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  2. Like I have mentioned before, weekend I usually spend in my spiritual learning, Saturday evening usually reserved for learning of our hindu scripture Bhagwad Geeta, whose teachings I find it very relevant for all human beings, & my Sunday mornings I love to spend in Oprah's super soul Sunday series where she brings in guest who can depart great teachings through their book by sharing their experiences in life. It was surprising these both days teaching were about same thing like Sun is always out there shining which is eternal truth, just because right now it is hiding behind cloud does not mean Sunlight or sun never existed before, its that cloud aka our faulty understanding which got blocked by cloud needs to disappear to see that eternal truth, that was my own AHA moment, so we need to work towards our understanding to realize what is eternal truth & what is cloud which alters your reality about situation like our ego,anger,jealousy, all those bad vices we all human have, which clouds our reality. So knowing to identify these clouds & understand the eternal truth is goal of our human experience. I was like wow I get it now, but I am sure I will forget as soon as something won't go according to how I want it to go, that's why I keep on gravitating towards this timeless teaching to clear cloud which sometimes block my vision about my own life experiences & experience pain, suffering & other useless emotions. Asha
  3. Today
  4. Gisele, I want to address a piece of info you're seemingly missing which may answer some of your questions. There are 2 types of 9f stroke, ischemic and hemorrhagic. Each is capable of doing damage where it hits you in your brain, but each also interrupts the blood flow to the rest of the brain. Blood carries oxygen and other nutrients to the cells of the brain, and without oxygen, the cells will die. It is cellular damage that causes deficits you see after a stroke because the brain has no way of communicating with the body part, such as a muscle, telling it what to do. So, if you have to go to the bathroom for instance, and the cell which communicated with a muscle involved in walking is dead, your brain has no way of telling that muscle to move. So, you will sit, unmoving, paralyzed, until another cell is assigned to take over the dead one's responsibilities, and neuroplasticity occurs. One of the reasons that you may see damage from other parts of the brain than what was hit is what I
  5. Yesterday
  6. PaulNash

    Since my stroke we haven't had sex. Nothing physical, I've just felt sort of broken mentally/emotionally. I know that Linda is not happy about this (and neither am I, come to that). We're trying to restart, which is surprisingly difficult -- she wants me to initiate things, and I am now very very bad at timing, trying to start the ball rolling, and so on. In some ways trying and failing is worse than not trying. We'll keep on until we get it right.
  7. I must try that on my friends and family :-).
  8. alansd

    great going..gait is a good thing to control. I wish I could
  9. becky1

    CONGRATS! I think that a good PT is worth their weight in gold! Keep up the good work! Becky
  10. Last week
  11. So there I was shuffling along making that scraping toe sound with my weaker right foot. So I asked my therapist why it seems that I don't do the scrapy thing when I'm moving slowly around the house, at least not as often. So the therapist has me slow down and take a few steps followed by regular speed. Voila! Apparently when going slow I lean more to the left, shifting more weight to the left leg allowing me to lift the right foot a little more, just enough not to drag my toe. Since the left side is now compromised by the second stroke, I don't trust it as much as I used to to bear most of my weight when walking faster, hence the toe drag. Since I'm still using a walker I should be able to lean left more trusting the walker and my left arm to support the weight. Tried consciously leaning left and was able to swing the right leg through a few strides with no scratchy sounds. Will try this method this afternoon on my own. Those physical therapists are kinda useful sometimes...
  12. So there I was shuffling along making that scraping toe sound with my weaker right foot. So I asked my therapist why it seems that I don't do the scrapy thing when I'm moving slowly around the house, at least not as often. So the therapist has me slow down and take a few steps followed by regular speed. Voila! Apparently when going slow I lean more to the left, shifting more weight to the left leg allowing me to lift the right foot a little more, just enough not to drag my toe. Since the left side is now compromised by the second stroke, I don't trust it as much as I used to to bear most of my weight when walking faster, hence the toe drag. Since I'm still using a walker I should be able to lean left more trusting the walker and my left arm to support the weight. Tried consciously leaning left and was able to swing the right leg through a few strides with no scratchy sounds. Will try this method this afternoon on my own. Those physical therapists are kinda useful sometimes...
  13. I was greeted by a friend the other day with the good old, "Your looking well!". I explained to him that stroke survivors hate that expression so he replied that from now on he would greet me with, "You are looking terrible"........That's what friends are for. Deigh
  14. swilkinson

