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Sam Doesn't Know What I Am Doing Either


lydiacevedo

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So we started keeping a journal of all of the weird "little things" that keep cropping up, in anticipation for my next visit to the doctor this month. So far, we have 40 individual items that seem to recur on a pretty regular basis.

 

Little things like not being able to remember what in hte world is going on when I leave one room of teh house and walk into another, not remembering where I have left things like my cell phone, keys, purse, cup, etc., not being able to recognize people whom I have not seen in the last couple of days, being easily distracted and/or confused, losing how to understand letters and numbers after a while (the reason my entries are becoming fewier and farther apart), and a whole lot of other things.

 

Sam, being a nurse and working with brain/spinal cord injury patients, read everything we had written down and started to make an "educated guess." He says I am showing a lot of the same symptoms that his dementia patients show and he thinks I may be in teh earlier stage of vascular dementia. Well, that isn't out of teh realm of possible. The doctors told me it could happen when I stroked in the first place.

 

Anyway, all of this is getting written down so that we can talk to the doctor about it next week. I guess I should be upset about it, but upset is not what I feel. I don't feel anything about it, really. I don't know why. Maybe it is because the past year has been one long string of getting used to how things are now and discovering what "normal" is in my world now that the strokes have been diagnosed, so I've sort of become numb to it. I don't kbow. Maybe, like so much of my life now, it just doesn't seem "real" to me (a lot of things have this feeling of not being real in the last year or so), that I have a hard time putting an enotion to it. I don't know. Maybe I'm just at a point where it is easier to accept that this may or may not be something Sam and I will have to deal with than it is to get upset, happy, or any other feeling over it. I don't know.

 

Sam doesn't know either, so, at least, I'n not alone.

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Lydia You will never be alone. I to have short term memory loss. Many, many of us do. You will always have us. I keep a journel and I have an appointment book i keep with me always. I fill it up with ink on a daily basis.

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lydia:

 

we missed you in our chatroom & in our blogworld, I am amazed by your strength to accept this new changes & make best lemonade out of it. has this all increased after you retired from your job?

 

Asha

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Lydia: I received a tip-maybe even from Asha-a while back. A nice canvas bag with long straps over the head first thing in the morning. She kept her journal, appointment book, cell phone, keys; whatever she needs first thing in the morning and throughout the day. One of Sam's nursing jackets maybe just the ticket for you-lots of pockets.

 

I know you probably have already set up a specific place for all your things-walk in from the car; key and pocketbook go here, etc. I have always been extremely structured-Bruce not so much, could never find anything. But it is paying off now, with him functioning in more areas of the home. And I insist the caregivers do the same. He knows where the laundry baskets are to throw his dirty clothes, where all the stuff is in the kitchen when he is helping out. He set up the downstairs BR, since that is the only one he uses and returns everything to its proper place.

 

Sam has a great handle on brain injury, but I pray in this case he is wrong. You already know that short term memory recovery is based mainly on rote and routine. Set some simple goals for a week, stick to them to the letter and see if you see some results. ie I will put my keys on this table when not in use and I will put my cell phone in my pocket first thing in the morning and there it will stay until bedtime. Just some thoughts, Debbie

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I have varied short term loss as well. Sticky notes, my phone for reminders(when I can remember how), telling people to remind me when we have a date for something...dozens of little fail safes got morphed in my life with the stroke and the changing demands as my mobility slowly increases and I encounter new situations.

 

Feeling nothing sounds about right for not knowing. I've found my 'flat' emotional state to save me from stress, which blows all my fuses so to speak.

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