sheila1454

Sue, I haven't been on the site for a while and just saw that your mother passed. Please know that you are in my prayers - along with Ray and your mum. I understand your feeling sad and glad at the same time - I had a similar situation with my mom. Please try to take care of yourself amid all this stress and know that many are praying for you. Sheila

Thanks for the heads up Lenny. I would not have thought to look for that, but will do so now! Sheila

Lenny, thanks for this post - it came at a much needed time for Greg. He hasn't been feeling well lately, and been having more trouble walking - and it seems to be exactly what you said - he doesn't seem to trust his leg, and yet it does seem to be moving the same as always. I read him your post and he said he would try that. It gave him some incentive! Keep up the good work, Lenny! Sheila

Sue, this is so heartbreaking - I don't know what to say other than my thoughts and prayers are with you always. Sheila

Debbie, I am adding you to my prayer list tonite! It is so true that with having Bruce to take care of it adds so much worry to any bad weather situation. I, too, am a worrier, and one of my big fears is fire. I have developed OCD with appliances, LOL. Anyway, it sounds like you are, as usual, right on the ball - you amaze me with your foresight! You really do inspire me to try harder with so much that I do (and don't do). Sincerely, Sheila

:Very well said, Fred - and God bless you! . Sheila

How wonderful that Bruce is able to drive the scooter. I have often thought about one for Greg, but have held off because of his vision issue. ( no vision in right side of both eyes) Does Bruce have any vision issues? Also, how nice to get the chance to see Bruce interact verbally on his own. I think we all, as caregivers, tend to speak for them more than we should. Thanks for the reminder to let him do more of the talking. (I'm a talker and have to try harder to keep my big mouth shut) LOL

Sue, I just want to say that you are Ray are in my thoughts and prayers. This is such a difficult and heart wrenching situation and I pray that God will help you in whatever decision you make. Sheila

Debbie, I don't get here everyday, so I'm not always up on things. Did Bruce have the pump installed, or is he on oral Baclofen? Greg still has the pump and is doing well with that - not much improvement in walking ability, but no pain in arm or leg, spasticity reduced immensely. Sheila

Sue, May God Bless both you and Ray. I am crocheting a prayer shawl, and each stitch comes with a prayer for you both. (almost every stitch - my mind wanders a bit). Anyway, just know that there are many, many prayers coming your way. Sheila

Sue, I am so sorry to hear about Ray. I haven't been here for a few weeks and feel so bad that you are going thru another setback. You both are in my prayers daily. Please remember to take care of yourself, too. Sheila

Hi Sue, Just want to say that I so look forward to your blogs. You have a way of writing that gets to the heart of the matter, and almost always hits so close to home for me. I am very fortunate in that I have daily help with Greg while I am at work, but otherwise am pretty much alone in caregiving. Your "Unday" thought is right on the money, but your thoughts on keeping Ray home to care for really hit me. So many people ask why I don't have Greg in an adult care facility - how could I, after 33 years, "give him away?" Inconceivable to me. Never, until I am unable to physically care for him. I understand completely your attitude. God Bless you for sharing yourself with others - it is so helpful, comforting and moving to know we have so much in common. Sheila