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Stroke Survivor - male
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About stockflyer

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    Associate Member
  • Birthday 07/26/1959

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  • Stroke Anniversary (first stroke)
  • Interests
    family, travel, hiking, garden, stamp collecting (traveling the world), reading, college football
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  1. :) Or a part of the blue man group
  2. This is cut off of webmd. It sounds a bit far fectched. There is an issue of the barrier between the blood in the body and the brain. It allows only certain things through. This may go, I don't know. Apoaequorin is the active ingredient. But it does sound like your brain will glow blue when you take it. ______________________ Apoaequorin is a protein that was obtained in 1962 from a specific type of jellyfish that glows. When apoaequorin is exposed to calcium, the protein and calcium bind and a blue light is produced. For more than 40 years, apoaequorin has been used to study how calcium works inside cells. Recently apoaequorin has been manufactured on a larger scale for use in the dietary supplement Prevagen. People take apoaequorin by mouth to improve mental function, memory, and sleep quality. How does it work? Apoaequorin is a protein that was originally discovered in the jellyfish species Aequorea victoria. When apoaequorin binds with calcium, a blue light is produced. Problems with calcium regulation in the human brain are thought to play a role in age-related mental decline. Because apoaequorin has a similar structure to human calcium-binding proteins, some researchers believe it might help regulate calcium in the brain and reduce memory loss and mental decline.
  3. Don't ever except you Can't do it. I have managed to do several things I can't do. It just takes us longer. Keep it up! On a side note. I broke my ankle once and it took over a year before I could walk normally and without pain. What you are dealing with is so much more - but I believe you. You can do it! Have a great day!
  4. I have an old recumbent bike too. I use it the most for my recovery at home. Our Older Persons Center, of which I am a proud member now, has a lot of machines for workout just like in the PT offices. I can use most of them, but the stepper and rowing machine is outside of my ability right now. My head goes wonkers on me when I try them. At the PT they have a small trampolene and I can't do that either. I get real nauseous with those things. Can't get on a boat now either and that's a real bummer.
  5. A treadmill is absolutely a must if you can use it. I had one before the stroke, so had that covered. I didn't use one at PT but she told me I could start using mine at home. Unfortunately I could only do .5 mph, slowest speed, for 2 min when I started. Keep moving it up. Now can do 38 min at about 2.5 mph. I become very sore for a couple days after that, so need to take 1 or days off depending how I feel. I also have an old bowflex with resistance bars, no free weights, and they are working pretty good.
  6. Hi Heathber, Good job. I too try to sit in front of my computer doing things. I put papers out on both sides of the computer and twist back and forth getting a neuro workout. While I work at computer. At the beginning very hard and couldn't do it for more than 5-10 min. Now I can keep it up for about an hour. But I am fully exhausted after that and must rest the rest of the day. I am still finding trying to do patterns like counting very hard, even when I am sitting. But a little progress is very rewarding.
  7. Did everyone get some therapy done today? I didn't get much, very exhausted today. Only loaded dishwasher, cleaned up a little, and did a little reading. After that it was just vegging. Hopefully tomorrow is better. Yesterday was much better. Worked in garden, did all dishes, and put away, cooked and did a few other small things.
  8. Hi Betsy, Very interesting. Checked and my library actually has it. Will work to get it in a few days. John
  9. Hi Pearls, I read this book last year too. It was a great book. I learned so much from it. But it took me a long time to read. Actually reading is part of my therapy since I can only focus a short time before I lose it. I can usually only get about 15-20 minutes in before my headache gets really bad and I find myselft just skimming the page without reading. Then I know it s time to stop. I would highly recommend it no matter how slow you can read it. It made so much sense to me. I reallized that the stroke didn't destroy my muscles, just broke the connection to my brain and there is a good possibility that you can make a new connection over time. OVER TIME - no miracles As I've said in other posts MUSIC is very likely to help. I have used music to help me improve my walking and other exercises. I also used the light laser therapy in from the book and in 2 or 3 days my balance improved so much my wife could really notice. (It's not perfect, but I take any gain to regain some oldtime normalcy) I could walk across the room with no rolator. That was a first. I only needed to touch - notice the word touch - to keep my balance. My brain could take that input and correct my tipping as I moved. This may not help others, and I was a bit sceptical, but for me it was as valuable as months of therapy on this.
  10. Hi GreenQueen - do what I do. Appointments, shopping, cooking, etc - I have defined that all, ALL are part of my therapy. I feel much better that way. In fact for me just bending over to load the dishwasher is the same thing they make me do in PT. So it counts. Have a great day! And don't forget you got your PT done today.
  11. stopping and praying for a miracle reminds me of an old joke. A guy prays to God and asks to win the lotto. The drawing happens and he didn't win. He asks God again, he didn't win again. This goes on for a while. Finally he is asking one last. "God please let me win the lotto" God responds - "Meet me half way, buy a ticket."
  12. Hi, I had a stroke in the Cerebellum and I have difficulty walking and keeping balance but it is getting better. Let me tell you the weird thing that happened to me. (rereading that sounds like that bad click bait we all hate) I walk around a small track with a bar that circles the entire track at our older persons center. It is like 1/8 mile. But I would hold on and practice going from doing only 1 lap in 10 minutes and being totally exausted to now a mile, 18 laps, in 20-30 min depending on my day. I now walk with hiking poles around our neighborhood and not needing the bar like I did at beginning. I was walking around the track and tried to improve but one day it was very very loud in there. They play basketball in center lower level. I had brought my mp3 player but never really used it but that day I turned it on while I was walking. I was going around my unbalanced normal way, but when a song came on with a solid beat I would start to walk better. Was finally able to let go for a little while, not a lot yet, but my brain functions better with the extra beat hitting the ears. I have found several songs that work for me that I put into a playlist. Now I don't know if that will work for you, but my daughter a neuro rehab nurse tells me about the sound energy helping people out in odd ways. Hope this gives you an idea or to try something that just seems weird and may help you. God bless you.
  13. making compost? That has got to be a crappy job! I would like to try that, but don't think it would go over with my neighbors.
  14. Reading is fantastic. I used to do that pre-stroke. Read lots. Now with my headache I usually get about 20 min. at a time. I took up my 30 year old stamp collection and started that again. It is nice since I can "travel the world". Right now I am working on Greek stamps. I stop and learn a little bit about the stamp the year there etc. I have found out about the leaders, wars, different taxes they needed and was added to stamp. I found out when they invaded Turkey and issued stamps for a few years for use in that territory. Massive inflation. Their stamps used to be a few lecta? to a few Drachma. I put in a my album a stamp that was 5 million drachma. Now that is inflation. A few years later they devalued the money and the stamps show it. Similar to pre-WWII German stamps were in the millions of Marks because of their inflation. (picture goes here, but haven't learned how yet) Pictures of sites, artwork, animals, cars, trucks, trains (one of my favorites), etc. So much to stop and enjoy. When you look at years at a time you can see a story unfold. Not as hard for me as reading, and does help with boredom. Unfortantely I cant do it very long at a time before I mess up and have to quit. I also figure it is very good as therapy.
  15. Hi Jay, I think your Daughter thinks of you as a normal Dad, one who can still help. She doesn't think of you as a handicapped person that needs her pity. All in all I would have to say, good job. Now just ask her for a lift to the second hand stores so you can look for a table.