Stroke Survivor - male
  • Content count

  • Joined

  • Last visited

  • Country

    United States

About scottm

  • Rank
  • Birthday 06/05/1958

Shared Information

  • Stroke Anniversary (first stroke)
  • Facebook URL
  • How did you find us?
    Google Search

Registration Information

  • First Name
  • State
  • Country
    United States

Recent Profile Visitors

2,434 profile views
  1. It depends. How much will people pay to get spider bit?
  2. We have 3 cats Anubis a male who is black and named for the Egyptian god of the underworld, Hathor a calico female who is named for the Egyptian goddess of destruction and Fred who is named after the Freddie the Freeloader character on the old Red Skelton show. Cats were revered as gods by the Egyptians and have not forgotten. We are merely staff.
  3. We all tend to improve our situation over time, but time is the key. I started out lost in a fog, unable to read, do math or basically process much of anything. I've improved over time although math is still a struggle but I can read now, just not like I used to and my memory is shaky at times. I couldn't walk or use my right arm when I woke up from a coma, now I do both, it isn't always pretty but it works. 1 year is still pretty new to the healing process, it will continue in one form or another for life, embrace it and keep pushing yourself. Then every few months take a moment to review and see what has improved. It is so slow that sometimes we don't realize how much we overcome.
  4. The running joke with close friends and family is that they expect for us to be at one of these formal events and I just yell "I LIKE MUSTARD" in the middle of someone being sworn in to a position. They all claim I have plausible deniability. LOL
  5. It was interesting last evening, a cat showed up and proceeded to stalk them around the pool. They sauntered up to the edge and hopped in very casually. The cat came to the edge and considered if they were within reach and finally walked away. There was apparently a truce between the males while they all dealt with a common threat.
  6. As complex patients we can't be fixed with a Z-pack or other pill that a week later we are recovered. Instead we are the patients who make them face their own limitations and the god complex ones resent having their fallibility exposed.
  7. Heathber, Yea, that works in a lot of things like back pain and such where the issue is more a combination of physical training much like we go through learning to walk again. I went through it years ago when I messed my back up, but it had a physical issue I could overcome with exercise for the most part. CPS is more of a signal processing problem. The part of my brain that incurred the most damage was the parietal lobe.The radiologist who did the MRI described it as containing "innumerable emboli". One of the primary functions of that lobe is processing sensory information. Because of the damage those sensory nerves are basically turned on all the time so I get flooded with sensory information even when none is present, I call it ghosting. To me the cool air from an AC vent is like being burned. The jeans I wear are like sandpaper. The right side of my face feels like it is being frozen against a sub-zero coldplatr. My processor for those signals is corrupt. Mostly good news is that my sense of smell is greatly enhanced, but that has downsides to. Opoids can work for the pain but it generally requires pretty heavy dosages to be effective, not like taking a norco for your sprained ankle. So, the usual 1st line treatment is anticonvulsants like gabapentin or tricyclic antidepressants like I take, the dosage is far below its AD dosage. It is a trial and error process to find one or more likely a combination that works. I'm 2 years into the search and while I can blunt the sharp edges and take my pain from an 8 or 9 to a 6 or 7 it is by no means assured that today any medicine works, I roll the dice. Sorry for the protracted explanation, I don't often get to explain this and what my day is like, I tend to shield my family and friends from knowing what this is like. It is somewhat cathartic to explain, probably doesn't make sense but it made me feel a little more human.
  8. Maybe not...the situation is evolving. 1 female, 2 males playing staredown. Yea, nothing could go wrong here...I've never watched the duck mating dominance thing before, most intriguing.
  9. Well, for anyone who didn't see my post this morning, I have 2 ducks who have made their annual pilgrimage to our pool and are giving me refresher duck therapy at just letting things roll off. Ain't no thing, maybe tomorrow I'll care what you think, but probably not. I feel better already.
  10. I agree, there is most certainly a stigma associated with pain and taking anything stronger than ibuprofen for it. BTW, if you haven't seen the new studies, ibuprofen raises your risk of cardiac arrest 33%. Oh well, I can't take it anyway because of the blood thinners. So for pain I get nortriptyline which has become mostly ineffective and my neurologist says we've emptied the medicine chest. So, I guess that means I don't have pain anymore because he says there is nothing left to try...very few doctors including neurologists, understand post stroke central pain, at best they think it is the same as common neuropathic pain. I don't know how to fix the situation, the medical community owns the problem and they have to fix it, meanwhile we will continue to have that burning-ice sensation over our right side or the hypersensitivity to any touch, even air currents, that cause extreme pain. We are left to deal with the fallout, but that is what we do. I'd send you a hug Sassy if I thought it wouldn't hurt but know I and everyone here do not see a stigma, we see some one who needs help and support and we are here for you.
  11. Sassy, This is the new party line from CDC. Opiates only for short term acute pain. Chronic pain is better treated by PT or other means or a psychological therapy. Our pain no longer exists. Here's some ganapenten or something, you are drug seeking. Hence why I find it pointless to bring up my pain with the doctor more than once a year and then only in passing, I don't like it and everyday is a trial but no one gave me a vote. Hang in there and see if your other doctor can help you. You are in my prayers.
  12. That's great Janelle. It is nice to do something that makes us think.
  13. Apparently the Australian funnel-web spider's venom has amazing properties, if you can use it within 4.5 hours. From a report via Ars Technica: "Venom from the Australian funnel-web spider (Hadronyche infensa) contains a chemical that shuts down an ion channel known to malfunction in brain cells after strokes, researchers report Monday in PNAS. In cell experiments, the harmless chemical protected brain cells from a toxic flood of ions unleashed after a stroke strikes. In rats, the venom component markedly protected the rats' brains from extensive damage -- even when it was given hours after a stroke occurred. Researchers have years, if not decades, of work to figure out if their particular venom is safe and effective in humans. And very few potential therapies make the cut. But, this early study gives us reason to be somewhat optimistic: it follows years of research and hypotheses that such venom components and their ion channel-targets could be key to new stroke treatments -- which are desperately needed. The vast majority of strokes involve a blockage that stops or slows the flow of blood into an area of the brain (other strokes can be caused by hemorrhages.) This leaves brain cells without fresh blood and oxygen. To cope, the cells can switch to metabolic pathways that don't rely on oxygen. But this creates acidic conditions, and the pH outside of brain cells starts dropping fast -- a scenario called acidosis. In the acidic, oxygen-starved brain regions, brain cells become damaged and start dying off, causing irreparable damage. The only drug approved by the Food and Drug Administration to treat these types of strokes tries to restore blood flow by breaking up clots. But this drug is only used in about three to four percent of stroke victims because it has to be used within 4.5 hours of the stroke. It also comes with the risk of causing hemorrhages."
  14. They're back. Every spring these two set up house keeping in our pool. The cats don't seem to be real interested in tangling with them.
  15. Welder gloves are a great idea, hadn't thought about that. They'll go well with my knife safety gloves.