Stroke Survivor - female
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About becky1

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  • Birthday 08/27/1956

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  • Stroke Anniversary (first stroke)
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  1. blue plate
  2. Pam, You can ask the ombudsman, but I don't think that the nh can legally refuse to let you make an incident report. And you want documentation in case this CNA ever does this to you, or another resident. Without documentation like an incident report, there's no proof that you reported it, or that the incident ever occurred. Look at it as a CYA thing. Becky
  3. Excellent suggestion, Steve. I think I'd go a step further by asking for a copy. They may refuse on the grounds of confidentiality or something. That's why I hope that at the top of a clean sheet of paper, you'll write the words 'Incident Reports", and list each one by date, followed by brief notes on staff members involved, what happened, etc. Before I read Steve's good idea, I was going to suggest that on paper, or poster board, you write something like "WARNING. DO NOT TOUCH ME ON MY THIGHS....CAUSES EXTREME PAIN", and attach over the head of your bed, where it can easily be seen. Good luck, Pam. Let usknow hows it goes.
  4. Thanks, Heather, that clarified a lot. Becky
  5. Been there, done that. I can't think of anything to say, except that I know it hurts, and hugs being sent your way. Becky
  6. This Dermatologist in Florida declared that he could cure stroke deficits by injecting (in their brain) survivors with a drug used to treat arthritis. Then, without first submitting this drug to any kind of scientific analysis, without submitting his findings to the FDA (the government agency which oversees this type of thing)he starts injecting people's brains with this drug, and charging them thousands. When they complained that it didn't seem to help, he said that for more thousands, he'd give them another injection. When itttt didn't work a second time, he could offer another injection for more money, or, say that for a percentage of people, the drug edoesn't work, and there's no way to tell in advance. Eventually, he was forbidden to practice in Florida, and he went to California, where he's doing the same scam, last I heard. He's a fake, Khalil. If Enbrel really worked as he says it does, he would ask for it to have all kinds of scientific scrutiny,because that would validate his treatment. And, if it worked, we'd all be camped out in Scott's yard.
  7. It's the little things, like remembering your fondness of Hawaiian pizza and lemon meringue pie, and the card, handpicked, just for you...Becky
  8. Why not? It won't hurt her, and is a lot better for her than watching TV all day. Plus, it sounds like she may be doing some cognitive work of her own. She may not be able to do them correctly now, but, who knows, down the road she might. Best, Becky
  9. There so many things that the stroke took from me...but the thing that came to the forefront first, Janelle, when I read your question, was my freedom and independence. For me, that means the ability to walk independently. Rt now, I'm still in a wheelchair, but, if I could walk, I wouldn't have to wake my hubby up when I have to pee at night; I wouldn't have to ask him if I needed something from the cabinets, because I'd be taller than the 4 ft. tall I am in the chair; I could take our Great Dane on walks, and she so needs that. I think ya'll can see what I mean. I think that I could handle the other deficits better if I could walk. It wouldn't make my frustrations with them go away, but it would make them less of the buggers that they are now. Becky
  10. Thank-you Kelli and Tracy for answering my question about driving. I had given up all hope of ever driving again mostly because of my balance/vestibular issues. But I'm still learning to walk, so I think that if I ever drive again, it'll be awhile. But it's nice to know that one can learn to compensate. Thank-you, Becky
  11. Heather, Up top, when you were explaing the bed exercise to Benni, what are you supposed to do with your unaffected leg? Leave it straight out front of you? Or join the affected one? Stay on the bed, but with the leg bent at the knee, and not straight out in front of you? Becky
  13. Benni, I've encountered several situations like that, and I don't know why either. I don't know if it's a cognitive issue, or neurological. I I just know that some things just don't translate well from therapy/exercise into real life. Just keep trying. It will all come together eventually. Myjade, exactly. My hubby does the same thing.Becky
  14. Linnie, Me(?), "inquisitive"? Isn't that one of them $10 words for "nosy"? Yep, that's me! It's one of the things that the stroke didn't touch. Iam intensely curious about everything, and everybody, especially "new" everybodies. And, what's really cool is that I had a job that paid me to be nosy. So, yeah, that's me. Becky
  15. Professor, I meant to ask you, and forgot, but have you had any therapy? Whether or not you have had therapy, I believe that it's important that you have it now. A physical therapist may be able to help you become more mobile, so that you don't lie in bed all day. Your first goal may be learning how to sit up in bed. Then your goal may be learning how to sit up in a chair. Next, a wheelchair, maybe? I don't know, but I do know that the longer you are immobile, the harder it is to become more mobile.You also need to be doing range-of-motion exercises probably 3x per day, and a physical therapist can help you with this. Yes, I know what you said about being unable to learn, but this isn't about learning, it's about re-learning what you can do. Also, since you have memory issues, maybe your PT would be willing to write directions down for you to read and follow. There is home-based therapy, so you wouldn't have to go anywhere. You need a prescription from your doctor for therapy of any kind, so talk to your doc. Best, Becky