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Executive Management
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About ksmith

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    Stroke Support Coordinator
  • Birthday 04/26/1974

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  • Stroke Network Email
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  • Stroke Anniversary (first stroke)
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    Mother of two great boys!!
    supportive family
    I enjoy life!!
    appreciate every moment
    Don't take myself seriously
    Enjoy talking to others
    Facebook Moderator
    I AM A SURVIVOR!!!!!!!
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    New Jersey
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  1. Merichen, a old member and all around groovy chick, started a book club of sorts. It was a discussion on the subject. I have a hard time reading. I love to read but with my eyes bouncing, comprehension of what it said, It makes me so tired to try to read for so many behind the scenes things are happening ( ie trying to follow the sentence, remembering what I read)
  2. I hope you do many things with your walking aide. I love my cane
  3. I'm claustrophobic so no dice for me
  4. I had an extremely difficult time talking after my stroke and couldn't have cognitively navigated an app in the beginning. That being said, I think you should find what works best for you and your family
  5. How Mindfulness Helps You Find Your Way Through Difficulty If you take up the practice of meditation, the journey will go far beyond stress reduction, writes Ed Halliwell. Here are some of the qualities you’ll discover and explore as you travel. By Ed Halliwell | March 27, 2016 Illustrations by Olimpia Zagnoli It was about a dozen years ago and I was going through a rough bout of depression. I convinced myself there must be some ready cure I could find, and I embarked on a frantic tour of the therapeutic merry-go-round to relieve my pain. I desperately reached for any doctor, therapist, or support group. I gobbled up whatever advice or pills they offered, but nothing changed. I was still in pain. Eventually I came to mindfulness. At first, I approached it with the same demand for instant relief. But then something unexpected happened. I saw that it was impossible to really follow the instructions for mindfulness meditation—gently paying attention to the flow of breath, allowing things to be just as they are—and strive for results at the same time. So I stopped looking for cures and results, and to my surprise, some helpful openness and clarity began to arise in my mind. I came to know my depression differently. I began to notice its textures and contours, its causes and its effects. I became familiar with its landscape. As I continued to meditate over the following months, my stressful struggle to fix and change things faded little by little. The difference was this: now I could observe my thoughts and feelings without identifying with them so much. As I continued to meditate over the following months, my stressful struggle to fix and change things faded little by little. A subtle and profound transformation occurred as I allowed myself to rest in the experience of just being. I became more willing to experience all the energy of my emotions and feelings—even the unpleasant ones. I stopped fighting with myself so much, and with that, ironically, came the very relief I was seeking. Mindfulness these days is strongly associated with stress reduction, and for very good reasons. Mindfulness reduces stress. Full stop. Reducing stress is a great goal. Another full stop. But mindfulness practice can be so much more than stress reduction. Certainly I am less anxious and stressed today than I was a decade ago. But my difficulties haven’t gone away, and neither have my habitual ways of reacting to them. And yet things are better. From what I have seen in myself—and the people I teach mindfulness to—the biggest changes come from letting go of our goals, struggles, and hopes for a cure. At a certain point, focusing our mindfulness practice too much on stress reduction—or any goal—can limit its benefit to us. Real change comes from learning to make a different relationship with our stresses and difficulties. As I discovered during my early days of practice, mindfulness meditation has built-in mechanisms that free us from the trap of instant salvation. Our goal-oriented mind-set is deeply ingrained and persistent, and we need all the help we can get to reorient ourselves to a new way of being—so that we are less eager to run away from where we are in the moment. That’s why it is helpful to settle in for the mindfulness journey, so we can appreciate its rich view and interesting ride, even—especially—when it doesn’t seem beautiful or smooth. The formal practice of meditation helps us navigate the route, and so do the attitudes we take as we travel. By gently cultivating certain qualities, we create the conditions for a shift in perspective, so in time our goals may no longer seem that relevant, even when, as if by magic, they are achieved. Here are seven qualities we can cultivate in our mindfulness practice that will bring benefit to ourselves and others. Acceptance Like any skill, mindfulness needs effort. But many of us have been told—or tell ourselves—that we don’t try hard enough, haven’t got it in us, or fail because we’re lazy. So we may try too hard, thinking we have to do everything perfectly. This makes the whole business of effort a bit tricky. The commitment we cultivate in mindfulness practice is nonjudgmental. We’re loyal to the present moment, which takes the form of a willingness to