Stroke Survivor - male
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About 2Fight

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  • Birthday November 15

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  1. I went to the day long workshop Neuroscience and psychedelics. Most of the attendees were chemist, pharmD students and professionals, Neuroscientists, NASA engineer, MDs. The first part discussed the chemistry and how the psychedelics would bind itself to the Serotonin Neurotransmitter. The lecturer was a retired chemist PhD from North Carolina University. He does not believe in micro dosing and does not think that it is possible with LSD in the way that it stays binds with the Serotonin molecule for several hours. I did not understand most of the discussion as I do not have a background in biochemistry. The second part of the lecture was on the functional side. The lecturer was from Zurich and discussed his research in discussing pathways. The 3rd lecturer discussed the analytical method of EEGs and fMRI. I could follow this discussion. There was a lot of lectures on MDMA and PTSD/emotional cognitive applications. I did not see any lectures on stroke rehabilitation and psychedelics. Some of the lectures will be posted online. It should be interesting for stroke survivors who suffer from emotional and cognitive disabilities as they discuss a great deal in the conference including non-psychedelic (drug) therapies like deep meditation, instruments, dream therapy. I will update this thread if they update the site with video lectures.
  2. The best part of music is that it is free with benefits with folks like us who experience brain trauma. Music touches each part of the brain. Cerebellum (rhythm, timing, beat), Emotion, Memory, Logic.
  3. It is surprising but I do not have any issues driving. When you are sitting, it is one of my most stable posture with people with imbalance. However, I cannot park very well as I have issues with depth. I am worried and stressed when I drive in a tunnel. Tunnels is one of challenges with people with double vision as it will induce vertigo. The strategy is a slight glance to the right or left to minimize the effect.
  4. You really understand my situation and the challenges of living with double vision and nystagmus. I just had my 3 prism made 3 weeks ago. Unfortunately, these glasses were worse than my previous pair. So, back to the drawing board. I am making my 4 pair now which I should get next week. Yes, I am going to an excellent Neuro-opthamologist. And you are right. I have a left skew and vertical deviation as well as "jump eyes" torsionally moving. So, I see double vision as well as seeing static objects jitter. It makes reading really difficult. But, I found some good information after my visit with my optometrist who will 1 prism in one lenses instead of both. I also found out that the acuity sweetspot is a smaller space in high index glasses compared to thicker lenses which will have a larger acuity space. How to deal with "sore eyes" and better reading strategies is my next DIY project. Thanks a lot and hope that you are having a great day.
  5. Based on the lecture topics, I believe that most of research is geared toward treating emotional disorders like PTSD and anxiety. If there are links to the presentation, I will post it to this thread after my workshop. It was too expensive for the conference pass for all the lectures but hopefully, they will post on the lectures on Youtube.
  6. Many of the researchers referenced in the article will be attending the psychedelic conference next week including Amanda Feilding. The conference is sold out but I am attending the Neuroscience Psychedelic workshop discussing the actual mechanism. My interest is not taking psychedelics. It will be probably harmful to me as my stroke affected the brainstem. Basically, my neurons are firing too hard and I have to take Neurotin to slow it down. However, I have some unexplained issues in some weird pathway after my stroke. So, I am interested in this workshop to understand how the brain works. I understand that psychedelics highjacks the serotonin which is a neural transmitter. I will post on this thread after the workshop. Also, I think that researchers will posts their findings on posters. I will take pictures and post on this thread.
  7. I really have problems with my vision especially reading. I think that you have the same problem so it is understandable. As I am typing, I see the ghost images or the letters jitter so I have to adjust my glasses just right. You have been helpful to me since I joined this board. Take care.
  8. Tracy, Again, thanks for sharing your experience. My Neurologist and Neuro-Surgeon never heard of Schmahmann's Cognitive and Emotional Cerebellum Disorder. Even though I only suffer from occasional anxiety attacks, my issues are most likely pathway related (weird night time vision disturbance) with a origin point in the same region of the brain. I am glad that you found an excellent physician who cares about your health. Lin, I like your pun. I am hoping that with the friends that I made on this board, I am going to harvest Flowers.
