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Stroke Survivor - female
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About becky1

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    Senior Mentor
  • Birthday 08/27/1956

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  1. becky1

    Darrel, there is no need to apologize for ranting- it is one of the reasons that we are here- to give you a "safe" place to rant if you want to. We've all needed to rant about stroke from time to time. Dealing with a stroke is frustrating, and we understand. Becky
  2. becky1

    Carlton, You sound like a very upbeat, positive person, and those characteristics will help you a lot when you're on the stroke recovery journey. Your needs are so in line with what we try to do here- to offer support to other survivors by answering their questions if we can, to cheer them on when needed, and to listen to them, and hear their frustrations and joys. So, WELCOME to Strokenet! Becky
  3. Pam, I wonder if what is happening to me is not happening to you. One of the "gifts" that the stroke left for me was a heightened sense of anxiety. I don't handle stress well as a result. I think everyone is feeling stressed and anxious right now. And then there's the media, fanning the flames. I feel like I'm on high-alert all of the time. And I think that all of this fear and anxiety all around me is having an impact on me and making me feel more anxious than usual. I am not suggesting that you not see a counselor. I'm just wondering if what you are feeling right now is caused by the fear and anxiety that's in the world right now. I think that Heather is right- we will survive this, Becky
  4. becky1

    Thank you for your kind words, Ana. I was so scared to post this because everyone is scared, and the last thing that I wanted to do was to set off a panic reaction. We have enough fear already. From what I read, I gathered they think that they may have stumbled across a drug to treat the virus, but not one to prevent it-yet. I wish that they would find a preventative faster, but these things take time. Best, Becky
  5. I've been contemplating this topic for a few days now, and finally decided to go ahead and submit it because it's so very important and necessary, especially to the newbies. Did you know that because you've had a stroke you may be considered to be "At Risk?" Strokes can affect our immune systems and make us a little more susceptible than the average person to colds, flu, and viruses. What this means for you is that you need to be extra-vigilant in following the precautions that we've all seen everywhere: Wash your hands frequently, don't go out of your home if you don't need to, and avoid crowds. But my main concern was that the newbies to stroke may not know that they are at risk, and miss opportunities because of their lack of knowledge. The government has reported that they may have found a drug that halts the virus.?"(Actually, it was China which found out that a drug used to treat malaria may be effective in treating coronavirus). If history repeats itself, a vaccine to prevent it won't be far behind.; And supplies of everything have been running way behind the need. So if a vaccine is developed it will probably be triaged. Meaning that it will be offered to children and at-risk people first. That last sentence was the main reason for writing this overly-long post. I DIDN'T WANT ANYONE TO REFUSE A VACCINE when it becomes available JUST because they didn't know that they were At Risk. I also didn't want to create a panic, and have everyone going to their doctor. Just because you are at-risk doesn't mean that you will get the virus, it just means that you need to follow the recommended precautions. Becky ''''''''''''''
  6. Awesome! You will get better at it the more you do it. Becky
  7. becky1

    my left leg does that first thing in the morning, and intermittently throughout the day. Whenever I've been stationary for a while and then stand up. I was told it was "clonus" and if I PUT WEIGHT THROUGH MY LEG and THE SHAKING WOULD STOP. I tried it, and it works! I'm unsure if clonus and spasms are the same things. But they sound very similar.Try it and see if it helps. Becky
  8. becky1

