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Stroke Survivor - female
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About SassyBetsy

  • Rank
    Senior Mentor
  • Birthday 10/10/1963

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  • Stroke Network Email

Shared Information

  • Stroke Anniversary (first stroke)
  • How did you find us?
    Google Search

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    United States

Recent Profile Visitors

5,825 profile views
  1. SassyBetsy

    Going to a new pain doctor

    I am on 2 oxys...oxymorphpne,oxycodone and lyrica 200 mg 3x day,every 8 hrs...i need spinalRFA,drugs not help. Never give up,there is help out there.
  2. Those dang insurance and long term care issues!!! They throw sand in your face when you need them or they pull you out of water,toss your coin. I had to appeal repeatedly and when I lawyered up got a hearing then the judge saw me and saw reality. I pray he has plenty of supportive friends to pray and one special one to send gift boxes over the years like mine who gave me my drawer of fuzzy socks! Be yourself for him and let him be the new version as long as it takes to reemerge or rewrite, or whatever. Share what he gives out,understand what is a mystery,love. You will make the difference. We know.
  3. SassyBetsy

    Please pray for Pamela (SassyBetsy)

    Thank you all!! I am crying with joy! I am full of fear for my legs. I look there Becky and see those beautiful hands of light and words of encouragement and draw strength. If I say I have been so out of it to blog then there is how wrong this is...me silent,not complaining???LOL! My spirit is lifted and my gratitude list grows. May you all receive double back on your dance cards!!! Keep rockin
  4. SassyBetsy

    girlfriend group

    If you find some soul mates then who cares about demographics. Look at hearts and for supporting you. It will be refreshing I am sure and you bring so much energy wisdom and fun to the mix! Remember who we are makes a difference!
  5. SassyBetsy

    Which would you rather?

    OH Maddo I guess we will celebrate anniversaries together!!!! I used to run. When my balanctte was gone I was in a chair. My riight hand is numb but functions and is cold weird but at first I could not write. I got copies of crossword puzzles to write in.
  6. SassyBetsy

    Which would you rather?

    Thanks you guys ....You all are family....you listen and read...and hear and care.....I read you all too. But lately very drugged and not writing our is it thinking. I was ill lately and could not walk the same and value my leg pain or not. I miss my mind My love here at the snf lost his sight he woke up blind.He is inspirational. Tracy thank you...your support sustains me. You get me hear see understand. Thank you.
  7. SassyBetsy

    Insurance Denied a test

    I have driven down this road for my spinal stimulus stuff and various meds....trick is to call your doc and the doc finds out what wording to do the pre auth. It can take time. Years for me for the stim months for meds. So persevere. Keep hope. Keep squeeeeeeking the squeeky wheel.
  8. SassyBetsy

    opportunity for ischemic stroke survivors

    I had lacunar ischemic In pons In tiny blood vessels I have read are teeny weeny. The ER did not give me TPA. I begged for it. Pleeeeded. They said it can cause a bleed or death. So much for the FAST hype. I was there in the 4 hr window too. My symptoms were confusing.was it really a stroke. Basically they watched. I was taken to the closest hospital not the best. I changed and made sure I live by the best. Oh that hospital was the stroke trauma center. They denied me in house rehab. I went out patient. I had been a candystriper in that rehab....way back in the day...my daughter also.
  9. SassyBetsy

    Cancer. Really?

    I am fine. It is not cancer and that tissue is flagged so next year no biopsy on it again. I feel I have been given a gift. The other mass is gone so prob a mistaken pix. I will always go@!!! SEE YOU NEXT YEAR MAMMOGRAM!!
  10. Maybe he gets worn out and needs a day of rest in between.
  11. SassyBetsy

    I am sitting in a diaper.

