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Stroke Survivor - male
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Everything posted by Deigh

  1. As a musician it was very strange why I married a girl with no musical ability whatsoever. (This is another story which I wont go into now!) Her whole family shared the same problem. On our honeymoon we were singing together as we drove along. She sang " Mazy Dotes and tiddley oats and little doozey Dizey". I tried to correct her with "Mares eat oats and does eat oats but little lambs eat ivy", but she wouldn't believe me, that was the words her mother sang and her mother is always right! Eventually I got a copy the Andrews sisters singing it and we listened together. I think she still doesn't believe me! Deigh
  2. Thanks for reply, I know they are doing implants into that area for people who are completely deaf. There are two youngsters locally who had them done, the very high cost for them being met by public donation. I'm sorry you can't come out with some honoured solution like wearing mothballs on string around the neck. I'm not being facetious here, there are a lot of old fashioned solutions that have stood the test of time. My grandmother used to cure a headache by adding pepper to her tea. Regards Deigh
  3. Thanks for reply but my problem is not tinnitus. That is something that I've had all my life and have dealt with it, in fact since the stroke it seems to have diminished! Deigh
  4. alansd..........Does this mean you have lost your opportunity to get the Yorkie? Deigh
  5. In September 2015 I had an operation to remove my spleen to escape cancer. Whilst waiting for the op the Doctor took me off the half-aspirin dose because Xrays showed bleeding in the area. After the operation he should have put me back on but failed to do so. Four months later I had a stroke, which would not have occurred if I'd been on blood thinners. In NZ one cannot sue for this, but I hope he is well aware of his mistake! Deigh
  6. Interesting that you could say "yes" and "No". I couldn't say anything although I thought I was having intelligent conversations. The first intelligible word I managed was in the hospital. While waiting for examination we decided I had to go to the toilet. (I'd been producing some horrible smells for the last half hour). My wife helped me in there and had to leave to escape the stink. "Call me when you are ready" was her command to me. In panic I summoned all my energy to cry out "HOW!" Deigh
  7. That one has got me! I remember singing it with enthusiasm too, but I don't remember the confusion. Perhaps someone will put us right. There were so many other funny words and expressions many of which we didn't understand at all. The main game was look innocent and to try and avoid putting your penny into the collection box so you could blow it on sweets on the way home. Deigh
  8. For my birthday my wife bought me a new Rubicks cube. I had worn out the last one! It should be good exercise for the fingers. Trouble is that I've now forgotten how to do it and have had to start learning all over, and with my present short attention span it could take a while before I get proficient again. I worked it out myself initially and my system is a bit slow. I am hoping to improve it this time round. Deigh
  9. I attended a funeral of a musician friend the other day. The lord's Prayer was said. It reminded me that as a very young person I understood God's name to be Harold. When challenged I replied that the third line of the prayer said "Harold be his name". Deigh
  10. After three years as a stroke victim I sortof know where I am going and am taking regular exercise to all my weak points to improve the situation. I don't think I have any surprises to come. I am a subscriber to three forums and take satisfaction from helping newcomers through their initial problems, as others helped me in my early struggles. This is not proving easy at the moment, The Australian forum 'Enableme' came into being about two years ago and dumped the previous forum which was well used, replacing it with a clumsy unflowing one. Now the British forum 'Mystroke' has done the same there and set the system back some years. That leaves this for the only forum I take part in and enjoy, but it has its problems and that is a shortage of newcomers. Despite USA having no reduction in stroke victims, they seem to be joining the organisation but not contributing to the forum. I think I may have the answer to this. As a lurker one can read mail back for years and get all their comparisons this way. I'd like to change the rules so that a reader can only go back a certain amount of time (say six months) unless they have recently contributed. This could solve this problem. Deigh
  11. I didn't want to start this conversation, I was waiting for someone else to ask questions and then I could have come in showing my knowledge about it and look clever. This hasn't happened so I've had to start the ball rolling. I have had problems for some years with constipation, it is mainly due to a medicine I've been taking for some time Losec. My stroke added to the problem and it got quite uncomfortable at times. About a year ago I started yet another search for a solution and came across an advert for MUCIL. 'You probably havent enough fibre in your diet'. Said the advert. "Nonsense", was my reply, "I have a good range of all the right things in my foodstore". Anyway their argument was pretty convincing so I tried it as a powder, spreading it over my breakfast cornflakes. I have never looked back, the results were excellent so now I'm an advocate of it. Deighooops, sorry, that wasn't the ideal Smiley to add! Deigh
