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stockflyer

Stroke Survivor - male
  • Content Count

    90
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    United States
About stockflyer
 
 
  • Rank
    Member
  • Birthday 07/26/1959
 
Contact Methods
 
 
  • Stroke Network Email
    Yes
 
Shared Information
 
 
  • Stroke Anniversary (first stroke)
    10-18-2015
  • Interests
    family, travel, hiking, garden, stamp collecting (traveling the world), reading, college football
  • How did you find us?
    Other
 
Registration Information
 
 
  • First Name
    John
  • State
    MI
  • Country
    United States
 
Recent Profile Visitors
 
 
1,463 profile views
 
  1. stockflyer

    I watch exercise videos and do a little workout to that. I usually turn on some exercise show with some good looking women. I call them my girls. As in " I'm exercising with my girls". or My girls really worked my legs hard today!
  2. Tracy that is awesome. As a survivor of a cerebellar stroke too I know exactly what you mean. The nurses kept telling me FAST. I kept telling them. Look no face drooping, no paralysis, no speech issue. I woke up in the morning after the stroke. Happened during my sleep so I thought I had a really bad case of the flu. super dizzy and vomiting. Couldn't walk, etc. Didn't get to hospital for 2 days until I was dehydrating. I hope you changes get wider coverage so others may get the help they need sooner. John
  3. stockflyer

    Very cool. Never been to a drag race. Been to Indy 500, used to live nearby. Been to dirt races, local races, nascar. Formula 1 when it came to detroit a few year back. And don't forget the demolition derby. My dad would sometimes serve as pit crew on local races. Got into pits a few times that way. Regarding the light therapy. I would start with learning what it is about and see if it fits your issues. The book I read that introduced me to it was The Brain's Way of Healing: Remarkable Discoveries and Recoveries from the Frontiers of Neuroplasticity by Norman Doidge It has a chapter in there about light therapy and what it does, used, etc. I decided I was willing to try it. Now this may sound crazy, but I found a light system for sale my Kohl's and used my wife's 30% off coupon. They can't sell it as a medical device without getting FDA approval, but as a facial thingy, no problem. It was the reVive Professional Panel Light Therapy System I have to pay for my therapy sessions, so this was like 2-3 sessions so I figured I had nothing to loose. I think I started to show improvement on my dizziness after about 3-4 days of using 2x a day. I used it for another year or so before I felt I wasn't getting additional help. I had one headache that lasted 2 yrs, 24/7 except for 1 day. It helped with my headache to reduce the pain. There are offices that also do the therapy and it is probably better than my approach. Hope you find the magic trick.
  4. stockflyer

    Hi Eainah05, I don't know about how marijuana can help you. All I know was that I was ended up going to 3 different neurologists trying to find someone who can help with my 24/7 headache. I joked that I had only 1 headache since my stroke, but I had it for 2 years. Constant pain. If the 3rd neuro couldn't fix me I was going to try marijuana. But she put on on a drug, reduced headache a bit, did a couple others each one helping. Then sent me to a clinic who focused on brain headache massage techniques. Went there 3 or 4 months and I have been fine. Still some headaches but far more normal. If you can try to find a neurologist who focuses on pain. I hope you find relief.
  5. stockflyer

    No kidding. Hi Ed did you ever do any light therapy for the dizziness? I bought one and it helped my dizziness quite a bit. I had a constant headache but my neurologist has gotten is down to normal. Been dizzy free and headache free (except a little) for about a year. I still have issues with standing on trampoline and sitting in rocking chair, but I keep working on that and now up to 1-2 min at a time. Way better than 1 sec when I started. Race car, very cool. I always wanted to do that. Maybe we should start the Dizzy 500. Or the 24 hours of La Diz.
  6. stockflyer

    Maybe it would be easier to play your piano music on your flute. 😶
  7. stockflyer

    I still have zero guitar skill too. Of course I started with zero guitar skill. stroke recover is now 3 yrs for me last week. Yesterday I drove for the first time. Light traffic so good time to try. I still have a weak leg and don't know how long I could drive before my leg gives out, but it was immense amount of freedom to see that I could drive into town and do something. My wife was with me to make sure I didn't have issues. Another gain! Only 6 miles, but Yea!
  8. stockflyer

