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Stroke Survivor - male
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About scottm
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    Senior Mentor
  • Birthday 06/05/1958
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  1. scottm

    A lot of my memories around the time of the stroke are missing or scrambled. 3 months before are just gone and 6 months before to about 3-4 months after are tangled and jumbled at times.
  2. scottm


  3. scottm

    The thing that sets me off since my stroke is the ice dispenser on the fridge. The sound of the ice falling triggers me instantly. Everyone has learned to let me know before they start if I am in the kitchen.
  4. Yes, this is the guy that cures stroke paralysis and movement issues by injecting an arthritis drug off label. Not insurance covered and it can take many injections of course.
  5. Now the Institute of Neurological Recovery in Boca Raton is peddling their injections for Thalamic pain syndrome (CPS). Another use for the wonder drug entracept, I'm pretty sure my neuro would be all over this...Last year it was ataxia it cured if I recall correctly.
  6. scottm

    I take coumadin everyday and have a monthly blood test when it is nice and stable which is usually. Much cheaper than those new ones. My neuro and cardiologist both have different views on that but the cardiologist is the expert on things blood so I go with his view.
  7. scottm

    I have wondered about that but with my CPS I can't imagine it being a good therapy for me. I'm interested in what others think of it however.
  8. YEA, bunny suit! Merry Christmas Kelli
  9. scottm

    Too much noise, visual stimulation, etc will put me into a state of neurofatigue like Tracy said. Once there I am good for sitting and staring off into space with an empty gaze and no thought process going on. Sort of like being asleep but my eyes are open. Freaks my wife out when that happens. She just puts me to bed.
  10. scottm

    Took me a while to realize what I kept smelling until I mentioned it to a chemist friend one day. I smell trace amounts of hydrogen sulfide (rotten eggs) caused by the very slow dissipation of the zinc anodes in the hot water tank. They all have them and no one but me smells them.
  11. Tarina, 'Be the duck' is a phrase I have used for many years but it took on new meaning after the stroke. It means just let things roll off like rain on a ducks back. A corollary to don't sweat the things you can't change they'll still be there.
  12. scottm

  13. scottm

    I was wondering when you got into Lego's when I first saw the picture. What a great idea 🎖️, I may see if I can 3D print something like that.
  14. Time is your friend with this as with everything stroke. It will take time but should improve. 4 years here and still improving my memory abilities. Yes, I have a period which is gone forever but I slowly recovered my ability to hold things in my memory mostly because of the memory skills they taught me in speech therapy. A good speech therapist is priceless for recovering memory abilities.
  15. scottm

    I ask myself this often. I told the doc I was broken once, she corrected me that I am injured. Being disabled is a state of mind to me. Sure, I could get a hang tag and park in the blue spot but there are people out there who have injuries that make those few extra steps worse for them than me. I'm able to work so don't try to collect disability. It isn't always easy and everyone tells me I should including my docs but at the same time approve of my still working to stay active.