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Stroke Survivor - female
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About KarenE

  • Rank
    New Member
  • Birthday 12/18/1966

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  • Stroke Network Email

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  • Stroke Anniversary (first stroke)
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  • Interests
    I enjoy cooking, local live music , friends
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    United States

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  1. Happy Birthday KarenE!

    1. KarenE


      Thank you!! Happy New Year!!

  2. Happy Anniversary KarenE!

  3. Happy Anniversary KarenE!

  4. Thank you all Mike, Debbie and Susan. I can't begin to express how reading some of the posts has made me feel. I had gotten on edge with everyone and everything. No one was validating me at all, no one had a clue what has been going on inside here. I had even used some of the same examples I was reading to try to explain to my family. It is so comforting that SOMEONE out there understands and also I am understanding my family by reading from caregivers. To add to my personal communication issues, which really aren't bad, I am caregiver and only child of my 92 year old father. I've pretty much got his "stuff" under control and thank God he is still very with it and for the most part, easy going. After coming back to this site I also went looking for any local organizations or groups.( I usually have to look more than once to really get what I'm looking for tho) I'm amazed at how little information and assistance is available, and I'm disappointed that I was not properly evaluated by either the speech pathologist or the neurologists that I saw while I was in the hospital. In addition to realizing that since I had reached about 18 months post, my brain didn't seem like it had been making any more progress. I was in a car that was rearended back in November. There was no major damage to the car but man my neck and back felt it. Since my stroke was caused by a dissection in a vertebral artery, therapy of my neck had to be handled very carefully. I found that I someties was having muscle spasms on my head and neck which were like migranes and of course the muscle spasms in my back that travel down my left leg. So I've been having to deal with all sorts of realities. I have "back days" and "brain days" that are my new normal. When I'm having good days I think I end up doing too much and it takes me longer to bounce back. I have no insurance and have not had a lot of follow up with doctors but now that it is evident that I have aphasia, I will see about getting evaluated. I have found different topics in the forums that seem to apply to me and hope to be able to give back some help from posting my experiences as well.
  5. I have not been officially diagnosed with aphasia, but am sure that I have home form, and luckily not severe. However, that makes it more difficult also, since I don't have any physical weakness, people forget. I have pretty much resumed daily activities. Reading still makes my head feel tight (only way to explain it) I guess because of the concentration involved. I am so glad to read how people describe what it is like, I have said some of the same things to my family. When I have read some of the posts to them or info from the aphasia website, I cry. Finally I found something to show them I'm not just a crazy frustrated and menopausal. Anxiety is an issue too, so now that I don't have to wait for things to get better (since they probably won't) I know I need to have more patience with myself and demand it from others, so I can hold it together. It has been hard to be my 92 yr old father's advocate as well as my own. Now that I am looking back into what support is available in my area, I'm not finding much at all. I am in the biggest county in Florida and that's a shame. I hope that as I search for my own answers I can help others to get the info that they need too.
  6. Wow, I am so glad I have come back to this website. Thank you everyone for your experiences. I have been feeling like I am just gonna lose my mind. I will be back to post more about me, now I just have to digest all that I have read here.
  7. Thank you for starting this topic. I have been experiencing anxiety also. A new grocery store threw me for a loop the other day and I'm about 5 months post. I just had a follow up CAT Scan and am seeing the neurologist for the first time since the hospital. I have been to a PCP but have so many questions for the doctor today as to my specific damage, etc. I still have not driven either. My boyfriend has been so supportive in trying to help me break things down so I don't get overwhelmed. I'm glad to have found a place where "my new normal" is normal and I don't feel weird about my emotions. I too am grateful to have found this site.
  8. My Family

  9. I live in Lake Worth, FL and am looking for a local group. I am 44 and had my stroke Jan 2011.
  10. is very blessed

  11. Welcome to the forums KarenE :)