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Staff - Stroke Support
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About HostTracy

  • Rank
    Senior Mentor
  • Birthday 12/02/1971

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  • Stroke Network Email

Shared Information

  • Stroke Anniversary (first stroke)
  • Interests
    Improving my organizing and planning skills, spending time with my cat "Kitty", spending time with my family, being involved in my local stroke support group, the brain, and giving support to other stroke survivors or anyone that i can.
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    United States

Recent Profile Visitors

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  1. HostTracy

    Christmas 2019

    I decorated for Christmas this year. Several DIY things.
  2. http://www.strokechat.net/
  3. HostTracy

    My love and prayers for your loss Pam. Just as many joyous smiles for such a heartfelt recall of your friendship. Very special memories. Thank you for sharing.
  4. HostTracy

    Happy Friday night. The CoffeeShop is open! ☕ http://www.strokechat.net/
  5. CoffeeShop Chat is open! Come on in! http://www.strokechat.net/
  6. Hey everyone I will be hosting Coffee Shop Cat tonight in about 15 minutes. 😊 See you there! http://www.strokechat.net/
  7. HostTracy

    1. When I had my stroke/symptoms: Serious Central Vertigo 24/7 for many months. Daily nausea, vomiting. Nystagmus (both eyes). Severe sensory overload. Severe PBA. Severe Post Stroke Fatigue (slept 80% of the time, only up to use a potty chair and to try to eat something at first then after a couple of months to the bathroom and up about 5 minutes at a time a few times a day. Aphasia. Severe lasting headache daily. Severe defecit in proprioception. Ataxia, dysmetria of movement, thought, emotions, everything. Unable to stand or sit upright or hold my balance. Movements were very slow, fingers didn't grasp right, intentional tremor, my voice became a whisper, wrote very small and could only do for a short time and it was chicken scratch, speech slurred, couldn't follow verbal or written directions very well at all (got them out of order or forgot them or left some out or just didn't see it). Lots of Cognitive issues, defecits in executive function, trouble with metalinguistics, visual spatial issues, trouble with mood regulation, issues with working memory, everything in my world moved even if it was stationary (at least that is what my brain decided). Cerebellar Cognitive Affectice Syndrome. Cerebellar Stroke Syndrome. Psychiatric issues. Severe anxiety with panic disorder. OMG too much...my brain hurts. 2. Most defecits and symptoms have improved a lot especially the 1st 6 months. The nystagmus went away. I was not diagnosed during my acute stroke even though I was rushed to the hospital by ambulance (2 months BEFORE diagnosis and any treatment or therapy OT, PT and ST.). I had a very rare stroke. Today on most days I can walk, talk, use all 4 limbs, drive and maybe just looking at me you might never know. Every defecit except Nystagmus is still there but I have learned to compensate many. My defecits change daily or even several times daily. I have good days, bad days. Anything that stresses or tires me will increase my defecits and their severity. I still have a lot of Psychiatric issues and see my Psychiatrist every other month and have Cognitive Behavior Therapy weekly. 3. A little over 4 years ago... 7/5/15. 4. Massive Bilateral Cerebellar Embolic Infarction in the PICA region. (Posterior Inferior Cerebellar Artery). Mark I'm not sure if this makes sense and I'm too tired to reread it because I wrote a book lol. 🤓 Say hello to my little brain. 😒
  8. HopeE

    Why do I have so many changes ! in my behaviors?

    1. Show previous comments  7 more
    2. HopeE


      I talked to my counselor yesterday and he recommends something called Cognitive Rehabilitation. I am going to look up what this entails. There are several places that provide the services. 


      I am going to try calling VCU today. They have a similar program. I need to look into what their program offers. 


      Have you tried these types of programs? 




    3. HostTracy


      Hope that sounds great! Yes... I again very much relate. I actually see my Psychiatrist every other month. I see my therapist for Cognitive Behavior Therapy once per week. So yes I think. Mine will be ongoing. Let me know what you find out. Thanks for giving me an update it's nice to talk with you. 🙂

    4. HopeE


      I have found some Cognitive Behavior Therapy places. I have not looked into their methods. 

      Have you found any ways that you found helpful? I just started to look at some of the ways to understand the concepts. I am going to look through more to see if they are different or better.



  9. http://www.strokechat.net/
  10. HostTracy

    Haha Will I might can accomodate that! I'm sorta surprised too lol and thank you very much. I think I did pretty good myself...serene - yes that is what I was trying for and my body loves it! Im looking I know I have a picture somewherelol!
  11. Deigh send Kelli an email and I bet she can answer your questions. 🙂
  12. HostTracy

    🙌🏻🙌🏻🙌🏻🙌🏻 Sounds wonderful!
  13. Willis

    Enjoyable art work and great imagination. I looked at all of them a few times already. My artistic talent is pretty limited to stickmen. Ha-ha

    1. HostTracy


      Willis mine is limited to 30 years ago haha. I haven't really dabbled in it since and thank you. 🙂