Well, I finally made the decision to talk to hospice. William has been declining. He sleeps alot and eats very little. He has alot of confusion and sees people that are not there.
The hospice agency was great. They have suggested that I get a hospital bed and set it up in the living room. I will be getting rid of the couch and recliner. They provide all of his meds, bed liners, vinyl gloves, wipes, lots of things. I will get a nurse once a week and CNA 3 times a week to bathe William. A chaplain will visit him weekly, and they have volunteers that will come and sit with him if I have to go out. They have respite care for the caregiver (5 days each month). I fortunately got all of our paperwork in order. Medical power of attorney and medical directive for physicians.
Today, William has been up and cognizant most of the day. He even ate a banana, applesauce and a little sausage patty. Not much appetite but since he hasn't eaten for 2 days this is good.
We shall see how things work out. It has been ten years since his stroke and his decline has been slow but keeps progressing.
Who knows what the next steps will be? Quality of life needs to be an issue. William has been housebound for over a year.
Hospice could be used for a long time. They just renew after 6 months. This could happen with stroke patients.