  9. These studies are interesting but I think that we have to be cautious with these studies. For instance, if we see that micro dosing helps with cognition, memory, what happens when person takes a micro dose based on brain that stroked? Also, these studies may influence people to experiment on their own. There is going to be a first of kind conference in the US on psychedelics in the Bay Area this month including neuroscientists, MD and psychologists sponsored by MAPS. If there are published papers, you can probably find it at this conference. http://psychedelicscience.org http://psychedelicscience.org/workshops/pre-conference/principles-of-mdma-assisted-psychotherapy-for-ptsd
  10. I just got my 3 pair of new pair glasses in the past 3 years. From some reason, I can't get the right lenses made. I suffer from double vision where the stroke caused my left eye to skew upper left compared to my right eye. This skew deviation causes double vision leading to blurry, less than optimal acuity, and visual disturbance. When I look at my iPad or iPhone, it appears warped. Or, I see ghost images while reading. Double vision also causes visual vertigo by just looking at an object or walking in a narrow hallway. To correct double vision, I was prescribed prism glasses. It is not perfect but it does minimize double vision by aligning the eyes through the prism. As I have both far and near sightedness, I have double prisms. My problem is that I have extremely bad eye sore with my prism glasses. Also, acuity is good only in a small window if I look straight ahead. If I glance slightly to the left or right, acuity is blurry. Has anyone else with prism glasses and double vision have this problem? Any recommended eye relaxation exercises that work as eye sore gets really bad? Any suggestions for the optometrist?
  11. Tracy, I am so glad that I met you through this board. We were affected in the same region of the brain. You may think that you are cognitive abilities have been affected but you are very clear to me. You really make sense to me. And you are definitely NOT crazy. We are similar in that we really want to know what is wrong with us. Having an answer definitely helps. I also have this funky pathway problem that affects my senses. For insurance, based on your condition and economic situation, can you apply for Medicaid? Is there an insurance advocate that can help you?
  12. I recently watched a documentary on the Life and Work of Dr. Marion Diamond. In 1964, her groundbreaking research on brain plasticity was published. Modern Neuroscience on brain plasticity is based on this paper. Her approach was straight forward. In one group, mice were given learning exercise with reward while the control group did not participate in the learning exercise. In a post-mortem of the mice brain, she found that "learned" mice had bigger brains than the "non learned" brains. Prior to this paper, Neuroscientist believed that the brain was genetically imposed. I remember my Neuro-PT explaining that the brain is plastic and I had to relearn balance. http://science.sciencemag.org/content/146/3644/610 Thank you for sharing. I am particularly interested the Music and the Brain. Music is incredibly beautiful and almost a drug to me now.
  13. 3D Printers are cool. Autodesk is located here in the Bay Area. They were leaders in CAD, Maya and in the 3D Printing Space. I have seen some artist quality 3D Printed designs in the SF Office. Amazing. It is right out of Star Trek. Sounds like a great hobby. I wonder whether your struggles in "thinking through" and "math skills" is in a large part due to vision issues. I think that you have vision issues like me with nystagmus and double vision. I have significant issues with my vision especially reading distance acuity. It really hinders reading comprehension. Math skills are still primarily vision based. If you are having the vision problem, it will make it a lot more difficult. I have prism glasses. They missed having prism for the close distance correction so I was seeing warped and ghost images. I made a second pair has the 2nd prism for reading distances. Some improvement but I still have problems reading distance issues. Vision has a primary role in cognitive function probably more so than the other senses. I think that it is why occipital lobe is one of largest brain lobes. Since reading is so difficult (more like uncomfortable) , I am trying to rely more on auditory (I also have problems here) for general comprehension.
  14. Welcome to this board. I joined just 3 months ago. You will find very helpful people on this board because they are experiencing similar challenges in their daily lives. It is really difficult for people on the outside (even medical professionals) to truly understand post stroke disabilities because a lot of these issues are hidden. You will immediately relate as you will find survivors with similar issues. When you feel down and wanting to give up, there will be someone who experienced the same thing and offering support. There are useful and practical coping strategies that survivors can share from their own experience. For myself, almost 3 years ago, I had a ruptured cranial aneurysm which bleed right into the subarachnoid space between the cerebellum and brainstem. My NeuroSurgeon saved the right PICA territory of the cerebellum. Otherwise, I would have had full Wallenbergs Syndrome and severe Ataxia as the PICA territory of my cerebellum would have been completely destroyed. I survived but unfortunately, I stroked damaging vestibular cochlear nuclei in the brainstem so I still have issues with my vision, hearing, and balance. For my vision, the impairment is double vision and nystagmus which makes reading really challenging. But, I really like challenges. For my strategy, I went beyond the medical community and starting engaging with Neuroscientists and medical engineering community. Taking a daily journal on my recovery really helped. In the first year, it was difficult to accurately articulate my issues. With the journal, I can now explain symptoms so accurately that physician can't just dismiss it. It can be frustrating at times as recovery is not a linear process. It is zig zags all over the place. Celebrate the wins and give yourself a break in the valley. Hope the best in your recovery
  15. Tracy, With my double vision, I am prescribed prism glasses but I have eye strain all the time. It has been a struggle trying to come up with the best solution. I am coming up with my 3rd eye prescription in 2.5 years. Hopefully, I can find a pair of glasses that will feel comfortable. Do you have problems with your vision? Eye drops and putting a warm towel on my eyes are the remedy to dealing with sore eyes Best, Charles