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Countdown To Christmas!


Stroke Survivor - female
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About smarshall

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    Chief Mentor
  • Birthday 01/23/1960

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  • Stroke Anniversary (first stroke)
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  • Interests
    Music, my PC, reading, my dog, crochet
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19,024 profile views
  1. Hi cypher, and welcome, When I had mine in '96 I said that if it happened again I didn't want to survive. I didn't want to go through anything like that again, and I guess I still don't. I came home from rehab in a wheelchair. swallowing was 'interesting', motion sickness, etc.,etc. (Laundry list of deficits) I have relearned to walk, it took a while, but I did it - and now don't even use a cane. My balance is still shot-to-sh*t, and I have to use a rollator when I'm outside. (The 1st time I went to a grocery store and held onto a cart for balance felt incredible! INDEPENDENCE!) As devastating as it is - humans are adaptable creatures. Grieving losses is a given, and as some time passes focusing on what you CAN do will help. Please vent away, as often as you need. (We get it) ((((hug))))
  2. Hi, My CPS has morphed into a non-stop, sometimes squeezing-burning-aching pain that increases with use of that arm/hand. When I had the hemorrhage I still had use of all my limbs; the right side was weaker, and although sensory deprived I used my left a LOT! Any type of pressure now brings on the pain, I can no longer lift that arm to shoulder level. I haven't had the feeling of pressure in my head; it sounds terrible! I once tried gabapentin, but all it did was fog my brain. (Me thinks more PT might help)
  3. I've noticed my short-term memory stinks, and yes, it has gotten worse over the years. Stuff like not being able to remember what I ate the day prior; I also leave notes all over the house, and I use the timer on the stove too! (Sometimes even a note reading why I have set the timer.)
  4. My step-dad used to have a bumper sticker that read, 'I may be slow, but I'm ahead of you!'
  5. Agree! My 'gratitude chip' started working soon after I wrote the initial post. As it turns out my ex and his family will be there, and even though I don't bare any ill feelings I look at not going as a plus.
  6. Yes, they most certainly do! Aside from the hemisensory syndrome on my LT, I have motor deficits on the RT. Everything you included is part of my daily life too. Good for you going back to work! I had to medically retire in 1996; I couldn't drive anymore, vision and some cognition problems kept me home. I think improvement is very subjective. Having had the stroke, added to the aging process, (And the fun that brings to the body!) have certainly been factors in my recovery. (There are days when I'm doing well if I can make it to the couch!) There are all sorts of cognitive improvement sites on the internet; I'm rather fond of Luminosity.com, but that's me. Welcome to the site! (Keep that sense of humor!)
  7. Thanks for your responses. My son lives about 1½ hours from me; he can't come because he's on call and has to stay close to home. I'm not feeling down about it today, which is nice! I appreciate your responses, thanks again.
  8. Home alone Thanksgiving...again

    My son has to be on call for work on Thanksgiving, so he's invited a bunch of people to his new house. My husband has to work, I don't drive; I can't go. It's been years since my stroke, and I think I've done a pretty decent job of accepting my physical deficits. Today though, this really, really, really stinks!
  9. Thanks for the chuckle!
  10. I shattered my wrist a few years back and was prescribed dilaudid following repair surgery; I got more relief with ibuprofen. I've read where there's a small percentage of people who don't get relief with pain killers. I have no idea if stroke exacerbates that or not. I hope you find relief! (((((hug)))))
  11. I contacted these people VIA email, and this is the response I got: Hi Susan, Many thanks for your email. Headway – the brain injury association is a UK charity and therefore I can confirm that the Brain Injury Identity Card is only available in the UK. Kind regards, Liz Liz Partridge Project Manager - The Justice Project Headway - the brain injury association Does anyone know if there's one available in the USA?
  12. Awesome quote, Benni, it kind of reminds me of something my mom says, "Be grateful what you have, and be grateful what you don't have."