Benni

Stroke Survivor - female
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Posts posted by Benni

  1. 26 minutes ago, Willis said:

     Do they have any idea what is causing these blisters? 

    My daughter lives in Osceola, so I know South Bend.

    Docs are still trying to find out. I don't actually have blisters, just the pain of them. Doc chalked it up to nerve pain, but is still hoping to get a certain diagnosis. He thinks it's more than nerve pain.

  2. 14 hours ago, Willis said:

     Just remember the. 1st commandment of edible sampling is "Slow (give it time) and LOW (small doses)" until you understand what you are doing. I'm here to help everyone I can if you or they have questions.

    I have tried edibles, so far they do nothing for me. Plus with my mouth pain (why i'm on gabapentin) they are too hard to chew.

  3. Hi Janelle!

    I tried the amitryptiline at bedtime and laid awake all night -- not drifting in and out but wide awake the entire night. After 3 nights, I did some research and found a woman who had the same thing happen. She takes hers in the morning instead. I started doing that and have slept fine now for 5 years. 😊

  4. 13 hours ago, ksmith said:

    I was just talking about this medication today.  I've been on it for about 9 years and they have upped mine to  2x 600mg a day. Actually this lowed mine. they had it for 3x's a day but it made me loopy.. ( er) hahaha

     But seriously, it can take anywhere from a few weeks to a few months for it to be intergraded into your system. At least that was my case.  . I'm on that for the Nystagmus in my eyes but I'm sure it helps with my leg spams at night.  I hope you finally find relief 😘 

     

    Thank you, Kelli, for your input. Doc said it would make me drowsy but it doesn't so far.

  5. I haven't been on here for a few years because everything has been going well, adapted to my disabilities. However, a few months ago, I started having bad mouth pain-- like blisters were lining my cheek inside, and tongue hurts in several places making it hard to eat.

     

    Doc put me on gabapentin a month ago, 100 mg. 3 times a day, blisters felt gone after about 2 weeks but tongue pain still there.

    Then he upped it to 2x100 3 times a day. That was 6 days ago, and I'm still in agony.

     

    How long before it kicks in? Or does he need to give me a higher dose? 

  6. I haven't been on here for a few years because everything has been going well, adapted to my disabilities. However, a few months ago, I started having bad mouth pain-- like blisters were lining my cheek inside, and tongue hurts in several places making it hard to eat.

     

    Doc put me on gabapentin a month ago, 100 mg. 3 times a day, blisters felt gone after about 2 weeks but tongue pain still there.

    Then he upped it to 2x100 3 times a day. That was 6 days ago, and I'm still in agony.

     

    How long before it kicks in? Or does he need to give me a higher dose?