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  1. Today
  2. Now maybe , it's time I should work on problem. I am a diabetic , but since shannon had his stroke. I was so upset , I quit taking my meds again And have been eating everything I am not supposed to on purpose My blood sugar is back up to 620 this morning , my best is 837. The last couple of years my h1c has been 15.5 and only 14 on my last blood work My doctor keeps telling I am going to collapse and go into a coma Since shannon has had his stroke , it's like what the sense I should be laying there , not shannon We have talked about this numerous times Shannon always ate right and always told me , I have to eat everything in moderation But if I dont change my ways , I might be able to be there for shannon
  3. Thank you heather You advice made me go from super nervous , to super excited about seeing my buddy shannon today. Shannon is in pretty rough shape , he is totally paralyzed on his right side and can not see out of his right eye His left eye doesn't look to the right very well either. He is unable to try and speak at this time , due to his throat is pretty raw from the breathing tube being in for 2 weeks On the brite side he was able to hold and squeeze my hand with his left hand , and his blood pressure didn't go over 115 today while I was there . I repeated to shannon I will be there for him , no matter how long this takes . I even got shannon to smile briefly !!!!!! There gonna be shipping shannon out to a long term rehabilitation center next week . Gonna go see him again tomorrow , keep visiting him as much as possible . And I will be there next week at his new temporary home when he arrives etc... Once again Thank you heather
  4. Yesterday
  5. Hi Kelli I'm with you on the noise. Restaurants, dinner parties, anything like that and I just clam up and shut down. I can't track conversations, and on the rare occasions when I have something to say, I have usually forgotten it by the time I get a chance, Or forget what I intended to say half-way through. I think that these are all linked. I'm loth to spend more time and more money on professionals who commiserate, spend a lot of time getting details and then tell me that there is nothing that they can do, Which gets me back to trying to remind myself to talk, and to think out loud rather than internally. This has been very helpful, now to try to translate it into actions.
  6. Keli, that is a remarkable description of the situation you find yourself in. What is most remarkable is that you can recall it and describe everything so accurately! I am fortunate that nothing like that is present in my life. In my early stroke days I took my wife into the doctor's surgery so she could translate for me. Nowadays it is still important to have her close in case I get out of depth with explanations when visiting bank staff and government departments but mostly I can cope on my own! Deigh
  7. Oh totally my friend. I always have to have someone with me when I go to the doctors for they listen.. I last about 5 minutes then...I see gloves and want to know if they fit and did they come out of the drawer.. which one.. let's open all of them... OOh look.. I wonder if I can look in my own ear with this thing.... OOOOOO buttons... This is a pretty accurate visit when I go to the doctors. seriously. I tell people please talk to me like you would do with a toddler. Don't talk to me like a toddler. That means.. short and sweet. " Today we made pizza".. to the point.. not " We were walking down this street and we noticed the smell of pizza and made us think about making some for dinner" After you said walking down a street, I start to think how I wobble when I walk and then I begin to picture what street would be good for me to walk down. By the time I find a road, in my mind, the person talking is either asking me a question or walked away. Is it my ADD or is it amplified by the stroke.. the answer is yes. It's worse since the stroke. I often just smile and in my mind listening to background noise or thinking how petty they are. I can not talk over other people or noise. I 'shut down' in a crowded place. I have tried talking in a restaurant with people talking,,, I normally just sit and smile. People who understand I have a difficult time with this, understand that I'll talk with little noise or when we leave. My Aphasia is @ 1000% with noise https://www.asha.org/public/speech/disorders/Aphasia/
  8. Heathber is spot on. Go at it slow for Shannon has gone through a lot. The world your friend knew, could very well be different, both physically and mentally and waking up from a deep sleep is a good way to look at this. I don't recognize myself once I wake up or can I understand language. I need my coffee first 🙂
  9. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  10. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  11. Hello everyone I just wanted to invite everyone to come and join me an hour filled fun & scintillating discussion from weather to whatever is going on in our life, could be children,books, movies or our coping tricks to make this post stroke journey as much fun. I will be hosting chats every Wednesdays from 8-9PM EST! at Room #2 Stroke Survivor Chat. & on Friday I will be hosting in coffee-shop. Give me opportunity to show you post stroke life is as much fun as it was pre-stroke. hostAsha
  12. smallory

