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Stroke Survivor - male
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About stockflyer

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  • Birthday 07/26/1959

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  • Stroke Network Email

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  • Stroke Anniversary (first stroke)
  • Interests
    family, travel, hiking, garden, stamp collecting (traveling the world), reading, college football
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  1. stockflyer

    I watch exercise videos and do a little workout to that. I usually turn on some exercise show with some good looking women. I call them my girls. As in " I'm exercising with my girls". or My girls really worked my legs hard today!
  2. Tracy that is awesome. As a survivor of a cerebellar stroke too I know exactly what you mean. The nurses kept telling me FAST. I kept telling them. Look no face drooping, no paralysis, no speech issue. I woke up in the morning after the stroke. Happened during my sleep so I thought I had a really bad case of the flu. super dizzy and vomiting. Couldn't walk, etc. Didn't get to hospital for 2 days until I was dehydrating. I hope you changes get wider coverage so others may get the help they need sooner. John
  3. stockflyer

    Very cool. Never been to a drag race. Been to Indy 500, used to live nearby. Been to dirt races, local races, nascar. Formula 1 when it came to detroit a few year back. And don't forget the demolition derby. My dad would sometimes serve as pit crew on local races. Got into pits a few times that way. Regarding the light therapy. I would start with learning what it is about and see if it fits your issues. The book I read that introduced me to it was The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity by Norman Doidge It has a chapter in there about light therapy and what it does, used, etc. I decided I was willing to try it. Now this may sound crazy, but I found a light system for sale my Kohl's and used my wife's 30% off coupon. They can't sell it as a medical device without getting FDA approval, but as a facial thingy, no problem. It was the reVive Professional Panel Light Therapy System I have to pay for my therapy sessions, so this was like 2-3 sessions so I figured I had nothing to loose. I think I started to show improvement on my dizziness after about 3-4 days of using 2x a day. I used it for another year or so before I felt I wasn't getting additional help. I had one headache that lasted 2 yrs, 24/7 except for 1 day. It helped with my headache to reduce the pain. There are offices that also do the therapy and it is probably better than my approach. Hope you find the magic trick.
  4. stockflyer

    No kidding. Hi Ed did you ever do any light therapy for the dizziness? I bought one and it helped my dizziness quite a bit. I had a constant headache but my neurologist has gotten is down to normal. Been dizzy free and headache free (except a little) for about a year. I still have issues with standing on trampoline and sitting in rocking chair, but I keep working on that and now up to 1-2 min at a time. Way better than 1 sec when I started. Race car, very cool. I always wanted to do that. Maybe we should start the Dizzy 500. Or the 24 hours of La Diz.
  5. stockflyer

    Maybe it would be easier to play your piano music on your flute. 😶
  6. stockflyer

    I still have zero guitar skill too. Of course I started with zero guitar skill. stroke recover is now 3 yrs for me last week. Yesterday I drove for the first time. Light traffic so good time to try. I still have a weak leg and don't know how long I could drive before my leg gives out, but it was immense amount of freedom to see that I could drive into town and do something. My wife was with me to make sure I didn't have issues. Another gain! Only 6 miles, but Yea!
  7. stockflyer

    I'm at 838 days post stroke. Not that I am counting, , 2 yrs, 4 months or so. And I am still improving. Slower today than at day 90 but still improving. Keep track of some of your milestones so you can look back and see them. If you don't you forget you made progress. A year ago I needed the riding shopping carts in stores. Now the smaller ones I can use a regular shopping cart and make it. The year before I didn't go shopping. The larger stores still need the riding cart. But this limitation in time shall fall too. For those worried about me counting days. No worries. I just used Excel and enter my stroke date, today date and the formula to count days. I am not really tracking that close. This was for fun. Have a great day!
  8. stockflyer

    making compost? That has got to be a crappy job! I would like to try that, but don't think it would go over with my neighbors.
  9. stockflyer