    Audrey, I have no sensation on my left side. I can feel pain, but that's it. At times I forget that I even have a left side. I have found that movement helps. So, if it feels cold, or uncomfortable, even if I don't know why it feels that way, I move my hand/arm around for a while, and this seems to help whatever ails it. I move my hand/arm around even if nothing seems wrong with them. I clench and unclench my fist several times a day. I do this an equal no. of times with my thumb over my fingers and under-them because my thumb tends to stay stationary if I don't give it a job to do. Bend your arm at the elbow several times, now straight up, over your head. Just do any movement that you think of. If your left arm/hand won't do anything, try doing passive movements using your rt hand to help by lifting your left arm straight up, for instance. Doing exercises like this with your lt arm/hand may help in a couple of ways: It may help improve your circulation at least temporarily so your limb won't feel so cold all of the time, and it will show your arm what you want it to do, and how to do it. Best, Becky
  9. I've had problems with tinnitus- ringing in my ears - off-and-on throughout my life. So, I've read anything on it that crossed my path. Two things I've read stand out in my memory. I READ SOMEWHERE THAT THEY WERE LOOKING INTO USING "WHITE NOISE" TO MASK THE TINNITUS. I also remember reading that they now have medication to treat it! Look it up and/or ask your doctor if he/she knows. Or an ENT (EAR, NOSE, AND THROAT SPECIALIST) TO FIND OUT THE CURRENT SCOOP ON THIS DISORDER AS MY INFO IS DATED. Welcome to Strokenet, where all of the ihfo is not so limited! Becky
  10. Darrell, I want to share with you a few things that may help you put stroke recovery into perspective. Anne is at nearly a yr. out? As many have already stated, stroke recovery is a long, slow process. One which may take weeks, months, or even years to complete. In the first 6 mos. or so after a stroke, the brain is still swollen from its injury. Some doctors will tell you that the most you will recover will be in the first 6 mos. after the stroke. But, any reasonable person can question this because the brain is still swollen, how can that be? With all of those swollen tissues around the injured area of the brain, a full and complete assessment can't be done. So, the injured brain has to limp around until a full assessment can be completed. Once the brain knows what needs to be fixed, it can start fixing, a process called called "neuroplasticity", which is fascinating and lengthy. Look it up. So, if Anne is barely a yr out, it's not been a long time in terms of recovery. She's still in her infancy! I was 7 mos. out before I could sit up without falling over, and I was 7 yrs. out before I could get to standing without help. I can walk, but need the assistance of a walker, and one person on each side "just in case."I'm not saying that Anne's recovery will be like this, but that the brain has its own timetable. You can help it along with therapy and working at home by exercising,etc., but it will still have its own timetable. So you and Anne hang in there. Introduce Ann to Strokenet so that she can see that there are others with the same struggles. Becky
  11. Janelle, Truth be told if my husband could remember his friend's wife's birthday, but not our anniversary, I would be highly upset; hurt and angry. The fact that you were able to sit there, and not say anything is a testament to your own strength of character. Your teen-aged kids are being teen-agers, and you need not take it personally. They think that they have the world by the tail, and that when they get out on their own, they will solve the world's problems. In order to be out there on their own, and survive, they first have to prove to themselves that they can do things on their own, without mom or dad. Pity the parents of a teenager who never wants to leave his parents' side, who wants to go with them wherever they go, or who never sasses his parents, and agrees with everything that they say. That "child" will probably live at home until he's 104! Know that sometimes when your kids sass you or say that you don't understand, that it's proof that you've been a good parent because they have the courage and the ability to stand on their own. That doesn't mean that you should let them say and do whatever they want to. It just means that you don't need to take it all personally and that you need to give yourself a pat on the back sometimes. Becky
  12. becky1

    I think that you need to ask your doctor. Becky
  13. becky1

    , Robyn, Glad you found us. I had a massive stroke too, and I was air-lifted to another hospital. I WAS 50 YRS. OLD AND HAD TO TAKE EARLY RETIREMENT BECAUSE I couldn't perform even the least of my duties. We define ourselves so much by external things like our jobs, what kind of car we drive, etc., that when I couldn't work, I didn't know who I was anymore. It takes time, lots of time, for you to settle into the "new you". Sounds like your recovery is going well- keep on keeping on. because it's working. Becky
  14. JILL, you sound like a strong woman. I'm curious, what have you done with other aspects of your life, and how have you worked around your stroke deficits? I'm also curious about the girl who did this to you. wAS SHE EXPELLED FROM SCHOOL,criminally charged or anything other than expelled from the game? She sounds dangerous. Thank you for sharing your remarkable story. Becky
  15. becky1

    I could not fulfill even the basic responsibilities such as driving. So I had no choice but to take an early retirement. I was 50. It's been 13yrs. now, and I still miss it. I understand what you're going through, and I KNOW IT'S NOT EASY. But as I was thinking about your situation last night, it occurred to me that now you have another beast to slay. The only solution may be to let your job go so that you can reduce the amount of stress in your life. Fighting 2 beasts at once has to make you feel as if you're chasing your own tail. Talk to the folks at your local Vocational Rehab office to seeif they can help you with the job situation.Do you have any Disability at work? FMLA? maybe you went back to work too soon after your stroke and your brain needs more healing time. Well that's all of the ideas that I COULD COME UP WITH.Good luck, Becky (I HAVE NO IDEA WHY THIS HAPPENED, BUT BELONGS WITH MY POST ABOVE HEATHER'S)