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  1. Today
  2. Missy invited me to speak at the service but I was so tired , I don’t do well with social situations because of my aphasia and I would’ve just broke down. But she knows and everyone knows the greatness that came from the Strokenetwork
  3. I shared with Missy all of the positivity that came out at the Strokenetwork. I was there for all of us not just me. But sadly I couldn’t stay to go over to his daughters house for after service refreshments. I had worked the 11 to 7 that night at 7 o’clock in the morning I drove straight to above Baltimore ( 2 ish hrs each way) more so needless to say I was too exhausted to stay with us true.
  4. Thank you for your report Kelli. I honestly feel like I was there sharing. Most humans (myself included) can only dream they might have the strength inside of them that Steve did. I'm slightly inconvenienced with my left side remaining numb but to carry on the way he did with the more than slightly overwhelming challenges he had as a quadriplegic, I think I would fail miserably. Like everyone I don't know for sure what if anything is waiting for us after this but my belief there is something. Is it reincarnation?,the traditional image of afterlife? I like thinking and believing that when human
  5. ksmith

    I concur with Sue. I can't catch myself. I give in to the fall.. welp.. here I go. lol
  6. I attended the Thursday afternoon service and was surrounded by his family and heard how wonderful he truly was. So many of them came from his daughters, this day was a private service for family but I attended for my work schedule didn't allow for the public service. The stories that were shared only emphasized the man that Steve was. A joker, never in malice, always were the best stories shared and garnered the loudest and full-belly laughs. Listening to his daughters speak of life before and after his stroke you were reminded that life didn't change. I mean , of course, what and how they d
  7. Yesterday
  8. kelli : This is such a sad news, & blow to his family & his trokenet family. Steve made best lemonade possible out f his lemons by creating this wonderful stroke support group which pulled off so many people out of their helplessness & despair. I know it helped me immensely when I found it I needed it at age 34 where I thought how this kind of things happen to person who does not smoke, drink or fat & having good job & young family at home how can stroke happen to me, till I met Steve. He was so inspiring, instead of dwelling on why me, he got busy in he
  9. swilkinson

    Good you managed to break your fall, saved more medical issues. I look at tiredness as something to do with my age. If I have had a satisfactory day then the tiredness is okay. I do try to have a day at home occasionally as a catch up day too. Keep your pace steady and when your Spring comes you will be ready.
  10. Last week
  11. becky1

    Lg, I RE-READ MY LAST POST TO YOU LAST NIGHT AND FELT THAT IT WAS UNNECESSARILY HARSH AND UNCLEAR. i APOLOGIZE FROM THE BOTTOM OF MY HEART. i WAS ANGRY THAT YOU'RE HAVING TO GO THROUGH THIS AND THAT THERE ARE FEW RESOURCES TO HELP YOU. THEN I REMEMBERED SOMETHING; YEARS AGO, SOME PEOPLE REALIZED THAT THERE WERE AN AWFUL LOT OF KIDS RUNNING AROUND WHO ALL HAD THE SAME PROBBLEMS; THEY WERE COMBATIVE, BELLIGERENT, AND NO ONE KNEW WHAT TO DO WITH THEM.HENCE, THE TERM, 'WILLIE M" WAS BORN, AND ALOT OF CASH FLEW INTO IT. GROUP HOMES SPRANG UP ALL OVER THE COUNTRY. I THINK THE WILLIE M'S COULD
  12. heathber

    Nice to know you are all getting along, and Bella got to stay. Welcome to the crazy cat lady society
  13. Hello everyone I just wanted to invite everyone to come and join in at Room #2 Stroke Survivior Chat. I will be hosting Mondays and Wednesdays from 3-4 EST! 🙂 http://www.strokechat.net/ See you soon! I am hosting tonight's chat for Asha 🙂 come join!
  14. HostTracy

    Janelle, Bella is now part of my family ---> me, Kitty and Bella. Kitty loves her!
  15. heathber