    Reading is fantastic. I used to do that pre-stroke. Read lots. Now with my headache I usually get about 20 min. at a time. I took up my 30 year old stamp collection and started that again. It is nice since I can "travel the world". Right now I am working on Greek stamps. I stop and learn a little bit about the stamp the year there etc. I have found out about the leaders, wars, different taxes they needed and was added to stamp. I found out when they invaded Turkey and issued stamps for a few years for use in that territory. Massive inflation. Their stamps used to be a few lecta? to a few Drachma. I put in a my album a stamp that was 5 million drachma. Now that is inflation. A few years later they devalued the money and the stamps show it. Similar to pre-WWII German stamps were in the millions of Marks because of their inflation. (picture goes here, but haven't learned how yet) Pictures of sites, artwork, animals, cars, trucks, trains (one of my favorites), etc. So much to stop and enjoy. When you look at years at a time you can see a story unfold. Not as hard for me as reading, and does help with boredom. Unfortantely I cant do it very long at a time before I mess up and have to quit. I also figure it is very good as therapy.
  10. Hi Jay, I think your Daughter thinks of you as a normal Dad, one who can still help. She doesn't think of you as a handicapped person that needs her pity. All in all I would have to say, good job. Now just ask her for a lift to the second hand stores so you can look for a table.
  11. stockflyer

    Hi TS, I'm not living with a lot a people much older than me. But I know what you mean. I'll go down to the Older Person's Center here and I'm usually the youngest by 20 years or so on avg. Some I really like to visit with but others are a PIA. Always critical about everything, with never a kind word for anyone. I leave the room too. Not sure what you issues are and limitations are, so have no ideas for you, but I think we all have those days. I'm kinda having one today. Just exhausted and too tired to really do anything. Hate those days. anyway, Have a Great Day! John
  12. stockflyer

    Congrats on the 10,000 steps. I am working up to that goal to. I still want my goal to walk the Appalachian trail. Probably can't happen, but if you don't try..... Again, good job, Have a Great Day!
  13. stockflyer

    Hi Smarshall, Thanks. My headaches, are more appropriately called my headache. As in 1. I always have it, over 1 1/2 years now. It only varies in intensity. Low, med, or high. Low in morning. The med or high after that. If I exert myself the headache go up. If the weather changes it is terrible. Can't go to sleep at night partly because of the hurt. Tried all the over the counter pain killers and some other things. Nothing helps yet. These pills are about $10 a month for me. But with the pain I am always having I would consider any amount to give me a normal day. Good luck on your garden. Hope you don't have deer, rabbits, or groundhogs nearby. Last year I did a little bit of gardeing in the yard. 2 tomato plants, and some zucchini. We got none. The deer ate all the blooms on everything. I did a little container gardening on our deck. And nothing ate it. I couldn't do much last summer. Only few months after stroke and had a lot of trouble, but it was nice to sit around the plants. Got tomatos, lettuce, eggplant, basil, brocolli, sage. Not like my bigger garden, but was achievable. I still need a lot of help in our garden so we will see how far I really get.
  14. Hi, I thought I would write more often, but this seems to be the pace. I stopped going to our Older Persons Center (OPC) where I would work out on the rehab exercise machines. I was trying to see if I could get off Ambien and get my head to quit hurting all the time. It is so tiring. So far no luck. I went to a new neurologist last month who specializes in chronic head aches to see if there is another approach. She has me on Pamelor which is supposed to make you sleepy. Not me, just kinda excited, but very tired. Weird. But I have to build up the dose over a few months to see if there is improvement. It's some sort of antidepressant, but fortunately I don't need it for that. S'pposed to help with nerve pain and interupt the feedback look for pain. If not, then try something else. Social security decided that I was disabled. I thought I would be glad to get that decision. But it created weird feeling. I know I am disabled, but I don't want other people telling me that. It seemed like a jail sentence. It was faster decision than I thought it would take, guess I am more messed up than I thought. Oh well, I keep telling myself I will still walk the Appalachian Trail, so maybe something will happen. So far I've only walked a few hundred yards on that point between Tennessee and North Carolina, pre-stroke. It's time to get the garden started. Got some seeds planted indoors. Now I have to build a cover for my garden so that deer, rabbits, and ground hogs don't eat everything. This has been a constant battle. Hopefully I will get more of my vegs than I give to them this last year. Animals 100, John 0. I saved some tomato seeds from an Heirloom a few years ago and decided this year to try them. They have started to grow. first step. Now to grow them and see what I got. I don't know what they are. In my haste back then I only labeled the envelope heirloom seeds. Duh, what one? Sometimes I get so frustrated with me. Why did I think I would remember the type? Oh well. If I can get them to grow and the deer don't eat the blooms like last year, I will find out if they are cherry or larger. I am hoping they are cherry. if so I know they are Ruby Pearls. So have been the best small cherry - grape sized I have ever eaten. So sweet. Others are good, but these are just a little better. I'm always open to better ways to garden, so if you have tricks, I'm all ears. Thanks, all for now, Have a Great Day everyone!
  15. stockflyer