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Stroke Survivor - female
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About tmciriani

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    Chief Mentor
  • Birthday 12/02/1971

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  • Stroke Anniversary (first stroke)
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  1. I feel the same
  2. Pam yesterday I totally went off track and got 10 chicken nuggets and a Dr. PEpper on my way to Nashville to my Dr. Appointment. I left off the fries thinking it was better that I not eat those too. Well I'm still craving those fries!!!! I should have gotten them but at that time I didn't know I had something to celebrate! My A1c was 6.9 in January and I found out yesterday that my A1c is now 6.3 Not that I needed to start off on the wrong foot but one thing I do not do is beat myself up for cheating. I'm honest. Mmmmm fries!!!!!? Kelli I would share with you. I also found out a little more about my dad. He has non small cell adenocarcinoma and it is extremely close to his esophagus which makes it inoperable. They are worried about 2 lymph nodes very close to the area and there is some sort of inflammation on his lower lung...He thinks from COPD and not cancer. They will have to do radiation and possible chemotherapy...small doses of radiation over a longer period of time so it will not damage his esophagus. Two good things...It is non small cell and stage 1...oh and the Oncologist says he should have a 80-85% chance of cure.
  3. Becky....I have wondered about all those folks.
  4. Thank you Asha. Yes I hope to know more tonight. They told my stepmom what kind of cancer but she can't remember so my sister is going with them today and take notes. Course of treatment will be dependent on the kind of cancer and staging. I have my hopes up that it was caught early. I'll write updates. Thanks.
  5. Oh I really hate that, and yes Asha I miss her. Steve thank you for updating me. Asha if you do speak with her let her know I was asking about her and I miss her. Thanks.
  6. I just got to thinking since I came back from my bit of a break from Strokenet that I haven't heard a word from Linnie. I hope she is ok has anyone heard from her?
  7. Kelli I have to say I'm in awe of your bravery. You took a chance and it was positive. Way to go!!!!! I know your parents were thrilled to take you to get a taste of their musical past. I would have loved to have been there!!!
  8. Thanks Heather...the best thing I can do is try to be positive. Otherwise I don't know how I feel. Being positive is the only thing that can be good for right now.
  9. I have to agree with everyone's comments. For me making a list is really important. Prioritizing is hard for me but if I know it is something very important I will usually give it its own list and focus on that first. It works best for me when I do it everyday and I don't beat myself up if things don't get done I just write it on the next day's list. If I get lax or fall out of habit with this then I revert back to what my speech therapist taught me about planning and accomplishing. I set up my day by the hour...using each hour for a task. I also keep a very important list on the same sheet, I focus more on these. Some days I just can't seem to get the energy to accomplish my list and I know it. On those days I place all my focus on the really important things like disability paperwork or financial assistance applications...these usually have a time limit. Then I reuse those missed tasks on the next days list. As far as getting the gumption to start and finish something I sometimes set a timer, sometimes just do something right then as I think about it or am reminded of it because I went into that room. Sometimes I make myself follow that list and some days I just don't get it done...the key here is to not scold yourself for it. Like you and I have talked about Kelli sometimes I have to rest up to build my energy for something I know is needed to be done but that I know will deplete my reserves and therefore pay some price. Preparing helps to lesson the price. Remove distractions...that will get me every time.
  10. Tonight my stepmom came home and I overheard my dad and her talking about the phone call on Friday about his lung biopsy. Seems the Dr. Had called them both and had given them both the same information that he is positive for lung cancer. So my dad told me a story...He told me he just didn't want to talk about it and that he still knows very little until they go to the Oncologist tomorrow and he didn't want to upset me. They also kept the news from each other...Dad didn't want to ruin her trip to a family members marriage and she didn't want to tell daddy while she was goner so he wouldn't be upset and alone. No matter...my dad has lung cancer. We will find out more information tomorrow.
  11. Nancy it definitely sounds like yours and your husband's worlds are feeling much smoother. That must feel so nice for you both. It's nice to hear you two are finding new and nice ways to cope with whatever life is bringing. I think it is so great that you encourage your husband to want and need to feel useful...that means a great deal to a survivor...and to find things that help with your own responsibilities at work. He is lucky to have you and salute you for going above and beyond. I know it must be so tiring and can be stressful even though. I think it's great that your sister is giving you so much needed help to have time to recharge. Great update.
  12. Just makes me smile! Fur therapy is so under acknowledged...I know from experience that my kitty has been a huge part of my recovery. We all need that unconditional love and a way to smile and laugh and lighten the heart. Congratulations on Leila...I know how much love and affection will grow.
  13. I'm Just Going to Think Positive

    I also wanted to share with you all that my dad is going through some health issues right now. Some scary ones. He has already been diagnosed with COPD 2-3 years ago and a recent chest scan showed 2 suspicious spots on his lungs....one new and one that they had noted before but it has grown. Last week my Dad had a biopsy on the new one. He had to be put to sleep and it was done through endoscopy within his bronchial tubes. He is so blessed to have a negative biopsy and no cancer found in the first spot. This past Monday he had a second biopsy where they went straight through his chest into the lung (he had to be awake because he had to control his breathing for the test). His physician just called this morning and told my dad he would make an appointment for him and my step mom both (she is out of state due to a family wedding) to come in for results consultation. I didn't say a word but I felt inside that it doesn't sound good. I really don't know though. The Dr. told my dad and sister last week that he is 97-98% positive that it is cancer but he has to find out what kind...that will determine treatment. I am just trying to be positive and present with my father while my step mom is not here so it won't trigger his anxiety. Please keep my dad and my family in your prayers and thank you so much if you do. Hugs.
  14. Pure Excitement and Moving Forward

    I just want to share with all of you that I received wonderful news in the mail yesterday. My disability hearing was scheduled!!!!!! The day is October the 25th!!!! Months before I expected. I spoke with my lawyer today and he had really good things to say. He said he was just thrilled at the judge I got. He is really fair, really has concern for others (empathy), is not swayed by age of the person trying for disability (my lawyer says that there are a lot of judges that really look over some because they are younger...under 50), and he is very caring about mental health issues. He said I really have a good chance just because of that. Everything he said was positive. He told me he will be in touch with me at the end of July and we will work on making sure they have all the health records or anything new and that my file is complete. I am really emotional but in a happy way...it is just overwhelming that I feel some positive and I couldn't wait to share my good news with all of you. I pray and dream about the ability to have my own home and to be on my own. I sometimes try to look at home stuff I like and plan and imagine just being on my own and can make my own decisions. Just crying lol. Any positive thoughts and prayers would be so wonderful.
  15. That happy feeling of accomplishment is such a huge motivator for the next time! Congratulations!!! You deserve congratulations for so much paperwork Asha and doing it with gusto!