Jump to content
Countdown To Christmas!



Stroke Survivor - male
  • Content count

  • Donations

  • Joined

  • Last visited

  • Country

    New Zealand
Everything posted by Deigh
  1. My wife Valerie has weak fingers and some difficulty breaking pills out of the pensioner proof packaging from the chemist. To aid her I have created this device which I purchased as a kid's stapler from the local op shop. I have modified it so that thumb pressure on its head will press a pill out the packaging and make life easier!........It is known as Petra, the pillpopper. Deigh
  2. I don't have the 'curling' problem but to help with exercise I carry in my hand when out walking a palm sized, flexible toy and spend all the time trying to destroy it one handed. I have actually destroyed two of them! one was a duck and the other a penguin but my present 'Marmaduke' replica is proving to be of sterner stuff! Deigh
  3. Deigh

    I havn't had an opportunity to try that one out but I don't think it would work with me. There are times when I've been upset and tried to make myself understood and nothing comes out at all. At the moment I am trying to whistle more to improve my voice. Trouble is remembering to do it! It is a good trick to do because there is nothing wrong with a person walking around whistling, but a person walking around talking to themselves rather suspect! Deigh
  4. Deigh

    Previous to that I experimented with Super Glue and told my wife that If I forgot what I was doing and had to dash to the bathroom and she heard me scream, she must not call an ambulance, I would sort it out myself somehow! Deigh
  5. Deigh

    Maddox, Send me your postal address using the private mail system and I'll send a 'Deighpick' off to you. Deigh
  6. Deigh

    I think it was pattern number 31. I made lots of different things till this one worked. Best one before that was using double sided sellotape to glue the plectrum between finger and thumb. That worked well but meant that one was stuck to the plectrum for the rest of the day and a trip to the bathroom was out of the question! Deigh
  7. A brilliant solution. I am fortunate inasmuch as I am still a morning person. I was doing floor exercise push ups the other mornng when my wife emerged from the bedroom and stopped to watch me. I only do eight pressups and had just done number three but I changed my count to calling out forty-four, forty-five, forty-six. She was not fooled for an instant and burst into laughter!😒 Deigh
  8. Deigh

    Maddogx, Did you see my design for a plectrum on this forum some time ago? Designing this has made all the difference for me, I can now play again. With a lot less speed and dexterity than before true, but at least I can handle it!. Deigh
  9. Chika, Welcome to the site but please accept that we are not doctors, just fellow victims. Between us all we will have amassed a fair amount of knowledge on how to overcome the deficiencies our strokes would have left us with and that is the strength of the forum. At this time, here in New Zealand the authorities are trying to reduce strokes by working on the overweight, non exercising couch potatoes. Not one of the stroke victims I know locally fit this bill! So you see, even the experts can't forecast the event! Which is rather infuriating since an acquaintance of mine went to his doctor to discuss a problem and in his investigation the doctor found heart shortcomings and booked him for a triple by-pass to avoid a heart attack! I wish someone could forecast strokes as easily! Deigh
  10. Tarina, Every stroke is different and we all start off with a whole range of problems that are different from others. There are one or two standards and one of them is tiredness. As many have told you, don't fight it. Give in. The Aphasia is extremely frustrating but you are young and fit enough to make a great recovery, but, as everyone has told you, don't rush it. The standard expression is that recovery is a marathon, not a sprint. As you go on you will find other minor problems that the stroke will have left you with. The problem there is deciding whether they are something new or just stroke related! The only extra advice I can give you is to try to laugh about things whenever possible, Your sense of humour is your greatest asset. Regards Deigh 😂 PS, sorry for dismal emoji, having problems with internet! D
  11. Deigh

    Nicole, I can't add anything to the advice you have been given by the last letters but I can endorse them. I am in my fourth year of trying to recover some of the losses the stroke hit me with. It is easy to give up looking for progress and I frequently fall into this trap but fortunately the mood doesn't last long and I am soon back on the treadmill. Deigh
  12. Deigh

    I'm still struggling to improve my speech. I've nearly beaten the inability to say the word RURAL. Last week in conversation with my wife about her sketching I suggested that she was not frivolous enough. To my surprise I found the word FRIVOLOUS even more difficult to say than RURAL. This word has now been added to my daily list of exercises. Deigh
  13. Deigh

    I was in the local hardware store waiting to pay for my purchase. In no hurry I sat down at a display settee to wait till a teller was free. When this happened I got up rather slowly and made my way forward. Being clumsy I collided with someone else in a hurry. He seemed surprised about where I had come from. I tried to explain humorously that I had been waiting in the 'Executive Lounge' but do you think I could say the word 'EXECUTIVE' ? We had a few laughs about it and he obligingly deferred the teller to me. Been practicing that word ever since! Deigh
  14. Deigh

    After three years as a stroke victim I sortof know where I am going and am taking regular exercise to all my weak points to improve the situation. I don't think I have any surprises to come. I am a subscriber to three forums and take satisfaction from helping newcomers through their initial problems, as others helped me in my early struggles. This is not proving easy at the moment, The Australian forum 'Enableme' came into being about two years ago and dumped the previous forum which was well used, replacing it with a clumsy unflowing one. Now the British forum 'Mystroke' has done the same there and set the system back some years. That leaves this for the only forum I take part in and enjoy, but it has its problems and that is a shortage of newcomers. Despite USA having no reduction in stroke victims, they seem to be joining the organisation but not contributing to the forum. I think I may have the answer to this. As a lurker one can read mail back for years and get all their comparisons this way. I'd like to change the rules so that a reader can only go back a certain amount of time (say six months) unless they have recently contributed. This could solve this problem. Deigh
  15. Deigh

