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Stroke Survivor - male
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About scottm

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  • Birthday 06/05/1958
  • Age 62

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  1. The docs often get it wrong for stroke victims. I wasn't supposed to survive the coma but I did. Walked into my neurologists office and he did a double take because I was not only alive but walking and somewhat lucid. Every doctor who reviewed my hospital records has told me I shouldn't be alive, let alone as aware and active as I am. They aren't deities they make bad calls just like us. Maybe she will, maybe not. None of us have that insight. I wish you and your sister well and a good recovery.
  2. scottm

    Heathber, I take Pantoprazole because the doc says the heart medication (carvidilol) will mess with my stomach so she errs on the side of caution. I have a neuro appt. tomorrow, kind of dreading that as it looks like we have exhausted the medication list for CPS and I may just be left hanging. Can't fault him, he has thrown everything at it with no result or bad side effects.
  3. scottm

    My younger brother who is almost 60 now still races flat track on a Suzuki 400 on the weekends..
  4. My damage was diffuse in many areas but mostly in the parietal lobe and thalmus. The parietal causes perception problems such as auditory and visual overstimulation as well as some aphaisia. The thalmus is the brains switchboard for routing sensation, this causes me to feel things that aren't there and not feel some things that are. Sensations like cold and touch are misrouted and perceived as pain.
  5. scottm

    Indeed. Just came back from the docs who discontinued a medication due to side effects being worse than the symptoms.
  6. scottm

    Deigh/W2, We were married on New Years Eve. I do have a set of kevlar knife proof gloves I wear around knives that I got from Amazon. They've saved me many times.
  7. scottm

    I survived the day with no blood loss or stitches thanks to our son who got to be the turkey carver for the first time. The grandson (his son) was a delight and we all had a great time. Now back to the wife as today is our 25th anniversary of her putting up with me.
  8. scottm

    Doc called this morning after my blood draw yesterday to tell me my INR of 4.7 is more than twice my therapeutic range of 2. So no coumadin for 2 days and under doctors orders to avoid anything sharp that could cut me, if I hit my head go straight to the ER for imaging, blood in urine got to ER. Apparently they are concerned with my blood being so thin I could have internal bleeding from most anything. Guess who isn't carving the turkey tomorrow...but I get to spend our grandsons first Christmas with him.
  9. FWIW, I shed 25 pounds and the cardiologist cut my BP meds to 1/4 of what it had been because my BP was too low. My primary told me a couple weeks ago she may soon recommend another reduction or elimination. My wife lost 45 pounds so far and is completely off BP meds now.
  10. I know having to pee can raise it 10 points.
  11. 4.5 years in I still get the fatigue, but not as bad as it used to be. Check your possible medication side effects as I found these made it much worse to the point where I said no to certain ones and the doc had to find alternatives. Worst are the actual neuro drugs but sometimes lowering the dose and accepting the consequences was the better option. YMMV.
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    I had to call the credit card company this morning, I got a fast talker. I had to ask her to stop and speak slower as I have a brain injury and I can't understand when they talk fast. She was nice apologized and slowed down, that is why I hate the phone,I get confused easily. When they did my recent speech therapy sessions they documented me as having a rich vocabulary but slow and thoughtful when I speak. I guess that's good. Has anyone else noticed a difference in how people react when you say you had a stroke vs. I had a brain injury. They don't seem quite so dismissive with the second vs. the first.
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