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Stroke Survivor - male
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About scottm

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  • Birthday 06/05/1958

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  • Stroke Anniversary (first stroke)
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  1. Am I eligible to get an emotional support duck? Asking for a friend.
  2. scottm

    Going to a new pain doctor

    Wow, 300 of Gaba and I was too messed up to function, sedation effect. Cymbalta had a minimal effect at 60 but at 60x2 it left me in a mental haze but still in high levels of pain.
  3. scottm

    Going to a new pain doctor

    Good luck Ken, hopefully he has some answers for you. That ice-fire is one of the worst sensations as it is sharp and biting. I tend to refer to it as a brittle sensation. My neuro gave up and declared me refractory to treatment months ago, That description follows me now. I have an appt. with him in May, can't decide if I should bother.
  4. scottm

    still christmas?

    It is February March here but being in Florida we have 4 seasons...Pollen, lovebug, hurricane and summer.
  5. scottm

    Surgery ?

    Not since, the last one I had caused my stroke. I'm that 3% they talk about in the informed consent...
  6. I think about trying the chat from time to time, but my typing is so slow anymore that the conversation has moved on by the time I hit enter.
  7. Here is a report that covers a lot of stroke statistics. https://www.saebo.com/stroke-statistics/
  8. scottm

    Love the new format / layout!

    I sometime do off by one typing. dohj
  9. scottm

    I'm still alive !

    A lot of my memories around the time of the stroke are missing or scrambled. 3 months before are just gone and 6 months before to about 3-4 months after are tangled and jumbled at times.
  10. scottm


  11. scottm

    Short Fuse

    The thing that sets me off since my stroke is the ice dispenser on the fridge. The sound of the ice falling triggers me instantly. Everyone has learned to let me know before they start if I am in the kitchen.
  12. Yes, this is the guy that cures stroke paralysis and movement issues by injecting an arthritis drug off label. Not insurance covered and it can take many injections of course.
  13. Now the Institute of Neurological Recovery in Boca Raton is peddling their injections for Thalamic pain syndrome (CPS). Another use for the wonder drug entracept, I'm pretty sure my neuro would be all over this...Last year it was ataxia it cured if I recall correctly.
  14. scottm


    I take coumadin everyday and have a monthly blood test when it is nice and stable which is usually. Much cheaper than those new ones. My neuro and cardiologist both have different views on that but the cardiologist is the expert on things blood so I go with his view.
  15. scottm


    I have wondered about that but with my CPS I can't imagine it being a good therapy for me. I'm interested in what others think of it however.