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Stroke Survivor - female
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Everything posted by GreenQueen
  1. At my MIL’s for tea the other night, and my daughter asked us all a random question: Would you rather lose an arm or a leg? As soon as she said it, she was so upset with herself and felt it was a terrible thing to ask, given the circumstances. I have right sided hemiparesis, although these days my arm and hand are almost totally useless. I told her, from my point of view, I’d rather lose a leg. I could use a wheelchair, and I’d still be able to type, hold a book, cut things up, open jars.....on and on the list goes. I feel I’d be more independent. Which would you rather lose? Anyone, please, feel free to answer. I’m also very interested to know what other hemi people have to say in regards to this.
  2. GreenQueen

    Tracy, it is a very viscous cycle. Trying to not sleep during the day usually means I fall asleep for a few hours at 5pm. Then we start the craziness all over again...
  3. GreenQueen

    Oh Pam.....hugs.
  4. GreenQueen

    Massage.....mmmmmmm...... Love the sound of that.
  5. GreenQueen

    Benni, I can’t help with a diagnosis unfortunately. What I can say for certainty, is that there’s always something. All the best with finding answers.
  6. GreenQueen

    Today I decided my one word will be routine. Without it, everything else just falls apart. I have worked hard all week at getting out of bed on time, so the rest of the day can go to plan.
  7. I pick and choose when to be motivated. It probably has more to do with the spoon theory than a deficit.
  8. GreenQueen

    My filter has become superhuman it would seem. These days I am very very aware of how I talk to people and what I say. Funny how we are all different with our deficits.
  9. GreenQueen

    I love that you are in a good place, Mark.
  10. I've been told by a survivor I know in town, that it's rare to lose your dominant side. He did, as did I. Extremely difficult to learn everything again, and my brain now thinks that my left side is my right side. You know when someone says it's on the right, so I look left. Has anyone else lost their dominant side?
  11. GreenQueen

    Definitely trial and error with the emphasis on error Deigh!
  12. GreenQueen

    Well said. So many people set unrealistic goals. Or way too many. Being better at something is an excellent resolution. Asha my daughter is heading into her last year at high school. She suffers terrible anxiety. My goal will be to understand her better, to enable her final school year to be memorable.
  13. GreenQueen

    Yes, compensation, adapting, adjusting...all part of life. Don't you hate it when you have to fill in medical forms and they ask if you are left or right handed? Trick question these days!
  14. GreenQueen

    Nice to have holidays, but nothing like your own bed!
  15. GreenQueen

    I agree, companies need to make money to spend money on more research etc... There is a difference between profit and holiday homes on three continents and flash cars in each garage.
  16. GreenQueen

    This thread needs to get a room!
  17. GreenQueen

    One of my besties is a boy. Luckily he married a girl I'd known for years. My friendship with them is such an easy going one, I'd be lost without it.
  18. In another thread, Heather and I were discussing the “when will you have kids” question. It made me think about discussing stroke stuff with people who haven’t stroked. We have probably rehashed this 5000 times... I get so over people telling me “you should...” when I mention a problem. Or if I mention a problem, and get told “that’s normal, happens to me too...” . Like incontinence. At 46. Like aches and pains when getting out of bed in the morning. The ones that have nothing to do with age. At the moment, I’m ok with where I am, with who I’m meant to be. But that doesn’t mean I don’t get down about bad comments.
  19. GreenQueen

    PS...we have HOT summers, but it rained here today! Wow!!
  20. GreenQueen

    I have lived here all my life...fifth generation. Town is town...you know when you live somewhere there's nothing to see or do. I have started volunteering when cruise ships come to town, and I'm amazed by how much there really is to do. And the beaches. People can't get over our beautiful beaches and the footpath that goes forever, dotted with playgrounds and barbies. I live in a lovely spot. Just takes outsiders to remind me!
  21. GreenQueen

    Good on you Tracy! Being kind to ourselves is the hardest thing!
  22. GreenQueen

    Oh Tracy, big hugs to you my gorgeous friend. The family is laying their grief and guilt right at your door. Keep that door closed to that...you are so right, you were 3 days old. The only thing you had to do with it all is that you were there. Let it go. Don't let them interfere with your inner peace. That's a very childish and selfish thing for them to do. You are right...you and Kitty have so much to look forward to in 2019...bring it on.
  23. GreenQueen

    Well we made it! 2018 was a good year for me and my family... May 2019 be blessed for us all
  24. GreenQueen

    What Becky said. All the best with it, Deigh.