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Stroke Survivor - female
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Everything posted by GreenQueen

  1. GreenQueen

    Beautifully said, Becky
  2. GreenQueen

    Wow Kelli! That would have been scary! Hope your nerves have settled.
  3. GreenQueen

    You are in my prayers, Pam
  4. GreenQueen

    Sue, self pity is something we all go through unfortunately. Knowing we should let stuff go versus actually letting it go...very difficult indeed.
  5. GreenQueen

    Becky that's a great idea. I play a game called Simpsons Tapped Out on my iPad. Perfect one handed game. Sometimes there's too much going on and it's too much for me. I get the kids to take over for a few days. I do love it, as it's something I can do by myself.
  6. GreenQueen

    Today Wayne and our son Connor had doctors appointments. There's a thing on Wayne's hand that I thought might need cutting off. The doctor said no, it was fine. Wayne said Sorry, not keeping you in your job today. My doctor said It's ok, Janelle keeps me in a job!! Whaaaat?? It was funny! I had the doc measure Connor. He's now 5'10". Was 14 in June, so still has a lot of growing to do! Carrah is 5'10" too. I always thought she'd be taller than me. She's 16, so unless she has another growth spurt I don't think she'll get there.
  7. GreenQueen

    Housework keeps me active. Wears me out, actually. We get food shopping delivered, but I need to go to town for everything else. That really wears me out. So many ways to be active (Benni you can relate - try making the bed one handed!) that don't seem like activities...
  8. GreenQueen

    Pam, I don't want to advise you what to do, either way. Only you can decide yes or no. Saying that, if you feel like it's worth going for, just do it. You are right in saying there's no point waiting. There's only one way to find out if hurts or not. Not a fun decision to make. Thinking of you.
  9. GreenQueen

    All the best with the next chapter of your life. I applaud your decision. Stroke or no stroke, you shouldn't have to put up with all of that.
  10. GreenQueen

    Thank you Heather! Definitely give this a whirl!
  11. GreenQueen

    Oh Pam... You are survivor and caregiver wrapped up in one package... I have just complained to my husband that I would love for him to empty the dishwasher washer occasionally or hang out a load of washing without being asked...now I feel like a *beep*. My heart breaks for you Pam. What to do? Has he seen a counsellor at all? Would be helpful if he understood you better... Love and hugs to you my lovely...
  12. GreenQueen

    Asha your husband is wise beyond his years. True fact, why do we need to label things? It is what it is.
  13. GreenQueen

    That’s what I love about everyone here, Pam. No justification needed. Sorry, I have just realised I have hijacked your thread. Only a few more weeks and your support group will be up and running again.
  14. GreenQueen

    Happy thanksgiving Sue. Very glad thanksgiving has special meaning this year.
  15. GreenQueen

    Loving the mirror image on the lake
  16. GreenQueen

    So you know I have had a gutful of the hospital with staff changes... Had been thinking about telling my case manager/dietitian that I didn’t need to see her anymore either... She visited the other day and before I could say too much she said the hospital was releasing me from the Day Therapy Unit! Problem solved. Because I’m diabetic now, she referred me to a government funded dietitian/diabetes education place. Guess what? Wayne earns too much money for me to have a Health Care Card, so I’m not eligible. Apparently they could maybe assess me and think about the possibility of perhaps acknowledging that they may think about maybe adding me to a list to think about me some more. No. I am quite certain our health system is easier to understand than you guys, if you earn below a certain amount you can have a Health care card, which entitles you to cheaper medications and assistance from the government. We also can pay for private health insurance, which has different levels for different prices. Because Wayne earns just above the cut off for assistance, we get no government support whatsoever. Let’s not go there. Anyway, the story is that I now am going my own way in regards to therapy etc. I’m actually very happy about that. I know what I need todo and not do. It’s just that dirty M word again, Motivation. Oh, another M word for you: maccas. We don’t ever say McDonalds or McDs. Maccas. End of. Feel free to use and be a little bit Aussie!
  17. GreenQueen

    Sue, tough situation. Ok, from a survivor point of view, you have enough going on. You can't sort him out until you are going in the direction you want to be going in. Sounds harsh, but until you are in the right place nothing is going to help. From my point of view, my husband still struggles, it's so tough being survivor and caregiver to the caregiver. I still am, even after 4.5 years. As Asha says, caregiving group would be great. As Tracy says, get him help. I took my husband with me to the doctor once, and once there, talked about his mental health. Got him a referral to a psychologist. Sometimes we have to play dirty to help others, which in turn helps us.
  18. GreenQueen

    I've been told your brain isn't at rest even watching telly. Play the games, we gotta do something, but as Heather says, stretch it out a bit. Have fun!!
  19. GreenQueen

    Sue, I cannot imagine the sadness you must have felt. 50 years has that nice ring to it, and something married people look forward to. Without trying to be blasé, you can take comfort in the fact death kept you from the years of marriage leading up to your 50th, nothing else. Ray is alive in your heart, celebrating with you always.
  20. GreenQueen

    Kelli, my son tried to cook pasta in the microwave the other day without water. Even though it’s not mould, we cannot get rid of the smell, not matter what we try. Hope you have better results!
  21. GreenQueen

    Deigh I live three streets back from the beach, which has a beautiful footpath all along it (3km) and picnic tables etc. Hardly ever go, but it’s beautiful. Saying that, my dream is to live right on the beach. I don’t think I could ever live far from the beach. We have the most beautiful sunsets. Friends are always posting photos of sunsets over the water on Facebook. Even though, as I say, I don’t do the beach often (too unsteady these days) I have my dreams. Whoever wins lotto first, we will split it and both live out our dreams!
  22. GreenQueen

    Pam, thanks for spelling out RFA for me. I’m glad it helps. I don’t have pain of any type really, so can’t even begin to understand what you are going through. All the best with it.
  23. GreenQueen

    Decisions are the worst... When I bump into the neuro nurses in town, we always stop and chat. I saw one in town the other day and mentioned I was unsure of what to do about the staff change. Before I could say anything else, she said she’d go back to work and make sure I stayed with my original nurse. No decision needed on my behalf. I actually feel good about that, not having to explain myself and justify my decision. It’s been hard I think because of everything going on with the hospital at the same time.
  24. GreenQueen

    Any answers Tracy?
  25. GreenQueen

    Pam, you and your son are such a blessing to that dear lady.