    Hi Magilla, go ahead and vent. after what we've all been through, I for one, am OK with you venting. I've lucked out and don't get too depressed. But I still suffer a lot of exhaustion many days a week - so much so that I can't even hold a job. But maybe if I could find one that paid full time wages for about 1 hr a day effort I would take it. 🙂
  9. stockflyer

    Hi Tracy, Congrats on the car wash. Remember that counts as a therapy session. So for the pain, effort and whatever else, you accomplished more in that session than in some others you pay dearly for. You have just started the rewiring of your brain with that new effort and next time will be easier. Now, you can tell people you were trying to be frugal, but I just tell them it was a necessary therapy that I went through. After stroke I couldn't cut my yard anymore. The year before I bought a new Toro that I had been wanting for years. Now I couldn't use it. My wife and daughter said they would cut the yard. But both work full time and that lasted the first week. Then I was down to hiring it out or finding a riding mower I could use maybe. Went to lawn dealer and found that the regular riding mowers I couldnt use but the zero turn I could. My legs are weak but the zero only requires a light touch with hands. So we bought it. The constant turning around in the yard made my diziness go insane, and I could only do about 1/2 yard at time. But now 3 years later I can turn, not much diziness, and do the whole yard in one go. Figured each session was a therapy session. And since I have a high deductible plan, had to pay about 3000 /yr for my therapy. Paid for a mower. And I save 700 a year if hiring it out. Plus the satisfaction of feeling a bit more normal.
  10. stockflyer

    looked at your photos. Really nice. Is that you and your wife at the Escobar? I also see you eyeing the McD's
  11. stockflyer

    Hi Alan, That is awesome. I'm am so impressed. I still have a ways to go. I can't get on a boat yet. Or a rocking chair. The movement messes me up in the head. I just got a small trampoline over weekend to practice and see if that will help me get over it. Busy over weekend so not assembled yet, maybe today. Not sure what a squat machine is. But 160 pounds on any machine sounds pretty impressive. My walks though are getting longer. I did 2 miles last week with my walking sticks. Can't barely get 100 ft without them. But still getting tired easily.
  12. stockflyer

    Hi Alan, that's awesome dude. I hope it all goes well. When you get back, let us know what you did, pictures, any learnings about traveling. I would be very grateful with what you find out. I would like to travel again, but with my issues I can't deal with being in a rocking chair let alone a boat. I am still working on riding long distances in a car. Few months ago was able to go 250 miles, but it was rather painful on my brain. Can't get to my Mom's yet, need to handle about 7 hrs in a car. I'm hoping to get past that so I can fly again. Still need to get my wife to Germany and other points. Long delayed vacation. Have a Great Day!
  13. stockflyer

    I can so relate to what you guys are talking about. Struggling to get stuff done. I am almost 3 yrs in and still tire pretty easily. I have taken to do the dishes every morning. load dishwasher and hand wash the rest. Then rest for a while. Just got a stick dyson sweeper. Lighter and quieter than our other one. I can move it. I can move around a bit and get the floor swept. And then rest. Take a shower, then rest. I wish I could take a nap but that is something that I lost with the stoke. I can move around the house without a roller or cane but always use one when going outside. Balance is just not that good. Today I was able to rototill a part of my small garden. After a few minutes was totally exhausted. Muscles very sore, and I rested for the last 7 hours. Just too tired to do more. But it was a great feeling that I could do that now. Couldn't last summer. Needed help with that. Will finish the garden some other time.
  14. stockflyer

    I'm at 838 days post stroke. Not that I am counting, , 2 yrs, 4 months or so. And I am still improving. Slower today than at day 90 but still improving. Keep track of some of your milestones so you can look back and see them. If you don't you forget you made progress. A year ago I needed the riding shopping carts in stores. Now the smaller ones I can use a regular shopping cart and make it. The year before I didn't go shopping. The larger stores still need the riding cart. But this limitation in time shall fall too. For those worried about me counting days. No worries. I just used Excel and enter my stroke date, today date and the formula to count days. I am not really tracking that close. This was for fun. Have a great day!
  15. stockflyer

    making compost? That has got to be a crappy job! I would like to try that, but don't think it would go over with my neighbors.
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