    Sounds lovely fingers crossed you have a good day.
  16. KevRider

    Balance

    Kind of a chilly week here, not as bad a s Texas though! It has kept me in a bit , but i did manage to get out to the green house aa couple of times. I managed to finish the wiring of the right side of that starts shelving i showed in the blog last week. It required a lot of up and down movement and some time down on my knees reaching under the lowest shelf. Normally that kind of motion would have triggered some major dizziness and it didn't 🙂 However it did tire me quickly. my movement is quite good these days but the stamina is still low. also I seem to recover from such tiredness quicker
  17. LgSeaunier

    My birthday tomorrow 3-3-19-- planned a good meal to cook. Hope I can, BBQ spareribs, corn bread, asparagus, and potato salad. Yummy Please Lord, make it a pleasant day!
  18. LgSeaunier

    I think when this is all over, I'll write a story about it. GOOD Thearapy (not spelled right? Hmmm. Spellchecker don't like it) hope you understand my thought.
  19. LgSeaunier

    No. He has no family. An only child & both parents are gone from this world. Which is why it's ethically and morally such a struggle for me. He was yelling so loudly outside today, that 4 sheriff cars stopped by to have a chat. I told one sheriff I was trying to get him placed. He asked who the caseworker was, I told him, he said she is really good. At least they all had a sense of humor about it.
  20. Same with my daughter heathber. Healthy and active and then IBS. It took some work but a diet adjustment made all the difference.
  21. ksmith

    OK I see this two fold, hear me out.. 1) I will always defer to my abusive relationship for it reminds me of that.. guilting you to stay for dominance 2) Damage to specific parts of the brain can cause what you are complaining about the things that he is experiencing ( HERE ) that being said, I DO NOT think because he has damage that justifies what has been happening and agree for your own mental health leaving is the right thing to do!! I do think that having a serious conversation with either his family or with your local office for disabilities , normally in a shared de
  22. ksmith

    Does he have family that you could contact and inform them that he is going to require someone to be with him in the near future?
  23. ksmith

    That is a great idea Heather. One thing that the Doctor told me was it matters about keeping my feet warm but also dress like I'm in the artic. That is for even though your feet are warm and if you're wearing a short sleeve shirt despite socks and all, your body will still register for being cold. And why was this year worse than others? No answer for it happens more in middle age women and COULD be hormones or because the sky is blue. I was assured that in warmer weather it normally gets batter, which it does, but I still have to be careful. The 'blistering' on those toes are due to the con
  24. I am so happy for you. It's the little things that most people forget to appreciate for they make up a big accomplishment like what you did.
  25. I'll let her know. She truly is a lovely person. Ironically, I haven't seen her since Dennis's service 😞
  26. That makes sense. It wasn't that the rug moved it was that you couldn't/didn't get the weight transfer onto the front of the foot in time with the rest of your body. Don't you hate that feeling of "oh crap here we go" where you know you've lost it and you are going down no matter what you do. Sounds like you managed to be relatively dignified with it though.
  27. Thank you heathber! It was indeed a no-slip and I explained to April it wasn't a rug issue. Of course it's long gone. She said it was time to replace it anyway. Here is the deal , as I was saying I was in a hurry and at the same time carrying something in both hands. This farm house has a couple small step ups and one is into the bathroom. As I took a large step forward and slightly up (much bigger than I ever should have without a free hand). my heel keep sliding away on top of the rug. I was able to set a glass on the sink but nothing to grab there. I did seem to be able to slide down the wa
  28. becky1

    lg, I DON'T SEE THE NEED FOR YOU TO say anything to him along those lines. I think you said some time ago that he can remember things for, at most, 20 min. So you stress over what to say, and how to say it, and he doesn't remember what you said 20 min. later. In addition, he doesn't seem to process things. And he has this flat, unresponsive affect So, saying anything to him right now is going to hurt and affect you way more than it will him. For what? What's the point? To hurt you more? I THINK YOU CAN LET IT BE. i YOU WANT/NEED TO SAY SOMETHING TO HIM, SAY IT WHEN HIS LEAVING IS IMMINENT.
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