So I went out to an early morning appointment and left word I was going out for lunch. I took my meds along. I am battling stomach issues on these pain killers. Plus I am groggy more than usual.
But that did not stop me from enjoying a day out shopping for some things I needed and going to salon for a real hair cut. I had coupon too. I got my hair back in my old cute style despite letting it grow out for so many months. Now it is short and sassy again. Then we went for Italian food. I did well
With many smiles, eye contact,waves,and handshakes, our roommate came back to her home,and pretty blanket. I was told that A patient may stay in the hospital for a week and her bed would be held. If she stayed more than a week then if there was any open bed,then she could return to the facility. She returned in time.
I immediately did not have pain relief,but half an hour later I was walking around good with less pain than usual. Now 48 hours later I have Reduction of pain. Not total absence of pain,but for me it is miraculous. I am still in pain but much improved. I was scared but not as muucH. Miracle!
I immediately did not have pain relief,but half an hour later I was walking around good with less pain than usual. Now 48 hours later I have Reduction of pain. Not total absence of pain,but for me it is miraculous. I am still in pain but much improved. I was scared but not as muucH. Miracle!
I get it done thank heavens. I pray all goes well with sedation and spinal. I trust. I trust it will go like before. I hope there is not some student there that freaks out when I yell stop. It just comes out....I yelled get this done and it seems it took that guy forever but he was told by doc to continue numerous times.
It is painful procedure. I take sedation in IV, they put airhose with tiny things in nostrils. All is well. I climb on table which is scary for me. I feel like I will fall
I was scheduled to get a procedure using radio frequency thing in my spine this week but I am on antiobiotics so I am not allowed to do it now and need to get doc clearance in order to reschedule.
I will asap.
I love my new roomie and room. She is real companioship. I enjoy watching cats outside and sun and wind in trees.
I love the more competent nurses over here. Bossy nurse no longer exists.
Everyone comments I look relaxed. I color in design book while watching clouds.
It is fun w
I went to pain clinic today. Doc is increasing Effexor to max dose for max benefit. So far I cannot stop norco just because I take Effexor if that is the plan. So doc wants me on methadone. Images of heroin addicts in withdrawal hit me. I said is it really better than little ol norco. She said I was already down the opiate path and a long acting may give me more relief. Wowee. Adding 2 more drugs to get off 1 drug or hoping I do not slip into a drooling stupor,or Will this cocktail work to soot
My therapist is ending our sessions now and says lets reevaluate at the end of the year. She gave me homework.
But my going to PT is more than the session. I do more walking than I used to do. It is my outing day I ride in van and sit in cafe and the lobby. I love my time alone still in safe environment.
I am done. For now.
I have a diagnosis of central pain syndrome.
I need pain pills around the clock.
I have to ask for norco to get it here.I asked the doc here for an order to get it around the clock. She said no. I called my pain doc,my pcp too, and they said they cant help me in here. I set my phone alarm and I ask for it.But sometimes I sleep through becuz I forget to set it. Like this morning I have virus so weak tired. But I awoke in horrible pain.two hours late for pain meds. I could not sit up and asked f
my tiny grandson born on Sept 12 is in surgery this morning for his kidney and itestine problems. This is his second surgery. He only has one kidney and they are trying to get it working properly. I held him only one day and he smiles when he is full. He gets that from me. He is beautiful and we all think he resembles someone but in fact he is just him and that is cute. His little life is precious and mom has tried so hard to give him a great start in this life we somehow love and hang on to.
○I can eat in bed if I want to
○Someone helps me with all the meds I take around the clock
○Someone makes the bed with fresh soft sheets very often
○I am getting medical treatment at the large teaching hospital for things I suffered from for years and other docs failed to address
○I get transported door to door in comfy van and I usually ride alone and if not then I get to go on a mini ride
○My hope is renewed because I am in therapy. It is outpatient and I had to make it happen for myself
My son gets me cards regularly to share with another lady who plays solitaire 27/7. She is 93 And hard of hearing. No words needed. When we get together to play we go for 2 full hours until the next meal. She is a serious player. I get distracted chatting with others sometimes. And others come begging to be dealt in a hand of Rumy. That is what they play with her when I am not around....and I have not been in a while....And my son had my tote bag with cards for safe keeping the last couple of we
I have my regular vestibular physical therapist and she is wise and experienced and cautions me to work steady and not over tax myself. I really like her and I have felt I made good progress but I am always impatient to do more so I can recover faster but she says in time in time and assures me that I am going to be better than I am better than I was. So I have had a substitute and she is young and has energy and gets me on lots of equipment. I can hardly move I am so sore. She doesn't stop me
I lose time. I wake up in uncomfortable positions. I wear a back brace now. I hate how the parade of you do not have the latest tekky stu$f goes on.. it gets teeny or bigger but it still is a phone. people d11111o not lok me in the eye. I am on meds. I need to be but I am so[ afraid. Is anyone delse havinryg sleep difficulties. I cry. I oversleep me help meds. I must live this way. I wish the spinal would last longer.
