All Activity

This stream auto-updates

  1. Today
  2. GreenQueen

    True, Heather. I am seeing the doctor next week because of the pain in my side issue, so will mention it to him. With the exercise bike, I may be able to stay off the baclofen. I'm on pariet for reflux, which is caused by the aspirin. I need to take the blood thinner due to having a lesion. The thin blood plays havoc with my cycle, so I have a merina... Never ends! 💚👑
  3. Yesterday
  4. Janaal...Hi there, it has been over a month since we all joined in this discussion. How are things going? and did you get any good advice from us? Deigh
  5. Last week
  6. heathber

    Hard to say as Baclofen is not one I take. It could be that the clonus is now gone naturally. Mine went away the more I used my legs. Spacticity and clonus are supposed to reduce as you regain connection of the pathways. I'd leave the Baclofen out for a couple more weeks and see if it the clonus/spasms come back, you can always start taking it again if you need to. I do tend to try non medication methods for problems first. So when the Doctor says we can try "x medication" for the problem I tend to look for other ways. But it depends on the problem. Medications almost always come
  7. heathber

    Kev, that headiness as you call it drains stamina in a big way. Brain rewiring takes large chunks of energy to do. But it's worth it. That new tool box looks magnificent.
  8. swilkinson

    It is great the way you push through the physical hurdles to regain a previous level of activity. I have noticed those changes too. A tidy toolbox makes a difference to the time it takes to do a job..
  9. Hello everyone I just wanted to invite everyone to come and join in at Room #2 Stroke Survivior Chat. I will be hosting Mondays and Wednesdays from 3-4 EST! 🙂 See you soon!
  10. KevRider

    Getting Organized

    Most weeks during Covid are isolation are very uninteresting, so by Tuesday I'm wondering what to write about. My self commitment to the weekly writing of this blog make me review what progress if any I have been making, which is in itself a good thing! So in this weeks contemplations I realized I still tend to watch and grade most motion I make starting with the walk to the barn every day to fed the horses, however it appears my datum has shifted. A year ago I gauged progress from my paralysis and how much return of function I was getting. In the review yesterday I realized I had changed and
  11. GreenQueen

    We've been talking about spasticity lately, and I mentioned I'm on baclofen. My clonus in my bad leg has been getting crazy, so I talked to the chemist about when to take baclofen ie before bed and before my afternoon nana nap, as opposed to in the morning etc. The next step will be to increase the dosage, because the change in timing hasn't made a huge difference. Anyway, I have a cold (why I've been absent; I feel terrible) and haven't updated my medication box, you know the ones. All set outso you take the correct tablets each day. Well my
  12. Deigh I was just thinking the same thing. Seems I get on top of one problem and another appears. I had an old friend who used to answer the question: "How are you?" with the answer: "As well as can be expected." And I think that goes for most of us. Janelle, hang in there. All problems have a solution, the list may be long but one by one you will find an answer and hopefully cross one off the list. When I had the PET scan three years ago I had a lot of major problems. Now four operations later I have just the normal problems of old age. Unless the next PET scan in February uncovers
  13. It is almost like the bodies we inhabit are not content unless there is a problem. Every time you solve the current one another one pops up to take its place. If you are not quick enough to do this or you are tough and ignore them then you can end up with a whole stack of unsolvable ones. I dont know whether this is any consolation to other readers or even if I've added to the conversation at all, but just felt a little bored and have no cat to throw a stone at and no dog to shout at but feel that I shouldn't waste the day doing nothing. Deigh
  14. Earlier
  15. swilkinson

    ASHA, your blogs inspire me to be more grateful for my life both through the caregiving days and now. Your insights into the way life can be improved by being grateful for what we have is a good roadmap for me too. Happy Thanksgiving to you and family. Keep safe.
  16. swilkinson

    Great that you are realising how far you have come with your recovery, that is the benefit of blogging. Congratulations on the new normal for you including the pants thing. Ray never reached that but he did have a lot of strokes and each one took him back to the starting line again. I hope the effort you have put into your recovery makes your family proud too.
  17. ksmith

    Happy early Thanksgiving to you. Thank you for being such a beautiful soul
  18. Fingers and toes crossed Jim that a break helps. Mountains definitely help. I've been in our mountain retreat since Sunday. so much more incidental exercise and much better sleep. I'm feeling much more positive. As someone said the other day running to is fine, but try to avoid running away. In my view running away for a little while can help work out where to run to, so go for it.
  19. Losthubby

