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HostTracy

Staff - Stroke Support
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Status Replies posted by HostTracy

  1. Why do I have so many changes ! in my behaviors?

    1. HostTracy

      HostTracy

      Hope that sounds great! Yes... I again very much relate. I actually see my Psychiatrist every other month. I see my therapist for Cognitive Behavior Therapy once per week. So yes I think. Mine will be ongoing. Let me know what you find out. Thanks for giving me an update it's nice to talk with you. 🙂

    2. (See 9 other replies to this status update)

  2. Why do I have so many changes ! in my behaviors?

    1. HostTracy

      HostTracy

      I really relate so much. I have severe sensory overload or flooding so lots of noise, people, movement, lights, bugs 😬, you name it. I work best one on one. I am very sorry to hear about your mom. I can completely understand why anger is a big obstacle. On one hand, I know that limiting my environment (keep my focus on one thing at a time) can really help me to especially avoid anxiety. On the other hand, I feel sort of anti social, alone, I don't like people (sort of embarrassing but true), and I definitely have little control over my emotions due to the stroke. Mine is due to ongoing PBA and Cerebellar Cognitive Affectice Syndrome. I have a Psychiatrist and therapist and take meds. Anger is not uncommon after many different kinds of strokes. Same as depression, being overemotional, apathy, etc. It's really hard to go from being "normal" to having a "new normal". It's frustrating, no one understands, not even me, it's lonely, it's tiring, I miss the old me and I'm freaking mad that I can't make it all better, I'm mad that there is not a 100% fix... So much more. I think this is very natural to feel and lack of control can feel infuriating. It is also a part of grieving...yes you grieve "the old you". It's a process almost all survivors go through in one way or another and it is different for everyone. Don't knock getting a therapist, Psychologist or Psychiatrist...they can be super helpful in many ways. This journey after stroke is VERY DIFFICULT... and it's not a fun ride to be on. I feel like I'm not answering your question very well 😊. You are more than welcome to ask me anything and I will do my very best to help or get help withe topic. You let me know 🙂

    2. (See 9 other replies to this status update)

  3. Why do I have so many changes ! in my behaviors?

    1. HostTracy

      HostTracy

      Hi Hope 🙂 may I ask what changes you have had? Where was your stroke (what area of brain)? In 2015 right? When did you notice the changes? When the stroke happened or more recently? I might can help with some ideas or point you in the right direction. 

    2. (See 9 other replies to this status update)

  4. Enjoyable art work and great imagination. I looked at all of them a few times already. My artistic talent is pretty limited to stickmen. Ha-ha

    1. HostTracy

      HostTracy

      Willis mine is limited to 30 years ago haha. I haven't really dabbled in it since and thank you. 🙂

  5. Please stop to say Hi! I have been away for some time have stayed in touch via Facebook,Twitter, Pinterest.

     

    1. HostTracy

      HostTracy

      Hi Pat my name is Tracy and it's a pleasure to meet you. Hope you are doing well! 😊

  6. I am from Bristol, Tennessee! Home of Bristol Motor Speedway! (The world's fastest half mile track)

    1. HostTracy

      HostTracy

      Yes yes yes absolutely!!! I will not forget! 😀

    2. (See 3 other replies to this status update)

  7. I am from Bristol, Tennessee! Home of Bristol Motor Speedway! (The world's fastest half mile track)

    1. HostTracy

      HostTracy

      OMG that is awesome! I have driven through (close anyway) many times! It is great talking to another fellow Tennessean! and it's you! 

    2. (See 3 other replies to this status update)

  8. Hi there Tracy, I got up early to try the chat site but it looks as though everyone has gone to bed!

    Deigh

    1. HostTracy

      HostTracy

      Hmmm I'm not sure who hosted today Deigh but I can see what may have happened. Have you been able to get in the chat room at all yet? I k ow you were having problems I'm talking with Steve and hopefully we will come up with a solution. I'm excited that you tried this morning 🙂! We will figure it out. 

