nancyl

Stroke Caregiver - male
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About nancyl

  • Rank
    Senior Mentor
  • Birthday 03/20/1967

Contact Methods

  • Stroke Network Email
    Yes

Shared Information

  • Stroke Anniversary (first stroke)
    03-12-2011
  • How did you find us?
    Google Search

Registration Information

  • First Name
    nancy
  • State
    nd

Recent Profile Visitors

17,160 profile views
  1. I reported in a earlier blog that Dan had a gastro bug--- nope it ended up being a UTI--he lingered around with that for 2 months before it was figured out. Then the shake out, the urologist here in town says Dan needs to either wear a catheter forever or I learn to cath him. Of not its kinda funny in its own sick way, the urologist has no holistic approach for us. He basically really thought Dan could cath himself. No other options- no surgical procedure etc. UMMMM - his entire right arm is stroke effected ( paralyzed) it is spastic and is just pulled into his chest. and his cognition is ver
  2. nancyl

    roadblocks

    Long haul - thats what our stroke journey has been, a long haul. Its been a decade of ups and downs - mostly downs. And we are down again. Dan has a UTI and pneumonia he was in the hospital , darn near shut his kidneys down due to the UTI and his bladder being overful . Neuralogic bladder , from the stroke. Im supposed to cath him 2 times a day... But he cries when I do - . He had his antibiotic via IV while in the hospital, but won't let the home health people give him the remaining shots now that he is home. H e won't let me cath him again. He does still void a significant amount daily- but
  3. nancyl

    As time moves on we lose a bit more all the time, Im like sue - watching other married couples hurts. As I shoveled snow today, I thought, Dan should be doing this not ME ! He used to take care of all that stuff. Now I do. He lays in bed and I shovel snow. He'll get up later and we will do our routine - our new routine, the stroke routine.
  4. nancyl

    Glad you could travel again. Hugs!!
  5. nancyl

    Truth - to both of you who responded. Dan is feeling better, sadly we missed our newest granddaughters first birthday - but via face time I got to be included and watch the party for a bit. So all was not lost this past weekend - and we didn't have to drive 4 hours ( one way) to be part of it. I've learned through the years don't push Dan it never ends well. And I have learned -- if you have no bad in your life- then you really have no good either........
  6. WOW its been since April since Ive posted, tried to log in and it said error. Anyhow Happy its back - I was worried. This site has lots of valuable information - lots of stories . Dans not doing well - he's got some gastro intestinal bug, been to the ER couple days ago, followed up with his doc, he seemed to feel better for a bit and now he is suffering again. Seems like its always something- But thats no different than anyone else. I just wanted to check in. Oh the friend who's husband had a stroke, has had a pretty good outcome. Much better than Dans - so I am happy for them. He probably wo
  7. nancyl

    Thanks for the check in !
  8. nancyl

    Friends

    Ive known a gal and her family for 25 plus years -- not super close, but that connection you get with people you meet sometimes. Kinda like a mirror- they seem just like you and they are - you are genuinely happy for them and vice versa. Words can not communicate the bond. there simply was not a need for the daily communication. after Dan stroked I watched there family from afar - they were the mirror of what our family used to be and would have been minus no stroke. similar- ages , beliefs, values, childrearing , and work ethic. Well her husband had a massive stroke similar to Dans -- left br
  9. God is absolutely watching over us - gently guiding those that want it. Dan used to have seizures all the time... they are rare now, interestingly seizure drugs can cause seizures - which is why he had a couple years of a lot of seizures . kicked off the meds and now not so much... Glad your in that good place of appreciation. NancyL
  10. nancyl

    survived surgery

    I survived the surgery - I had a bit more trouble than anticipated with the anesthesia- have had nausea even 2 weeks out. And some pain and aches as well . But it is what it is... and Dan has been nothing less then great. Family has helped as much as Ive asked and needed. I have caught up on a lot of TV all if it crap - but lol - it caters to a population. to each their own as the saying goes.... I went back to work last week on Monday ( 1 week after surgery ) just half days . By noon I was tired. I'll play this coming week by ear. My job is not physical more analytical. And my little crimina
  11. nancyl

    I survived the surgery - I had a bit more trouble than anticipated with the anesthesia- have had nausea even 2 weeks out. And some pain and aches as well . But it is what it is... and Dan has been nothing less then great. Family has helped as much as Ive asked and needed. I have caught up on a lot of TV all if it crap - but lol - it caters to a population. to each their own as the saying goes.... I went back to work last week on Monday ( 1 week after surgery ) just half days . By noon I was tired. I'll play this coming week by ear. My job is not physical more analytical. And my little crimina
  12. nancyl

    at present my color would be a clear blue sky color... I'm content at the moment, and thankful because as you know my world has been black in the past. but like storms that move through the sky, eventually I have come into some clearness of a blue sky. I'm holding tight onto that vision. Thank you for reminding me and others to reflect, because only with reflection can we stop and see.
  13. nancyl

    Time Marches On

    I haven't posted in awhile --- March 11th will be our decade anniversary of my husbands stroke that changed our lives.... We finished up our home remodel ( Dan came back home from the nursing home due to covid) the remodel made the home more accessible for him - and better for me to help him. But -- a couple weeks ago I was helping Dan with his bath , went to swing his leg and pop something inside me popped. We thought I had prolapsed my uterus - but turned out to be my bladder. So surgery to put that back in place is next week. Good lord- Im falling apart, literally -- LOL nothing to do
  14. nancyl

    I went and got my medical card for ND. Still experimenting - with dosage. I just take a tincture - helps me sleep, I actually have more dreams - which is nice. Dan won't try it. He had the stroke and it might help with his spasticity - but he won't even try -- lol , his choice.