Stroke Caregiver - female
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About SandyCaregiver

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    Chief Mentor
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  • Stroke Anniversary (first stroke)
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    crochet, knittng, quilting, Latino Soaps. Dabbled in most crafts, but now have no time for them, hopefully some day.
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  1. Here is another thing we did. These simple sentences are used repeatedly in interacting with others, and there are quite a few categories. My repeatedly reading them outloud, you can improve your response time. Of course, replace details like where you live with your own info - don't want to practice someone elses details. I think this is a good practice, because when I studied Spanish, I would always practice out loud. People don't realize that we are not used to speaking another language, and it's difficult to get your mouth in order to get out the foreign sounds. I have friends that only studied silently, that could not speak upon an opportunity, and messed their sounds/words terribly, because they had no practice at it. Where I could spit the words out quickly, from having lots of practice at saying sentences... that didn't help my bad grammar though, ha, ha!
  2. Are you saying the only speech difficulty you have is that you can't get the words out because of face muscles not co-operating? Look thru these links:
  3. Let me butt in here, too. My hubby, had a massive amount of speech therapy out, and I did a lot with him on my own. He still has aphasia, but is so much better - his stroke was very bad, so he has lots of leftovers. The one thing to realize is that the stuck part of speech happens in the speaking of it. When you read, read out loud, so your brain has a chance to practice saying the words and getting them out. I listen to Bob when he reads, because he may not know he is making mistakes if I don't catch them. I don't know if you have the same kind of problem, but he had about 3 or 4 things that hindered his reading. One was that, his brain was anxious to finish the sentences and would put in any word that seemed a logical next word in the sentence and he's miss the real word/s coming up! But the out loud repetition is the most important part of any speech therapy, as the words have to have practice being actually said. As far as the kinds of things he did at speech therapy, there was a lot of trying to build areas of the brain that held similar information. because the brain strores things by category. This is really important, and gives your brain more power by being able to organize types of things in its storage of information. For instance, sometimes he would write out a list of every kind of dog he could think of, or every kind of car, or farm animals, then read this list out loud. Lists that are more detailed, like parts of a car, lists of grooming items, Keep the lists, and read them out loud often. Sometimes, don't look at the list and make it again and see if you remember all or maybe different ones.
  4. WOOT! You are finding Tracy, and she is a great gal!
  5. Wow, Tracy, I didn't know this was going on. I'm sorry you have had to go thru this. I am so glad to hear how you are coming back to life, and each day, living it YOUR way, taking a little more back. You have shown so much strength and bravery, in the face of all this, you will surely keep going and growing, more everyday. Prayers and virtual hugs, coming your way!
  6. Nancy, Dan has been spoilt into believing you will do anything to appease him, and look where it got YOU. It didn't help him any either. I don't know what his answer is, but I do know that the sooner he realizes he is not the king and everyone else the peons, that life will move more smoothly. I'm glad you sutck up for yourself, that means your head is in the right place, and no more mind control games on you! Good job!
  7. Hi Amelia! In most cases, they can't tell you why someone stroked. I mean, if someone had a extremely high blood sugar and high blood pressure, it would be an obvious. My husband was very athletic and we ate really healthy and I only thought that obese people, heavy smokers -you know what I mean, had strokes. After his stroke, I learned that strokes are like car wrecks. You will have a greater chance of having a car crash if you are rip roaring drunk, but you can still be in a wreck and even be killed in it, if you are stone sober. You can decrease your risk to have one, but there is still that percentage of people that you'd never have thought would have stroked. Children, unborn babies, the healthiest person you know, could be killed in a car wreck.. or hit with a stroke. I could not have been more surprised if someone had called me from the athletic center, and told me that while my husband was running on the INDOOR track, wild wolves had broken in and eaten him. I mean, never in my wildest dreams, did I ever think it could happen to people who actually take care of themselves and having no medical issues or accidents. When he first stroked, I was, like you, total shock, and how in the world do we go on from here. My husband had a massive stroke, which affected everything, everything you can imagine. I did find comfort here.... I mean, it felt so unfair, and if I had thought that it was fate just doing this to US, it would have been unbearable. But when I came here and saw others, in my same situation, I somehow felt like I was not alone, and if they were making it, I would learn how to make it also. Hugs to you, and many prayers - Sandy
  8. so sorry to hear of your friends passing. It is so painful, I'm glad you have so many wonderful memories of him.
