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Stroke Survivor - female
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About heathber

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    Senior Mentor
  • Birthday 05/23/1965

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  1. heathber

    Hi Darrell sorry not familiar with those ones but your best option is probably to find a neuropsychologist who will do a cognitive assessment and help you formulate a treatment plan and/or coping strategies neuropsych is very different to a psychiastrist or psycologist. They work with your neurologist and specialise in the cognitive impairments from brain injury. They are relatively easy to find here in Australia but I believe much less common in US. Good luck with it. -Heather
  2. heathber

    Take care of yourself and know it will get better. WE love them and they love us back and trust us to do the best for them. It can be hard sometimes but you did good and she knew.
  3. heathber

    Hi Carlton so glad you found us, it's not good that you needed to but we all know that attitude is everything in this unexpected marathon we are all engaged in. 1 yr 3 months is just starting on this thing it's unlike any other "illness" you've ever been exposed to so don't be surprised when your recovery doesn't meet anyone's expectations including your own. But be prepared to keep working if you want to keep seeing improvements. I'm coming up to my 10 year anniversary this August, and I still see functional improvements. It's very slow and takes a lot of work but it happens. Also be prepared to adapt the way you do things while you relearn the movements or functions that are currently impaired. Doing things in a different way to the rest of the world is not failure. It doesn't matter how you do it, it matters that you do it. Take your time and be kind to yourself. come and visit us as often as you like we are just as happy to celebrate victories as to help you rant and rave at a world that doesn't understand us. -Heather
  4. heathber

    Oh dear I am so sorry for both of you but it is the right thing to do. Watching her suffer will be worse than losing her. MEGA HUGS
  5. heathber

    I'm working from home. The cat is enjoying the company she doesn't usually get. Non essential businesses have all been told to close for next 3 weeks, although a disturbing number are ignoring it. I am still going to outpatient physiotherapy at the hospital, but my private exercise classes are now to be done at home via video chat. First of those is tonight. We are all on a learning curve.
  6. HI Pam, sometimes your brain gets into a spiral that is disturbing. It can be hard to break that spiral and stress and anniversaries are certainly triggers. You have recognised what is happening and that's the first step to fighting it. If you can't get to the counsellor (and right now you can't) work on your self talk. try writing down what you are feeling or say it out loud to yourself. or ring a friend, or write it here we are happy to listen and help you work through it. We may not be official trained counsellors, but we do understand how this thing can be. I think you should try mindfulness meditation. Hugs, you will get through this -Heather
  7. heathber

    Oh Janelle 😞 sending hugs and hoping the meds are able to help. We went through something similar about 30 years back when a beloved cat got a fungal infection under the skin of his face. At the time my nieces and nephews where very little and that fungus could have spread to them and caused brain damage so there was a Big family meeting about whether we tried to treat him or made the hard decision. We ended up deciding to try the treatment which was horrendously expensive, and accept the risk to us. He had been my brothers cat (my brother had died in a car crash) and we just couldn't do it. Thankfully in that instance it all worked out and he got better and none of us got sick and he went on to live another 10 years. I do hope your ivy has a similar outcome. If the worst happens do not blame yourself for her passing or your grief. She is family too.
  8. heathber

    HI Kev, work on creating a routine for yourself it will help. and Yoga can continue. Ask your instructor to send you some YouTube links for flows you should be able to do by yourself. My instructor does this for me when I'm going to be away. My gym has started live streaming classes for members who can't/don't want to come into the studio at the moment. They are also offering equipment library service if people want to borrow things they don't usually have at home. it would be worth asking your gym. Glad to hear that the headiness is decreasing even if only slowly
  9. heathber

    glad to hear it fingers crossed.
  10. heathber

  11. heathber

    Thanks Will, just a kid who can't help asking "why?" and who won't go away until she gets an answer she can understand. I've been lucky enough to have some really good neuro physios who take the time to answer questions with more than "because it does". Add that to an IT customer support background where you have to find ways to answer technical questions in lay terms and you get me 🙂
  12. heathber

    My understanding is that Clonus is at least partly a reflex. As is that weird one where, when you yawn first thing in the morning the bad arm stretches itself up above your head, even though you have little/no active movement. Mind you my arm has pretty much stopped doing that, and I didn't notice when it stopped. They are part of the incomplete brain signal muscle protection mechanism. The muscles turn on involuntarily and then they get over use cramps and need to be stretched. In clonus the muscles turn off and on in very rapid succession, causing that very uncomfortable jerking, it can usually be reduced/controlled by stretching or making the muscle work properly (e.g. weight bearing). Janelle try a stretch and relax session before you go to bed and see if it helps.
  13. heathber

    Hi Audrey, Can't help with the taste issue, but I do hope that resolves. Lots of stuff your brain will relearn on its own especially if you give it plenty of stimulus. You are just starting on this journey and it takes time, much more time than you want it to. It may help to think about what you expect something to taste like before you taste it, scrambles circuits are the hardest to rewire correctly. For the lack of sensation you need to give it something to experience and do it on the good side then the bad side so you know what it should feel like. rubbing with a towel or a soft nail brush and exposing yourself to different temperature water that has a contrast you can focus on can help. But be safe, always test on good side first and check/watch the condition of your skin. the cold sensation sucks but is usually due to lack of muscle movement, passive movement helps if you have no active movement. Use that arm or involve it in your tasks as much as possible so your brain is not able to just ignore it. I also find massage a great help both for the cold and for reteaching sensation. Self massage is better than nothing but if you can get someone else to do it it's easier to concentrate on what sensations/signals are coming from the affected limb without interference from the good ones sensations. You can do this, it will improve over time. I admit that I occasionally resort to a wheat pack to warm up my bad hand/arm but this needs to be closely monitored as you can burn yourself without realising. -Heather
  14. heathber

    Hugs and "Breathe". you can do this. -H
  15. heathber

    Good to hear you are adjusting even if it's crazy making at times. Good luck with the painting. And having the furkids to look after helps. Hugs -Heather