    I was in that position from 1999, the major strokes took that away from us. It is sad that such an important part of our lives just disappeared. I loved my husband and looked after him for 13 years but our relationship changed and I was more nurse than wife. Difficult for me to think of even now, I just put that part of my life aside and went on doing the things that had to be done. Companionship rather than love became the norm in our lives. No regrets, just a few wistful moments when I see older couples walking hand in hand and wish that could have been us. Ray died seven years ago and although I have many friends a second love has never come along.
  15. Bobbiet

    My husband lives in a nursing home for the past year, after having his stroke 10 years ago. We’re married, and I visit him almost daily, but there is no sexual relationship. I haven’t had sex for 10 years and I’m only 60. Anyone else like me here?
  16. This is what gets me out of bed some mornings (and stops me playing hopscotch on the highway on others): Knowing I'm not alone in the struggle really does help, as I often think that no one understands. We all know that others care and mean well, but I hope and pray that they will never ever know what we go through.
  17. When people tell me that I just laugh, they have no idea what the inside of my head looks like, all cobbwebby and honestly, just vacant at times when the fog rolls in. They'd be terrified if they ever saw it.
  18. Thank you everyone for your honesty. Your replies are all different, but can be put in the same basket of "me too". Knowing I'm not alone in the struggle really does help, as I often think that no one understands. But you guys...you get it. Unfortunately, you all know exactly where I am coming from. J x
  19. ksmith

    I have to get it back. I accidentally deleted it
  20. YAY!!!!!!!! Hostmark x

  21. yes totally. Sometimes we meet other survivors who seem to have it together. They may not have the same challenges we have and say things that works for them. Well that's all in good but to you,,, no success, We all have many ebbs and flows in our recovery. Hellz, I'm over 10 years and I still get down on myself. regularly honestly. I am so over that comment " but you look great" I know they are trying to give us a compliment and when they have no idea what or how stroke can effect us, it seems like a back-handed compliment. Or to me at least. Like you said, you've been on less frequently, that's the reason I'm the happiest alone in my apartment. I'm glad they think that and I'm glad but they, some, assume I am back to normal and when I can't do what they think I can do., I retreat back into my 'safe zone' yes agreed, no tears left because I know why I'm sad , And I know when I try to explain to people that I'm not OK , I get confused looks . We all have these feelings , some more than others or less, but having them none the less. We all can understand the frustration of it . Emotional liability. Yes and no. True, we have less control of our emotions. Just know your moment can last as long as you want to but conversely at the end of the day, only you can make yourself better. In the mean time Guurrlll, I feel you x
  22. ksmith

    "Some days it feels like life really sucks - other days, I toss up my hands and say "it is what it is" and go on! " YES!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  23. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  24. that's great George, we do something similar for splitting wood with the hydrolic splitter. The controls are deliberately designed to need 2 hands as a safety measure. so that you have to take your hands away from the log to be split before activating it. My sister and I work it as a team. she holds the left control and I (or both or us for the really big ones) load/unload the logs and operate the right control. It works quite well once you get a rhythm going.
  25. Deigh

    Forgot to mention other things, Right leg completely dead initially, by evening It could support my weight using a walking frame. Within a couple of days I could walk the hospital ward with a stick. Used a stick when on my daily walks for about a month but now have abandoned it and only carry it when I'm expecting to mix with crowds. It is mostly to warn others that I need space! I walk for about 2K daily Talking, absolutely dead initially, persistent daily loud reading and making sure I talk to others on my daily walks has shown great improvement. I no longer need an 'interpreter' when out. I'm not really content with my ability though and constantly try to improve it Deigh
  26. Benni

     

    I found that playing games and puzzles is much more difficult that it used to be. 

    Reading is difficult to concentrate. I have to read over some texts to make sure that I understand the meaning of what the text means. I have some ADHD, that doesn't help.

     

    My name is HopeE

     

  27. This discussion reminds me of me not being able to zip up my winter jacket after my stroke. I told Lesley if she could sew a loop on the bottom of the jacket near the left side of the zipper I could put my thumb thru it and hold the zipper in place and zip it up. I no longer need that help, but still keep the jacket to this day as a reminder of how it used to be. one other thing Lesley and I did together after my stroke was operate the snow blower together. We lived in Northerm Minnesota at the time and had a 1000 ft long driveway. My left hand did not work so I could not operate the snow blower controls on the left side. So, I walked on the left side and operated the left controls with my good hand and she walked on the right side and operated those controls and we cleared the driveway together. keep trying and doing!
  28. Glad to be of help Will. It's one of those things where helping others helps me. Thanks to all here for the support they give.
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