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Stroke Survivor - male
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About 2Fight

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    Associate Mentor
  • Birthday November 15

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  1. 2Fight

    Becky, this quote just gave me an anxiety attack. I also have single sided hearing loss in my right side as well as 40% vestibular loss. In my early recovery days, if I walked up in a stair case, echos along with my imbalance and double vision was extremely disorientating. As part of my recovery, I challenged myself to go the same staircase with the echos as well as other areas where it would echo and eventually, I acclimated to the environment. The weird thing with my hearing is that I have significant single side hearing loss but I do not wear my hearing aid. Since my hearing loss is most likely central nervous system issue, somehow my brain has adjusted. Tinnitus has not gone away. As I am writing this post, I still have constant ringing.
  2. 2Fight

    I agree with you with the dangers of pseudo-science and that there are people taking advantage of the disabled. But, I have been conquering some form of disability every year either through Neuro-PT, Vision-PT or medication. I am approaching Year 5 (April 24) and I am finally able to correct some of double vision not through crappy prism glasses but through vision therapy. Honestly, this therapy is the most difficult than Neuro-PT balance exercises. It feels as though some one puts sand in your eyes after the therapy. But, now I can somewhat control the double vision with non prism glasses improving my reading speed as well as duration. Previously, my reading speed was greatly diminished and I can only read for 1-2 minutes at a time. Now, I can read continuously for 5 mins which is a big win for me. My fellow survivor friend was able to somewhat correct her spastic bum foot as well as improving her gait at Year 8. She had speciality footwear made as well as botox injections. I understand that everyone recovery is different from others but I found that the strategy is fixing one disability at a time as stroke survivors typically have multiple issues. Realistically, some issues will may never improve but others might. Trying to resolve all of them at the same time is overwhelming and frustrating.
  3. 2Fight

    Tracy, have you tried Night Vision Yellow tint Googles? After complaining about difficulty with low light or night vision with the medical community and being greeted with "shrug of shoulders", I turned to the vision science community at a top university. They ran advanced tests of my retina as well as battery of vision tests. It turns out that my contrast sensitivity is greatly diminished explaining my poor acuity in low light conditions. So, I bought these "Night vision Yellow tint goggles. It works and improves my night time vision. Like you, my vision issues is not due to getting older. It was like a switch that turn off after my aneurysm rupture and subsequent stroke. The light halos is still a mystery.
  4. 2Fight

    Hi Tracy, I started vision therapy. I will tell you that vision therapy is more difficult than Neuro Physical Therapy. It leaves you with extreme eye strain like someone put sand in your eyes. But, I really like the binocular vision therapy lab. The students are much more knowledgeable than older optometrists. The instructor supervising the vision therapy explains the theory behind the therapy. Unfortunately, with my irregular eye movements, it makes reading really difficult. My reading speed is at the level of 5th grader even though I do not have any problems with cognition. So, I am pushing forward even with the severe eye strain. If you ever start vision therapy, reach out. I have develop some strategies for eye strain relief.
  5. 2Fight

    Hi Pam, Best wishes and support for you. I hope the best for you. Please take care.
  6. 2Fight

    What is the pricing for this system? I was at Abilities Expo (for the disabled). Neofect exhibitor demoed the Raphael Digital glove product. I think that it works similar to Saebo VR except you wear a glove so it will monitor your fine tuning of your hand movements. They also have a smart peg board. http://www.rapaelhome.com/us/smart-glove-2/ Hopefully, rehab centers will start to adopt these solutions as it does show clinical improvements for some stroke survivors.
  7. 2Fight