gently come back from distraction again and again. It also includes compassionate acceptance when our mind wanders off. When we notice how we judge ourselves for not being good enough, or our meditation for “not working,” it helps to remember that each moment starts fresh. We are never damned; we can renew our commitment in every moment. In fact, every time we notice distraction, we have already come back to awareness. Noticing our distraction is a cause for celebration, not recrimination. How? It’s helpful to plan a time and space to practice regular meditation and stick with that plan. Make a commitment that feels manageable. Notice if you’re driving yourself too hard or selling yourself short. Let go of these thoughts. Tenderness Many forms of training focus on getting us “in shape.” Mindfulness is different. By letting go of pushing, pulling, remonstrating, and ruminating, we go easier on ourselves. If we feel sad, we can allow that sadness. If we feel judgmental, we can allow for that without having to buy into it (or judge ourselves for being judgmental). If we feel angry, instead of seeing it as a solid unchangeable mass, we can see that it comes and goes a little. There are actually spaces in the midst of the intensity. That’s why it can still be possible to make someone laugh even when they’re angry. Mindfulness means “to pay attention.” But this can carry connotations of harshness— the critical schoolteacher or bellowing drill sergeant—so it helps to remember that paying attention in this case really means “to tend,” to care for something in a warm and supportive way. We can become our own kind parent, nurturing ourselves with unconditional caring. Then the challenges of life won’t hit us quite so hard. How? Practice opening to parts of yourself you’d rather reject. Notice how they respond to compassion rather than condemnation. Inquisitiveness Taking what some psychologists call an “approach” mentality to life is a key marker of well-being: being curious about the world, interested in new people and experiences, even when they scare us. Avoidance, by contrast, means letting fear control us, not going to new places, trying new activities, or exploring ideas that don’t fit our existing mind-set. Mindfulness—noticing events in a warm, open, and inquisitive manner—develops the courage to meet our lives with genuine interest. It doesn’t mean there’s no discomfort when we dare to be curious. It means we’re willing to tolerate not knowing what might be around the next corner. In return, we experience the delight of being able to look, listen, taste, touch, feel, and learn from our environment. We may not know all the answers, but we don’t limit our perspective. How? Be a scientist in the laboratory of your world. Pause before making assumptions. Hear the feedback from your mind, body, environment, and other people. Give those around you space to express their views, especially if they are different from your own. Can you walk in their shoes for a moment, seeing from their perspective? Ask yourself: “What’s actually going on here?” and be open to the information that comes back. Body Awareness Where is your mind? Most of us point to our head. The word mindfulness can suggest cognition—something to do with thinking and the brain. But mindfulness means bringing awareness to our whole experience, not just from the neck up. By acknowledging our bodies in meditation, we synchronize mind and body and experience ourselves as an integrated whole. When we experience an emotion, we notice how it feels in different parts of our body. That helps when it comes to acting on our feelings. Dismissing our feelings leads us to live out of step with our hearts, and by increasing our body awareness, we have a chance to redress this imbalance. How? Slowly scan your body from toe to head, noticing each part and where the tension lies. A practice like this tunes you into the pulses and rhythms of your body a little more. Long-distance runners do this to be aware of how different parts of their body are responding to the effort they’re expending. In everyday life, pausing several times a day to feel what’s going on in our bodies can free us from being caught up in the speed and importance of our thoughts. Appreciation It’s easy to focus on the negative too much. On the other hand, self-help-style positive thinking can end up as a superficial pep talk. In contrast, simple appreciation means taking a bit more time to allow things to be just the way they are, without wanting them to change so much to suit us. If someone is being cold toward us, we see that for what it is, without trying to push it away too hard or sugarcoat it. With this kind of attitude, we can appreciate beauty, warmth, friendship, and joy, but also sadness and anger, loss and illness, difficulty and disappointment. It may go against our conditioning, but in embracing what’s difficult we hold the key to not letting negative thoughts overwhelm us. Pushing them away just fuels their power. How? Sit up and take an uplifted, open, and relaxed posture. Even that little gesture of not slumping and shirking helps us embrace life with more equanimity. We can savor the good things and meet our problems without trying so hard to get rid of, fight, or deny them. What would happen if we cracked a smile when we were depressed? It’s not just a way to grin and bear it but a step toward appreciating the inevitable ups and downs of existence. Being Generous Every act of mindfulness contains a bit of generosity already. When we choose to escort our wandering attention home, it’s as if we’re reaching out a hand to a child who is lost in a crowd and struggling to get to the safety of their parents. We start by lending a hand to