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Stroke Survivor - male
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About raysrightside

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  • Birthday 05/18/1963

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  1. Imagine a ten spoon day. Was running out of clean clothes so decided to do a load. How hard could this possibly be? Four pairs of shorts, some boxers, a few t shirts and a pillow case for a laundry bag. Hop on the scooter and off to the laundry room. Who knew a few clothes could be so heavy. By the time I'm done loading the machine, I've used one spoon. Load and unload the dryer and I can barely stand. In fact had to use a handy golf club to reach a few shirts deep in the dryer. Had to finish folding seated. Second spoon gone. Sitting on the couch recovering. Seriously considering getting domestic home aid. My doctors say I should qualify.
  2. It's not all cloudy skies and rain, folks. Today as I was doing my 25 steps with my walker, I found myself taking a break next to the vacuum cleaner. Seeing some doggie fur on the carpet nearby, I decide to clean it up. Picture this...walker in one hand for stability, vacuum in the other picking up my doggie's hair. Giggled non-stop at the silly picture I must be making.
  3. That's a much more lucid explanation than my neurologist provided, Heather. Thank you. I, too, will probably return to an office environment, and I need to get this situation under control. So for now, I will be persuing relief with medication.
  4. When I was in the ICU last month my neurologist put me on seraquil for the pba but we both agreed to stop using it when the pba seemed to be lessening. Well it's back with a vengeance so maybe I will get back on it. Going back to living alone may be causing the spikes in emotion though I've always been fairly independent. Maybe now that I have to ask for help occasionally, my mind is trying to compensate for not being able to do it all myself like I am used to.
  5. When I had my initial stroke, my emotions were all over the place. Eventually they became somewhat manageable, and inappropriate outbursts were few and far between. I still had no filter, but I could keep it to myself, mostly. Now with the recent brainstem stroke, it's extreme, I cry ugly and laugh hysterically at anything. I may even consider medication. Will ask my Neuro what options I have next week. What the Neuro always asks is if I am depressed. Don't know why she always goes that direction, but I always stress that when fits of hysteria hit me, I'm not upset or depressed, something very minor has triggered an emotional response. I am just not responding in an appropriate way. Now it's very loud and noticeable. I think I have to do something about it.
  6. raysrightside

    Ran out of breakfast supplies today necessitating a scooter jaunt to the grocery store. Much more cautious this morning, watching my speed and the sidewalk. There are several spots along my route ( about a mile each way ) where the sidewalk is quite rough, where I have to actually travel the street. Must get a safety flag so traffic can see me easier. I did turn up the scooter controller to fulll speed where my path was smooth and wide open. Uneventful trip, the best kind.
  7. raysrightside

    June 4, 2019. Brain stem pons area. Now my left side is weak, too. And I have dysarthia along with new speech problems. This latest stroke was caused by plaque buildup in the blood vessels due to high cholesterol. I was cheating on my diet over the last year or so, and was getting complacent about healthy routines. Luckily I did retain full range of motion in the left side, so therapy is geared more toward strengthening my limbs than regaining movement.
  8. raysrightside

    Took my doggie for a walk yesterday. She putters along nice!y beside the scooter. We went by the scene of the crime to look at the sidewalk more closely. The tree root was bigger than I remember and could definitely cause cause the scooter to tip over if hit with any speed. Apparently 4 mph was the necessary speed. Lesson learned. Maybe I should bring the dog on all scooter rides as she only walks slow and steady, she's 12.
  9. raysrightside

    Never even thought about left side neglect. I was probably drifting left. My misadventure has definitely got me more conscious of every little sidewalk condition whenever I venture out on my scooter, and unless it looks like smooth sailing ahead, I will be nowhere near full speed. It's amazing how quickly I went from comfortably seated in my scooter to lying on my back in the street. My leg was tangled up in the seat so there was no easily getting up. Not a good feeling until I saw my phone within reach. I will definitely ask my pt about neglect effects and how to compensate.
  10. But the challenge now is that both sides are weak. I was in the home stretch, scooter humming along, groceries in hand, feeling quite accomplished. When the next thing I know is my scooter is on its side and I'm lying in the street. Two cars drive by without slowing down. Luckily my phone has landed within reach, so I call a friend who lives nearby. I am now a commercial, "I've fallen and I can't get up." My friend is on the way. I worry that he may not be able to lift me back on the scooter. Before he arrives, a car stops and a random savior comes to my aid. Thankfully my assistant is a big guy who handily hoists me to my feet, steadies me with one hand while righting my scooter with the other. Very impressive, and he has a first aid kit to clean and band aid my minor scrapes. By the time my buddy arrives I'm back on my scooter ready to tackle the few remaining blocks home. Before I take off, we examine the sidewalk to see what was responsible for my mishap. All we can find is a tree root beside the sidewalk that may have caught a tire. Must stay vigilant until I'm safely home. The kindness of strangers is truly amazing.
  11. and moving on to outpatient rehab. Hooray for Medicare disability. I'm way ahead of the game this goround. Amazing the help available with insurance. Didn't have any the first stroke and I learned so much from my therapists. Hope for continued progress in outpatient rehab.
  12. raysrightside

    Hello everyone, been absent for awhile enjoying my post stroke life with its new accommodations as much as possible. Things were progressing so well that the shadow of a new stroke got pushed to a vague thought. I was enjoying an extended Memorial Day weekend, camping with friends, riding my motorcycle with my furry pal, when a pons stem stroke hit just as we got back home. Now my left side is affected and dysphagia makes speech and swallowing difficult. Here we go again. At least this time I'm being transferred to a rehab facility before being sent home. I think a new sign in is necessary.
  13. raysrightside


  14. raysrightside

    Thought I would miss working too, but reading and hobbies, and taking the dog out for an hour of fetch, and a two hour walk, pretty much fill my day. The only good thing about a stroke is time to spend on non stress activities.