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PennGwyn

Stroke Survivor - male
  • Content Count

    44
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    $0.00 
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  • Country

    United States

About PennGwyn

  • Rank
    Associate Member
  • Birthday 09/02/1957

Shared Information

  • Stroke Anniversary (first stroke)
    01-08-2010
  • Interests
    computers, photography, English (reading and writing), neurology, etc
  • How did you find us?
    Other

Registration Information

  • First Name
    David
  • State
    CA
  • Country
    United States

Recent Profile Visitors

5,918 profile views
  1. PennGwyn

    I was diagnosed Type II Diabetic about 15 years before my first stroke. A vew years ago, my endocrinologist replacd my hefty daily dose of long-lasting insulin with a much smaller dose of Treciba(sp?), which gave me good results initially but eventually seemed to be less effective. In Janary, he started me on Trulicity and has been blown away by the results. One injection a week brings my blood sugars down to normal levels, or often below but without the symptoms such low blood sugars would normally cause. I've had four mild strokes in ten years; none in the seven months on Trulicity. It ight be pemature to leap to any conclusion...
  2. Has anyone else heard of this? It sounds like possibly related to stem cells; my mdical knowledge isn't sufficient to b sure... "Core blood" is recovered from placentas and umbilical cords... Somehow it is supposed to repair or,replace damaged tissues on a cellular level. I saw this advertised on Facebook and asked for more information. I learned that this treatment is offered in Germany, and billed at 40K euros, about $45K. So not something to be tried "on a whim"... Penngwyn
  3. Happy Birthday PennGwyn!

  4. Happy Anniversary PennGwyn!

  5. Happy Anniversary PennGwyn!

  6. I was already working in IT before my stroke, and consider myself very lucky that I was able to return to work about six weeks later. The things that sometimes need doing, but that I can no longer do, my boss has been able to assign to other members of the team. It may help that my job is in the public sector, on a college campus. Although almost all the same laws apply to both public and private sectors, my observation is that issues like non-discrimination and diversity and equal opportunity are taken more seriously in public sector hiring decisions than they sometimes are in the private sector... A Bachelor's degree opens quite a few doors in IT, but certifications may actually carry more weight. I've only attempted one certification since my stroke, and found the testing environment difficut to work with and get through in the time allotted -- in theory, ADA requires that accomodations be available, but I haven't found the right contact to pursue that....) With luck, you won't encounter the same issue. Bottom line: Working, if you can, is better than not working. IT is a good field, and many IT jobs are very modest in their physical demands. Go for it! Penn (BIS + CISSP, CCNP, MCSE, A+)
  7. Happy Birthday PennGwyn!

  8. PennGwyn

    A normal (but uncomfortable!) part of getting older is needing help to do things that we used to be capable of doing for ourselves. Guys in particular can find this a hard transition to make.... Surviving a stroke means going through 20-40 years worth of that process in about a week or maybe two. That doesn't make it any easier. My suggestion would be to focus on appreciating what he CAN do, and hope that helps. I know that I found it very encouraging to be able to walk the four blocks to the burger place and back (with an insulated bag to keep the food warm) and so, very literally, "put supper on the table" for our household. It made me feel that I could still provide.... Penn
  9. PennGwyn

    The worst for me is trying to do/undo the button on the pants' left back pocket -- my left hand is half numb and the right can't reach. But it's always another little victory when I succeed!
  10. PennGwyn

    My friend George had a stroke in November. It was bad-- he couldn't talk or swallow; he might still have the gastric tube now. I don't know -- his wife doesn't allow him visitors... Last week, I got an email from George. Or at least from his Hotmail account. The grammar was a bit shaky, but that could be a stroke effect. Except that the message basically just said he had gotten a great deal on a new cellphone though this chinese web site.... Yup. Somebody seems to have hacked his Hotmail account password. And there's my dilemma. I can work with Hotmail to get his password reset, but that will mean he will have to do a fair bit of recovering before he'll be able to actually regain control of and access to his account. This would all be much rasier if I could tell George what is going on and what he will need to do -- and, of course, help him get it done. Penn
  11. PennGwyn

    Hi Annie and welcome! The last time I saw my GP, I reported my most recent modest incremental recovery. She expressed surprise -- like many doctors, she has been trained that what doesn't return quickly will never come back.... I told her that I had heard of a few people who never saw any recovery. People who just parked a wheelchair in front of the TV for the rest of their life and never tried to get any better, who didn't believe recovery was possible -- probably because that was what their docyor told them.... Self-fulfilling prophecy? Remember "Galaxy Quest"? "Never give up! Never surrender!" PennGwyn
  12. NovaVision sounds like exactly what I need. Except that: a. The only independent clinical review I can find online seems to cast doubt on their effectiveness, and b. They went into bankruptcy a year ago, and their assets were acquired by an outfit called VyCor (?). I'm understandably reluctant to spend a lot of money without a lot better omens.... David
  13. thank you Ann, Maria, Becky. a Neurologic Ophthalmologist is definitely what I need, and I'll need to check and see if she is one. and I'll check out thar link, too -- my challenge is to demonstrate that I can and will beat this. I don't want to beat the test, I want to PASS it, fair and square. (Sending this from my birthday present to myself -- an iPad2.) David
  14. I had a field test with the new ophthalmologist this week. That's where they cover one eye and you look into the machine, and click the thing in your hand each time you can see a flashing light. My results show essentially NO peripheral vision to my left (my stroke was on the right side of the brain, which deals with stuff to the left). This is profoundly disappointing. My incidents of "left side neglect" have become very few and far between, so I had hoped I was getting some of it back, but it looks like maybe I've just gotten good at compensating for its lack. Good enough for day-to-day activities, at least -- not good enough for driving. The ophthalmologist didn't know of any exercises I could be doing to try and work on it. I'm hoping that that might be because her focus is on the eyes themselves and not the brain -- but where else should I be looking for such exercises? Or is it, in fact, hopeless? David
  15. Happy Birthday PennGwyn!

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