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There Are Choices


Onehandcan

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Life is a collection of choices we make or allow other people to make for us, either way, consciously or not. Following my stroke I made a VERY conscious choice to not curl up and die, not to see myself or be seen in the world as disabled. I made the choice early on to live my life RE-ABLED. I'm often challenged to continue to be true to that choice because life post stroke has thrown me some nasty curve balls that, after eleven surgeries, have left me with constant pain in my back, arms, hands, shoulders...you get the picture. Even then, I brought a lot of that pain on myself by the choices I've made along the way. I didn't know how important it is, in my case was, to take special care to protect my "good side". Maybe I should have allowed myself to ask for a little more help. Maybe I should have reevaluated my capabilities post stroke rather than charging into everything as if I still had a completely functional body. I don't, so I often over compensated by getting the job done with half a body and with little if any consideration of the consequences.

 

My body is broken, my spirit is not. I have down days, certainly, especially when I'm alone like I am now. My beloved partner of 22 years is away for a week with her son and his family. It was my choice not to join them. As much as I hate being without her, I have always encouraged her to give up her mantel of caregiver, more her perception than mine, and go do...whatever. She needs time to NOT worry about me, to NOT concern herself with my needs. And I need my time and my space to do what I want to and to be with myself. It's difficult for sure because for some odd unknown reason when she is not around I feel more disabled even though I don't do things any differently than when she's home. Maybe It's just that I'm more aware of my limitations when I am alone. It's kind of a crazy thing, I'm absolutely capable of taking care of myself, but it's different when Carol is away. What's that about? I've got lots of time to think about it! But I still wholeheartedly believe that disabled is a state of being and re-abled is the act of doing. I choose to live re-abled daily, alone or not.

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Thank you for posting this. i needed to read this today especially.

I have made the choice to not accept this is the end of my goals and dreams and it is hard when I have hit walls and have to readjust things. But after reading this I realize that I am staying re-abled. I just didn't know it was that. I don't think depression is my enemy but acceptance is my enemy if I give in and give up. the depression is just my neon sign that things are not right.  I feel empowered after reading about your resolve. Thank you for sending some strength out here on the wavelengths.

 

I too want my loved ones to go out there and do whatever and not have to worry about me and I too then feel more unable or disabled when they are gone! I think it is just the safety net is missing. I am not left alone for very long though not days so I am not really able to compare myself to your total independence but I sure envy your ability to be so independent.  It is just quieter which is time to be with myself and isn't that a kind of scary place to be sometimes without all the other distractions and only my own thoughts. Then again how nice to hear myself think eh.

It sounds like you have indeed had a very keen connection with Carol and you just miss her when she is away.  You are dependent on her not only for the assistance she gives but her companionship. How wonderful you are for giving her the gift of spending time with her family.  I bet she is worrying and thinking of you too now though.  she will be back soon and have stories to share with you.

 

I too live with pain and so I know how hard it is to keep up spirits when the body is broken and I am going to keep that as my mantra as well to say that my body is broken and my spirit is not.

Thank you and I hope you will post more.

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I hope everyone who uses StrokeNet will read your marvelous, positive, upbeat post. I just gave it five stars and would have doubled that had it been possible. To read you vowing to be "re-abled" rather than disabled  (I love that term and intend to borrow it shamlessly hence forth) after all these years of post-stroke living was inspiring. You stand in stark contrast to those who, perhaps understandably, see thier plight as hopeless and their avenues for help as either non-existent or corrupt. You are the optimist swimming proudly and powerfully and even joyfully in a sea of pessimism and cynicism. You have opted to play the hand that was dealt you as successfully as you can where others would have long ago folded. Good for you. And congratulations.

I'm glad you not only discovered StrokeNet but have seen fit to post on it as well. In so doing you have performed a terrific service to others who come here. Your spirit shines through brightly and your voice resonates powerfully. Thank you very much for that. And good luck, my new online acquaintance. Hang on to that great attitude you have someone managed to acquire. You are one more strong gal.

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