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About this blog

My Latest Adventure

Entries in this blog

On the Last Weekend Before Christmas and All through the Mall....

I walked with a cane!! I walked with my designer decorated beautiful cane around the mall and in stores. I sat and rested in those little rest areas with real furniture and enjoyed a peppermint mocha while I watched people shopping. I waited there for my family to do some running around. Ok I walk real slowly but the most important word here is WALK. with a cane! I know I was grinning the entire time and folks probably thought I had lost my mind. It was a wonderful experience to be just standing

SassyBetsy

SassyBetsy

On New Meds

I am on higher dose of Fentanyl and lyrica and gabbapentin. They are switching out the gabba. I hope on lyrica I will no longer have hand tremor and the auditory hallucination ...that strange sound in my head. I hope for consistent coverage. Because on all this,I still take norco.

SassyBetsy

SassyBetsy

On Being Irish

Today there was a celebration in the Dining Room. I had not set foot in it since that day I was told to give up my seat. I went to be with my friends here. I sat with friends near kitchen door   There was wine,cider,nibbles on small plates,And green shamrocks all around.A male nurse gave me a shamrock lantern that decorated the nurses station. It sits in cherished spot on nightstand. We listened to a Harp player,and watched Children doing Irish Dances. It was lovely. A party. A celebratio

SassyBetsy

SassyBetsy

On Being Appreciated

Sometimes it is hard to accept compliments,but they feel good, but do you believe them or consider them deserved.  There is a nurse who always always admires my coloring. One time she asked if I colored people,so I put a lady with a peacock up on my wall.  So she looks at my books, tells me that choosing just the right colors is my passion. She says I am an artist.....always saying she is a fan, saying she boasts about me to her family. she is my age, very nice med nurse who works ov

SassyBetsy

SassyBetsy

October Parties

This is my birthday month so during this time, I visited with friends,family, and went on outings to attend dinners, walk around gorgeous malls, shop a bit for essentials,and give and get the most precious of all gifts: Love. Those missing in my life, miss out but I forgive them so I can feel indifferent which means no hurtful painful feeling weighing me down. I have received meaningful gifts from my children. My son gave me a burgundy colored cross pen and a leatherlike,old bookish journa

SassyBetsy

SassyBetsy

Nystagmus

I went for a diabetic eye exam and had some nifty retina scan. Good news is all is alright and even my beautiful glasses are still working perfectly. Blessings today.   I mentioned I have nystagmus and double vision from stroke. The doc referred me to another doc who treats it. I have never seen a doc for this since my stroke.never knew I could,and I went to an eye dr right away. Thankfully I am at a huge university medical center with research and resources. So much better than the private do

SassyBetsy

SassyBetsy

No one knows what my daily life is like

I can't believe how fast the summer went and it is cold again already. I feel like I missed the whole thing because I did with the pain and just all of this stuff dealing with. And I am tired of it and I can see how others are. The cheering squad is not as enthusiastic and all of us are in the unspoken bubble of don't say it yet but what if this is it and it isn't going be all better. Then the doc says oh sure recovery happens. Meanwhile I am not getting better and the pain goes on and time goe

SassyBetsy

SassyBetsy

No Happiness Allowed

So after the dining room horror show,and thelonth hanging out in the sewage room, I went out making new friends and visiting old ones.   My bingo buddy had visited me,so I went to see her,we watched a tv show on cable that was the final episode and the home did not provide me with a new required cable box. I get only non cable channels,and so from there we ate meals in her room when she had a roommate and when she & not. When her roommate went toh &h friend said if she does not retur

SassyBetsy

SassyBetsy

New Shoes and Swelling

I am so happy with new pretty shoes, athletic,supportive custom made orthotic,all paid for from diabetic medicare program   but I need to break them in,and my feet swell off and on   I wanted some pretty ones, I looked through catalogs, got what I liked, bought matching socks and tank tops   So I asked for help putting them on and the cna says why do you keep buying these shoes? ok,these were fitted,measured, but i swell, but i cannot wear slippers always  

SassyBetsy

SassyBetsy

New Normal Neurologist

I went to a beautiful place to see the neurologist. There is a rock garden waterfall outside and the building is all glass. I sat in the waiting room and I was disappointed when they called me.   The neuroguy was older,straight shooter,informative, and normal. He called my stroke a lacunar stroke. He said the pain is typical and hard to manage but usually decreases and my leg may go numb eventually.He said keep walking for my balance problems. And he told me there is surgery for my eye proble

SassyBetsy

SassyBetsy

New Gifts

ok, so the pain hits at 5pm on time like a train. spasms too. so they give me the world's tiniest pill with the world's largest pill. That is my oxycodone paired with my glucophage. simply because it is before dinner and the nurse already must visit me twice in an hour. twice a day even because an hour after oxycode comes the oxymorphone.  Can this be spaced out a bit. Well in between comes lyrica at 2 and 10pm. but the 10pm actually comes at 8 with my bedtime insulin because I am freakkin wirh

SassyBetsy

SassyBetsy

New Diet

Ok for the record I love hospital food. I like it in the rooms and in the Cafeteria. I have never been considered a picky eater and I like to try new foods..as long as a glass of water is handy.   I find the food here nauseating. I have sent it away quickly. I like homemade mashed potatoes and the kind made from flakes in a box. I do not know what was mashed up to put under this gravy. It Does Not taste like potato. All meat is some kind of processed loaf. My roomie calls the chicken sawdust.