I color and watch birds. Days zoom by I love my kids and wait to see t
I am going for more PT and speech. To go and be accountable. Just going is therapy. And b bring a food item back for later snack. fun. tomorrow will be good.
my bf sent me a cloth crayon case. I do not use crayons if for color pencils I would keep cherish. .instead I gave it away. the woman likes it for daughter. great. I like to get things but if I not like it I pass it on hoping someone may use it. It was super nice. I think a child will love it. it made me cringe a bit. I adult
I ran into my former physical therapist from a year or so ago.She commented on progress she saw,and I told her she was an important person in my life of recovery because she talked about things I was experiencing, believed me,assured me I was not crazy. She encouraged me to walk. I confided in her about my experiences in the nursing home. I told her I now had a patio so I could see the sun and a roommate who did not have the problems the other one did. She noticed I smiled and enjoyed the momen
PAM'S PAIN PRECEPTS
1. Never touch my leg. It burns next to the eternal yule log.
I have been branded by the touch of others. But with permission all is well.
2. I feel stabbed in my leg, calf or foot. I walk slow because it seems like butcher knife follows me stabbing me in mý calf.
3. Wake me for pain pills or prepare for me to wail for for hours until the next dose.
4. Sometimes I just need to color all night. My symptoms hurt.
5.
I had a horrific time getting the last RFA but one day of pain is worth it when I could not do physical therapy and begged for pain meds before the scheduled time. But the results are miraculous reAlly. I walk around more comforrtably without the break through pain every few hours. This means I can avoid a pump. for now anyway. It has not meant I can reduce the meds everyone hoped. I always hope I can stretch out the time being comfortable.
The thing that no one can imagine is that I never
Today in PT I did lots of vestibular exercises. Therapist said we have to go slow or I may suffer the rest of the day.
But when I was on treadmil I worked through the pain until agony forced me to stop. I did the exercises to help me read with 2 eyes. I am good at using only left one. Or I see double. But I do not have good pain relief. Yes the procedure helped. It was hoped it would work just the medication but the opana does not help very well. I am suffering off and on. Sometimes I can b
I just wanted to say that when I first came home I was ashamed and embarrassed that I had a stroke and couldn't walk or see right. I hid. I didn't want anyone to know and when someone just saw me in the wheelchair I didn't want to answer questions. I couldn't look into people's faces then because the world was distorted even more that it is now. And I was glad. All my life I worked with people and I was avoiding it. It may be hard to imagine but I didn't talk to anyone about my feelings or thou
While I have been in hospital room, I was given Oxycodone. The first one was a 10 and it knocked me out. That combined with IV lasix and I wet all over. Since they are doing 24 hr urine collection for kidney check plus it was way too strong,the doc ordered 2.5 and 5. Big difference. 2.5 was too little. So they gave me 5. And this little Goldilocks said This One Is Just Right and she fell fast asleep. And hey this drug works very nicely for pain. I am up refreshed having my morning tea. And dry.
I went out to the mall with a friend and went to the mongolian beef place in the food court. I was putting beef in the bowl sorting it to the side because I just want meat and minimum veggies. It is self serve. I told the people behind me to go in front unless they wanted beef so the went. Then lady putting out food said to my friend rather irritably ," Can't you help her?" My friend sain "No,she can do it." Now I never heard this surprisingly, and I do not know why...Then she closed the beef l
I am still in shock that my body is changed. I know it is true but my mind, heart,and soul is alive,alive,and growing.
I am surprised again, oh I cannot do this or that, and I wonder why is my mind so stubbornly hanging on to the idea I can wake,pop up out of bed quickly, and run around the room, dress, tidy, and go. When every movement hurts, needs to be calculated, wait for pills to kick in, take careful steps, ask for help. Welcome the new me every day. Congratulate myself. I am up for t
Last night and this morning my pain meds did not touch this. My am nurse saw my blood pressure was high,saw my agony and let me have a pill a bit early. She is so kind to me. My leg burned. The pain in turn made me feel light headed and it was hard to keep my balance for some reason dizzy and off the mark. My blood glucose was 61 this morning. So I ate breakfast,but lunch was gross so I ate peanut butter and graham crackers instead. I hurt too bad to think of food. The patch is a joke but norco
My Neighbor passed away. She was next door and my othher friend who collages with me was her roomate. I was cutting out magazines with one friend while the other struggled for each breath and endured the comfort care of hospice which looked dangnabbed horrific. I never saw anyone on their death watch. Her daughter was there as much as she can.we talked.I felt like I should pray but she was not religious. I did it silently. Cancer caused unrelenting pain.They kept her snowed under. Yet she still
