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  1. Yesterday
  2. PaulNash

    Hi Tracy That is wonderful. I'm going to start today. I know that if I can focus on the good bits, I tend to feel better. You have a great way of making sure that you focus on the good bits every day. You bring out a "focus journal", sell it on Amazon, and make a fortune! paul
  3. Last week
  4. scottm

    Thanks. It is a bit better today, still in flannel and the cats are mad my lap is off limits but not so intense today.
  5. heathber

    Coping exercise or not fingers crossed it works, or at least doesn't make things worse. Naked is not socially acceptable in many places and is not practical in colder weather or in the air con. When we can't win all we can work at is coping. Fingers crossed for both Pam and Scott to find their inner duck. Hugs to you both (at least virtual ones don't trigger pain). I can't imagine anything worse than not being able to be touched. Heather
  6. SassyBetsy

    Scott no one understands my aversion to pants but you. It hurts like no one knows. All types of hurt. Then they say, oh that didnt hurt so.. I hope you seek treatment,have hope. The RFA helps me walk more,helps all of it. IT never stops tho. Be asleep happy or wake up to a reality of pain. I see you my friend. It is not easy to enjoy life like this but you know wife loves you around if she keeps you in soft jammies. I will pray answers and peaceful relief arrive.
  7. Hello.  Had a stroke 12/24/2018.

     

    Glad to be here.

  8. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  9. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  10. Woke up about 3AM with what felt like a knife in my calf, a bit abrupt but it happens occasionally. Then the CPS started to assert itself until the sheets burned against my arm and leg and my face stung. I'm up now and it hasn't gone down any appreciable amount but thanks to my ever thoughtful wife I have a pair of very soft flannel pants and matching plaid top. That helps by not rubbing the skin much. The alternative was no clothes just to keep them off my skin but even air movement will sometimes lite it up. Now we wait to see how it goes, I have no medication for pain so it is just a coping exercise. *Quack*
  11. swilkinson

    George, great to have an update from you. I am having some health woes too but hope that once I am over them I will go back to leading a more interesting life. It is wonderful you are finding Lesley's Mum a good addition to the household, I am sure she values her time with you and Lesley too.
  12. HostTracy

    Paul I have been rereading your thread and it made me think of something I've learned recently. You stated: I am trying to find things to be grateful for, and while there are many of them, I'm finding it hard to feel gratitude. This is such a huge delemna. Especially when everything around you is not in the best positive light. I know right after I was cognizant after my stroke... My reality was excruciating. Every part of it from physical to mental to relationships to time to perception to reasoning to opening my eyes to using my brain for anything. I was very paranoid, scared, and had so much anxiety I could feel it rise in my body, up my chest, up my neck, through my jaw. I was afraid my brain or my heart were going to explode. First I am being absolutely dead serious. I had a copy of the serenity prayer and chanted it over and over and over. My fingers didn't write well at all (due to dysmetria a type of ataxia) but I fumbled around until I found a notebook and pen. That day I started to do something on my own (I still had no idea what was wrong with me). I wrote 5 things each night that I could remember that made me feel grateful. Sometimes I wrote right after something happened because I would forget. I barely wrote one word things at first. Like: kitty, food, bath, bubbles, sun. Then 2, 3, 4 and then small statements. Like: went potty, took bath, write things, good soup...took a bubble bath, sat in chair for 10 minutes, awake for 20 minutes, Hailey read to me...my kitty curled next to me and purred, I sat in the living room with family for 15 minutes, my dessert was yummy. Somehow...someway this little thing helped me. Today I still have severe anxiety disorder with panic attacks. It can get in the way of many things and severely limits me. My therapist (psychologist) suggested I start a notebook using the GLAD method. Essentially very similar to the gratitude writings I had done. G=gratitude... L=learned... A=accomplished... D=delight. So every day i write a new GLAD in my notebook. The key is that it does not need to be big or lengthy. Example Day(write your GLAD about your day) : G-grateful for my mom L-learned a new word game A-accomplished washing my hair D-delighted when I watched kitty videos. If your day is ever like one of mine then another example might be: G-my bed L-patience A-brushed teeth D-my kitty. Some days you can be ver descriptive others maybe not but the good thing is it doesn't matter. Sometimes I am grateful for my bed, sometimes I only brush my teeth, and then sometimes I can write down several things I have gratitude for, accomplished, learned, or felt delight in on a day. Go by how your day is today. 🙂 Anyway, I just wanted to share... I've had many days where I feel the same as you said.
  13. No, it was my fault that I missed your message, I don't look regularly on the site busy doing other things and suddenly the other day saw that I'd missed you. I try to work out the best times but get confused quickly.!!!! just at this time of day or even a couple of hours earlier would be good for me. Regards Deigh
  14. Deigh I will be sure to try my best at sending out an invite a few minutes before chat. I usually do but I have forgotten before. Are you interested in the afternoon chat or evening chat. I know that's not an easy answer but I believe it is about 16 hours ahead of EST right now. I think I read right. 🤔 Maybe that will help 🙂.
  15. GeorgeLesley