    Unfortunately, videos cannot be uploaded to the message board. However, you can still share your video. You will need a YouTube account. I've created screenshots to show what to do, step-by-step.
  13. That's the attitude! It's funny how the brain works and it sounds like he wants to wake up (hopefully it's not just because of nasty dreams) and I think that's a good sign although I'm no expert. Shannon will probably be a groggy and tired even after the anesthetic wears off. brain injury does this. He will need his rest and he needs to not fight that. you sleep crazy amounts in the early days of a brain injury and even years later my mental stamina is much less than it was.
  14. Thank you for your reply PaulNash My friend's name is shannon
  15. Would like to thank all of you for your prayers , for my buddy Shannon .
  16. Thank you heather My friend's name is shannon. It's just me and shannon have done everything together for so many years I am so nervous about tomorrow , shannon has gone thru hell the last couple weeks. The nurse's , have said shannon has been fighting his antieshia. Not sure what they meant by that , but they also said , he wasn't allowed visitors for the last 2 weeks in icu Because when we came to visit shannon , it was making shannon agitated , but he was on fentanyl to keep him asleep. So how would he no we were there , other than his blood pressure would rise to 200 or better . Then we were asked to leave , not even his wife was allowed to see him the last couple of weeks . But where he likes it or not , I am going to be there for him . As long as it takes
  17. heathber

    What everyone else said. I find I'm spending quite a bit of time with my mother's friends these days. Mostly they are older than me but younger than her. I don't think age matters that much. Enjoy your new besties
  18. Hi, Jerry (I looked your name up on your profile, it feels wrong to call people by usernames) The first thing you say is "hello" or whatever you would have said in greeting before all this. He is still who he was before this, although much may also have changed The answer to all your other questions is no one knows what he will remember or what deficits he will have. Some may be obvious from the start, others may take a few weeks or even months to be noticed. The one thing you can be sure of is things will change from what you see on this first waking up. Don't be alarmed if his first reactions are weeping or anger, he will probably have very little emotional control at first. Don't let him push you away or be embarrassed if this happens it's "normal". Friends who stick through this beast are rare and special. Do encourage him to not give up no matter how bad it looks at first. Be patient and try not to do everything for him, one of the hardest parts of coming back from stroke is the loss of independence and control. No matter how long it takes to communicate let him make as many of the decisions as possible. I hope that helps you can do this and so can he, but it is !@#$% HARD WORK -Heather
  19. This will be the first time my best buddy of 30 years. Will be allowed to wake up , the doctors have kept him a sleep since feburary 6th. The day of his first massive stroke , since then he's had a 2nd massive stroke and massive bleeding and swelling in the left side of his brain. Then the doctors had to remove the left side of his skull. And he turned 53 on February 9th What do I say first , when I walk in. Will he recognize me , will he be able to understand what's going on. Will he remember calling me the night before , everything went to hell. Will he remember us fishing together almost every Saturday in the summer months. I want to be the best caregiver ever , I just dont no where to start , or what to expect tomorrow. He has also been my partner at work now for a good 25 years
  20. Last week
  21. My buddy has had a rough day They removed his breathing tube , saying it can only be in for 2 weeks. And he wasn't able to breathe on his own , so they put a treak in and its connected to a ventilator. They also put in a feeding tube in his stomach. They also said he appears to be paralyzed on his entire right side , and his brain swelling has only gone down slightly I am really getting worried
  22. 🙏🙏🙏 sending lots of prayers!!!
  23. Paul, As an idea, can I suggest you print out all the correspondence this conversation has created and put in a file. If the crunch comes you can get her to read the contents to show how much effort you have put in to try to solve the problem. You are obviously working towards recovery but it must be at your pace. In my opinion attempts by outsiders to speed up this process are doomed to failure. Deigh
  24. HostSue

    Unfortunately the stockings are for life, lymphoedema never goes away. And after I pass this latest set of tests I still have two more years to go to be declared free of cancer. So I have to be patient.
  25. alansd

    it is relatively comfortable but should be fitted by a specialist certified by Saebo..My hand was mostly clenched but loosens up after use.. I've been taught to turn my head to my weak side while holding my eyes on something to the left. A few repetitions loosens my left hand,My neuro chiropractor taught me that trick. Bioness is an estim device. this is purely mechanical.I have elbow and shoulder issues too.
  26. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  27. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

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