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Stroke Survivor - female
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About tmciriani

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    Chief Mentor
  • Birthday 12/02/1971

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  • Stroke Anniversary (first stroke)
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  1. tmciriani

    Janelle, me either. I mean I used to could speak a bit of Spanish but today I am doing great just getting English lol. 😨
  2. Just keep your Dr. aware of any worries or concerns. That way he/she can monitor the changeable risks associated with stroke. It's pretty common for me anyway to worry of having another stroke. I am sure having a TIA could cause the same anxieties. There are certain risks you can lower and some you can't. It may help with peace of mind to work side by side with your Dr. to know your risks and is there anything you can do to lower them. I also recommend meditation to calm your mind. Worrying less about stroke will help you to really live life and enjoy it without fear and hesitance. I wish you all the best.
  3. Talk to your Dr. about your anxiety. It is a factor that should be watched and/or treated. There are many kinds of treatment. Anxiety can make that blood pressure climb high and other things as well. Ask if you should maybe see a Psychiatrist. Then be brutally honest of your symptoms...no sugar coating...it's important. I hope you feel better soon.
  4. tmciriani

    Yay I did find out today that the manufacturer is providing this med for me free of charge. I go back to my Psychiatrist Wednesday and hopefully he has samples or maybe he receives the med. The lady said it was in the process phase so it would reach my Dr. In 24-48 hours. I'm excited about its possibilities. It could help a lot.
  5. tmciriani

    Kelli! Great big hugs, I have been thinking about you all week. Sounds like you are coming up with a good plan to help you transition. I am so proud of you!!!! May you get much needed rest and recuperation before this next week. You've Got This!!!
  6. tmciriani

    Pam so you are doing an electrode trial? I think you have said you do feel improvement. Have you found that it always lasts a certain amount of time? What are the future plans for yourself do you think about? Does your Dr. intend on continuing the treatment? I'm sorry for so many questions, I honestly am just curious. I also hope that you will find some lasting relief! This could help so many people! I don't know everyone it could help but I do know you. I think about you all the time and if this is something that continues to help you and even gets better I scream "Yesssss!".
  7. tmciriani

    I say keep talking and following your Medical team. I say the same to any survivor. Also do your part to better your chances for a long, blessed life whatever it may be. I never want to judge another's decision, I only hope and encourage you always be proactive in your quest. I agree with you, do your own research and know what you put into your body and what the side effects are or can be. Informed. 🙂 Hugs to everyone and have a great weekend!
  8. tmciriani

    Pam...have it printed and laminated then place it on a background of one of your beautiful collages. I said this yesterday...I am my own best advocate period. Your boundaries are very valuable. I say put up your electric fence. May your day and your next be peaceful. 🙂 Just keep hearing me say that last sentence in repeat every day.
  9. tmciriani

    Ruth I read your post with tears. I see you as so strong...Not many could feel your shoes. I pray that peace finds you both and your family. As a survivor, I can only hope that if in a similar situation that I have the love and support that you have been for William. I hope that sends a message of peace...I know I would be truly blessed and held (when I need it the most). I have you both in my thoughts and prayers. I'm so glad you are thinking about the future. I bet William is too. Hugs friend.
  10. BTW your son is 16...they're not always saying the brightest of answers yet. 😉 He hasn't accepted the notion that his Dad is probably pretty wise yet. Typical! My daughter is 22 and she's still smarter than me...and she never calls me! I have to call her and pray that's she'll answer...then when she does answer I have to pray again that she is actually in a conversation with me and not the game she is playing, her cat, or her weird boyfriend. Yes, he is weird...dont judge lol. Also the dumb ex well he cheated on me with a 24 year old bimbo <---- I know I am a little judgey I suppose. He'd been working on that for a good two months. Not that any of my scenario is any worse than yours just saying...many of us have been through some pretty smelly crap. Now let's dance!
  11. Ed I really hate that you have experienced these things. One thing I do know is that when a loved one...a husband, a dad, a mom, a brother, a sister has a stroke it affects everyone they love and who love them. Not saying at all that certain things are acceptable, just know the reality of it is truly tough. I hear many times too "Its all about you!". I have run through the ringer of emotions about this statement. I have made a point to listen to myself and what I share with my family, etc. I figured out that I do talk about it all the time...probably every day. It sorta is all about me because I am living it everyday...like a slap in the face. The people I share my "things" with hear me over and over. I know it's nothing compared to feeling it over and over. I lost a 10 year relationship (ok so it was the best thing for me), all of my former friends and co-workers have all but disappeared from my life, my daughter who now treats me nice most days moved out because she was tired of me and her bumping heads, my dad is a jerk (dear God I love him but he says cruel, uncaring, demeaning things to me and I live in his house for now...so I feel like Cinderella before she became beautiful), my biggest support is my mom and even she gets angry with me for reacting to something I can't control so she keeps things from me. I sometimes don't feel like I belong at all. You just remember that those around you who have not had a stroke themselves can not understand. Sometimes it makes them angry, grouchy, mean, distant, and many more things. I again have sorta stepped back from what causes me pain. Anti social...I own it. I don't like it really...I've always loved people. I feel lonely. Surround yourself with positive people for you in your life. You can't fix how others deal or grieve or react but you can control how you receive it. It's painful, giving someone space that you need so much is so hard. Surround yourself with positive people. Join group therapy stroke support (I love it), online support like here, a local YMCA, foster friendships with other stroke survivors its healthy and can lift your spirit. I understand and I know so many here do too. It feels so unfair...maybe it is I don't know. I do know that it gets better over time. Time is the key, and like so many of us we are impatient...but I see it in others who have been survivors for a good while. They are more than their stroke and so are we. We just need time to heal the loss...it's a very big loss. Keep your chin up, smile, laugh, allow yourself to feel the good things around you. We are doing the same! Tracy
  12. tmciriani

    Pam I love how you think things out. Oh the inner child...call her to come play often. Sometimes she is stubborn but she only knows to bring with her the good feels. I like my inner child 👑 she brings bravery with the simple gift of freedom to feel joy. It's pure, it comes from the heart. So I say bring out the colors and make beautiful art until your heart is replenished!!
  13. Ok so Russ, are you saying you had your first dream since your stroke or something that has just flew right over my head lol? That happens. I actually have had the most vivid, realistic dreams ever since my stroke. Definitely weird ones too! I find myself still thinking I'm in my dream when I wake up. Sometimes can take a few minutes to come back to reality. Well that is my after stroke dream experience...it may be totally invalid to your statement but now you know. 😄
  14. tmciriani

    Thank you truly Nancy. 🙂
  15. I can say I have done both...exclude and learned to smile, nod play the quiet part. As much crap I get from my dad (yes he is not nice) I am living with him and his wife for right now (disability hearing next month say a prayer for me). So I have to put walls up and truly be a anti social quiet warrior lol. Last time I lost it I pointed to the lower back of my head and said "See brain? DEAD!!! DEAD!!! DEAD!!! B R A I N D A M A G E!!!". Oh Lord I am glad I can laugh about it today. That was maybe a month ago...I would have rather taken my shoe off and bopped him over the head but I am civilized. I too have experienced the nagging, fussing, I don't want to hear about it, you're making excuses, something is wrong with your thinking, you are fine, blah, blah, blah. For my own sanity I have done both. Taken myself out of the dynamic or basically appeased who I needed to with deaf ears. Neither always work but they do enough where I am more in control of my own thoughts and actions. Both done out of necessity for my own sanity. I understand you both.