    Life update

    Been awhile since I blogged so here goes. I did my trip in August to see my longtime friend in Texas. He is doing well, still has some reading deficit but getting better. No other issues at this time. We had a great visit, he took me to the Ft Worth stockyards and I rode a long horn bull! From there I went to see some other friends in Louisiana for a few days and saw the WWII museum in New Orleans. I drove the trip alone, just me and my Mazda Miata with the top down most of the time and my favorite music going. Fortunately there was nobody along to listen to my singing. Some sad news, another very longtime friend has some significant health issues. He is 11 years younger than I am but life has not been as kind to him as it has to me medically. I just made another friend by accident recently. He is the husband of the lady we hire to take care of mum when Lesley and I need to leave her alone for a 1/2 day or more. We really hit it off right away but unfortunately he also has major health issues and is 20 years younger than I am. I also recently looked up a couple I knew over 40 years ago while stationed in Italy. Very sad news there, he is a bit younger than I and just diagnosed with terminal cancer. Wow, so much bad news among guys I know about my age! I am most thankful that my health is at the moment very good. Stroke survivor yes, colitis sufferer yes, but all in all very healthy and grateful for it. Seems like the past several months since I had a heart ablation and a pacemaker implanted and I have been able to start exercising again most days I really feel great. I can tell my body missed the exercise I missed during the heart surgeries and our Alaska trip. i have a few other “guy” trips planned and will take another guy along if I can find a healthy one. There is a college baseball tournament in May I may go to, it has been on my bucket list for many years, and it looks like to me I should get on with doing whatever is on my list. In June Lesley, mum and I are going to Minnesota so I can get my fishing fix. On the way back we plan to take mum to the Auburn car museum in Indiana so she can relive the memories she has of her late husband Bill and her driving in the Auburn car they once had in New Zealand. then in July me and my Miata are heading to the A.C. Gilbert Historical Society convention in Akron, Ohio. He invented Erector sets for young boys like me to build with and many other toys for young lads to enjoy. I hope to see a “tractor pull” while in Ohio, another “bucket list” item. maybe a fall trip after that in the motorhome with all three of us and the two dogs to somewhere, maybe the Ozark’s of Arkansas and Missouri. mum is now 96, 97 in September. She is hoping to get her 100 year old letter of congratulations from the Queen which members of the British Commonwealth get. Her health has greatly improved since our return from Alaska. At this point I think she may just get her letter. I wouldn’t bet against her. I can also say that the best two years of my life have been the last two since she has come to live with us. I would not say that about all mother-in-laws, but her, yes. anyway, enough for now, life is very, very good here, even though we are unworthy. time for tea. P.S. I forgot to mentioned we had the privilege of hosting two disabled vets a few days ago for one night,that or part of a group of 10 such vets currently hiking the Appalachian Trail which runs over 2,000 miles from Georgia to Maine.
  16. Sorry Tracy I missed your latest message, read it too late to realise that I could have joined in. Hope that next time you are on at that time I will know in time to switch over and chat. Deigh
  17. PaulNash

    The way that your fellow citizens and politicians have handled this has raised a phoenix from the fire. The event is still tragic and evil, but response appears to have been so overwhelming as to bring a huge amount of good and goodwill. It will not bring people back to life, but it will help with healing (and the ban will help prevent future incidents).
  18. PaulNash

    If you don't have young men hanging around your house looking all misty-eyed already, they'll start flocking there in droves any day now. She is utterly gorgeous! You have very good reasons to be proud of them both.
  19. PaulNash

    Hi Janelle Thank you. This community has helped me an enormous amount. I'm still bouncing up and down more than I would like to, but things have improved significantly, and seem to be getting better day by day. At least part of the problem (but not the biggest) was not keeping track of my spoons! Having realized that and working out how much I can do, and what order to do it in, things are getting easier. It makes it easier for me to balance work and life, so that the "life" part doesn't get lost I've also started cancelling some of the my medical appointments. I am articulate, have a weird ABI, and some unusual deficits, so the local stroke hospital loves to use me as a demo for their patients. While I want doctors to learn how to recognize unusual strokes, that is not my full-time job (yet). And I have just been accepted for a CBT program at that hospital, starting in three weeks' time. I can't wait! Again, thank you to everyone on this board. I find great comfort in reading about other survivors' lives, how they cope, their joys, their hardships. This group is the silver lining.
  20. GreenQueen

    I've just started watching this show called Manifest. One guy said to this girl: Don't waste your miracle on your pain. I really wanted to share that here, and Paul's thread seems the perfect place. Yes, we definitely need to grieve, and accept our lives as they are now. I'm pretty sure that most days, I've reached the acceptance stage. I don't want to waste time wallowing, I want to enjoy the miracle of my life. Paul, as you continue your journey to acceptance, we are along for the ride.
  21. GreenQueen

    Awesome Alan. Doing something you love and being paid! So fantastic you are doing stroke support. We all know how vital that support is.
  22. GreenQueen

    Tracy that's the best news of bad news... Many prayers for your dad, stepmother, you and family.
  23. GreenQueen

    Thankful for Ryder's recovery. Very grateful for many prayers for Ryder, his family and medical team.
  24. Very nice, but data is expensive in NZ and there is no way I could afford the luxury of fibre. Using free wi-fi is an essential part of my computer use plan! Deigh
  25. HostTracy

    Kelli I am so overjoyed for little Ryder, his parents, and his mimi and all those who love him. Wonderful news.
  26. HostTracy

    I am so blessed to say that my dad is diagnosed with Lymphoma. It's still serious and not staged yet but treatable with a much more positive outlook. Thank you Jesus! My heart feels much better. My throat however really hurts. I was diagnosed yesterday with strep throat. I had to get two painful shots and take 10 days of penicillin. Ouch!!! 😭😷 One steroid shot and I have only had 3 hours of sleep since yesterday morning 🙄. But I am so happy about my dad's news. Thank you all for your positive thoughts it means so much to me. ❤️
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