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Stroke Survivor - female
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About becky1

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    Senior Mentor
  • Birthday 08/27/1956

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  1. Patti, I SO WISH THAT I had more suggestions for you. The only other thought that I have is to do passive range-of-motion exercises with him if you haven't already. If you don't know what that is, basically it's you make all of the body joints move the way that that body part should. The hand, for instance. Move each of his fingers up and down about 10x each. Now move his wrist up and down and all around as it should move. You would be surprised at how having no mobility affects the human body. Do these movements slowly and watch his face for any signs of discomfort. If you see any, stop. Best, Becky
  2. Patti, Just a thought-Can you put a radio near him, playing his favorite music? It's believed that music stimulates the brain, and it may help relax him.Becky
  3. becky1

    Yes, I agree- you were very lucky. Welcome to Strokenet! I'm sure you have questions, and this is a good place to ask them because it's very possible that someone here has had experience with your question. Becky
  4. Gee, Alan, you're a poet, and didn't know it. Thanks for sharing. Becky
  5. becky1

    ALAN, I THINK IT'S FANTASTIC THAT YOU'RE DOING THAT! I bet that the pts. you see really enjoy your visits, and that they get a healthy dose of thinking positive. Tracy, I hope you feel better soon. THAT SOUNDS LIKE ONE OF THOSE TIMES YOU JUST WANNA SAY,"WAKE ME UP WHEN I FEEL BETTER" BECKY
  6. becky1

    Patty, In general, if your body does anything after a stroke that it has never done before, suspect that the stroke is responsible. That does not mean that you should say, "It's just the stroke," and ignore it. It just means that you should not worry about it and let your doc have a look-see. Chances are that the doc won't see anything to be concerned about, and will ask you to tell him if it keeps doing it. One time I was sitting at the table, eating my lunch, when of its own accord, my left hand flew up and knocked my drink over. Nothing like this had ever happened before, and this never happened again. I have no clue why this happened. Part of the rewiring, I guess. Becky
  7. becky1

    I had a similar problem with my mother, who had different issues than you have but needed someone to assist her with things like getting a bath, cooking, and light housework. An Assisted Living Center was definitely what she needed, but what she wanted was independent living, and I was determined to give it to her. I started by running an ad in the local newspaper for no bills, completely free living, plus $800.00/mo., in exchange for caregiving. I thought that this was a fair if not generous offer Apparently not because I had only one responder. I checked her criminal records and references she checked out, so I hired her. She quit 1 month later. Apparently, all she wanted was a quick and easy way to make $800. and leave. I had to fire the next two caregivers I hired. But, the third one was a charm, who helped me put together a team of 3- a dayshift, night shift, and weekend caretaker who all worked for us for the next 5 yrs, when my mother ran out of money. But I don't regret it even though it was very costly, because my mother was very happy, and well taken care of. My advice is to be as flexible as you can be, and willing to compromise It is doable. Best of luck, becky
  8. Darrell. I'm glad that Anne's work and insurance are on-board. That, right there, will save you a heap of problems. Swallowing problems often accompany brainstem strokes, and can be difficult to deal with, especially if you're eating with others, or out in public, and cough so much that you sound like you're about to keel over. Not to mention how embarrassed you feel. My speech therapist taught me to stop eating when this happens. NOT JUST UNTIL YOU STOP coughing, but give your throat muscles time to rest and calm down. 30 min. or more. My swallowing is a lot better now than it was, but I still cough, even though not as severely, or for as long. I'VE NEVER shook as you describe, but I do know that there are meds for shakng due to Parkinson's, so maybe there's one that will help Anne. Ask her doc. ANXIETY? YEP, ME TOO. My husband couldn't even cut the grass....If she doesn't have a cell phone, get her one. It helped me a lot. Just hearing his voice, and knowihg he was there. Eventually, I STARTED HAVING PANIC ATTACKS, AND WENT ON MEDS FOR ANXIETY. THEY HELP IMMENSELY. Good luck with everything, and update us when you can, Becky.
  9. Your story of what happened to your daughter made me feel very angry. I cannot believe or understand why no one thought of sending her to the hospital sooner. But that's not the important thing right now. The important thing is your daughter's care needs. It sounds like she's still in the hospital. When she's medically stable she may be sent to in-patient rehab. I know you want her home, and you're probably feeling disappointed she's not coming directly home from the hospital, but she needs as much therapy as she can get. In-pt may send her home with a prescription for out-pt. therapy. Regardless of your income, you may want to check into SSI for her, as it's about all that you can do for her now. Stroke recovery can be very expensive. My first power chair was $15,000.00. My Medicare and Secondary paid for it, but we had to pay co-pay. Just one of my prescriptions was $65.00 per month. And many other expenses that you can't possibly anticipate. When she finishes in-pt., you will have a better idea of what she needs. . Post any concern here. We'll try to help. Chances are that for any concern you may have that someone here has had experience with it. GOOD LUCK, Becky
  10. becky1

