• A  blog is a personal journal of your daily life as a stroke survivor or stroke caregiver.  Surprisingly, countless members have called it therapeautic to write down their thoughts and to vent their frustrations.  You can make it private, just for your eyes or public and share your personal thoughts with your friends.  Why not try it, create your blog and start writing and see if it helps you.  

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  • swilkinson

    Living on angel time.

    By swilkinson

    I went to see the neurosurgeon on Tuesday. I was interviewed by a young Asian associate doctor and sent for a 3D MRI and angiogram, a brand new way of showing  the blood supply within the brain. The results were given to me by the associate and then I saw the specialist. It appears the aneurysm is larger and deeper than previously thought but at my age they are not going to operate as it would mean a full brain surgery. Coiling, one method of dealing with an aneurysm, is not an option. I think I
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Now what? Will we be celebrating Christmas this year?

Just been talking to our assistant minister, she is my "boss" for pastoral care. We have a talk from time to time. We are both anxious to resume some of our church activities like our Playtime for Mums and kids, our Welfare programs and our night services but the current Covid regulations are preventing all of  that from happening. It is very frustrating. We discussed what we thought the future of our activities on behalf of the church might look like in the new year, with Covid or after Covid b

swilkinson

swilkinson in Thoughts on Covid

Broccoli

So another week with nothing specific to report. Moving pretty well with jus the odd minor wobbly. Fells a little like driving a car with a worn steering rack, just need a lot of minor corrections along a trip.  These days it seems I have more to report from the garden. Of course a year ago I was writing gardening off. So we have a big cold front coming in on Monday supposedly down to 22F according to forecast and high probability of snow. So all veg in the out side bed have to be harvested

KevRider

KevRider in projects

The Rona is Here

So there's a ship in port which has the Rona.    The occupants are not allowed off the ship, but I'm guessing the really sick ones who need hospitalisation will be a different story.   Normally I wouldn't be concerned. The WA government is doing a great job containing it.   My biggest worry about it, is that Wayne works at the port!!   The ship is not berthed at the berth he works at, but it's still a worry.   The photo is of some of town. The ho

GreenQueen

GreenQueen in Nervous

Stroke was a good thing?

Sometimes people ask me if my stroke was a good thing to in the long run, and I am often perplexed with how to answer it. Yes the stroke took a lot of my happiness and my joy’s away and I wish that I could do a lot more than what  I can. The one positive thing, however, was I was correctly diagnosed and finally medicated for  my ADHD. And that way I feel like stroke was a benefit to me because I feel like I’m a better person. I just wanted to Blog that random thought that I had at 3 o’clock in t

inspiring words by Eleanor Roosevelt

Right after my stroke when I was deep in dumps of despair I  found strength in inspiring people like FDR who even being disabled got country out of deep depression & started so many great projects in America, funded & created national parks, social security  & even made bank accounts FDIC so that common people don't loose their hard earned money.  I was amazed & inspired by Eleanor Roosevelt who was close confidant & his partner in all senses. Recently I read one of her quote

Peppers

Here we are on the weekly blog, but little to tell. No identifiable improvements but I  am to be getting to do more work than at the beginning of the year so I'm hoping that's a sign of increasing stamina. So we are down in the 30s some mornings lately though still 80S afternoon. That kind of highj dessert swing can let an early frost sneak in so we have been harvesting crops that would get damaged. This weeks main target the peppers. The various wok loads make it hard to gauge but I

KevRider

KevRider in projects

Keeping a positive attitude

The Covid goes on. We still have restrictions but not as much as some countries do. We still have cases, in our State, New South Wales it is mostly under 20 new infections a day. It is a great result but it has come at a price. Many people are out of work, many can no longer afford luxuries like holidays so most stayed home this school holidays. Some older people are still feeling isolated as we are regularly told to keep safe, to keep away from crowded areas, not to gather in groups etc. I know

Digging

So this week I can't claim to have noticed any specific improvement in motion. I'm moving very well now, which in turn makes it pretty hard to identify such improvements. I still get a little wobbly when tired. What has been noticeable is an increase in stamina. I can now apply myself more ardently to a project task until I get tired an then I go off for a cup of tea. ( How British) Last month I would be done for the day. Yesterday I worked pretty hard harvesting potatoes , had the tea, and then

KevRider

KevRider in projects

What goes around comes around

There's an awesome group of people in town who started an amazing charity. It's all local stuff.  All money they make at the events they have (from donations by locals) stays local.    When I first became disabled, they were awesome to us.   Due to covid19, they are unable to hold the big annual  gala event,  but they have asked for donations for an online auction.    You know I like to make cards?   I decided to make cards and calendars for them. Twelve s

GreenQueen

GreenQueen in Nervous

Mary Jane

145/83 BP was a pleasant reading this morning, a bit lower than my average 152/88 ( Remember I have prescribed hypertension) my doctor likes higher BP to push thru my constricted veins. So a natural drop in BP suggest a possible clearing of veins. The push for normal movement continues  but I can't claim to have identified any specific improvements. This weeks specific project is to harvest the marihuana plants. We are lucky that in AZ we have legal marihuana and I 'm far enough away f

KevRider

KevRider in projects

Helpless

Connor has a parrot, native to Western Australia. Bobby, a red breasted Scarlett Parrot.   Tuesday we noticed Bobby wasn't well so took him to the vet.  Birds are known to hide their illness and only show symptoms when it's too late.  That happened.  The vet gave us medication for 10 days, not to fix him but to make him comfortable.   Poor baby, he died tonight.    Connor was, and still is, inconsolable.    All I want to do is say the right thing, do the r

GreenQueen

GreenQueen in Sad

a Matter of Concentration.

