Hospitalization
My Tootie is going to the hospital for 3 days. She is going to get an MRI and a 48 hour video EEG. Thankfully they have to sedate her for the MRI so, they will put the leads on while she is still asleep.
Her neurologist is trying to determine if Tootie is still having infantile spasms or if she is transitioning to another type of seizure. The neurologist is wanting to start Tootie on Vigabatrin.
She has been wanting to put Tootie on this for a while but we were hesitant to start her on this med since one of the side effects is loss of peripheral vision and it wasn't approved by the FDA; it was just approved this year. After speaking with Tootie's ophthalmologist, we are now comfortable in trying this new medication.
Tootie has tried every epileptic drug on the market and has used various cocktails; unfortunately her seizures haven't stopped but they are somewhat controlled. I'm hoping we will get good results from the MRI, EEG, and Vigabatrin. Please keep Tootie in your prayers, thank you!
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