    Janelle, Hospitals can be very inefficient at times. These are usually the times when you are most in need. Nearly four years ago I was sent to an Auckland hospital following my stroke. They were very good with their diagnosises, prompt with scans and other electronic diagnostic devices. Even their food was very good. On my third day in the ward I was asked if I'd seen the 'introductory pamphlets'. I said no and they were promptly supplied. The foolscap envelope was full of information and knowledge which I badly needed to understand and cope with the frustration of my stroke. The infuriating thing was that I should have been given them three days previously! Unforgivable! Deigh
  16. This is a rather complicated link to follow, I hope it works, My wife bought me one a while ago, it is a bit clumsy to walk with but provides a very safe emergency seat. Deigh https://www.google.com/search?q=walking+sticks+for+disabled&tbm=isch&tbs=rimg:Ca2Rcm6UQ1UnIjj4hUBTHgYf_1RMy6HCeBMfrfEuIpVkHib6z6sKxq5p3v8ZM1pmQWwSkZIQ-pFNedppJKXcWpKuP8ioSCfiFQFMeBh_19EeX0O5uDiyUgKhIJEzLocJ4Ex-sRBaCDVaqRfogqEgl8S4ilWQeJvhGrkLZDIVCOByoSCbPqwrGrmne_1EcYmLwpZa3S1KhIJxkzWmZBbBKQRVu_1MlIqBMGEqEglkhD6kU152mhH5qdbOxK2VcioSCUkpdxakq4_1yEcjo-LXe1pxE&tbo=u&sa=X&ved=2ahUKEwjzvp6OuqzeAhURfX0KHVhoCFwQ9C96BAgBEBs&biw=1094&bih=523&dpr=1.25#imgdii=wg3-bHwSI71izM:&imgrc=xkzWmZBbBKSFKM: if that doesn't work try this.... https://pl.aliexpress.com/item/Folding-Aluminium-Tripod-Cane-Hiking-Chair-Portable-Walking-Stick-With-Plastic-Seat-Non-Slip-Feet-Walking/32832691057.html Good luck! Deigh
  17. Deigh

    Peter, It was probably my mail on the UK site which lead you to here! I've been ranting on there for some time hoping to convince the authorities to revert to the previous format which was excellent. The experts in stroke do not seem to realise that victims don't want official names for their problems, they need contact with others so they can compare and read about other's tribulations and attempts to return to some sort of normality. Anyway, welcome and please join in with advice or just questions! Deigh
  18. Deigh

    Janelle, Only an Aussie could abbreviate the noble sport of Badminton to BADDY! I understand what you are saying, it is true for me too, I am seeing slurs when none are intended. Very thin skinned these days! Deigh
  19. Deigh

    I had numbness in both legs pre stroke, I often wonder if it was a warning of an impending stroke. Nowadays in my fourth year the numbness is mainly in the right leg about calf level. It is not concerning although I do plan to get some massaging done. It certainly has decreased from early days. Welcome to the club to both of you. Deigh
  20. Deigh

    I think you have the problem in a nutshell. I walk every day, during the working week this involves me calling into two op-shops. I rarely buy anything but it is a good excuse to chat to people who are not being paid for their work and can spare time just to be social. I know most of the ladies by name and they all know mine. I talk regularly to my wife and we discuss things of general interest and of course the news. We play scrabble most evenings and this requires lots of chat. At the end of the day before my first (and only) whisky I read aloud from a book called 'The History Of The Guitar In Jazz'. It is full of almost unpronounceable names of guitarists like Jimmy Gourlay, Jimmy Wyble, Skeeter Best and Tony Rizzi. My wife takes no prisoners so I do not get away with anything. What I'm saying is that practically my entire day is filled with exercises to improve my condition and judging from the other mail in this forum, so do most other survivors. I've even enquired of acupuncture to improve my facial muscles so I can be forgiven for complaining that I'm getting nowhere. I can be understood by sympathetic listeners unless I'm tired or get excited and then all control vanishes and I gabble. I'm not looking forward to the day I have to phone for an ambulance or a firetruck in an emergency because it will take a well trained person to understand my needs! Deigh
  21. Deigh

    We stroke victims can easily be misunderstood. I was looking at a very well endowed lady doing floor exercises on youtube when my wife walked into the room. My plea that I was studying breathing techniques was treated with suspicion. Deigh
  22. Deigh

    Thanks for that, I've been trying to get them to revert to the previous formulae but without success. Every now and then I have a go at the Australian site 'enableme' which is just as bad. Welcome and enjoy the site. Deigh
  23. Deigh

    Here in New Zealand it is mid winter but from my kitchen window when I'm doing the washing up (just to let you know I'm a well trained house husband)! I can see no less than nine different flowers (including roses) that are still in bloom from summer. There are lemons on a new tree which are nearly ready to pick. We are finding the weather cold with a few frosts but the native trees and bushes stay green all year round and the grass still has to be mown. Only the imported deciduous trees loose their leaves. We emigrated here fifty years ago, Initially we found the winters to be a bit of a joke. Now we take them more seriously! Deigh
  24. Deigh

    I don't have problems with 'L' normally, but I must confess that 'deliberately' takes some getting out! Will add it to my unpronounceable list! Deigh
  25. If you can get some extra fun out of a useful product then go ahead and enjoy. Don't think it would do anything for me! Deigh