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Stroke Survivor - female
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About tmciriani
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    Chief Mentor
  • Birthday 12/02/1971
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  • Stroke Anniversary (first stroke)
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  1. tmciriani

    😧 Oh my goodness...this hurts my heart. I never had the pleasure of meeting Denny but I have spoke with him so many times in chat and we are friends on Facebook. He was always so welcoming and helpful in any way he could be in the chat room. I know many have met him there. My prayers for his family and friends. 🙏 Denny will be missed so much.
  2. tmciriani

    Yes I've read some of the negative effects. I'm definitely talking to my Doctor.
  3. tmciriani

    Becky knowing that I am already diabetic makes me even more concerned.
  4. tmciriani

    That is something to talk about with my Dr. Becky...thank you.
  5. tmciriani

    I haven't tried that yet. My Neurologist says this is one medicine I have to stay on after my stroke. That and aspirin 325mg. My stroke was cryotogenic so no found cause. I see my PCP next month and it is on my list of concerns...the list is more essential than ever right now.
  6. tmciriani

    I understand that Heather. I may feel great after but during I feel every ache and knot. My therapist used to put a body heating pad on me for about 15 minutes before kneading into my muscles. 😰 Owww!! The use of the warmth loosened my muscles a bit before we started. It always hurt though. Massage is so connected to bliss...for me I can understand that afterwards.
  7. tmciriani

    Same here Benni...this is new to me. I sure hope you get an answer and let us know. I'm like you surely you aren't the only one...I wouldn't think.
  8. tmciriani

    Welcome Kris. Glad you are doing so well already. Please feel free to ask questions, tell your story, vent, check out the forums, blogs, gallery, stroke information and facts as well as new strides in medical field. Oh there is also a survivors and caregivers chat (the schedule should be under member dropdown menus). My name is Tracy (massive bilateral cerebellar infarction 7-5-2015) and I'm very glad to meet you.
  9. tmciriani

    Anyone else have increased cognitive issues after a small increase in Simvastatin or another Statin? The first week after I ached all over and had increased joint pain but that seems to have subsided. However, cognitively I feel worse...just forgetting more easily, forgetting what I'm doing, word searching increase. I simply feel out of sorts, in a fog, and more neurofatigue. I can't think of anything different when this started except that dose increase. It is still a relatively low dose...20mg.
  10. I know I do that. I find it the best way to see my strives and how far I have come. I also do that sorta by keeping a very detailed planner. My speech therapist spent many weeks helping me to build a habit. I can see where I made leaps of improvement and in more recent times overlooked improvement. It's all filled with good and bad. I am glad I have these.
  11. tmciriani

    Eh, I have the sequence issue quite often. Sometimes with stuff before the stroke. Many times with stuff after the stroke. It doesn't help that my memory (short and for the past 3.5 years) is not so good. I totally remember having the stroke but once I was in the ambulance it's all blank. 24 hrs later I can remember pieces. I don't have clear memory of all after that. Fleeting thoughts, random facts, moments. I can also forget what I went to another room for, an important thought in the blink of an eye, what day and date it is. I might spend a bit of time telling someone something with a very concrete point and the in the middle just say " Well that thought is gone" lol. It's also like it is all in there (my brain) but is stored in a secret file that only opens for so long. The brain is weird. I also tend to remember things out of place time wise. I catch myself sometimes in the middle of not realising which time is right. It's confusing for others and has caused arguments lol. So I mostly just say I don't know during those moments.
  12. tmciriani

    I couldn't drive for over a year I think. I don't know if I should have when I did. My balance, proprioception, plain dizzy feeling all the time, eye issues...but in Tennessee they don't suspend your license. I just tried one day. After that, Adian took me driving in empty parking lots for a while. Then rode with me for a while. I finally started driving on my own...scared the carp out of myself all the time. Over time it got better but I still am a bit swervy between the lines...especially at night. I think each state has their own laws about that. I'm glad I could try to drive when I wanted to but I'm not sure it was the safest thing to do.
  13. tmciriani

    Oh Pam...I feel for you friend. I needed round the clock protection right after the stroke but then things seemed to act "right". Up until I had a cold. Coughing, sneezing, OMG just seeing the toilet has got me several times. I was hospitalized about a year ago for 4-5 days and on oxygen, had a blinding headache, couldn't sleep. It was awful and I begged for a sleeping pill. Which they did give me. I slept (once I got to sleep at 4 am) until the next day at about 6pm. When my daughter came in to visit. I had been unconscious the whole day, no food, no drink, as far as I know no vitals (I know that is not true). Either way, I woke up with my hair wet on the back of my head. 😱 I had peed a bazillion times through the diaper thingy. My whole bed was wet, my back, my clothes, yes I took a bath in pee. How do i come out of that with a little dignity. Thankfully, I don't remember a whole lot right after the stroke in the hospital. I do remember this (ok fellas this may be too much tmi...just saying. Pop out now if you wanna skip). I could not communicate but for a few single words not thoughts. I lay in that bed unable to walk without having someone on both sides to just the bedside potty in my room. Each time I cried and said "blood". No one understood, and they didn't see any blood until day 2. I went potty and the nurse was like oh my goodness did you start your period. I just started crying and said "blood". You see I had been having female issues and a month long period. 😑 I had a 2 day old tampon still there. I couldn't even fetch it myself. I was given these mesh hospital panties with an enormous pad insert. Hell I just prayed I'd make it back to bed, much less pull anything up or down or replace the inner diaper. So many times I got back in bed with those mesh panties falling off my butt because no one would help me and I couldn't do it. There was no dignity to be had...I was too unable to do more than cry about it. Anyways, I wasn't too exhausted to let the nurse go fish out the old tampon...I was thinking you need a little gross to touch your day. I still have to keep a supply of protection for the occasional need. I'm glad I can complete the needed steps needed to accomplish this. I've been there though...and it doesn't feel good. Dignity loses. It never feels quite right when you need precaution. Being women it is common after childbirth and after years but it still never feels right. Add in what stroke managed to weaken and well...their is no good follow up here. I hope you get it sorted and help when needed. Pam I think I have a little monster in me...I'm just like well no one wants to help me...let's see what happens. 😡 That is lack of dignity talking. (((Hugs)))
  14. Giggles leave it to me to write a dramatic book. Love all your quick to the point posts and I feel they are a big help. What they said Prommie 😁! Spoon theory...that is a good thought. Try reading about the spoon theory Prommie...it explains some things that are difficult to explain. Especially for us who have a limited amount of spoons way after stroke onset. Let us know how it goes. 🙂
  15. tmciriani

    Yes! It's that filter that we all have that weakens after a stroke. It usually will happen to me if I get truly angry, startled, caught off guard. LOL I can curse way better during those moments...without stuttering. This reaction comes from a different place in the brain so it can be quite fluent. I don't mean to be rude or intentionally want to hurt another's feelings. I have blurted (shut up! That's stupid! S&$t, d$@n, and yes even the f word. LOL all in one sentence a few times. If I am communicating with another person I have had to excuse myself when I feel that heat rising on my face. I have embarrassed myself a multitude of times. Thankfully, my family forgives me and sorta overlooks those moments and I have been apologetic to others and explain why and I haven't come across someone who doesn't accept that. I'm grateful!