A week of working on projects and some heavy stuff, like lifting those fence panels in to place to finish the north stall running pens, and pounding a few T bars into place, left me a bit tight and stiff at the end of the days.  I think I probably got it about right as I was ready to go the next days. Trying to notice returning function is harder now as the returns are pretty subtle. Some time its more a realization that some thing has gone. This week I had a feeling of pressure around my occipu

KevRider

KevRider in projects

A Virtual Camp for 2020

For the last 3 years I've attended a camp for  brain injuries.  This year the powers to be formatted the camp for us to stay in touch.  No doubt it was a logistical head banger and something I certainly couldn't handle.  Kudo's to all involved for pulling off the virtual camp.     They had an opening ceremony to explain the Zoom and times.  They mailed out a package with a T-shirt which they do every year for campers.  Supplies for the activities which you felt you could handle.  

Madade

Madade in Camp

Road Trip

My beautiful friend Jennelle is 50. Carrah and I are off to Pinjarra to spend the weekend with Jennelle and her three daughters.   

GreenQueen

GreenQueen in 50

God is so kind to us & I feel so grateful

Things are not finalized yet but its moving into right direction, so I have to share my joy.  hubby  has spent his first few years of his life in village in India with his family & is very fond of his native place, & even after moving to city in India his family has connection with village which has our very powerful community God we all believe in  & his whole family & extended family will gather their once a year for special prayer ceremony. Usually now in village there are mos

Fences

So this week i haven't had any notice improvements. Though perhaps my stamina is still improving. I have kept up my morning run back from the barn today additional incentive to get back quicker as we were down at 42F.  I'm still following the morning ride with some project work. This week it was getting the barns north side stalls ready for winter. Our predominant wind is from the south west , so for the with we move the horse to the lee side. To prep the running pens I had to take fencing down,

KevRider

KevRider in projects

Project

Well this week I can't identify any actual improvements. Of course they can be so subtle now I have to pay attention to spot one. I do catch my self slipping back to my safe walk and find myself having to coach myself , like "Come on a bit faster" as I continue to move more as I used to. This week I have been involved with installing a big drum composter. The screwing of nuts onto bolts was an exercise they used to have me do in rehab, and I found I was flashing back to that as i had to do it a

KevRider

KevRider

Feeling Loved

Yesterday I took Riley for a ride on Henry.  This morning Wayne was doing stuff in the shed, and had the dogs out the front. I had a doctor's appointment.  As I went up the driveway on Henry, Riley followed me. Wayne picked her up so I could leave. When I got almost to George rd (100 metres from home), my phone rang. I answered it on my watch; it was Wayne. I said to him: it's ok, she's here. Exactly as I answered, Riley jumped up onto Henry.  Apparently as soon as her put her back on th

GreenQueen

GreenQueen

Balance

My recent attempts to push for normal seem to be paying off. Most of my motion lately is normal, though I still have to concentrate on doing it. Often the first couple of steps may be slightly lacking, but then i push a little, focus and its back again. This recently re-learned motion gets me into new areas of balance challenge. But only small ones which trigger a little headiness for just a moment and I seem to be learning how to re-balance and haven't been anywhere near falling yet. Contr

KevRider

KevRider

Treadmill Battles

Personal Best For Speed & Time   6 years and this device has certainly been a large part of my recovery.     The photo was from 2019 March 5. Wearing ankle weights, compression pants and ab support.     I remember the first time was in a harness and on a treadmill with 3 therapist all working on instructing and guiding my legs on the treadmill.  Each session they lowered the harness and I put more weight on my legs.     I did mostly a recumbent bike fo

Madade

Madade

Thank you Steve Mallory

Why are you still on Strokenet my friends ask me. Why are you still talking about stroke nearly eight years after Ray died? Why haven't you moved on with your life? Well I have moved on but moving on does not mean you have to move away from those things that have been valuable to you in the past. . And to me Strokenet has been of huge value in my life and the lives of Ray and my family. Discovering Strokenet made a big difference to the way I lived my life, dealt with Ray's strokes and came out

swilkinson

swilkinson

Pushing for Normal

Those who may have read last weeks blog will know i'm pushing for normal. Generally its been working great! i'm estimating about an 85% rate and it feels good when I get it right as for a few minutes I fell no deficits. The slight down side it that occasionally on rougher ground i lose a little balance. and may stagger slightly for a stride or 2 it challenges my balance and may induce a little headiness. but I have not taken a fall yet, and believe that balance challenge is probably good neuro p

KevRider

KevRider

Some of my mental thoughs

I'm selfishly happy that school will be remote, till at least mid-October. That means that my son will still be able to come visit my on the weekends, as per regular, but when school starts, we  will have to go back to Face Time, Zoom and other ways because the county he is in has a higher amount of Covid-19 than mine and school is a cesspool of germs. It's funny how we would not be thinking about this like we are now.  We have to keep PPE where I work and conduct temp checks , masks, gloves dai

ksmith

ksmith