  12. I have sympathy with you in this situation. My hearing is oversensitive and people who talk loudly are a problem to me. At the same time my hearing is very selective , come up behind me and say anything and I'm close to jumping! My main problem at the moment is a collapse of the valve that controls the inner ear. I only have to press my ear with my hand and the pressure difference collapses and I can hear pretty well. Unfortunately it only lasts seconds and the pressure difference is back in place. It is impossible to walk around with a hand on an ear, so I have to accept the consequences of barotrauma. I am awaiting an appointment with a specialist but unfortunately at my age I am of low importance in a National Health System and either have to wait or pay for it myself. This is out of the question! Deigh
  13. As a survivor struggling with aphasia I was very intrigued about the fact that your family relied on lip reading to communicate. This meant that you could mouth the words and you had to breathe and I had difficulty in understanding how you could not speak. I read your resume and that explained it. I also know that you had three sessions with speech therapists over the years obviously to try different ways to overcome the difficulties. It makes my problem minor by comparison. I used to make a short recording every month on my smart phone to measure progress. Every now and then I'd get disheartened. Just before Xmas my phone crashed and had to be replaced. The recordings were lost. Friends I met occasionally commented that my speech was improving. I took this as just people being nice but last week had a very pleasant surprise when a rather exuberant one I'd not met in a year said that my improvement gave her goosebumps! This has given me the boost I needed to start recording again. Regards, Deigh
  14. Got another idea. I have an account in Kiwibank over here. When I log on an automatic program puts my name and account number in the correct places, then I get asked to fill in the gaps to complete a word that we have already settled between the bank and me. I might be asked for my mother's name, my first car or my service number and it would show in that case as ( and are the nearest iconsI can get to a box!) and I have to fill in the question emoticon! Deigh
  15. I do agree that passwords are a problem. I try to get away with only one but some sites have other demands like capitals and not accepting some popular number runs. I write my passwords on my computer desk with a felt pen for quick referral. Last month I sold some stuff on 'trademe' and photographed the product on my desk. Later on I checked on my sale and to my horror saw all my passwords exposed for anyone to use! Fortunately they were all for sites that were not over important.My bank ones were not there, they are still in my memory. I had problems recalling them immediately after my stroke but that got sorted out fairly quickly. Deigh
  16. JonJ, I think you are trying too hard! Just try to do your normal things and if you can't do them, then make a note. Later on you can assemble them and see where your new faults are. Then you can look at working on them. I'm a person who doesn't relax so I can't tell you to do it! but I think you should try! Rest is more important than anything else in your recovery plan. Deigh
  17. Yes, indeed. I go out an evening once a week to my club for a beer and a game of pool plus chatter. I am not fully comfortable most of the time, I have to plan carefully my movements around the room to allow for sudden changes of direction by other users, knock me off balance and I'll end up on the floor! I also have to be careful of sudden shouts by merrymaking patrons (there's nothing quiet in a NZ pub, club or restaurant!). Despite these problems I enjoy it mostly and consider it a part of my plan to get used to crowds again. Deigh
  18. What a remarkable account of your stroke, it made me realise just how incredibly different they all are. You are not saying much about what it left you with, do you have any loss of strength or dexterity? and how is your talking and walking now? Deigh ps suggest you reply in another part of the forum, this one is just for introductions........and I forgot to say welcome!! D
  19. Cromely, Thanks for that, I've applied to join a couple of them. Could't read any mail though, perhaps that will happen when I'm accepted as a member. Deigh
  20. I'm not crazy about facebook but would like to know of any addresses you can give me that are concerned with stroke. Much obliged! Deigh
  21. Had some excellent night views of the space station recently with clear skies. Everything went wrong with the blue moon observation though, we had a storm earlier and I only got occasional glimpses of it through the clouds . I find that it is very pleasurably being able to look above me without falling over. For the first year or so after my stroke this was impossible and my evening searches for satellites was rather frustrated. Deigh
  22. No, if you look up at the sky when walking you are going to put your foot into it. Deigh
  23. Bit of a catch22 situation there ! Deigh
  24. Finding a word for it can be important to some people. The only thing it does for me is to re-assure me I am not alone and there are many others with exactly the same problem. The only trouble is I can't boast about it because I've already forgotten the word! Not fair, is it?. Deigh