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Stroke Survivor - male
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About scottm

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  1. My primary sent me to an ENT to see if they could figure why my voice did that. They found 2 related issues, on my affected side the vocal cords were partially paralyzed. They also found that my control of the cords was erratic and they would slam shut after each word except the paralyzed part which caused the horseness and soreness. Took about 10 minutes with a fiber optic camera to see what was going on. No fix other than speech therapy which she said probably wouldn't do much for it anyway. YMMV
  2. The parachat homepage has a link to the app store, might have some luck there.
  3. I never felt this tired before the stroke. Maybe it made me more sensitive to some medications, My wife seems says I'm very sensitive to medications now.
  4. I have unflagging fatigue and want to sleep 12 hours or more a day, slept 12 hours straight last night. It started when they started me on cymbalta for the pain. They upped my dose a few weeks ago but I got it dialed back to 30mg twice a day. Still want to sleep and will have to decide which is worse, pain or being unable to function if this doesn't ease up soon.
  5. I would hope someone like you would take in our cats if the same situation occured. It will take some time but they will see you as their new cat-mom, they are lucky to have you.
  6. I'll be spending once or twice a week in ST for the next 3 months to see what they can do for my inability to process numbers. Her current thinking is I have moderate cognitive impairment and my problem comes from distraction. She thinks my brain is causing a distraction which is interfering with the processing of numbers. She thinks she can narrow down the location based on some math tests she gave me.
  7. Using a mirror to fool the brain seemed to help me some. Easy enough to make and try it. Get a mirror tile then hide the affected hand behind it so you see the unaffected hand reflected.
  8. We were at the neuro and he and I were talking about something when my wife reminded me to mention my problem with numbers. I explained what was the problem and he kept asking me more questions and a little faster I thought, they also started getting more complicated until I finally got tangled in my own thoughts, tangled is the only way I can describe it. At that point he stopped and asked me "Do you understand you're disabled?" I don't feel disabled but he explained at length he wanted me to se a neuropsych to evaluate me and he would assist me with a disability claim. I've never considered my self disabled, broken and awkward in many situations but not disabled. I need to consider this, my wife told the doc how far I had come but he has documented me as cognitively disabled now. On the up side, it means I'm not eligible for jury duty anymore.
  9. One of the toms wanted to play today and he likes to play hard with cat-dad. He jumped om my right arm and started his i'm attacking game. Little cat bites that never break the skin or hurt. Then I noticed he seemed to be getting frustrated and I realized he was attacking my affected side. I calmly pointed out I could not feel what he was doing and if he bit me I might notice after I smeared some blood on a counter or something. You would think he spoke fluent english, he stopped and looked at me with a 'you're no fun' look and just walked away.
  10. I can walk solo although my right leg likes to remain straight which can be awkward and gives me what the neuro calls classic stroke gait. I'm a classic! I do find it to be quickly tiring and the leg starts to hurt after a relatively short distance.
  11. Ed, At 17 months I still had vertigo and balance issues as well as intermittent mental fog where my thoughts got all jumbled. At 3.5 years the vertigo is much better although it does assert itself if I move quickly or in a crowd, just takes planning. The fog is much better and when it does roll in now it is much less. That is my case but it continues to change slowly as will yours.
  12. I let my frustration and discomfort get the best of me the other day and posted what can only be described as a rant. I'd like to apologize for my behavior and I will try try avoid such in the future. Scott
  13. At 3.5 years I continue to improve physically. more coordination, better gait, improved dexterity but it has been a long road to get here and a longer one awaits ahead to continue to improve my physical and mental capabilities. One day at a time then one day you notice hey, I couldn't do that nearly so well before. For me the wife has been my cheering section who notices the improvements before I usually do.
  14. I have found as time has marched on its merry way that I have become more and more unwilling to discuss my Central pain outside a small circle such as we have here. There is a very real stigma tied to pain, in particular that pain which does not have an apparent physical cause. Because we fall into a chronic pain category and when anyone hears about our pain we often get lumped into the opioid group even when we explain we don't take those. I rely on an antidepressant called duluxatine aka Cymbalta. It alters my brain chemistry to suppress but not eliminate the pain. However it seems most people including a lot of doctors don't understand that central pain is a different beast and in many cases opioid medicine is maybe a 3rd or 4th line treatment because it does not work well for us as a rule. Some of my friends think I take 'pain pills' although I've explained it a number of times, however the media has stigmatized pain treatment to the point that they hear pain and think opioid. They have told me how I'll get addicted. We've had this discussion several times but the differences in treatment are too subtle (they're both pills) and besides if you take Cymbalta that is for depression so you must be confused. Better to just be quiet about it. I've seen a few doctors that the moment you mention pain the discussion is over, they shut down and at best redirect the conversation, some are less subtle about thinking you are a drug seeker and are completely uninterested in central vs 'tissue damage' pain. That foot you drag or arm that hangs limp at your side can't be hurting because there is no injury. They have no experience with brain injury or the effects beyond the external ones, what happens your head is all in your head. If you are looking for relief you are out of luck, move along. So I live with it. I have a good neuro but even he I don't tell the true magnitude of the pain. If it is a 7 I say 4-5 maybe so he doesn't do the doctor thing of thinking I'm exaggerating. If someone asks what is wrong I just say I cold, which is true even though the cold is an ice-fire sensatio n. I choose to avoid the stigma that comes with this package and by extension keep my family free of it as much as possible. It's not like we don't have enough issues to keep us from getting bored...