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Stroke Survivor - male
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About 2ndChance

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    Senior Member
  • Birthday 05/16/1966

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  • Stroke Anniversary (first stroke)
  • Stroke Anniversary (second stroke)
  • How did you find us?
    Word of Mouth

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    United States

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  1. 2ndChance

    Is anyone taking Lamictal (lamotrigine) as an anticonvulsive to control seizures and/or mood disorders? If so, what dosage are you taking?
  2. 2ndChance

    AZ allows medical mj. I haven't tried it because getting the card is about $300 and then it would be $100-$200/month for the weed, But I hope to save the money to try it at bedtime for my anxiety and explosive disorder. CBD did nothing for me and is also outrageously expensive here. Meanwhile, 200 mg of Baclofen at bedtime knocks me out for about 4 hours before it wears off. If I wake up in pain I take 100mg of gabapentin (Neurontin). I find if I take the standard gabapentin dose of 300 mg, I am in a fuzzy cloud for hours after I wake up. Baclofen and Gabapentin or really, really cheap. Just my experience. The numbness will never go away. I never had any heaviness except for my paralyzed arm hanging off my shoulder like a dead king salmon!
  3. 2ndChance

    Personally, I would never allow a PCP to oversee my treatment; only a neurologist. My PCP refuses to prescribe any stroke-related meds. He said it is not a general doctors specialty. I had appointments scheduled with a neurologist and neuropsychiatrist before I even left the hospital. My PCP renews the referrals each year. Taking aspirin sounds dangerous unless your stroke was caused by a clot or you have other cardiac problems. And they should be testing your pro-time/INR regularly if they are going to thin out your platelets. Honestly, I would request a referral to a neurologist immediately.
  4. 2ndChance

    Anyone know how to find a caregiver? I'm starting to have trouble dressing, cooking for myself and I've started falling down a lot. I have no spouse, no children, and am an only child, I live alone and my parents are too old to be of assistance and refuse to move in with me or take me in. I've tried government agencies but they say I am inlegible because my disability benefits are too high. Yet, I cannot afford to hire a company to move in and assist me. Any ideas?
  5. Happy Anniversary 2ndChance!

  6. Happy Anniversary 2ndChance!

  7. Happy Anniversary 2ndChance!

  8. Happy Birthday 2ndChance!

  9. 2ndChance

    Greg - what was the reason Voc Rehab didn't assist you? They are required to by federal law.
  10. 2ndChance

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  11. 2ndChance

    Just got back from my second round of Botox. It was pretty easy this time. I still have no real functional movement, but I did not realize how much pain I was having from the spasticity. My only complaint is that my bicep is so relaxed, when I walk it swings, then bangs my hand right into my crotch (just a bit embarrassing!) I still think I'll try at least one more round before making a final decision as to whether to continue. At $15 per injection appointment, it's hard to turn down! Rene
  12. 2ndChance

    Find a neuropsychiatrist and a physiatist first and take the names with you to the PCP. Most PCPs will not have a handy referral for these types of stroke specialists. They will be on your insurance list. Physiatrists may be listed under "physical and rehabilitation medicine." You might also ask the PCP to start him on a mild seizure drug like Lamictal to stop the outbursts of anger/rage. It stopped mine after the very first dose. My husband thinks it was sent by God himself.
  13. 2ndChance

    Ask a rehab nurse to talk to your Mom? keep stressing that you have a permanent brain injury?
  14. Letting them see first hand what you two are dealing with might have been a psychological slap in the face. You should now be comfortable asking them for physical, emotional and financial help.
  15. 2ndChance

    Dianne - I sent you a PM for a referral for services for your parents in case they disrupt at their current placement. I hope you don't need it, but hang on to it! Rene