    I have a sinus infection,yeast infection,fungalinfection,and need to use a bipap machine but cannot breathe with my nose right now.... Nutshell of misery is enduring the virus that I am hosting in my body My body that feels constant pain in my right leg for no reason except just because ...and it is not a belly ache as some mock. NO it is burning at the stake pain, a live amputation. I Do So have a good pain tolerance!!! I have been through labor and childbirth and a C section. Ok boys try being sliced in half to pop out a baby and then being stitched inside stapled outside and then pop a baby aspirin so I can breast feed safely. And foolish women sing the joys of experiencing the natural experiences so I did I until those double peaking contractions that failed to do much.....yes pain and me are old buddies. This nerve pain is childbirth Godzilla steroid style. It is dental pain wile your finger is stuck in a light socket. Ok....so I am getting an implant to turn it down....does that prove it is a not normal pain yet??? So then my incontinence issue is not a thing except the stroke added more weakness so I wear a leak prevention pad....my ego identity is involved here... So when I got to snf, they did not offer pads,but had pull ups or diapers. It took no time to love pull ups. Easy convenient yet often leaky but ok I missed undergarments but never had to worry about lost laundry.... But the home does not proedvide pull ups now I cal)led the ombudsman twice. She said the home is obligated to provide incontinence supply...and it did. Maybe not what I wanted but they did not have to provide pullups or pads. Not even maxi pads. So I spoke to my PC, she understood and sent an order to the medical supply Co and......I was happy until it called me saying they do not deliver to nursing homes..they provide stuff. Ok. So I will. Does any one get this get me? Should I be taken at my level ...but they say all the same.... No one comes to change me See they said i am independent not incontinent. What dictionary are the using? I cannot talk anymore to statues. But I am sitting in a diaper. I am here. It falls when I walk. Comes off when I pull up my pants It sags to my knees and it is dry. So they came in and said you need larger ones. I said I am swimming here. They brought bigger ones that are prettier color but when we put it on it was nearly a one piece bathing suit. So back to other one. I will adjust to this. As I always do. But I fight to not be in a wheelchair. It hurts to walk so bad. When toilet was out in my room i used commode. Not a bed pan.not a diaper. So they told me to change myself. I need coordination. I cannot do it. So I will purchase some myself for outings but here I am in diapers. Why is my identity fighting this. I am having problems yes.
  12. SassyBetsy

    what will be my one word for year 2019

    My one word is life. Only our life. Only our story. Only our experience. But lately we see the value of sharing. End hiding. And each has value. Forget worldly concerns. Seek. Aspire. But value life. God bless you all.
  13. SassyBetsy

    I see our favorite Entracept doctor is back

    Horrible to kill the hopes of desperate people using snake oil treatments. There needs to be a watchdog committee who exposes the chartltans!
  14. SassyBetsy

    I see our favorite Entracept doctor is back

    Oh? Is it used in united states?
  15. SassyBetsy

    My Christmas miracle

    After hearing the radiologist insist I return immediately for a biopsy my gut reaction was of course THIS is not happening. I asked for a 2nd opinion. She returned and said the head of the dept. Of this prestigious teaching medical university hospital in So Cal_ said two areas of interest and one should be done immediately and the other area could be checked at next available appt. Wow. It sounded serious. They even scheduled and all before insurance pre auth! I cried. In front of the student intern. I asked for a kleenex as I covered my face and silently unsuccessfully held back waterworks. I never cried when I was told I had a stroke. That came nonstop later. But the idea of csncer destroyed me. Shoot after losing everything in life do I seriously still need hair or boobs? And I hurt. The electrode trial was done. I needed RFA as I wait for the implant procedure. Yes I decided lickety split to just DO it. Relief is worth it. So I went and the tech took another mamo on another machine I sat on. The doc came in and said the three disagreed with what they saw. Then she returned and said they could not find that area again! What?? Apparently it was some tissue mistaken she said. I thanked Her for patiently answering curiiosity about the procedure. She apulil. peared to happily talk about her work. The intern was helpful because it was difficult for my vestibular system to climb in the chair endure dizziness and then the kind doc could not find the thing! She said it was too small@! She did though and clip a flag so next time it would be know, it was checked.They showed it to me when we were done. WHITE dot! The doc expected it to be B9 And in 2 days she called me and said it was!! It was painless. They numb it up A tiny slit is made for the biopsy device and then steri strips are applied with bandage dressing. Mine bled and came off so nurse reapplied them. They lasted more than a few days but then fell off on oys own. A tiny pink scar remains that I strain to see if i should vicitg a topless beach. I celebrate life this New Years. I exchanged gifts with family and friends. I share with people here. I helping a woman get a free cell Phone here. I hope still)going on.opp09) I must share. I also wearing new shirt and navy blue nail polish and living stylish. Coloring with expensive pencils from amazon deals! Still pain. Endless. But life is more than it