  9. Hello and what the hell are you doing up, you should be in bed :)

    Hope to chat soon, Im just trying to get some things taken care of in my life

    TTYS

    Ed

    1. HostTracy

      HostTracy

      LOL I know right 😂. I hope you are well.

      TTYS

      Tracy

       

  10. I made seven years, on August 21, post stroke. I was having some minor surgery done when I had a hemorrhagic stroke. Thank the Lord I was right across the street from the new stroke trauma unit. The bleed stopped on it’s on, so I didn’t have to undergo surgery. To be honest. I don’t really remember much. The doctors didn’t really know what caused it. I don’t have high blood pressure, diabetes, or at that time, wasn’t really overweight. I can’t say that about my weight now. I really need to lose around 50 lbs. I still don’t have the blood pressure or diabetes. I am going to see a dietitian to see what to do. It’s hard for me to cook and when my husband gets home from work, he is tired and doesn’t feel like it. My left side was affected and I don’t have any use in my left arm and hand. You don’t really realize how important it is, until you need to use it. Just the smallest of things. So, if anyone has some really good recipes, please send them this way.lol!

    1. HostTracy

      HostTracy

      Don't you worry for a minute about posting anything on a rough day. You are not a pity pot. Stroke is hard! I encourage you to let it out...it's not about being negative or a downer. The good news is that we are all here with you, here to support you, here to listen, here to understand, here to answer questions, here to reassure you that the way you feel and the way you struggle is valid...don't go through all the hard times alone...please. 🙂 We want you to share and know how important it is to be accepted and especially not alone. I have the bad days still after 3 years...when I am in the middle of one this is my go to for support. Now, I can step off my soapbox lol. How is the botox going? helping? I hate to hear about your RA my step mom also has this, thankfully it is behaving really well right now. Man, I know what it is like to be bombarded by visits to the Dr. all the time. I also get not seeing your old friends around...fatigue for me has been a big factor as well as my own intolerance of people now lol. It's true, I pretty much stay to myself. I don't like it but I know for me we don't relate too much anymore. Oh the fatigue!! It's real!! Today is a full out rainy, gloomy day...all my mind and body want to do is sleep. Anyways, thank you for the update and I hope you feel better soon. Don't hesitate to mingle in and share, we are pretty nice for a group. 🙂 Talk to you soon.

    2. (See 4 other replies to this status update)

  11. I made seven years, on August 21, post stroke. I was having some minor surgery done when I had a hemorrhagic stroke. Thank the Lord I was right across the street from the new stroke trauma unit. The bleed stopped on it’s on, so I didn’t have to undergo surgery. To be honest. I don’t really remember much. The doctors didn’t really know what caused it. I don’t have high blood pressure, diabetes, or at that time, wasn’t really overweight. I can’t say that about my weight now. I really need to lose around 50 lbs. I still don’t have the blood pressure or diabetes. I am going to see a dietitian to see what to do. It’s hard for me to cook and when my husband gets home from work, he is tired and doesn’t feel like it. My left side was affected and I don’t have any use in my left arm and hand. You don’t really realize how important it is, until you need to use it. Just the smallest of things. So, if anyone has some really good recipes, please send them this way.lol!

    1. HostTracy

      HostTracy

      Hi CayCay, my name is Tracy....3 years post stroke. Mine was ischemic and they never figured out why either. I just wanted to welcome you...and if you need anything please don't hesitate to ask. This is a really great bunch. I consider them an extension of my family pretty much. :hello:There are lots of forums, scheduled chat, lots of info, blogs, pics in the gallery, and many other things. It's very nice to meet you.

    2. (See 4 other replies to this status update)

  12. Heather, you stated in a response that you had been ill?  

     

    1. HostTracy

      HostTracy

      Wow Heather I am so glad you are now home and on the recovery. I bet that was a big scare for everyone. I hope all goes well with your recovery and if you have the gall bladder removed. Keep us updated when you can.

    2. (See 3 other replies to this status update)

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