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  1. Today
  2. Hi! I don't think that this will help you now, but when he becomes more alert, it might, so thought I'd mention it now, before I forget. I couldn't speak after my stroke, either. My fiirst Speech Therapist had to teach me how to speak - how to make words come out of my mouth. Until I could speak, my husband and I used a "spellboard". It was simply a piece of paper with the letters of the alphabet on it. I'd point to letters to spell a word. He'd write the letters down until a word was spelled. When he thought he had a senctence, he'd read it back to me, then say his reply. Usually, he figured out what I was trying to "say" before I spelled it. My point is that you all will find a way to communicate. It may be very different from speaking with words, but you'll find a way , Becky
  3. Welcome to Strokenet! You've recovered most of your functions, and that's great! The doctors fixed the problem this time, why can't they do the same thing if it happens again? Good luck with everything! Becky
  4. Yesterday
  5. Scott, I do the same thing,but for a different reason. I read my posts ,and feel like I come across as being negative, so I will delete.
  6. Hey RStone! Welcome to the group (I'm a newbie as well). This group of folks took to me like I'd been here for years, all very nice folks, and helpful with advice! Made me feel safe :) Welcome !! :)
  7. It never even occurred to me to ask to see my MRI. I presume you need an appointment for that. Insurance won't pay for that I'd imagine....does anyone know what that costs? I think I'd like to see that.
  8. I just joined the Stroke Network. I had a massive right brain bleed in September of last year followed by craniotomy and subsequent biopsy of the affected arteries and damaged brain tissue. I was diagnosed with Cerebral Amyloid Angiopathy (CAA) which weakens cerebral blood vessels so that they crack and leak. At this point in time it is untreatable. I was 67 at the time of my stroke; active andphysically fit. (blood pressure 120/60. In fact, I was riding on a bicycle trail at the time of my stroke. No other co-morbidities. So it is disturbing in the extreme to live with the uncertainty of waiting for the next stroke to happen without effective treatment. On the plus sid -, Although I awoke with no use of my left side, and indeed, no awareness of my own left hand, I soon gained movement, reflexes and sensation and was walking and doing self care halfway through my rehab hospital stay. I am discharged from physical, occupational and cognitive therapy and have even restarted my business (selling rel estate) with the help of colleagues. I am left with a left side visual field cut in both eyes, and persistent visual left neglect which has made me retire from diving. I am lucky to have a wonderful life partner as well as friends who helped me though the early months of learning how yo walk around and compensate for the vision loss. This is my first attempt at finding a support group. Actual support in meetings has been difficult to find as the groups meet so rarely - and I live in a major metropolitan area with great teaching hospitals.
  9. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.

  10. great article. thanks for sharing
  11. yes that's what I use. www.healthyhempoil.com is a great site. It comes in many forms
  12. Meds be they natural or synthetic, work for some people, and not for others. For myself, if I'm interested I'll try something, it'll work or it won't.
  13. Yeah, Tracy, how are you doing? ( I like the way Kelli said this). Becky
  14. Yup. My left vertebral is pretty much blocked by a dissection of the artery wall. Blood flow through the others seems to make up the shortfall. The blocked artery has a bunch more blood clots waiting to zip off into my brain, so if it stays blocked, I should be safe. Problems may well come if it ever unblocks -- blood flow + blood clots + brain = bad news. The medics all say that that is unlikely. Regarding bruises -- I had a choice between rat poison and Fragmin (injectable sub-cut, twice daily). The Fragmin left me looking like a pin-cushion crossed with the Valentine's Day Massacre, blood and bruises all over my stomach and thighs. A bit off-topic, though
  15. Last week
  16. No JonJ I was worried at first but it turns out you can get by just fine with only the three arteries to the brain. There are 4 feeder arteries usually and they all feed into a ring that feeds the brain sections, so as long as the ring itself is OK you get by just fine with only 3 feeder arteries. It was fascinating to see the MRI done a couple of years after the artery closed and to see the way the others had all gotten bigger. The body and brain are quite adaptable when they have to be.
  17. Holy Hellfire Batman.. are you feeling/doing better?...I hope
  18. Janelle it has been so long since I have visited or written here. I have been rereading your post and replies. Almost a year ago. I wanted to share with you that over the New Year's holiday I got very sick and was hypoxic from asthma. I was in the hospital for 4 days and learned during that time that I am a diabetic now as well. It was and still is a shock to me. I am still in the process of taking classes to learn how to do this so I feel a bit lost. I just wanted you to know I am thinking of you and now know how you must have felt when you started this thread. I probably should go back and read through my own response to you 🙂 lol. I sure hope you are doing well and feel better about things since your 1st post. It seems I am joining your club my friend. Love you.
  19. Wow, nice! Very "MPR" :-) I just listened to the full episode and found it engaging and enjoyable (also very relaxing, especially the end music). Plus, you have a great logo! Best of luck with this endeavor - I look forward to next week! PS: Do you have any ideas for discussing alternative treatments, like functional medicine, integrative medicine, acupuncture, etc.? Those might be interesting to learn about.
  20. Kind of what I was thinking, Kelli, but I was thinking they gave him something to dissolve the clot, and then (too soon) gave him the blood pressure med.
  21. Steve, I think I'm going to have to donate again....those 3 - 6's are bugging me.

  22. Well, one good thing about that would be, now, all you have to do is bookmark that page and you're good to go forever.
  23. So I ran the scenario with the nurses in my family, no personal information , and we are perplexed. The only thing I can think of is it just happened at the same time?
  24. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.

  25. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.

  26. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.

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