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Stroke Survivor - male
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About scottm

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  • Birthday 06/05/1958

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  1. scottm

    Sounds like a variation of a TENS unit. I have one I used to use but it doesn't mix well with CPS.🤣
  2. scottm

    Awesome Becky. I just got mine cut to 1/4 of the dose I've been on for years after I lost 25 pounds.
  3. scottm

    Will2, Not something I often discuss but while I was in a coma I remember having to make a decision to go on or go back, I chose to go back and woke up shortly thereafter. What that means I don't know.
  4. scottm

    We can accept where we are and move on taking our victories where they come or just be resigned to it admitting defeat. I prefer the former over the latter.
  5. scottm

    Will2, My surgery came about because I took an antibiotic the dentist gave me that day, somewhere along the line I had acquired a severe allergy to it and went into full anaphylactic shock. Note: being intubated while awake and throat is swelling shut==not fun. Anyway, it so stressed my heart and triggered afib which made clots. Off to the cath lab where they found my arteries mostly closed off. At some point in the surgery they knocked some plaque loose and it went to my brain. This is what I've been told as my memories end before EMS even got me into the ambulance. They restart vaguely about a month later. I'm that 3% chance of bad outcome they talk about during informed consent...
  6. scottm

    I can sorta see their point as my case was unusual in that my stroke happened while I was having openheart surgery so it wasn't until the next day when I hadn't woken up that they realized something was wrong. By the end of the week and I still hadn't woken up my survival chances were rated < 10%. I came back but it has been a long road I'd just as soon not relive. Thanks for understanding everybody.
  7. I had an appt. with my neuro yesterday who like most of my doctors I really like as both a doctor and a person. Then he said the thing that everyone of my doctors has said at some point that just really upsets me. "You shouldn't be alive, not many would survive what you went through yet here you are and you can walk and talk, even if you don't always feel lucky". I know that they think it is supportive but it really disturbs me. For some reason having that pointed out to me is both unnecessary and insensitive, I was there and lived it in real time. I embraced the fear and pain and made it a part of me to drive me forward. Believe me, I'm aware of how bad I was and how far I've come, don't make me remember that dark road. Please?
  8. FWIW, I shed 25 pounds and the cardiologist cut my BP meds to 1/4 of what it had been because my BP was too low. My primary told me a couple weeks ago she may soon recommend another reduction or elimination. My wife lost 45 pounds so far and is completely off BP meds now.
  9. I know having to pee can raise it 10 points.
  10. I have CPS so the neuro and my primary and I have some extended discussions about sensations. They both describe that as rerouting issues trying to get around the damaged areas. In my case they reroute to the pain center due to damage to the central routing area, the parietal lobe and thalamus. They are actually harmless if a bit annoying in our general stroke population. That said, in the beginning they used to be upsetting but I've learned to just accept it, especially the numbness in my torso which makes me sometimes think my midsection is missing. Pain is a relative thing and we all perceive it differently, sometimes I would expect to see a pool of blood around me feet from the lacerating sensations in my calves, but I know it won't be there. I tend to think of all those as phantom sensations that tend to undergo subtle changes over time and some fade away.
  11. When people tell me that I just laugh, they have no idea what the inside of my head looks like, all cobbwebby and honestly, just vacant at times when the fog rolls in. They'd be terrified if they ever saw it.
  12. You didn't mention the mail client you are using but in Outlook right click on the email > select junk email > select never block email from this domain.
  13. scottm

    The first 3 months were fairly quick then much slower. My wife, PCP and neuro all say they can see improvement over time. But they still feel weak.
  14. I sometimes refer to my self as a 3 percenter, The odds of having a stroke during that surgery are 3%, the odds of having CPS after a stroke is 3-5%. I should change my name here to skim milk. I'm basically the one they warn you about in the informed consent.
  15. I was told by my wife when I woke from a week long coma that I had a stroke during heart surgery when I asked why I was in the hospital and what happened. Several months before the event are forever gone so I only know what I've been told about and the after is quite hazy for a month or so. Doctors tell me it is better that my memory is gone because I apparently tried to die several times and they had to take measures to keep me alive both before and after the stroke. Note, you can dream in a coma but it was based on corrupted input from the things going on around me...not exactly pleasant but I do remember right before I woke up having to decide if I would go on or go back...I chose to come back. My wife spent that whole week in ICU reading to me. I now always tell people it was the doctors who kept me alive so the techs and nurses could fix me. That is a blur of pain and fighting to make my body respond, I remember the first day I got my fingers to move a little and how happy we all were with that little twitch I could make happen by concentrating. I'm still fighting and healing 5 years later, it never stops.