    I'm turning into a vegetable. it's starting to affect my work now. I've informed my dad that... something has to change. She keeps texting me about what was it that caused me to turn against her.. and i'm like.... like i've told her a million times before, nothing. almost feel like a mental break down is on it's way. i've informed everyone that i'm leaving sunday to disappear into some mountains, unplug and try to get my head back on straight, just not sure how long that will help.
  20. HostAsha

    feel so grateful this thanksgiving

    I feel so grateful to be still around in 2020 after going through some dark curve-ball of stroke in 2004, and still be around to enjoy the life with complete new outlook on life. In 2020 I feel grateful to see all my friends and family safe and sound even though my sister & brother in law got covid but they recovered fully grateful on my birthday hubby & I took day off & visited green lake state park in NY , which turned out to be fun & beautiful day trip grateful have found unconditional love right in my marriage which prods me to try & become like my hubby
  21. KevRider


    "He puts his pants on like anyone else, one leg at a time" This phrase popped into my head yesterday as I put my pants on. A year a ago putting my pants on was quite an effort as my left leg was virtually incontrollable. A few moths back I actually managed to pull my pants on while standing, although i needed to hold onto the door jam for support. Yesterday I did it free standing! 🙂 Of course this mean i had to balance standing on one leg at a time for a couple of seconds. So it things like this which I now note as part of my recovery. Core muscles , especially my back muscles are
  22. The problem for me is that sometimes with these "little problems" I don't know whether they're stroke-related or old-age-related. Or, neither ?Becky
  23. (((HUGS))) Janelle. Sometimes it feels so overwhelming when one problem cascades into another. If it helps blame your genes or the "joys" of an imperfect world. I joke with my mother that she did a bad job of growing me, but doing that relies on the sort of relationship you have with your family and how each family copes with "crap". My family look at the silly side, we know it's not something anyone can alter or did, so we laugh at the "horrors" and hence find them less of a burden. One day at a time, one problem at a time, minute by minute sometimes. You do what you
  24. Hi Janelle, I'd love to have a solution or could magically wish away all your health issues. What I can do in the least is add a small prayer your way. It helps. You're a very kind, compassionate, and caring person, it's almost difficult to imagine that so many good people are afflicted by health issues, and most difficult some of the terminal kind. My prayer for you is that God strengthen your heart, mind, and body that you continue to give support to and encourage many that suffer many debilitating issues and struggles as you do. Your words have been soothing and helpful to many that needed
  25. Ok, so for the last month or so, I've been getting all this pain in my right side. Like, continual stabbing pain. It was coming and going, then just coming. Crying coming. I went to the doctor and he had a feel of my guts but couldn't find anything specific. So I had a blood test and a wee test. I had a urine infection, and antibiotics sorted (hopefully) that out. The doctor also ordered a CT, as I had no symptoms of anything, really. Turns out I have an umbilical hernia. Okey dokey then. Obviously why I'm in constant pain. I've al
  26. swilkinson

    Pam, my lymphoedema is mild compared to yours but I think of you too. I think you are very brave and an example to us all. Enjoy your colouring and your other hobbies. Take what happiness you can, life is short and we have to make the most of it.
  27. SassyBetsy

    Dearest Sue, I think of you Daily as I put on the lymphedema pumps and the compression garment I use a circaid juxtalite..... It's just a wrap-around with Velcro and it puts pressure And the nurse has to apply it because it has markings where Things should be lined up to put the right amount of pressure. So I remember you talking about your lymphedema things and I'm walking right along with you. In fact my cardiologist went inside and looked at the veins.He is going to put a stint in one of the main arteries they suspect that's why I keep getting in ulcer in the same spot of my heel.
  28. SassyBetsy

    Thank you Asha & NO I WAS NEVER UPSET about anything or anyone. I just have so much going on. I became selfish and busy with hobbies. I watch lots of movies And I color!!! My son got me a great set for my birthday that has 160 pencils!!! I fill books of fairys. My new book is Ocean. I Cannot wait. I miss you guys, even tho I have been in my bubble.
  29. HostAsha

    Sue : I am so glad you got to spend time with your family & help out your daughter in her hour of need. you got sweet grandson who is so close to you & remembers his Pa. I better take good care of myself so I am around to play with my grandchildren which are at-least 15 years away which will make me 65 at that time, & I am so excited to see how our son's life will turn out, one excited parent & future grandma Thanks, Asha Chandra
  1. Load more activity