Jump to content


Stroke Survivor - male
  • Content count

  • Donations

  • Joined

  • Last visited

  • Country

    New Zealand

Everything posted by Deigh

  1. I have treated my ears rather badly through my life. I've been a shooter, a wireless operator, a musician, a pilot and an engineer and have never worn ear protection. Despite this my hearing is pretty good. For many years a cold in winter would leave me slightly deaf but it usually sorted itself out after a few weeks. Eighteen months ago I had the worst cold of my life which just would not go away. Afterwards the deafness came again but this time did not come right. My doctor explained it as a valve that should work automatically but now has lost its muscle and needs an operation to correct it. We have National Health here and my doctor has put me on a list for a specialist. This has taken an endless amount of time and I have all the arguments rehearsed to make sure that the specialist does not waste my time trying hearing aids. The problem is called Barotrauma but I can't find the name of the valve that needs attention. Can someone help me here please? This is right up Heather's street and I'm sure she can give the answer! Deigh
  2. Kelli, The only affect the stroke seems to have had on my hearing is to make it more sensitive. To be in a room with a loud band or entertainer is hell to me so the last thing I need is a hearing aid! We live under a National Health system. I think it is great but it has its problems. Have a serious accident or sudden sickness and you are whipped into hospital and have instant treatment without having to pay for anything except the ambulance (which is a private organisation). For other less panic problems children, mothers and working people have priority for hospital time. Since the whole system is under financial strain through people living too long, we elderly are dealt with last of all and one may have to wait a twelvemonth for a hip replacement! This is only realistic but it means that I have waited a year so far just to see a specialist and this is realistic but a bit annoying. The alternative is to pay for it myself and that is financially out of the question so I will have to wait! Deigh
  3. Thanks for that Heather as an RAF pilot I got used to automatically clearing the pressure in my eardrums and the Eustachian tubes got well and truly exercised. It is a bit undiplomatic to keep squeezing the nose in public! and relieving the pressure only lasts for a few seconds anyway. Apparently the grommet in the ear is the accepted treatment for my condition. The tubes were a problem back in the old days. I could end up with such pain from blockages that there was danger of losing consciousness when descending. In those days I would just fly up again till the pressure eased and come down slower. Being young and indestructible I would not consider not flying because of a cold! Deigh
  4. Reading Scott's letter gave me some interesting thoughts. We get a lot of 'old' movies on TV here and most of which I've seen. I can still see them again because there are big gaps in my memory, but an extraordinary event occurs when my wife and I discuss them. She swears she has never seen them at all. I find this rather disconcerting because she has not had a stroke or any mental problems except for a recent concussion problem. The only conclusion we can come to is that for many years she was active in amateur theatre and for a lot of this time I was on my own most evenings. It may be that I watched a lot of TV during this time. Nowadays we watch a fair amount of TV together and quite often I have to turn to her to explain what has just happened in a murder investigation. Since we rarely watch anything live, everything except the news has been recorded so it is easy to press the pause button when I'm out of depth or can't think who has just re-appeared on the screen. I find my failures rather amusing and we have many laughs. The only thing I work seriously on is my aphasia which shows little improvement Deigh
  5. def, First of all, calm down, you can't help him if you are in a panic! Yes, it is very likely he will recover. Initially don't push him into recovery, if it was a stroke then he needs time to adjust to the situation. He will indicate when he wants to improve. In the meantime just go for comfort, make things as easy as possible for him just to live. Deigh
  6. I made a plan a few weeks ago to improve my talking skills by learning a new language. Maori language lessons are readily available via a local TV station. I started last week but have had to give it up because I can't remember the words I learned the day before! I may try again sometime but am pretty discouraged. Deigh
  7. Without doubt the stroke does increase emotional response. I have gone past the explosive tears stage but still have to be careful not to get too deep with conversations, I can feel the danger getting close and avoid it. Like you my laughter has increased. I find things hilariously funny on TV and roar with laughter, a thing I never did pre-stroke, although having an acute sense of humour. It would have been fun to see you nearly fall off a chair with laughter.. Deigh
  8. Got it right mate...!
  9. No, I got pretty discouraged and didn't even try. This doesn't mean I wont have another go sometime but my present brain does not like tackling problems the way the old one did, and I have to live with this. I was quite pleased that I managed to re-learn how to do the rubik's cube! Deigh