  9. When my son went to college, it seemed like he was home a lot, because of the many breaks between semesters and holidays. When he graduated from college, and then moved to another state, it was surreal to know he wouldn't be coming home and sleeping in his room anymore. That part was over. I'm glad your daughter is still in the same area around you, you can still have quality time together - that's wonderful!
  10. Hi

    Hi, Clksoft - I confess to not reading all the comments, or I'd nevver get to write. I will encourage you to continue to have your hand on the rail, no matter if you totally recover. I say this because it is one of my pet peeves that people bounce up and down the steps and ignore the rail. They think if the start to fall, they will grab for it, which rips it out of the wall. Rails are there, so incase your foot slips, you already have the rail and there is no fall - it nips it i the bud. Now to the stroke stuff. You can help your progress in climbing stairs, but simply standing in front of one step, and putting your foot on and off, on and off. If it is too high and too much work, use something half that high. Start with where you are right now, and choose the one that you can work with without it being such a struggle it just feels like you are not going to be able to do it very long. Do it with both legs, the other one is probably weak by now, from lack of activity and from that weight loss, that took muscle too. My husgand sleeps 12 hours a night, and naps too. Do not fight sleep, your brain heals while you sleep. You didn't break your leg, you had a stroke - that's your brain getting broken. This is going to take longer and go slower than a leg. People think they will go to therapy a couple of months and be back like before. It is not the same, neither is there a cut off time for improvement, but SURE, everyone wants to get it back right away. My husband had an extrememly bad stroke and lost everything, and he is on his 5th year of survival, and STILL seems to have improvements here and there. For him, no he won't return to anything like before, but if he can keep getting better, so can you, especially in your mobile state. It is for sure a terror to us to have an attack on our image of ourselves like this. My husband was an athlete and had all good numbers, and ate a superior diet. We all have this stereo type of strokes happening to that 500 pound person, who smoke 5 packs a day. But then I found out that strokes are like car wrecks. Sure, if you are drunk you chances are much higher to have one, but if you have never had a drink and are the most careful person in the world, it doesn't mean you won't get killed on the road. Strokes happen to anyone, including the most healthy, children, babies in the womb. I was so shocked when my healthy husband stroked so horribly, I would have been less shocked if they had told me he had been eaten by wild wolves, while jogging at the INSIDE track at the health center... or that he had cut his own head off mowing the lawn... I just couldn't believe it. If you are having anxiety, thinking too much on the disbelief of all this, try to understand that this is something that people who have been so careful with their health, just can't believe, it happened to THEM. My husband took citalopram 20mg, not to go into la-la land - too many people think that! It is not about that, it is about recovery. You cannot put your best self into fighting to get back all you can, if you are suffering from anxiety, fear, disbelief - it all stands in your way. A friend of ours also stroked, and refused any 'drugs' because he didn't need them. True, he had very minor left overs and figured he would be the different one and in no time be back to 100%. He could actually do most anything he wanted, but still ended up having a nervous breakdown because he couldn't get his brain off the very minor leftovers he had. My husband no longer needed the meds after 2 years, as by then, his brain was out of panic mode. One final thought, someone once told me not to be as skinny as I could, because if a bad streak of health hit, you could lose way too much too fast. My husband was a bit over weight when he stroked, and lost 20 pounds during the 'can't eat' time period. I'm not saying be fat, just don't try to be the lowest weight on the weight chart for you height. Keep a little reserve for health crisis times.
  11. I'm glad you are ok! I would like some of that Butternut Squash soup please! I always add a little cinnamon & pinch of cloves to mine, and maybe a dolip of Van Almond milk!
