Jump to content


Stroke Survivor - female
  • Content Count

  • Donations

  • Joined

  • Last visited

  • Country



About heathber

  • Rank
    Senior Mentor
  • Birthday 05/23/1965

Contact Methods

  • Stroke Network Email

Shared Information

  • Stroke Anniversary (first stroke)
  • Facebook URL
  • Website URL
  • How did you find us?

Registration Information

  • First Name
  • State
  • Country

Recent Profile Visitors

5,163 profile views
  1. heathber

  2. heathber

    Thank you Alan! Nicely put.
  3. heathber

    Not much else you can do, we take what we are told to and hope the "cure" is worth the side effects we put up with.
  4. heathber

    How about a university student, if you live within easy commute of a campus? Advertise for a share house mate who can also do some assistance, particularly with meals. It depends a bit on how much actual help you need with personal activities.
  5. heathber

    Hi Patty no experience of this one, but anything is possible arrange to see your neurologist and or PT as soon as possible and let them check it out. You are only at the start of this it could be any number of things. Take care -Heather
  6. heathber

    Tracy 325mg asprin daily does sound like a lot. I take a daily 100mg enteric coated asprin, which is called a cardio asprin here. I have a PPI script because of my gall bladder removal, but I find I don't need to take it most of the time, unless I eat something too rich.
  7. heathber

    Good plan Kev! That so slow progress can be hard to come to grips with. Goals are good but don't beat yourself up if/when you miss a day. The aim is to create a habit which takes time so maybe start with micro habits at first that will lead up to your big goals. Its the new big thing I heard someone discussing this on the morning radio the other day
  8. heathber

    use a spreadsheet with a running total. I assume Google sheets or similar is available for the ipad or phone otherwise use Excel on your laptop formula is cell B2=B1+A2, cell B3=B2+A3 etc. then you leave cell B1 empty, put the players name in cell A1 and then enter the score in cell A2 and so on down the column as you play, same setup for player 2 in columns C and D. If you make the spreadsheet with the formulas already setup for say 50 rows and you do a Save As from the empty one at the start of each game. I can send you an excel file if that helps. message me your email address. -Heather
  9. heathber

    Congrats on the anniversary Scott. One of my other friends also got married Dec 31. It makes it easy to remember the date and you know you'll always have a party to go to on your anniversary. Don't tell my sister about those gloves she'll make me get some (she's the one who usually ends up picking up the pieces when I do something silly.) They are a good idea but I'd be sure to forget most of the time. Will, Asprin doesn't "thin" the blood like the stuff that Scott takes, but it does slow clotting which is partly why I'm always covered in bruises. I have spray on bandaid film like your paint. But it only works for shallow stuff, great for grazes and scratches but not so good for the deeper stuff. Although I did use it once the cut stopped bleeding to stop stuff getting into it, these days when you take the kids to the ER they use superglue rather than stitches too.
  10. heathber

    I've done some doozies over the years post stroke ones seem to be more memorable, This is the second bad one The last one I had to have stitches. That was in interesting conversation with the Dr who couldn't seem to grasp the impossibility of keeping a finger on my good hand clean and dry for a week. He eventually got it after my sister spelled it out in words of one syllable. And we ended up leaving it open to the air so it would dry when it got wet and I had to be careful to clean it properly at least once a day. You can barely see where that one was now.
  11. heathber

    Hi Scott talking of cuts I did a really "clever" one to myself on Christmas day. (Sorry if this hijacks your thread) I was on my own at our holiday home, making a salad that I was to share at our picnic in the Garden. This has become a tradition where my Mum, Dad and I, and any of their friends who have no family close by on the day get together in the local Botanic garden for a picnic. I was running late (as usual these days) and using an unfamiliar knife. And somehow I managed to pick the knife up upside down. I have a very bad habit of using my index finger to apply extra pressure to a knife and keep it lined up, which is often necessary when you don't hold the object you are cutting with your other hand. So I did this without even thinking, and when the knife didn't move as I pressed I realised that I'd just pressed my finger onto the blade of the knife!! Our knives are all quite sharp, (I had them sharpened earlier this year, and my niece had sliced herself washing up at our family Christmas meal a couple of weeks earlier) so it didn't hurt as the knife was so sharp, but it certainly bled. Thank goodness Alanna had cut herself the other week, because it meant I'd stocked up on steri strips etc. I was able to get one on eventually and then a bandaid over it, but of course it was still bleeding quite a lot. And then I had one of those horrid fainting spells that happens when your body is going into shock. I managed not to fall on the floor, and grabbed the phone and called my Dad, thank goodness he had his mobile on. So he came and got me and I didn't need to go to the hospital, and I didn't need to drive the car. It's now healing nicely, although it's quite deep (about 5mm). I certainly don't recommend cutting your primary finger on your good hand when you only have one hand that works. Scott I do hope you enjoyed your grandson's first Christmas! My grand niece had her first Christmas this year too, I got to have a cuddle when she crashed out (I'm not game to hold her, when she's not asleep, she's only 4 months old)
  12. I had a variant of this when I first stroked too. It wasn't left neglect, or not completely. It was my right to left scanning. I couldn't follow the line back to the left side of the page without losing my place so I'd skip whole lines of text when reading. My OT got me to cover the page with a sheet of paper so only the line I was reading was visible then I had to move the paper down when it was time for a new line. It only took a couple of weeks of this to retrain my eyes/brain to scan properly. Remember whatever the deficits she is left with after all this, most things can be relearnt or you create workarounds.
  13. heathber