  10. Keli, Yes, that's right. It is a fairly primitive language and has to use adopted words from English. It can be very flowery since it is used mainly for traditional greetings and speeches at Pa meetings. It had no written form but the early missionaries put it to paper. This means the spelling is very easy because it is completely phonetic! The one problem with this is that the sound 'F' is used a lot in place names and this makes a lot of places sound like an European swearword. They overcame this by changing the 'F' to 'WH' (which is nearer to the actual sound made by Maori speech) and we are now handicapped with place names like Whakatane and Whangerei! It is the Maori TV channel putting out the learning programme, the language was discouraged and even banned for many years but now the country is keen to revive it. Deigh
  11. Heather, I'm glad to at last find the background for that photo of yours! I always thought it was a 'selfie' gone wrong! Deigh
  12. Sandy, As a bystander I'd like to say that that contribution of yours was probably the most touching I had ever read. It covered the situation exactly as you saw it and I know of no-one who could have expressed it better. Please do not get discouraged from trying to encourage others. Stroke victims need you. Deigh
  13. Russ, I can't give you any answers but had to reply to your mail just to offer my sympathy. My stroke left me with similar problems but not with your severity. It will be interesting to see if your exercise bike does any good. I find myself on the point of anger a lot of times and have to some rapid changes of thought direction to combat it. Music is my great solace and can lose myself quite easily in it . Welcome to the forum. Deigh
  14. Just finished my third year after stroke, my leg still feels heavy and unwieldy, especially when I wake and get out of bed first thing. To me, the leg is the least of my worries, as long as I can walk unaided for two K, that is all I need to complete my exercise routine. I am far more interested in getting my right hand to work better and also improving my communication skills. Yesterday we had a family gathering on a beach with a barbecue. I found it very uncomfortable not being able to join in fluidly with the conversation. I pushed the envelope and occasionally managed to hold my own, but it was hard work and I ended up quite exhausted. Deigh
  15. Greetings from New Zealand and congrats to Mum-in-law for getting green card. It will be very interesting to find how she handles the winter weather! Tell her that NZ is unchanged despite new government except that we are having extremes of weather. Papakura has not changed much at all! Deigh
  16. My wife has this problem too. She gets it around the fingers mostly but in really cold weather it can affect her nose too. She has found the only relief for her hands is to wear sheepskin mittens, not gloves, too restricting. She wears no makeup but has purchased a powder for her nose which according to the TV adverts, can even cover up tattoos. Deigh
  17. I quite agree with you about this time of the year. I am not a 'Christmassy' person and find the whole season irritating to the extreme. Deigh
  18. You have all our sympathy and understanding. We have all had similar feelings to yours. I was fortunately very quickly out of it and the desire to fight emerged. This was all within the first two hours of my stroke. The plan to rebuilt as much as I can of my life has remained except for short bursts of questioning whether or not it is worth it. We look forward to more cheerful mail from you in the future. Deigh
  19. I don't really have any problems. I was just joining in the fun! I do agree with you that kids can get into all sorts of stuff that is adult proof. As a youngster I was very adept at picking locks and my parents had no idea that I could get into their private cupboards. Trouble is that I had no idea what the papers meant that they kept there, and there was no cash! Deigh
  20. Whatever you do, ignore the time factor. I am approaching my third anniversary and can assure you that I am still improving my strength and dexterity. My speech is not anything as good as I'd like but daily I continue practicing by reading out loud and also whistling whenever I remember. Deigh
  21. I never thought of asking a chemist to supply drugs in easy-open containers, I thought every thing came with those pensioner-proof caps that defy anything short of a hacksaw! Deigh
  22. For my birthday my wife bought me a new Rubicks cube. I had worn out the last one! It should be good exercise for the fingers. Trouble is that I've now forgotten how to do it and have had to start learning all over, and with my present short attention span it could take a while before I get proficient again. I worked it out myself initially and my system is a bit slow. I am hoping to improve it this time round. Deigh
  23. I very rarely drink Irish whiskey but can remember well the last time with some friends knocking off a half bottle of it. All night my dreams were centered around me having fights. Now, I've done some boxing but in no way could be considered to be a fighter and I've worked out that it must be something in Irish whiskey that causes the Irish to be such pugalists. Deigh
  24. The only non-prescription drug I take is a daily single Scotch Malt Whisky. I don't know if my doctor approves 'cos I havn't asked him. I'm not sure it improves my clarity of thought but it makes everything worthwhile! Deigh
  25. Yes, that would really drive you nuts (bit of a pun there!). I don't seem to have the same problems but am continually surprised with the question "Are you better?". Pre-stroke I knew nothing about the condition at all so I shouldn't get offended by that question. Deigh