GreenQueen

I hear you ladies about the choosing. My husband isn't really happy that I'm sleeping more. Which is odd, as he's always telling me to rest. I cannot win.

I mentioned my spasms to my doctor the other day. First time in three and a half years!! Even though they bothered me, even to the point of being painful, I never once thought to mention them. I'm now on two baclofen a day. They increase my drowsiness but the near lack of spasms, and definitely no painful ones, is totally worth it. WHY do we put off telling our doctors about the little things?

Sorry, I've had a few things about stroke life sitting in my brain for a while... I mean no disrespect, pain or anguish to anyone. I just need to know what everyone thinks. You know how I LOVED to tap dance... Is it better to know how much I miss it? Would it have been better to be born disabled and not know what I'm missing? To always wonder what it'd be like.....or to constantly be reminded of my disability when my dancing friends post concert photos? My kids were 9 1/2 and just 12 when This happened. I don't want to ask them just yet, but will they remember me before? All the fun things we did? Or will all their memories be of pushing me around in a wheelchair or sleeping all the time? Are two sets of memories better than one?

My bestie from high school's sister's husband had a stroke not long after my Thing. Very similar situation, although he has hemiplegia where as mine is hemiparesis. We were chatting after our neurological support group the other day about feeling invisible. People care, know we are disabled...but they forget. We tend to adapt too well so difficulties tend to fade into the background, and they are left seeing us as a wife, mother, daughter, friend. I want people to see ME, I truly do. But I want them to see the new me. I'm still funny, helpful, caring...all the stuff I (am told) I was before...but now I come with added extras. I have to sit in a booth on a certain side, I can't open the door with my good hand full, I can't talk on the phone and do anything else... I hope this makes sense and doesn't seem like I'm asking too much. Am I?

So we ALL have an avid dislike of the throw away comment... I know how you feel... It could be worse... My cousin's hairdresser's next door neighbour's lawn mower man had a stroke...he completely recovered... Well for me, this one takes the cake (I coulda shoved it fair down her throat!) I went to a focus group recently, and the woman in charge asked us all what we missed the most. Totally not wanting to say Self Worth and getting all emotional, I decided to say the tangible thing that utterly guts me I can no longer do. Tap Dance My true love. I danced for 35 years. You will never ever guess what she said to me. Never. Ever ever ever. Ever. "Can't you dance with your other foot?" Now, what shattered me the most, was that she only commented on my thing. And...wait for it...she's disabled too. Yep. And can no longer do the one thing she loves, skiing of some kind. I was so upset that a few weeks later I emailed her and let her know how inconsiderate her comment was. She then said "Sorry, we try and concentrate on what disabled people CAN do, as opposed to CAN'T do," Which begs the question: Why *#?!%^ ask what we miss????????? I give up.

They are the most awesome tips ever!! I guess I have good news. My doctor told me he would ring and let me know the results. He's slightly forgetful so I rang him today. Apparently the results came back a few days ago and today he's gone on holiday... It's all good. He definitely would have phoned if there was a problem. I'm taking it as good news!!

Thank you so much Asha, I will definitely update when I can.

Thank you for your support... Kelli all the best for yours. I'll be clenching and twisting all day in support!! Heather please book yours. As difficult as they are to have, it's necessary for peace of mind. Becky got it in one!! Couldn't help myself, I looked it up. A man sure did invent mammography. Not much on who invented the actual machine. Typical!!

Thank you Ed. I knew other survivors would get it. Welcome here, by the way!!

Ok so my house is as tidy as it's ever going to be...when four messy people live together...it ain't pretty!! I managed to make a few cards... Then my doctor found a lump in my boob. I don't think either of us would have been so concerned except that my mum has breast cancer. Being disabled and having a mammogram and ultrasound was probably one of the hardest things I've ever had to do. They just don't seem to understand how to do it when only half a body works. I cried when I got home. Then my doctor did a biopsy. He's pretty sure it's harmless. Find out next week. Then on Monday I come down with the flu. It's Wednesday night here and no signs of it letting up. Wayne has been on nightsift, so I have no idea what my kids have been having for tea... Such as it was... I want my life back.

Very interesting read. Except big words are the bane of my life! I have dysarthria. I said to my neurologist the other day...WHY is the damn word so ridiculously hard to say???

Donna Wow wow wow!! Absolutely stunning! You are extremely talented!! I wonder how well they would travel half way around the world to mine?? I absolutely LOVE them!!!

Awesome Phil! We went across the country on a train...bit of luxury! Don't think I could drive it! Isn't Esperance beautiful? Very brave doing the Tanami. I'm hearing you though, about travelling while you can. Our trip to Canada was absolutely amazing but I'm glad I did it now, and not as a retiree.

Apparently things hanging on walls (pictures, signs etc) are only noticed for two weeks then no more... You need us to come sort it...we there, Pam.

Hi Pam hoping the new medication regime is still doing the trick?