Jump to content

All Activity

This stream auto-updates     

  1. Past hour
  2. Hi, I had an internal capsule stroke in June that affected my left side. I couldn't move my arm or leg, talk right, or swallow at first. Talking and swallowing are pretty good now. I can walk without my cane, though I still have coordination and balance issues. I have to wear a knee cage to keep my left knee from hyper extending. My arm and hand are extremely weak, although I can move them now. My recovery was moving along really well, but now seems to have come to a standstill. I'm trying to stay positive and not succeeding with that lately. The mental and emotional aspects of the stroke are just now starting to hit me. I have had a lot more fatigue the past few weeks and I've just been *beep* off in general. I do have a doctor's appointment next week to discuss these issues, but any advice from the true stroke experts would be welcome. I'm grateful that I found this site. It really helps to be able to communicate with people who really understand. Nicole
  3. Yesterday
  4. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  5. Welcome to StrokeNet. Please feel free to browse around and then introduce yourself by posting in the the Newbie Stroke Survivor or Stroke Caregiver Introduction forum.  After that, post your question in the applicable forum and others will reply.  You will quickly get to know the others. If you have any questions please don't hesitate to ask.

  6. BadgerSteve

    Good morning Jan. Sorry to hear that you continue to experience challenges that you have yet to overcome. I know how frustrating that can be. I have completely lost my eyesight in my right eye with zero chance of recovery- the optic nerve is dead. Not sure I can give advice without knowing what you want to learn/understand. But reach out to me if you have specific questions and I'll do my best to offer my perspective. Otherwise my only advice at this point is to....Keep working hard to recover. Our brains and bodies have an amazing capacity to heal and cope. And there are so many near and dear to us who want us to be there for them. Keep smiling! Have a terrific Thanksgiving.
  7. smarshall

    It IS hard to explain the feeling to someone who hasn't experienced it. I hope you find relief!
  8. Deigh

    I was in the local hardware store waiting to pay for my purchase. In no hurry I sat down at a display settee to wait till a teller was free. When this happened I got up rather slowly and made my way forward. Being clumsy I collided with someone else in a hurry. He seemed surprised about where I had come from. I tried to explain humorously that I had been waiting in the 'Executive Lounge' but do you think I could say the word 'EXECUTIVE' ? We had a few laughs about it and he obligingly deferred the teller to me. Been practicing that word ever since! Deigh
  9. Myjade

    I have a daily struggle with CP's It's so hard to explain! It's burning, tingling, aching, soreness, numbness,and sometimes it hurts if someone even touches me on the left side!! I know it sounds kind of crazy, but that's how it feels to me! I'm trying gabapentin and elevil! I can't really tell if it's helping just yet, but I'm hoping!!
  10. Myjade

    Hello Steve, my name is Jan, Your stroke sounds a lot like mine! I had a clot in the right carotid artery! I have weakness on the left side,unfortunately I haven't recovered as well ad you. I want to walk so much, and be able to do just everyday normal things. It gives me hope to hear from others on the same journey, and having such good success! Glad to have you on stroke net, and I look forward to hearing about your journey! If you have any advice for us who are not as far along, I would welcome any suggestions you might have! It's so nice meeting you, and I'm very happy for your success!!
  11. heathber

    That does sound like you are working off a long term sleep deficit rather than drug induced sleeping. So now you can start the job of adjusting your sleep time to be more socially acceptable. Fingers crossed it continues to work for you.
  12. Last week
  13. tmciriani

    This is definitely a new experience. Good news: I am waking up and not fighting my body to wake up. I was worried this was going to get worse. What happens when I can no longer force myself to get up. 😵 Bad news: Ok so my sleep cycle is still out of whack. Maybe like 3-11 or 3-12. This is pretty normal for me. It's that whole business of having a healthy sleep cycle that screws up until it comes back again to healthy (in my eyes...or like I want it). 👍 I can handle this! Frustrating for me at times...more so for others (I don't care!!). So all in all positive. 🙂 I am having less and less emotional flooding. 🙆
  14. tmciriani

    Thank you guys. I feel the same way as you. I feel better already making the decision to go on a journey with no pressure. Just for me. 🙂 When I get going I'll be sure to share with everyone here. I'm not going anywhere. Hugs!
  15. BadgerSteve

    Thanks everyone for your kind welcome. we have so much to be thankful for this week.
  16. GreenQueen

    What Heather said. Having pressure for it to be "successful " is not what you need. There is more than one version of successful anyway. If it makes you feel good knowing you are helping others, that's the best success there is.
  17. GreenQueen

    Tracy I take about an hour to wake up if I haven't had enough sleep. Same thing, trouble opening eyes, nodding off... It's extremely frustrating. I'm doing my best to go to bed at the same time each night and getting up at the same time each morning. Easier said than done.
  18. GreenQueen

    Hey Steve, Thank you for sharing your story. Looking forward to sharing the journey with you.
  19. becky1

    Hi, Steve. Welcome to Strokenet. Sounds like you've had a remarkable recovery. And you're so positive that I'm really glad you volunteer your time to talk to talk to other survivors. In the early days after my stroke, I needed all of the positivity that I could get, and I bet other survivors get a lot from your messages. Becky
  20. heathber

    Oh the "joys" of the new medication roundabout. I do hope you get your sleep patterns sorted out. Sleep deprivation does nasty things, but too much sleep is also bad for us.
  21. heathber

    Start at the beginning and put one foot in front of the other. If it becomes an income stream that's wonderful but enjoy the scenery along the way too.
  22. tmciriani

    LOL Janelle I have no idea but that is an excellent suggestion. I think I am going to begin this new journey as a journey and not an income source. I already feel the pressure and I haven't even started. If it becomes more then great! I am going to look into the Dummy book! Thank you!
  23. tmciriani

    Hi Steve, my apologies, I must have missed your posts. I'm glad I saw this one and wish to welcome you. This support site has been a really great place for me. Validation, friendship, health information, support, a blog you can start, chat (scheduled), a picture gallery, and definitely a place to share, vent, and give support as well as get support. My name is Tracy. I had a bilateral cerebellar stroke in the PICA region July 5, 2015. I'm so glad to hear you have had a really positive recovery and transition back to working and getting back to life. It's an inspiration. 🙂
  24. tmciriani

    Pretty picture. 🙂
  25. tmciriani

    Janelle I am on week three of Nuedexta. I'm not sure what is the issue. I know some days I need extra sleep but I don't know...confused. 😞 I'll keep sending updates...falling asleep as I write lol. This is good (3:17am!). Ok night all.
  26. tmciriani

    Steve I am on my new medication Nuedexta. I have chronic debilitating PBA. It's week three and it takes 90 days to reach optimal blood serum level. I'm actually worried that by then I will be unable to wake up. 😕 I'm actually having a difficult time going to sleep tonight but if tomorrow morning is anything like this morning...I'll have an hour of trying to open my eyes. I sorta wake up and then before I know it I am back to sleep then a few minutes later trying my best to open my lead eyes and poof back to sleep. 😵 I finally got enough strength to push my body upright. It took an hour after that to fully wake up and function and my body hurt all over. Weird issues. I'll keep you guys informed about changes. I know this medicine has to be helpful to other stroke survivors with PBA. I may not be one of them. I'm calling my Psychiatrist on Monday with an update.
  27. smallory

    To me, a nap is like an hour or two. I take several naps every night throughout the night. Five hours is more sleep than I get all night.
  28. GreenQueen

    Wow! You obviously needed the rest Tracy. I'm very glad you decided to rest, and not keep going, as we all know where "pushing through" gets us.
  1. Load more activity