Benni

Stroke Survivor - female
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Everything posted by Benni

  1. Hi Heather, long time no see! Yes, it can cover a wide range of emotions indeed!
  2. Willis, also this is called emotional lability. The spelling is correct. I find that if I research a stroke related issue, and choose a reputable site, I gain more knowledge about it. Many will tell you what treatments/meds used for it. You probably already know about research.
  3. Are you on anything for the emotions? I have never been a crying person and after the stroke I would cry at the drop of a hat. Doc put me on elavil and within a week all that crap was done!
  4. I tell him "thank you" every time he does anything for me. Don't want him to feel taken for granted. 🙂
  5. Eating is very difficult. I can only stand to have a 1/2 teaspoonful in my mouth at a time -- takes forever to eat! I. also, drink supplements.
  6. My daughter lives in Osceola, so I know South Bend. Docs are still trying to find out. I don't actually have blisters, just the pain of them. Doc chalked it up to nerve pain, but is still hoping to get a certain diagnosis. He thinks it's more than nerve pain.
  7. Newfoundland is very beautiful indeed! Hubs, and friends, are great supporters for sure. I just read your profile. I grew up in Indiana -- Fort Wayne.
  8. I never gave it a second thought when I read your reply. 😁
  9. I have tried edibles, so far they do nothing for me. Plus with my mouth pain (why i'm on gabapentin) they are too hard to chew.
  10. Willis, I had to start taking CBD oil to help me sleep. It works great!
  11. I'm weaning off it now. Been on it 6 months and not helping, just keeps me from sleeping good -- up on and off all night. They should make something that works right away (was in pain for 6 months before I was put on it, I needed relief NOW!
  12. I've learned about that -- I'm up to 900mg per day and it's finally beginning to do its job.
  13. Yes, all topics should be discussed no matter what the problem is!
  14. Hi Janelle! I tried the amitryptiline at bedtime and laid awake all night -- not drifting in and out but wide awake the entire night. After 3 nights, I did some research and found a woman who had the same thing happen. She takes hers in the morning instead. I started doing that and have slept fine now for 5 years. 😊
  15. I was doing really good. Have adapted to my disabilities, and able to do things without too much help. Life had been good until this happened. Grrrr!
  16. Thank you, Kelli, for your input. Doc said it would make me drowsy but it doesn't so far.
  17. Hi Deigh, good to hear from you! Well! That's certainly something to think about! Thanks for your input.
  18. Yes, I was lucky. When I first took it, in the evening, I stayed awake all night. I switched to taking it mornings -- perfect!
  19. Thank you, Heather. Good to know. Yes, I'm on amitryptiline for emotional labillity, it worked right away.
  20. Thank you Will. I am aware of what it's for. It just seems to take so long to kick in. It's been a month now. Gr-r-r-r! I'll do a search and see if I can find it.
  21. I haven't been on here for a few years because everything has been going well, adapted to my disabilities. However, a few months ago, I started having bad mouth pain-- like blisters were lining my cheek inside, and tongue hurts in several places making it hard to eat. Doc put me on gabapentin a month ago, 100 mg. 3 times a day, blisters felt gone after about 2 weeks but tongue pain still there. Then he upped it to 2x100 3 times a day. That was 6 days ago, and I'm still in agony. How long before it kicks in? Or does he need to give me a higher dose?
  22. Thank you, Heather. You were always so helpful on here. I asked the pharmacist and she said "a few weeks". That isn't specific enough for me. Gr-r-r!
  23. I haven't been on here for a few years because everything has been going well, adapted to my disabilities. However, a few months ago, I started having bad mouth pain-- like blisters were lining my cheek inside, and tongue hurts in several places making it hard to eat. Doc put me on gabapentin a month ago, 100 mg. 3 times a day, blisters felt gone after about 2 weeks but tongue pain still there. Then he upped it to 2x100 3 times a day. That was 6 days ago, and I'm still in agony. How long before it kicks in? Or does he need to give me a higher dose?