SassyBetsy

SassyBetsy

New Adventures

I went to Cardiologist yesterday. First time the echocardiogram showed a problem. But my body has been swollen, still swelling, and I have a rash on my left good leg from swelling irritation, according to my dermatologist. So, now I am waiting to be scheduled for sleep study to check for sleep apnea and an appointment to have a stress test at nuclear medicine lab. My leg pain will make doing real physical exertion impossible. I often get short of breath, especially when upset, and all this time

SassyBetsy

SassyBetsy

Needing courage

I have the invasion of the body snatchers.  I woke with light sensitive headache and as my tiny daughter said, my eyebrows hurt. I was told by NP to take meds not close to best treatment. I got myself to urgent care to see a real doc who gave me the right stuff. In 48 hours I feel clearing less stuffy pressure. My facial swelling is down.  It makes a difference to have the doctors see me.  That is a fight here in the snf. But in our household my kids know the drill for a sinus infection.  Like c

SassyBetsy

SassyBetsy

My weird normal

I have the invasion of the body snatchers.  I woke with light sensitive headache and as my tiny daughter said, my eyebrows hurt. I was told by NP to take meds not close to best treatment. I got myself to urgent care to see a real doc who gave me the right stuff. In 48 hours I feel clearing less stuffy pressure. My facial swelling is down.  It makes a difference to have the doctors see me.  That is a fight here in the snf. But in our household my kids know the drill for a sinus infection.  Like c

SassyBetsy

SassyBetsy

My spinal stimulator trial was denied

So maybe I will or maybe I won't, but the flippin insurance world is deciding my medical treatment.   The denial letter said we were told you have tummy pain. Ok so after my eyes bugged out of my spinning head, I was laughing like a leprechaun with a new pot o gold.  Guuuuuulllllllllllleeeee Sarge, but why caneyt aye ave a spinal stimulator for my tummy?   After a quick call, I had insurance insisting tummy was listed in the diagnosis, and then the girl answering the phones a

SassyBetsy

SassyBetsy

My sinus Infection.

I am ill. recovering. I will get the antibiotics tomorrow. I saw my own doc at urgent care, I was not taken seriously by this home, not ill according to them....but news flash...my pain meds fight fever just like acetaminophen.   And my sinuses are clogged, sometimes nose is clear Hot cocoa,hot tea, apple juice. Hot helps, and sleep. Will I feel good for memorial day? Please.  

SassyBetsy

SassyBetsy

My pharmacist said my drugs interact

I am on a handful of drugs and I have been for months since stroke and I expect that someone is watching over what I am taking. I just found out yesterday that I am taking some that interact together from the pharmacist. I have been taking it for a while he said and he siad that he had called the doctor. He was informing me and putting it in my hands. My hands don't know what to do. I said should I stop them and he said no just talk to the doc and ask him to run for interaction on my drugs.

SassyBetsy

SassyBetsy

My New Splint

I got my splint for my left thumb and wrist this morning. My therapist suggested one with laces for a nice adjustable fit but my insurance told me only velcro was covered. The place told me they only carried the velcro type. Well I am wearing the one they gave me and it has laces connected to a velcro tab that is pulled tight and fastened. What kind of miscommunication is that? I am blessed! The only difference is this one has metal in it and offers max support and is longer. So I asked insuranc

SassyBetsy

SassyBetsy

My New Eye Patch.

Some said try it. But I just closed one eye. Reading is Breathing. I worked hard to get my eyes working together but the double blur Annoys me. I Look normal in my glasses so none know the world I walk in. Moving patterns,Double then one then double,no depth, people moving too fast too close. Closed eyes makes my head spin. Lose my place in space. So do I cover the weak or strong eye? The discussions continue. When will this end? ]So I detest a pirate patch, sticky p one. So online I find a gl

SassyBetsy

SassyBetsy

My leg hurts believe this.

A cna who knows better touched my leg. I think she did it in intentionally. I was asleep sitting up and instead of touching my shoulder hand she touched my thigh to wake me. She knew but forgot that touches brand me lie fire. Is that intentional?

SassyBetsy

SassyBetsy

My Favorite Theme

I just changed my theme to Summer. I love this cheery background that makes me feell all summery. I had another theme up and then I didn't even have one just used the plain. But the background inspires and encourages me. I am so glad we have these to choose from. Ilike this on so much. Do you have a favorite?

SassyBetsy

SassyBetsy