So we've been in Perth for way too long, 5 nights.
Country roads are taking us home today!
We all can't wait!
We've caught up with some friends down here.
Once at a cafe, then at a park.
I find if I'm sitting down, I can have water and a milkshake or coke or hot chocolate and I'm fine.
Once I stand up, I need the toilet.
Both times I have gone to the loo, but by the time I shut the door and pull everything down one handed (and wipe the toilet seat because eeewwwww)...
Not a lot, but I can't hold it in.
Going to have to wear some kind of protection when I'm out.
It's happened a few times when I have been out in town, too.
My mum reckons it happened to her recently (at home, long story).
Ok, so she's 70, and not disabled.
I'm 46!! This should not be happening!
Sad days ahead.
Mike, we got you.
We are here for good and bad.
I have no idea.
There are many clued up people here who may be able to answer that.
All I’m going to say, is if you are doing all the right things, don’t dwell on the possibility.
The stress won’t help.
Mike fatigue is not fun.
Praying you will find a solution that suits both you and your employer.
I feel for everyone with PBA. I cannot even begin to imagine...glad people are finding ways to help.
Heather the dreaded kids question! So rude!
My brother is 48 and single (always has been) and people ask me if he’s gay.
It’s like there always has to be a reason.
And like that reason has to be explained.
It is what it is.
Deigh you are a crack up!
Tarina it is so hard, this becoming a new you.
I have found contentment with the new me, but it took a while.
You may not remember your young bloke’s birthday, but you were there and he will remember that.
Gosh. What a nightmare for you all.
Kelli I cannot believe Walgreens...is there anything to be done?
At my MIL’s for tea the other night, and my daughter asked us all a random question:
Would you rather lose an arm or a leg?
As soon as she said it, she was so upset with herself and felt it was a terrible thing to ask, given the circumstances.
I have right sided hemiparesis, although these days my arm and hand are almost totally useless.
I told her, from my point of view, I’d rather lose a leg. I could use a wheelchair, and I’d still be able to type, hold a book, cut things up, open jars.....on and on the list goes. I feel I’d be more independent.
Which would you rather lose?
Anyone, please, feel free to answer. I’m also very interested to know what other hemi people have to say in regards to this.
Ok so I've been hit and miss here for a few weeks.
Two school meetings
Visitors for tea
Packing for six nights in Perth
Travelling to Perth
Twenty one pilots concert
Catching up with friends
Braces for connor (as I type)
Exhausted exhausted exhausted
WHY do I do it to myself?
I always think I'll be right...yeah, nah.
Yeah, nah = no
Nah, yeah = yes
Yeah, nah. No idea why we say it either!
Nicole still having sight issues.
I see my doctor in January so will ask him what he thinks regarding the brain trying to comprehend what it's seeing.
Biting into the hand...that's where I'm at.
Not painful as such, but uncomfortable in many places from the palm right up to the shoulder.
Yes, struggling with the dreaded D word...
Took me probably two years to accept that Disabled is now a big part of who I am.
It's a badge I didn't want to wear, but now I wear with pride.
I take disability issues seriously and write to politicians constantly about improving accessibility etc.
Apply for your disability payment, you are entitled.
Last night I stood up from the chair in the study probably a little quick. Went to the kitchen to put a recipe in the recipe cupboard which is quite high.
I felt a little dizzy but soldiered on with putting the recipe away.
Next thing I'm on my bum, sitting right next to the oven that was on, with a door handle sticking into my back.
Today I have a big bruise on my back, right under the shoulder blade of typically, my good arm.
My bum is sore, as are my fingers on my good hand, and every time I move my back hurts where my bruise is.
It's the dizzy thing that gets me. Anyone else have dizzy moments that lead to falls or similar?
So you know I have had a gutful of the hospital with staff changes...
Had been thinking about telling my case manager/dietitian that I didn’t need to see her anymore either...
She visited the other day and before I could say too much she said the hospital was releasing me from the Day Therapy Unit! Problem solved.
Because I’m diabetic now, she referred me to a government funded dietitian/diabetes education place. Guess what? Wayne earns too much money for me to have a Health Care Card, so I’m not eligible. Apparently they could maybe assess me and think about the possibility of perhaps acknowledging that they may think about maybe adding me to a list to think about me some more.
I am quite certain our health system is easier to understand than you guys, if you earn below a certain amount you can have a Health care card, which entitles you to cheaper medications and assistance from the government. We also can pay for private health insurance, which has different levels for different prices.
Because Wayne earns just above the cut off for assistance, we get no government support whatsoever. Let’s not go there.
Anyway, the story is that I now am going my own way in regards to therapy etc. I’m actually very happy about that. I know what I need todo and not do. It’s just that dirty M word again, Motivation.
Oh, another M word for you: maccas. We don’t ever say McDonalds or McDs. Maccas. End of. Feel free to use and be a little bit Aussie!
Phil your flag is American..I was confused for a minute there!
My husband and I took our kids to Canada two Christmases ago...what a beautiful magical country you live in.
As we all know, the brain works in mysterious ways!
I'm glad you can see humour in the situation.
If we can't laugh...well, what else is there?
My dad was a 'truckie', so I can picture you sitting in the cab very clearly, missing the gear stick.
I think you learn to accept the fear and anxiety, more than move past it.
But that's ok. We are all here to listen, to vent with and laugh with.
That is wonderful news!
You must be feeling such relief and peace...being back in control over parts of your life.
So very happy for you Tracy.
Hope the stomach bug disappears soon!
Tracy that was beautifully said.
The holy spirit is strong within you...I for one (of many) know that anything you say is out of kindness and respect.
May your apology be truly accepted and appreciated.
Nicole I keep getting told I don't need new glasses, but I can't see!
Keep at them.
One of the hardest things about stroke recovery is getting people to 'listen'.
My advice when seeing a neurologist...
Don't let the buggers get you down.
As Tracy and others have said, they are there for factual reasons only.
Whatever is said, is not 100% out of concern.
All the best for your appointment.
Oh my brain...
I have become really bad at adding and subtracting.
I tell people that the 'maths' part of my brain doesn't work any more!
Phil, I think I agree. I'd much rather be able to talk properly and not forget things...the brain wins every time.