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2Fight

Stroke Survivor - male
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    147
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Everything posted by 2Fight

  1. 2Fight

    You sound like a very lovely person and I am sure that you will find a good partner. Having disability and social situation is a tricky business. By social, it is interacting with others (dating, resuming your career, family/friends, etc). It is tricky as "others" may not realize that you are disabled. I am in similar situation as I look normal in the outside but I was horribly dizzy (much improved now thanks to a miracle medicine), abnormal eye movements (like Kelli) and weird night time vision. So, disability was always on my mind. I found that there are a lot of social groups that you can join based on your interest. (Church groups, hiking clubs, literary groups, etc). This way, you can connect and make friends with similar interests. They will understand your disability and accept you who you are. In this environment, it makes it easier to date or just making new friends. In my case, disability definitely affected my confidence but my motto in 2018 is perseverance and resilience. BTW, I am very familiar with AVMs as I am a ruptured aneurym survivor. (VA/PICA rupture)
  2. 2Fight

    It is funny that you wrote this post as I tested with poor reading comprehension after my brain bleed. But, in my case, it is due to my jumpy eyes and double vision. Even though I have prism glasses, I am reading (like this screen) on a curved plane. And my eyes jump so it slows down reading. I was also surprised how poor that I tested. If I wear an eye patch, it makes it easier to read. I actually saw my measurements at the Neuro-Ophlmalogist where the physician is a researcher. I participated in a study where I read a paragraph and they have a high speed camera and tracking device to record my eye movements. The adnormal jerk reaction affects my reading. Another interesting thing is recall of watching movies. If I watch an old movie or TV show (pre-brain bleed), I pretty great recall of the movie. However, I have been watching Netflix's recent shows (post-brain bleed) like Daredevil or Star Wars Rogue One, it is like watching it for the first time. I have to watch the show several times.
  3. 2Fight

    What I found to be very useful is keeping a good journal. By Journal, it is very descriptive especially including how medication affecting me as well as keeping track of long term changes which is difficult to track on a daily basis. For all my issues, it has been primarily sensory (vision, vestibular, auditory, balance, touch) ; however to my amazement, there is a memory issue especially heavily dense story lines on TV series. I am surprised how much memory gap that I have after rewatching these shows 1 year after as though I am watching for the first time. Now, you bring an important measure in evaluating my cognition via math problems. I know that there are resources like Luminosity but I can also pull my Physics and Math books from the garage. So, my plan is to test myself at least 3 times a year to monitor whether any changes to cognition as well as memory tests. The key parameter is how to objectively self evaluate.
  4. Hi Linnie, you may want to ask your original Neurosurgeon on exactly what type of metal was used. MRI was introduced in the 80s and I think that you told me that your clipping was in the 90s so they should have known use Non-ferrous metal, not Ferrous metal (with Iron) . Usually, Non-ferrous (not Iron) is used. I believe that the typical clipping metal is platinum. My aneurysm rupture was not clipped but coiled. (platinum) Regulations may be different in Canada for MRI exam than the US which include non-ferrous metal. I don't know. The reason why I ask is based on your family history, routine examination are necessary if new aneurysms are present. Honestly, I worry for you. Please take care.
  5. Linnie, Do you know what kind of metal your clipping is?
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