ourselves. After giving the gift to ourselves of letting our emotions come and go without being so harsh about it, we can start to become more generous with others and their states of mind. As we become less caught up in our own little dramas, we discover that other people, with their own struggles and challenges, are really not so different from us. We start giving them the room to be themselves. How? Meditation is most beneficial when it’s not just a solo sport. See if you can find some other people to practice meditation with, people with whom you can share the experience of being more open and the challenges that can go along with that. Openness can be contagious, and the tendency to hold back from being free and generous with others can be worn away. Sticking to it The mindfulness road can be rocky. It takes guts to return again and again to the present moment, especially when our impulse is to run away, attack, or hide. And we will regularly fail. When the novelty has worn off, when we’re doing the spadework of meditation and what we excavate is smelly, dark, irritating, boring, or frightening, this is a chance to work on being steadfast. Can we trust that the plummeting self-esteem we’re feeling right now is okay? Can we patiently let our thoughts and emotions run their course? Can we return to the now when it’s not where we’d like it to be? Can we return to our mindfulness when our minds aren’t calm and we feel like we’re getting nowhere? The reward for sticking to it is the deeper confidence that develops—the feeling in our bones that we can handle whatever life throws our way. How? Using breath as an anchor, we can be with whatever presents itself. Knowing that this moment is already here—and that the only sensible thing is to be with it—we can ride the waves of difficulty with dignity and poise, like a good rider on a spirited horse. We can still seek the support we need, make changes we need to make, or let someone know they need to stop hurting us. In doing so, though, we use the wisdom of mindfulness as our guide, drawing on deep inner resources to negotiate the journey with gentleness and skill. This article also appeared in the June 2013 issue of Mindful magazine.
  6. This is a very interesting article I read about our medicare premiums for next year https://www.cnbc.com/2017/10/13/medicare-premiums-may-devour-increased-2018-social-security-benefit.html
  7. Congratulations Andy!!!!!!!!!!
  8. I have not used one but I know a gentleman who does and it's been a life saver for him.
  9. Mike, I am in the same problem.. I make to much and all I get it SSDI.. crazy.. Not for nothing but now my heart aches for seniors that have to work :(
  10. My heart is heavy reading that. I wish you the best. I love puppies but not if they keep humping my leg.. Nuisance
  11. I was 34 when I had my stroke (as a result of a chiropractic manipulation) so I can understand the age thing. I had a lot of tingling and that turned out that some feeling and movement was returning to my right side. Dizziness is a big thing for me. I feel dizzy a lot of the time but over time the dizziness has been more tolerable. It hasn't gone away, but some people it has, and for me it does make certain situations worse like sensory overload. ( lights, noise, crowds, weather..to name a few) I thought this way a lot. You are only in the first few months of recovery. As people has said before;' All strokes Aren't the same' so all recovery isn't the same. One important piece of recovery is your mind set. If you stay in the " my life sucks" well.. it will. I know many people do have it worse and when you and I ( others as well) look at the other side of what we have, it does make it does make us feel not that bad. Well what is happening to us is bad regardless. You can't look at today and stand firm in your stance of my life is like this for I was not able to move my right side and over time, with hard work and the stick of life , I gained 90% back from day one. I sill have PLENTY wrong even after 8 years but that doesn't mean you will have. The majority of my issues are 'invisible' so looking at me you'd never know I had a stroke but I have a laundry list of issues. This is a great post about grief. There is no time limit about when you get through each stage or order. It took me almost 8 years to accept my stroke but I still struggle everyday ( I have a huge memory problem) So take it day by day. Be healthy, happy and great mommy. There may be times you are exhausted and that is totally normal. Never think you aren't a good mom because of the stroke. Children are stronger then we think and she is young enough to only 1.think this as normal life 2 she is to young to understand. Take care of yourself and do the best you can but don't try to hard. Listen you your body
  12. Karen, Carl and I are basically in the same boat and yes I over think all the time.
  13. Eeek.. was the numbing feeling a normal side effect? It sounds scary
  14. it is and with all the rhetoric about healthcare is throwing the market on it's head. Some of the struggles of being a younger person who has had an event in their life that causes a disability preventing them from working puts them in an awkward position. Not only for being disabled and not able to work but also when it comes to insurance. That is where I find myself both currently being young and disabled and having to find supplemental (Medigap) insurance so I can continue to have benefits that I need to sustain my life. What many people don’t understand is the cost for a Medigap insurance for a person under 65 years old. Makes the decision of medicine and insurance or living and food harder for many
  15. Love your funniness, Kelli!  Such great photos