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Stroke Survivor - male
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About scottm

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  • Birthday 06/05/1958

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  1. scottm

    I haven't updated this recently...We are now backing down the amount of the medication due to it causing visual disturbances. It sometimes feels like both eyes are focused on different points in space so I am seeing 2 entirely separate images. Very disturbing and led to a very hard fall from about 3 feet to flat onto my back. As the dose goes down the pain is ramping up slowly. We just have to wait and see, but I can attest it was working well until the side effects started.
  2. scottm

    They know not what they say or how it affects us. Like the "You must be all healed up by now".
  3. scottm

    When I get overstimulated visually my eyes tend to lock onto a single point as a coping mechanism to cut out all the 'noise' in my field of view.
  4. 4.5 years in I still get the fatigue, but not as bad as it used to be. Check your possible medication side effects as I found these made it much worse to the point where I said no to certain ones and the doc had to find alternatives. Worst are the actual neuro drugs but sometimes lowering the dose and accepting the consequences was the better option. YMMV.
  5. scottm

    The wife and I are ecstatic to see our new grandchild and they only live 30 miles away. Seems I've caused a problem with the DIL though. She wanted me to hold the baby (1 week old) but I have declined since I can't predict how my arm will function and general weakness. She is offended and I am afraid of dropping or hurting the baby. I had expected that as a nurse practitioner she would understand that I have to live with certain deficits one being that I don't want to chance injuring him. Love the little guy but his safety comes first.
  6. scottm

    Looks nice, I would have expected girly pink on the bed covers.
  7. scottm

    I got selected for one of those studies but rejected at the final review when imaging showed that my stroke was diffuse with no single point for them to try. So watershed type strokes are not viable.
  8. scottm

    I had right hand shakes for the first year but I kept forcing myself to use it and it slowly settled down. I still have moments but it did get much better with use.
  9. scottm

    Looks nice. My wife collects red viking glass, we have a room full.
  10. Nice looking place and you'll be all settled in no time I'm sure. Congratulations.
  11. So far it seems the Carbamazepine is working without all the side effects. No fog most of the time, no sleepiness or lethargy, fully intact cognitive function. The pain is mostly reduced to a sensation not unlike that produced by the neuros tuning fork when he places it against my body, sort of a buzzing sensation. A little annoying at times but compared to the ice/fire it is a blessing. Only place it isn't really working is my face for some reason. I do have moments where the pain reasserts itself to remind me it is there, but I have practice coping with it. Clothes still sometimes a challenge but overall it feels better. I'll take this as a win. The doc wants an update in 2 weeks after this has reached a stable concentration in my system to see if it needs adjustment. The dose is so low that the pharmacy had to special order it twice as the manufacturer sent the wrong dose the first time thinking the pharmacy made a mistake and nobody takes it at this low of a dose.
  12. scottm

    I prefer to refer to us as dedicated.
  13. scottm

    When I first struggled to open my hand and move my arm it was a long fight. Now that I can ,mostly, several times a day I take time to stretch them and always go out of my way, even if it hurts to use them. They would love to go back to a fist over my stomach but I'm not going there.
  14. That is my approach. I know I don't want them to say something to 'make me feel better' I just want them to be quiet and listen for a minute. More people should do tht.