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Stroke Survivor - female
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About heathber

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    Senior Mentor
  • Birthday 05/23/1965

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  1. No JonJ I was worried at first but it turns out you can get by just fine with only the three arteries to the brain. There are 4 feeder arteries usually and they all feed into a ring that feeds the brain sections, so as long as the ring itself is OK you get by just fine with only 3 feeder arteries. It was fascinating to see the MRI done a couple of years after the artery closed and to see the way the others had all gotten bigger. The body and brain are quite adaptable when they have to be.
  2. Hi Heather, Welcome to the group! Getting back to nursing so quickly (although I bet it didn't feel quick at the time) is a major achievement, well done! Having a stroke survivor as nurse in a Stroke centre must be a real benefit for the patients. So many times when I was in live in rehab I wanted the nurses to be on the other side of the fence so they could truly understand. - Heather ( yes I'm Heather too)
  3. She does that! and we love her for it. This thing changes so much and mostly for the worse so being able to laugh at it is part of the survival adjustment. I'm so glad to see someone new to this getting that.
  4. Hi JonJ, that's one hell of a start on this journey. It sounds like you are doing really well and have retained your sense of humour. It's early days yet please listen to your body and sleep when/if you need to. early on in recovery your brain will tire easily and it can be hard to tell the difference between tired brain and tired body. Come chat with us whenever you feel the need either to ask a question or just to rant and rave about your frustrations, most of us have been there and it's no fun but it does get better over time. -Heather
  5. Yep my ereader makes such a difference holding a real book open and turning pages one handed sucks.
  6. It's part of the propriaception stuff that goes missing after a stroke. As my PT says your feet are where you left them you don't have to look at them to know where they are. They want you to glance at the course and judge the distances without actually looking at your feet all the time. Walking while looking down makes you more vulnerable in public as well as being less mechanically efficient, probably because looking at your feet while keeping your core engaged is super tricky. It has gotten easier with practice but I'm not sure I'd be game to move far while looking up into the sky.
  7. Hi def that's a tricky one. Any anti clot drug is going to have some intestinal bleeding risk. And the Docs love to use the particularly nasty ones. Marevan/Marivarin is a one of the Warfarin versions. Warfarin needs to be constantly monitored and can have some nasty effects, it also interacts with Vitamin K in the diet, which means dosing needs to change according to what you are eating. It can be very effective but is high maintenance. Alternatives to research/consider would be daily low dose Asprin, and/or clexane injections. Injections may be the way to go as if you bypass the gut for delivery you should reduce your chances of triggering a Chron's attack. I'm glad to hear you finally got a diagnosis and that he is progressing with his recovery. -Heather
  8. I have to Echo what Ed said. Previous stroke history is a risk factor but you can't change it so try not to focus on it. Just make sure you do what you can to minimise other risk factors and get on with living and enjoying your life.
  9. So many things out there where the brain does weird and wonderful stuff and we don't recognise it until something goes wrong. I'm just so glad this is not something I have to worry about (so far) interesting that for some of you it's gotten worse over time rather than better. Hugs -Heather
  10. Thanks Becky I see it as informed decision making and risk analysis
  11. He is outstanding, he works mostly at our world class children's hospital with cerebral palsy kids. But now also takes adults with ABI and stroke. The very detailed analytics of what muscles were firing and when was both fascinating and reassuring. He starts by doing a gait analysis to work out exactly what/where the issues are. Having him explain exactly what was happening why and what he could and wouldn't do was a great help in making the decision.
  12. I have a top class surgeon and it takes a lot of work after surgery just to get back to where you were before. But sometimes you step backwards so you can move forwards. It was so scary taking that step back, but it turned out to be the right thing to do.
  13. this is fascinating too, apparently it was the cows eating clover that started it all. http://blogs.britannica.com/2009/04/the-tale-of-warfarin-and-the-mutant-rodents/ So it more that someone recognised that a blood thinner could be used to kill rats without making humans very sick too
  14. Afo's for me were useless other than the Bioness which I wore daily for 5 years, except when at the gym. My best gait correction came from surgery recommended by the running program. My main quad muscle had shortened and was pulling my hip forward, also my calf was severely shortened and was preventing me using my knee. Sorting out the hip freed up the knee and now that the knee works the calf is starting to stretch again and the ankle is doing much better. I don't know how their walking looks in the articulated AFOs, not much walking happens in running program. AFOs are used by those that need them so that they can do the exercises without having to worry about feet not being where they expect them to be. Most of running program is exercises to increase strength and control and fast twitch muscle response. At least until you get to a certain level ( I'm not there yet, the more advanced group work outside so I don't really know what they do)
  15. Any good walking shoe store should have them Alan start with your local hiking shop