman on the ward died in her sleep. I did not know her well.
It reminds us all that every day is never guaranteed.
I forget about death. I avoid thinking,speaking of that foreign terrifyin thing. Perhaps because I have been sheltered from it really. I pause to it when I must,then living happens. My southern folk were closer to death,sitting with the passed in the parlor,big funerals with caskets. I have seen masses but my family went for cremation. Death is not a natural part of my life.
I had an ultrasound of neck arteries today. I had a whiplash eons ago that showed mild plaque and the tech said it was mild as far as she could see. She said mine are deep,hard to see.
Funny thing is that the methadone makes me pass out. The tech said,we are almost finished,try not to snore! I apologized and explained I am on heavy duty pain meds,it was dark. And the next thing I knew I was jerking awake and turned my head. I really must get off these meds.
Well, I did it!!!
I got my new highlights...I am blondie!!!
I feel like myself. I feel pretty!
My hair has thinned so I wondered what this would end in...
But I am getting so many compliments.
I get short of breath, I walked too far outside on the way to luncheon at a coastal restaurant. I pigged out. So, I came back and slept through dinner. I took selfies by the coast to send friend who sent me money to get my new tank tops. I have a blue striped scarf t
I learned there is program that gives special shoes with pads and you choose from a catalog.go in for fitting measurement. I have probs with feet so dr. wrote Rx. I am in CA. They give pads insoles to change. They even have for AFO and stabilizing for balance athletic dress all closed toe kinds. I am looking now. Hard to decide. Pass the word. when I get compliment on my shoes and tell all this people are surprised. another patient told me.
I am with a roommate like my twin.
We watch movies together , talk during a thunder storm the other night, and talk about how I got diagnosed with stroke pain.
I see her problems that are similar to mine,similar to CPS. But she calls it neuropathy. She is not diabetic. I asked how did you get neuropathy and she said after her stroke, but she never heard of stroke pain.
I
I could not walk to my room after PT. During the short van ride I shut my eyes and music bombarded me out of the speakers. I longed for a nap. My head was "full", I felt nausea despite the meclazine I take. My leg burned with an intensity the meds could not douse.
But I had a big grin and a light heart. Today therapist said I made real progress. I walked at a snail pace on the treadmill today. Cans on the conveyor belt at a grocery check out surely travel faster than I.
Then I played ba
Recently I had to speak up about how my diabetes is treated, I told the nurse I had dr. permission to administer my insulin and I knew how to take care of myself and then she said AND YET YOU ARE HERE IN A NURSING HOME....and I suggested since she is new does not know me can she go get the supervisor who could advise her, she insisted we do it her way which was with holding insulin and that was wrong. And in the end The next day, my endocrinologist called them with specific instuctions which I
I am swelling so badly, my edema is not pitting but walking is painful,like on rocks on the bottom of my foot. I cried. I wear a circaid juxta support stocking thing,but it still swells. The cardiologist changed my diuretics from lasix to bumex and spironolactone. And so then she said nothing can help me because too much diuretics can hurt kidneys. Yes I elevate,but sometimes I sit with legs down because I get up and down. Then I lie down elevating, which puts my leg to sleep,foot tingling. Onl
A nice woman from the State came this morning to ask about our poor Roommate that does not eat. She came in our room,looked around. And what did she see? The newly frail woman Just flat in bed as usual. The room was dark because the window blinds were closed. She walked in alone when our cna was in another room helping the Woman across the way who keeps her tv on Loud all night,then wakes yelling "who turned off my tv" when a cna turns it off when she is asleep and no one else around here is. So
Sometimes I am just not the person I want to be or think I am, or try to be.
Lately I admit to myself that I am sometimes passive aggressive, petty,envious, selfish. I need to spend some time in the confessional but maybe this venting will at least make me feel better. Or will it be more unkindness on my part? Well so be it. I am disappointed in myself. Over living with roommates. I have lived with others before in a variety of situations. These things of mine are not new for sure but recentl
I got up,dressed,breakfasted,and then transportation arrived to take me to the dermatologist. I had my pain pill tucked in my Betsy Bag. All I needed were morning meds to send me off. Psychonursie was there to provide them along with a glare and repeating the question why did I need to carry a pill was I going to be gone 4 hours. Her face was livid. I actually did return late,after pill time, and I had to deal with Bossynursie who demanded to know why my doc had ordered new meds,why change or a