  12. Hi Teresa, all us caregivers have been right where you are now. There is hope. Talk to him about things going on. Read to him, something he is interested in. Maybe he has locked in and maybe he doesn't, but one thing is for sure, if he does he can hear and needs desperately for some input. Read this: Locked-in syndrome (LIS) is a condition in which a patient is aware but cannot move or communicate verbally due to complete paralysis of nearly all voluntary muscles in the body except for vertical eye movements and blinking. You said he moved his head - that shouldn't be possible with locked in. But, he could just be so far down the hatch that he can't do much yet. The brain swells after a stroke, and when the brain starts going back down in about 2weeks, it can show an improvement. When my husband stroked, he looked so bad, I never saw such a tramatic look of a human being. I was thunderstruck, must have been close to being in shock myself. But he is celebrating his 5 years of survival. Yes, he is handicapped, but he is here with me, and we have a good life and laugh together, stay up late, sleep late, nap whenever we feel like it. You still have reason to hope for a future life together. Stay with us, we can help you understand, deal with, and give tips. You are not alone {{{{HUGS}}}} If you'd seen him after stroking, you'd never have thought this happy, content guy below could still be in the future.
  13. Hi Yvonn, my husband has aphasia also, and it is a lot of work... but the one thing you should know is that just because he can't say what he thinks, doesn't mean he is blank inside. There are some people who can only say one word, but they THINK it is coming out normal, and just go on and on with that one word, that might not even be a word, and wonder if you are crazy because you don't react/answer anything. Bob is one of those that knows what he wants to say, but a strange thing happens. From the brain to the mouth, there is a disconnect and all the wrong words are chosen and they are as surprised as anyone when it comes out, you can tell because they stop talking and get frustrated because they can't say what they are thinking. It's kind of like you know what you want to say, but find yourself in a foreign country, and you don't know that language, so your words are in your head, but when you say them, no one understands you. Has he had any more speech therapy? What did they say about his condition and what are his speech problems. I understand not talking, but it's bigger than that. Can he sign his name. Ask him to write a few sentences about his job, and see if it comes out strange - I'm guessing it will be the same problem as his speech. Now, ask him to read something simple and see if he can read it. Bob had several problems that were a real hurtle to him reading, I'll share if I find they fit the situaion you are having. Bob has total blockage on one side also. Whatever condition they are in originally, it gets worse in about 3 days, because of brain swelling, so then more problems show up.
  14. Stroke with aphasia is pretty automatic approval. Speech therapy is an excellent way for her to work with different things and be able to tell more about his speech problems, and be able to relate that to soc sec. Note, you do have to list these doctors on your soc sec form so that they CAN contact them and verify conditions. I think a lot of people get denied because they know what problems they have at home, but somehow expect the doctor to be psychic, and he examines them and doesn't find much - BECAUSE IT IS AN ACTIVE PROBLEM, not a sit in the chair while the doctor listens to your heartbeat problem. The soc sec will write the doctor and ask him to tell your problems, and if that doctor only knows what he's seen, you are in trouble. That is why you have to document everything and give that to all the doctors, so they are in the loop of the real problems and can share that from their doctor standpoint, with soc sec.
  15. There are a lot of things to check to find out where there are 'holes' in his thinking. 1. gather a few things together, 2 of each, and one larger than the other. For instance, 2 flowers, 2 glasses, 2 different size pencils. Now hold up the 2 similar items and ask, "which is bigger? which is the small one?" I found out that Bob didn't know. So I bought one of those grade school booklets where there are comparisons of items, and other pages where it ask which is square? stuff like that. The more we find out what he's missing the better the recommendations can get. 2. can he sign his name? can he write a note, or will it get weird as he writes it, like repeating words, sentences that make no sense. 3. can he read something to you? 4. has he been checked for visual cut. Which side is his stroke on. Check both sides by having him look straight at you, and then slowly bringing your finger from the side to the middle. While using only perephial vision and looking straight at you, did he see your finger at the same point on both sides? You have probably been here and paying taxes long enough for him to get social security disability. You need to start looking that over. We applied online and didn't have to go anywhere, well, Bob was highly immobile, but I think it still can all be done online.