Stroke Survivor - female
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About heathber

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    Senior Mentor
  • Birthday 05/23/1965

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  1. heathber


    Another route those with CPS might want to investigate is mirror pain therapy. As I said before I'm lucky and don't have it but to some extent CPS is "learned" and hence may be able to be unlearned. I'm not saying it's easy or practical in all situations but it may be worth investigation. My Neoro Physio is also a pain specialist. He said to me when I first started seeing him that even though the brain is damaged the nerves are not so they keep sending signals and the brain has to "put" them somewhere, so when you get an odd sensation as I manipulate your arm or leg, look mentally
  2. heathber

    So true Janelle, and having to justify to my mother the things I had put in the need column that she saw as a desire, was actually a useful exercise, although also emotionally difficult.
  3. heathber

    yep jigsaw puzzles are also a great cognitive workout too, and if you do real ones they also work on fine motor skills that tend to get forgotten when you've been working on gross motor skills. Another good one for winter is the adult colouring books. Recovery never stops so long as you are challenging yourself
  4. heathber

    Oh yes the fun of working out what is a want and what is a need. That was one of the hardest parts of setting up the budget. And yes Sue some indulgences are "needs" it about making a decision with your eyes open and the long term in mind. A meal out or takeaway may be a need sometimes, especially at the end of a working week. But if you know how much "space" there is you can balance how often you do something like that. This applies to diets as much as it does to financial budgets And Kelli we are all masters of "do as I say not as I do!"
  5. heathber

    Ouch sorry to hear it's come to that. But as the strokee I've no idea how you go about doing it. ((HUGS)) -Heather
  6. heathber

    Hi Kellie, I get it! I've always made a decent salary and had plenty of funds for holidays etc. when I wanted. But within 2 years of my stroke I discovered I was living outside my means for the first time in my life. It was a shock. During that time I was getting 75% of my pre stroke income via disability insurance. It wasn't really that much less but it was enough less that I couldn't do it in my head any more (or was that the stroke 🙂) My Mum bailed me out with a lump sum payment, after she got me to do a written budget and an assessment of all the things I was spending money on and de
  7. heathber

    Hi Sue, so nice to hear that there is a special relationship in your life again. All fingers and toes crossed for a good year for everyone this year.
  8. heathber


    Hi Pam you should be able to reply or even do a blog from your phone. I use the phone for Strokenet when I'm travelling, but it is quite fiddly to do and the text is very small. I hope you're getting along OK in the current Covid mess, not easy living in a nursing home at the best of times. ((HUGS))
  9. heathber


    Hi Boop, lots of discussion of CPS on the site, it's actually quite common. I don't know why a search for "CPS" returns 0 results. Try Searching for "central pain" and make sure you use the all my words option. Sorry but I don't have any personal experience of it. I have a great neuro physio who has worked hard to prevent cross wiring and pain patterns setting up. My understanding is it can be very hard to do much about once it starts. Your best bet is probably a specialist pain clinic.
  10. heathber

    the bike I use at the gym is one of the ones that uses arms and legs. I often use it with just legs as my arm spacticity means I can only go very slowly when using the handles. it helps when my trainer can stand beside me and prompt the triceps by touching them at the right point in the pull/push cycle. It amazing how a little feedback makes it so much easier to "find" the muscles you want.
  11. Hi Mark, I don't usually use StrokeNet on my mobile because it just gets too small to read. But I just had a try to see if I could find it but you're right if it's there its well hidden. Should be on the top of the screen in the banner with the create and search icons, but it doesn't show on my phone or my ipad. So sorry can't help other than to say it's not just you.
  12. heathber

    I do better at keeping the foot on the upright bike than the recumbent. The upright bike I use at the gym has no stirrups at all so I had to learn how to keep some downward pressure on the pedal all the time, especially on the up stroke. And there are still some days where I just can't find the knack of it. On the recumbent I have to not let the weight of the leg pull down as then my foot slides out of the stirrup/band over the foot. Once again gravity sucks. The seat of my recumbent stationary bike is mid thigh height. For me the design feature I had to look for was to find one that didn't h
  13. heathber

    Happy new year Kev the French sounds like fun, good luck. Learning a language is also supposed to help the brain create new axions which you'll need for movement goals as well. Fingers crossed for a better year in 2021 for everyone and hopefully the pandemic situation improves quicker than expected.
  14. heathber

    Sue sometimes challenging yourself is working on maintaining what you have. So long as you are working at the edge of your ability you are going to progress, although it gets very disheartening when you feel like nothing is improving. I have to keep telling myself, you try nothing you get nothing. But some days you grab the bull by the horns and you get brave. I started a new patchwork piecing project yesterday. I was sensible and went for 4 inch blocks, where I would have done 2 inch pre stoke, and doing the cuts was a little terrifying. But it looks like it's going to work although the
  15. heathber

    It is about pushing in bursts rather than constantly, in gym work this is known as ramping. My gym works on a 13 week cycle, 5 weeks ramp up, 1 week plateau, 5 weeks ramp up, 2 weeks testing and consolidation. Next cycle, change the exercises so the body/brain has to adapt to new patterns. I used to try to work to that schedule but we worked out quickly that I can't ramp up for that long and I need about twice that for consolidation. You need to listen to what the body is telling you and adapt the workouts to fit your energy and progress. Sounds like you are winning.