DeanS' Blog

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As it goes...


DeanS

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I hope everyone will forgive me as i learn the ropes here.

 

So here goes...

 

My story continues on this first day of Dec. Not much has changed. I continue to deal with the day to day issues of the strokes (or should i say my strokes?). Nothing has been resolved in terms of their cause and i don't expect there will be any resolution until i get to see the cardiologist in january. So be it.

 

I have had many issues to deal with since stopping work on Oct. 8th and chief among them has been rejection by my children. My son is 16 and my daughter is 21 and i was close with them both until i decided to quit working and try and get myself better. I have (had) been paying child support for my son to my ex-wife. It seems as though they see my quitting work was because i didn't want to pay child support and was being irresponsible and uncaring. It truly, truly wasn't! It was a case of me wearing down to the point that i would spend whatever time i could working (1-5 hours a day) and then spend the rest of the time in bed trying to gather whatever energy i could for work the next day.

 

I had no idea after my first stroke how much i had been affected. While i could walk and barely talk i basically felt ok and i have always been the sort of person that just put my head down and bulled through whatever problem was in front of me. I handled the stroke no differently, much to my sad discovery and another two strokes later....

 

I spent the first 2 weeks of my being off work preparing court documents in an appeal to have my child support payments reduced or put on hold till such a point as i can recover enough to go back to work. this was a very stressful process as its makes me feel as though i could control whether or not i had the strokes and as though i have to justify my not being able to work. I applied for and received sickness employment insurance which my doctor had to sing off on. My sickness insurance is being garnisheed by my ex with the justification that i might be sick but that doesn't mean i don't have responsibilities and obligations to my children. Somehow i feel she is right but how can i hope to provide for my children if i am not around...? And at this point i feel that it would have been better if i simply wasn't around. Then it would be black & white. Anyway... i head to court this friday to defend the fact that i had the strokes and that at least for the near future am unable to work. My ex by the way owns an accounting firm and has taken 4 southern vacations this year.

 

The thing that really bothers me is that i sort of feel abandoned by my kids. I got my son his first summer job working in my shop this summer (i did the same for my daughter while she was in high school). I was and am really proud of them. We worked side by side and i thought our relationship was great. He lived with me half the time until my first stroke after which he decided to live with his mother full time. I thought that this was okay because i didn't think it was fair on my behalf to expect him to have worry about my defficiencies after, and i thought it would actually be easier for me. I am still unsure whether this was a good decision.

 

My daughter and i were very close i thought. We talked and visited often. Then, just after i left work, she called and told me she was going to limit contact with me until all of this was settled. But her mother is suing for child support for her because she has decided to return to school. I haven't seen her since the beginning of october and we all live in the same city a 5 minute drive away.

 

My brain really must be foggy because i can't seem to make sense of this in any rational, logical, emotional or even human way.

 

So that is one of the things that i am stressed about and i am starting to feel my energy fade...

 

Thanks for letting me get that out, it feels better having said it.

 

Dean

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Massive fatigue issues are a part of stroke and there should be some documentary evidence of this.  I didn't understand about that until 2006 when I joined a stroke group and found out it wasn't just Ray trying to get out of doing his chores.  But I did believe it as I saw it with my own eyes as he collapsed into a chair as soon as he got home from work after the first stroke, then I woke him up for dinner and again for bed.  I probably was harder on him than I would have been had I known more. he also slept most of the weekends which made family life more difficult

 

i am not sure about all of the legal aspects of the American system as I am Australian but here we would be able to have our physical limitations taken into account.  And if one spouse was earning a lot more than the other the lesser paid would have less to contribute.  But that is here and you are dealing with a different system.Best of luck with it all.

 

We don't allow guilt here...well I wish that was true, but what happens happens and we get on with it.  Trevor, our younger son, was fifteen when Ray had his first stroke and saw all the consequences of that and it made him a more compassionate adult.  Your daughter and son are old enough to come on here and read all about stroke so encourage them to do so.

 

Sue.

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Dean: I am so sorry. Your children seem to be caught between a rock and a hard place and are just trying to find their way. I am so sorry they seem to be caught between your ex-wife and you and you are trying to recover and figure out where your life is going.

 

You have to take heart in knowing you have done your best by them. Reinforce that they had nothing to do with the divorce, you support them 100% but that Dad needs some space and time to figure out how he is going to deal with the fact that stroke just changed his entire life. You have to be honest with them.

 

Our Brittany has a very hard time with Bruce's stroke. She will do anything for us as long as she does not have to face Bruce's disabilities. So my house is clean, shopping is done, any errands. At some point her daughter is going to want some answers.

 

My only advice, keep the lines of communication open and be honest with them. Know that you are in my prayers. Debbie

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I am sorry to hear about this and best wishes for you on Friday. My hope is that they take a fair amount for the kids and that you will  be comfortable with it and that the stress will not overwhelm you because you need protection and rest right now.

 

I hear how abandoned you feel and I hope that as this gets settled then all can move on to enjoy time together without anyone feeling that they are taken advantage of. Kids don't like to feel that they are money pons or that love can be measured in dollars so perhaps this is a difficult time for them. If you feel they are on the side of wanting more support to be paid then I suggest that you do what you need to do to recover and protect yourself guilt free and just let the court decide what is fair and leave it at that.

Take care of yourself. Kids grow up and they view things differently over time.Do the right thing and then you never have to worry about justifying anything to yourself or anyone else.

Money is something that can come or go but the people you love are not replaceable and that is something that gets lost in these cases so hopefully you can be the one who holds onto perspective and realizes it is only money and not the barometer of love anyway.

 

You will always find so much support on here and never feel alone here.

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Oh Dean, I am sorry about all of the child support mess. I was the custodial parent in the divorce, and think I am one of the rare few who doesn't take pain and frustrations about the relationship ending out on my former partner by putting a price tag on it. 

 

I also understand going back to work after the first stroke way too soon, having a second, and having to throw in the towel. It feels like you are out of control of everything, especially your own body. What I can tell you there is that is does get better and after some time, for me about a year and a half, going back to work works out, you start to feel like you have some control, purpose and worth, and your brain and body do finally adjust. It just takes (the word all stroke survivors hate to hear) time.

 

I hope court goes well for you. You are in my thoughts and prayers. Good luck and God Speed my friend. Keep blogging. It feels like it takes a lot of energy now, but being able to deal with the emotions in a safe space, and this IS a safe space, helps to keep that emotion from sapping your energy in other areas.

 

We're all behind you. You'll not only survive, but you'll thrive again, in time.

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Dean,

 

I am so sorry for your family situation. You are doing the right things. You understand you need to take care of you because YOU are the only one who will. Don't do anything other than what you are doing.

 

You kids are not little children. Your daughter is in college and your son in high school. I feel badly that their mother is playing games, because it sounds as though that is what is going on. As you said, get your paper work together and go back to court!

 

Prayers for you right now Dean, that you will feel the strength God can provide you as you go forward.

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I am so grateful for your thought and your prayers.... I know i love my children and they love me. There just is so much baffeling garbage in this world  that it's hard to understand sometimes. They will find their own true Self's in their  time....

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