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Stroke Survivor - female
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About SassyBetsy

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    Chief Mentor
  • Birthday 10/10/1963

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  • Stroke Anniversary (first stroke)
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  1. SassyBetsy

    Probably takes time to see the results. A So take some measurements so you can see productive results. Music makes time fly. Good for you. Live in hope.
  2. SassyBetsy

    William is fortunate his son is coming. I hope he is clear minded to enjoy that gift. I know a part of you will feel relief when Will passes because this is hard to endure. One can hardly prepare for grief. BUT your strength will somehow be there when you call it like a trusty stallion to help you.
  3. SassyBetsy


    PAM'S PAIN PRECEPTS 1. Never touch my leg. It burns next to the eternal yule log. I have been branded by the touch of others. But with permission all is well. 2. I feel stabbed in my leg, calf or foot. I walk slow because it seems like butcher knife follows me stabbing me in mý calf. 3. Wake me for pain pills or prepare for me to wail for for hours until the next dose. 4. Sometimes I just need to color all night. My symptoms hurt. 5. Sometimes the covers are too heavy and I call out for someone to remove them. My leg burns or electrical zaps consumes it. 6. I will want to get out of my pants as soon as I can. I love clothes but now I only harem pants or super soft material. 7. I will do PT according to what my body can tolerate tomorrow not today. My pain does not hurt much now but later I will pay. 8. Allow me to sleep until the pain subsides. Just save my food. 9. I need my pills on time or early if I previously too an earlier dose. 10. I am probably addicted to these pain pills but I have constantly been in pain since my stroke. This is chronic pain but complex regional pain syndrome is more than intermittent pain. It is CONSTANT.
  4. SassyBetsy

    8I hurt so much now as I wait for Oct RFA. But it barely lasts 12 weeks before pain burns. I suffer spasms too. I cry morning and evenings as the 12 hr extended pain pill And med for break thru become due. This morning a nurse appeared bedside and held my hands telling me just hold on the pill will work. She had Caribbean accent??? As I calmed down she wiped my cheek with back of her hand and said she will return. By the time she did I was up eating breakfast all smiles. I never had pain like CPS. I am Mrs. Hyde or just sobbing demolished. Then pills work. Dr. promises my hope is in electrode because RFA helps. He says my stroke was in unusual place to produce so much pain. oh. um. so I still need insurance co to pay before a trial can happen. I have PAM'S PAIN PRECEPTS. Some here know me but are not as kind as the nurse today.
  5. SassyBetsy

    It is like me and my salad dressing. I love blue cheese and yet if they say I cannot get it them I get Thousand Island which is also good or wait ranch Russian vinaigrette or wait... raspberry vinegrete!!
  6. SassyBetsy

    You are so right!!!! I needed that pep talk to remember that thinking is ok.accept all of me. It was not my stuff I picked. I accepted it with gratitude and graciousness. I assured her that giving us residents supplies of our own is life changing. We have an activity now.independent but yet we share looking at eachothers work or sitting together coloring. this is adult art. I color someone elses drawing....like an illustrator team thing lol. I am a color specialist lol. yes my hobby is all i can do to be productive. maybe their budget does not allow for what she said picknit out......I saw she genuinely wants me happy. I azsured her she brings good to us. she does make a difference. In fact she has not told us to share and in fact gave me another set. and more books. it is amazing we got all this .That I received some. I suppose the child in me is selfish stubborn. Anyway I get something so I am blessed.
  7. SassyBetsy

    we sure do!!! Before stroke I was right side up in this bottle. But now it has breen tossed into the sea. The social worker here has a standard reply .....sorry that is NOT in my department. THEN she comes in quarterly to ask how are things going...... suddenly i tell her something.... and yes she spits out the reply. oh and activity woman was there....said books came in.... hooray...but will it be the one i requested or another one? am i rude for resenting the gift?I am disappointed in false promises.
  8. SassyBetsy

    Well time to do nothing is ok too. you are the boss of you.
  9. SassyBetsy

    My eye lid twitches when I am stressed and loss of sleep. I also suffer from dry eyes and using a non medicated refreshing ointment at bedtime,along with permànent tear duct plugs, and gel tears has made my eyes feel pampered. My eyes strain easy now and I overwork them. I find that good sleep fixes many things.
  10. SassyBetsy

    I do the same! But I feel fine at thè time, then sleep,suffer,repeat.
  11. SassyBetsy

    Oops,our group is for TBI,Etc...some had brain tumors....I call it stroke support because it once was that and neurological injury group is long....lol,excuse my not being all inclusive. Maybe check out new person, ask why the switch, and tell them what you want. It is reasonable to not want to start all over with someone who may not get it, and some of us are complicated and picky about pur providers. But maybe it will be a good thing too. Hopefully you have a choice. I went today, went to PT, then took shuttle bus to bungalow where group meets. Very fun, but tiring. But nice others get me.
  12. SassyBetsy

    oh when I ask for help they say,oh you make your appts so you handle it. it is exhausting. 😅
  13. SassyBetsy

    I used to speak in public, sometimes not easy, sometimes very easy. Now I do not talk fine,I am slow on my feet. I lost my train of thought mid sentence,or I retell a story in 5 minutes. I hate it when people try and rush me by guessing what I might be saying. I have said Do you want to try and guess again? or I have honestly been so distracted that I said oh boy, now that confused me so I need to start over. It annoys me that they do not listen properly. I get shy to speak in group now,afraid I cannot say what i mean. for the doc, o make a list of things. I interupt people.. I try wait,then jump in ,it cut someone off. oh well I jumpeç. better this way. But I find it challenging to not stand up for myself and often I am insistent? Do I sound rude ??? I need to tell them. End of story. How else can I be in real world.
  14. SassyBetsy

    I envy you. You will be back in the living world. Get all those ADA things to make your life better. It will be a challenge but this your second chance. I hope you like what you will do and you make new buds, wear great clothes, have fun with it. Vestibular challenges are daily fun house events, just walking down the hall. You are strong and able to do everything tossed your way. And when it overwhelms, make them understand. 💅
  15. SassyBetsy

    oops, Peder Helland