Jump to content


Stroke Survivor - female
  • Content count

  • Donations

  • Joined

  • Last visited

  • Country


About heathber

  • Rank
    Senior Mentor
  • Birthday 05/23/1965

Contact Methods

  • Stroke Network Email

Shared Information

  • Stroke Anniversary (first stroke)
  • Facebook URL
  • Website URL
  • How did you find us?

Registration Information

  • First Name
  • State
  • Country

Recent Profile Visitors

3,162 profile views
  1. That's great Alan just watch your posture. and remember "stand tall and tuck your bum under"
  2. Another common thing HBOT is used for is gangrene and necrotic ulcers, where the high O2 partial pressure speeds healing and regrowth of tissue. For stroke it may be useful in the acute stage to reduce damage while blood flow is impeded, but it's not going to help much after tissue and vessel healing has occurred.
  3. Moving meditation can be just as effective as concentrated still meditation so long as you keep the principles clear and follow the techniques. Thanks Kelli for the very clear article! Doesn't hurt to be reminded occasionally.
  4. Yep to all those! I particularly like Somebody and Nobody Lin.
  5. Hugs from a distance (real ones will hurt) for all those suffering from CPS. May you all find a good pain clinic that will help you manage this beast that is so unmanageable.
  6. No point reading something if you aren't enjoying it! Congratulations on reaching your goal. So much of reading depends on both the book and your mood. If you start a book the rule I was given as a kid was read the first 3 chapters if you aren't enjoying it by then put it down and try again some other time. It's worked for me for 40ish years. I've just started on "The Ghost in my Brain" as recommended by I forget who on here. It's a description of cognitive failure and recovery after TBI (the case in the book is concussion not stroke) using visual spatial reprogramming and neuroplasticiity It's fascinating and actually a relatively easy read so far.
  7. hyperbaric oxygen is not risk free. approach with caution. While oxygen perfusion can make it easier to fire neurons, excess oxygen is actually toxic and could cause seizures. In re-compression treatment after diving they always insert a catheter first so they can administer adrenaline etc. in an emergency. I'd be particularly careful about the naturopaths private chamber as that would probably be a single person tent style unit, where if something goes wrong you are on your own.
  8. It's a common side effect of disturbed visual spatial processing, exacerbated by weakness on one side meaning you use different dressing patterns to what you've done your whole life. That look in the mirror is vital! :) I've lost count of the number of times I've gotten to the office only to realise that my trousers are on back to front, and then I only notice it because I can't find my pocket. (p.s. they are elastic waist pants, no button or zip) Also in this case you were excited so probably not paying close attention. It does get better with practice. After all you did notice before you went out so you are able to take care of yourself! Glad you enjoyed your "holiday"
  9. It's is about finding the correct spots for the electrodes. everyone is a little bit different. I've just started back on the e-stims too. What I'm being told to do is to relax as much as I can for the first few cycles and let it happen, then I have to try and work with it. holding the contraction once the stimulus ends for as long as I can. So that it's not just exercising the muscle it'a also connecting the movement consciously. It is the weirdest sensation isn't it. you have to build your strength and tolerance slowly, just like any exercise. if you managed 8 minutes on first try you did very well.
  10. Sounds like you need to try one before you head home to be sure. for things like this listen to your neuro and your Physio. But how long do they expect you to be using a walker for? The setup here in Australia is different, here we are encouraged to aim for whatever aids we were using pre stroke. and they choose walkers, crutches or canes based on where you are aiming for as well as immediate need. Be aware that aids will alter your posture and gait and long term they may be more restrictive to your final outcome. As a younger survivor with good prospects of walking normally again, I was told not to use a walker or cane. I was sent home with a single elbow crutch and I only used it for 6 months. I will/do use a single hiking pole now if I really feel the need or I'm going somewhere extra tricky, but mostly I use no mobility aids. Good luck with it -Heather
  11. Hi, knowing others have it worse than you does not help you feel better about your situation. Just remember none of us (including you) asked for this, crap happens and you have to deal with it. Anxiety and fear of another event are pretty normal after a stroke, try not to dwell on it. If you had anxiety before your stroke hopefully you already have a psychiatrist/psychologist you trust that can work on this with you. Remember you've had a brain injury so lots of things and how you react to them can be changed by that as well as physical stuff. Give yourself permission to grieve for the old you for a little while. Then pick yourself up and get on with life. Life after stroke can be extremely enjoyable and full. Just remember that if you don't do things the same way others do or the way you used to that's not important, everyone is different, that's why life is interesting. In some ways you are lucky your daughter is so young, as she'll only really know the new you. As I'm sure you've already been told, recovery from this thing takes years not months so don't be too hard on yourself, you're just starting out. You can do this! -Heather
  12. Although it may help with understanding and maybe even treating the residual lymphatic issues in affected limbs (like the blue foot that I still get even though 90% of my leg is working fine)
  13. Hi Pearls. The quilting is one thing I haven't gone back to. I have gone back to my other needlework quite successfully. If it's the cutting etc. that scares you how about crazy quilting? or buying precut shapes, although that doesn't help use up the stash. I just had a brainwave what you need is one of these http://badskirt.blogspot.com.au/2010/08/chop-chop-chop-on-fabric-guillotines.html let me know if it works -Heather
  14. That sounds great Ray, I hope you have goggles for the dog. Their eyes are very vulnerable on the bike. Don't worry about graceful so long as you get there. you will get more graceful the more you work on it. At least with the side car you don't have to worry about dropping the bike and not being able to pick it up again.
  15. That's a great tale Lin, see being assertive has nothing to do with your size.