    Yes Tracy. Fortunately, UC Berkeley School of Optometry is the #1 Optometry school in the country. Unlike family vision optometry or regular optometry schools, they spent about 6 hours of evaluations for my reading prism glasses. It turns out that my other prism glasses had a pin hole effect making reading very difficult. With my new pair, it is a lot easier for me to read but I still get eye strain. I am thinking of getting non-prism reading glasses. Usually, it is specialized optometry clinics who administer vision therapy but I found them to be "rip off" clinics. In academic school of optometry, their pricing is much cheaper and there is PhD optometrist overviewing your case. Basically, with jumpy eyes, the left and right eye is not converging normally making reading difficult. The vision therapy is supposed to improve convergence through vision exercises. For contrast sensitivity, certain tints like yellow or brown make improvements. The last medical mystery is something that you and I have in common. We both see halos or star bursts from light sources at night. These issues usually manifests itself from a physical eye issue yet my lens/retinal/optic nerve are normal. It is the last medical mystery left. I am trying to make an appointment with a Vision Neuroscientist as I have no answers from the medical community. My stroke physicians just attributed my issues to brainstem infarct but it is still a mystery.
  8. 2Fight

    Kelli, it sounds like the special contact lenses is like an eye patch. Have you thought about getting glasses with a black plastic which will be like an eye patch as it is pain putting in contact lens each day? I tried to try to read with one eye but I always get a migraine and eye fatigue. I also have dry eyes. I heat up an eye pad compress on my eyes for 20 seconds which makes me tear as well as Refresh Optive eye drops. It does relieve my dry eyes and helps with the fatigue. In my case, at Year 3/4, I finally found the doctor who gave me diagnosis (doctor 9) and treatment which resolved my chronic vertigo. At year 4, I don't have treatment nor diagnosis but for sure, I am affected by contrast sensitivity in low light conditions after a consultation at academic Optometry school (doctor 10). They are advising using tints to improve my contrast sensitivity. BTW, did prism glasses contribute to eye strain? I am thinking of abandoning my reading prism glasses.
  9. 2Fight

    I had similar issues. Like the others, I have diagnosed with adnormal jerking of my eyes (torsional nystagmus) so it is difficult for me to focus on a static objects. These objects appear to move. It also makes it extremely difficult for me to read and have severe eye strain. However, I also had issues with far distances in low light conditions. Just like you, the Ophthalmologist will measure my eyes with the glasses and claim that my glasses would correct my vision to 20/20. They just attributed my poor vision under low light as high myopia (near sightedness). However, recently, I went to academic school of optometry. I was evaluated by Vision PhD and students. I scored horribly in contrast sensitivity acuity. What I explained to all my medical doctors is that it was like a switch that affected by vision right after my brainstem bleed. It is as though I am wearing sunglasses at night as everything looks dim and blurry. Try wearing yellow or brown tints to see if you get improvement. These tints improve contrast sensitivity. If so, ask your eye doctor for contrast sensitivity acuity test. (Smith-Kettlewell Institute Low Luminance Chart).
  10. 2Fight

    Hey Tracy, It has been a long time on this board for me. I am going to start vision therapy starting in January. As you mentioned, it is not covered by insurance. After being disappointed by 3 Optometrists, and 2 Neuro-Ophthalmologists, and 1 Ophthalmologists, I went to UC Berkeley School of Optometry. Unlike the medical community, the instructor (clinical vision PhD) and students will actually provide academic papers of the issue and provide academic reasons for the issue. I already have found several breakthroughs. I would check whether there is academic school of Optometry taught in TN. They will give you an intensive vision therapy which often cheaper than family vision centers who usually conduct vision therapy.
  11. 2Fight

    What I found to be very useful is keeping a good journal. By Journal, it is very descriptive especially including how medication affecting me as well as keeping track of long term changes which is difficult to track on a daily basis. For all my issues, it has been primarily sensory (vision, vestibular, auditory, balance, touch) ; however to my amazement, there is a memory issue especially heavily dense story lines on TV series. I am surprised how much memory gap that I have after rewatching these shows 1 year after as though I am watching for the first time. Now, you bring an important measure in evaluating my cognition via math problems. I know that there are resources like Luminosity but I can also pull my Physics and Math books from the garage. So, my plan is to test myself at least 3 times a year to monitor whether any changes to cognition as well as memory tests. The key parameter is how to objectively self evaluate.