    Oh Pam hugs, you can do this! My Aunt once fell and broke her back on Christmas day. Once she was stable we all gave he heaps for upstaging everyone at Christmas, and having to be the center of attention. She was in hospital after that one for a couple of months. But you have to laugh at these things! I'm so glad you were with your son when this happened and he was able to take you to the emergency room so quickly. Fingers crossed you recover quickly and life can return to "normal"
  14. heathber

    Hi Patty, yes it's tough and they don't tell you what you really need to know. Part of that is that no one knows what effects (we often call them deficits) each person will have from their stroke and they don't want to scare you with too much information. Personally I think that's silly, but the reality is if they tried to tell you what to expect you'd be there for days and something would still be left out. So here's the readers digest version. Every brain is different just like every person is different and while they can often predict areas of issues based on areas of the brain there is no firm map to follow so you have to live with it and work it out for yourself. See even if they said that it would help. Emotional Lability (or PBA as the American medicos call it) is very common so are Fatigue, and personality or psychological changes. Also memory issues short or long term, Complex planning and processing skills, etc. Then you also have the physical stuff, which includes unexplained pain sensations, numbness, tingling, spacticity, tone, autonomic system dysfunction affecting lymphatic processing, temperature regulation and blood flow to the extremities. Even your immune system may not behave "normally" Most of us report that things like colds are much harder to recover from, and something like minor sunburn will now knock me physically for up to a week. Just about anything and everything your body has done without you thinking about it for the last 55 years could be affected. And what is affecting you now will probably change over time. Some will get better and some may get worse. But your body and brain will usually relearn what was lost, especially if you keep demanding things of it. I think the best way is to work out what you want to do with your life now and think about what physical and mental skills you will need to do those things and then set about learning or relearning those skills. At the same time try not to let your body learn "bad" things like pain. All those nerves that used to "talk" to the parts of your brain that are gone or damaged are still sending signals and you brain is going to keep trying to do things with those signals. If it can't work out where they are from or what they are it will tend to link them to "pain" and once that response is learned it is very hard to unlearn it. Take some time each day to monitor the signals your body is sending and work at correctly assigning them. I find passive movement therapy, massage, and meditation are useful tools in this. And so far it's worked for me (9 years+) So hang in there and keep working on it, Remember stroke recovery is a marathon not a sprint and you have to approach it that way or you'll run out of steam. Read and understand the spoon theory (http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/)and try to get your family to understand that sometimes you are likely to say things that are not nice, and you need their forbearance while you work to relearn emotional expression control. Hugs and good luck -Heather
  15. heathber

    The main advice I can give is as others have already said. Don't give up this is a marathon not a sprint and the one thing you can be sure of is, you do nothing you get nothing. So you work at recovery and ever slow slowly things start to improve. Sometimes you think you are imagining it, it comes so slowly, but then you look at a photo or video from the beginning and you realise it has been happening. Also a lot of stuff need to reach thresholds for you to see or use improvements. So even though you can now step 8.5" if the step is 9" you can't get up it yet. but then you keep working and you can step 8.8" and then 8.9" and then what seems like all at once you can get up that step. Yes there are limits to how far we can recover sometimes but you won't know when you reach those limits so you keep pushing just a little bit more and sometimes the "miracle" happens. 8 months is nothing in stroke recovery terms. The first 3-6 months you have not only the original injury to the brain but also the inflammation associated with the bodies normal healing process. So even if you had not much success with therapy in the first 6 months it doesn't mean you give up now. Many older doctors still think if you didn't get "it" back in the first 6 months you never will, they have been proven wrong many times, but only because people refuse to listen to them now that brain plasticity has been proven. I'm not saying it's easy, especially if she has brain injury fatigue, which it sounds like she does. Remember you have to keep saying "I can't do that YET", not "I can't do that". Self talk and repetition are key to brain retraining. If she can center her recovery efforts around an activity she enjoys it will be easier than just doing the exercises. Life does not end after a stroke, no matter how bad it feels some days. When you get a good day you use it! yes you pay for it later, but you learn to accept that too. Life is what is, not what it was. Hang in there -Heather