    Patty, Nothing is easy when it comes to strokes. And when you're new at it (which you are at only 2 mos. out,) It will get easier. One of 2 things will probably happen. Either the issue will go away, or you will find a way of adapting to it. OR, YOU'll FIND THAT THE PROBLEM IS SO COMMON AMONG STROKE survivors that there is a medicine to treat it. SUCH IS THE CASE WTH PBA. In FACT, THERE'S MORE THAN ONE, I think. My one piece of advice is to get as much therapy as you can it really helps. Best,Becky (
  11. DARRELL, I'M SORRY ABOUT MY EARLIER POST, BTW , AS FOR SOME REASON it disappeared while I was typing it. Tonight, I came back to re-type it, and found out it had posted! So I won't try to re-invent the wheel now, but there are a few things I want to share with you. One-It doesn't seem to matter where in your brain you had your stroke, how bad it was or anything else, stroke recovery is frustratingly slow. The brain has to rebuild connections with the muscles that were destroyed by the stroke. If you think about it in military terms, the muscles have lost their CO (COMMANDING OFFICER) and don't know what to do, so they do nothing (paralysis). As connections (communication channels) are re-opened, the brain can resume its position as CO. " Neuroplasticity" as this process is called, is seldom fast or easy. You may be able to help this process along by engaging in therapy. What therapy does is to show the brain what you want the muscles to do. It also involves repetition, and the brain learns by repetition. Whether or not Anne has had therapy it is important that she re-engages in therapy. Medicare does allow so much therapy per year per client. So if she's not in therapy now' and hasn't been all year, you may want to hop on over to her doctor and ask for a prescription for therapy. Wait! It's so late in 2019, that you may want to do this in 2020 as their budget starts in JAN. FOR the FISCAL YEAR 2020. unless it's been changed and who knows. Be careful though that you don't fall into the Medicare gap period, or you may have to pay out-of-pocket . If you have private insurance. you'll have to ask them. If you're one of the few for whom money is not an issue'. thank God, and disregard the above. Best, Becky
  12. Darrell, I, too, had a brainstem stroke, a bleed (hemorrhagic) in the pons, nearly 13 yrs ago. I am lucky to be alive. Can she talk and eat? I could not do either right after my stroke but had a gifted speech therapist who taught me how to do both. Today I still have dysarthria, speech abnormalities which make it hard to understand me sometimes . I also thave swallowing problems and my eating is often punctuated with a lot of coughing. I was ery limited n wat I could et, and at first I
  13. Believe it or not, what you are going through is pretty normal for a stroke survivor, like Tracy said. All of us have gone through this to one degree or another. But when you start feeling anxious all of the time, about everything, it's time to put the brakes on the anxiety. I chose to do this with medication because it seemed the quickest way. But there are more naturalistic methods, like meditation. Good luck. Becky
  14. becky1

    Kelli, Until I saw your post, I had forgotten that I wanted to tell you that I saw a number of painting programs at Amazon Mon. They were on sale for different prices, but I noticed one was $49.50. They were on a page entitled"Gifts under $100.00", and they were not altogether in one place, but intermingled throughout, so if you don't at first see what you're looking for, keep on scrolling. Maybe this is what you're looking for? Becky
  15. becky1

    What a warm, welcoming scene! It looks like a Christmas card! As others have said, you did a great job decorating! Becky