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Sometimes I wish God didn't have so much faith in me.....


lydiacevedo

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So, the scare in the hospital turns out to be, in the opinion of my primary care doctor and MY neuro, to have been a TIA. That makes sense. The primary care doctor was the first one to jump on that train, due to the fact that the bloodwork he ordered came bnack showing that my systemic lupus is out of remission and active again.

 

Solution: Slam my immune system into the basement. So, here I sit, on large doses of immunosuppressants and antibiotics/antivirals. It isn't the first time. I'm not foolish enough to think it will be my last one, but I don't remember it being this bad the last time.

 

The nausia is constant and at the point of being painful, but eating just makes it worse. Sleeplessness isn't helping, neither is the fact that my emergy is as low as it was just after the first stroke. A week into this and I already bruise by nothing more than one of the cats standing on me. My lap is covered in kitty-paw sized bruises.

 

I never expected to have to go through this on my own. I always expected that Sam would be here with me. I think that is the worst part of all of this. I feel abandoned all over again. The kids are here for me. All I have to do is call them. But that isn't the same. The late nights, when I can't sleep no matter how badly I want to, and the nausia is at its most unbearable, when I need and want some one to hold me and tell me everything is going to be ok, I'm alone. That is the deepest hurt of all.

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All I can say is take care of yourself so no TIA again and definitely you don't want to have a full blown stroke on your own! I feel without someone at home coping with a stroke on your own is not a good idea!! At least until you are up and driving again and can do things yourself!

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oh honey --- i am sorry - the lonley feeling is the worst--- i feel that way to when i do not feel well.. as i lay next to dan - who had the stroke.. if i dont feel well he doesent care - or at least is unable to effectively express he cares that i dont feel well or am sad-- so i think he chooses to ignore it... it is hard to think "it " was supposed to be forever and then find out forever isent the same definition for everyone.. prayers and well wishes for you to feel better soon... the kitty prints are prints of love..nancyl

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I am reading your post, and I was oh God someone is hurting worse then me. Here Iam feeling sorry for myself, shouting at my husband, and feeling so sorry for myself. You are not alone, you are in my prayers, and you are my shehero. God bless, Iam a new member, been here on strokenet for at least four months, and its members like you that keep me strong. God bless.

 

Yvonne

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I’m sorry your recovery is a rocky road but it will smooth out soon. And just remember that you need to have just as much faith in God as he has in you so you can trust that he will do his part.

 

I will keep you in prayer, so continue to stay strong and positive and soon you will see that you will have the victory and overcome this road block.

 

Pam

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