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Stroke Survivor - female
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About cons2g

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  • Birthday 06/13/1963

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  • Stroke Anniversary (first stroke)
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  1. Love it!!
  2. Welcome, Superiorgirl! Hope you find what you need here! After my stroke, I decided to be positive but honest with people when they asked how I was doing, but soon realized that for most folks, it didn't matter what I said, they just responded how great it was that I was doing better. I finally decided that they weren't rude and trying to blow me off, but that they cared and just didn't know how to show it, so they wanted to celebrate the good with me and kind of bleeped over the problematic stuff because they didn't know what to say to make it better. I decided that each time someone responded to me with an inappropriate "I'm so glad you're doing better!" I would take that as them wanting me to be better because they love me. I started feeling a lot more supported when I gave people credit for feeling helpless in the face of my crisis. (Now, the people who give me the "What's your problem?" when I struggle with something? That's a different story!). Glad you could feel free to vent here. Believe me, we all take a turn or two (or 100) at that! Lisa
  3. I find that I can only think about one thing at a time. If I'm in the middle of doing something and think of something else I need to do, I forget I'm already doing something and walk to do the thing I just thought of. Hours later, I walk by where I was first working and think, "I can't believe I left all that stuff laying out." That's when I realize I didn't even finish the task. THEN, of course, my memory kicks in and I remember walking away to do something else! I'm also starting to do the "why am I talking about this?" more and more as I start talking with a point in mind, but I rabbit-trail as one idea triggers another after another, and soon, I realize I have no idea why I'm holding someone conversationally captive but I do know I'm rambling! Just have to ask them if they remember what they were talking about before I jumped in, and if not, oh well!
  4. Okay, here's the "falling off the stage" story :-) We were doing a play at the church where I was Music Minister, and at one point I had about 20 seconds of black-out to make it from the front of the (very small) church out the back door and out of sight. In order to do this, I carried a small flashlight in my pocket which I would squeeze to make it light up. On opening night, I started moving towards the two steps at the front of the "stage" area, squeezing the flashlight as I went, only to realize I was holding the flashlight backwards, so it only lit up the palm of my hand. Still moving, I turned the flashlight around, just in time to illuminate my foot stepping off into empty space! I rolled down the steps, bounced up, and ran up the aisle to the back door. Once I was outside the sanctuary, I just kept running in circles, mumbling, "Ow, ow, ow, ow!" while one of the other cast members ran in circles behind me, asking, "Are you okay? Are you okay? Are you okay?" I was okay, just a little shook up! Then, to top it off, when I came to the church the next night, two other cast members were there before me. They were sitting in the make-up room, watching the video of the previous night's play and laughing hysterically. "Oh, good," they said when I entered. "Come here - watch this!" I saw the end of my scene, then the screen went black; after a few seconds, there was a loud and prolonged crashing noise, and a few seconds later the lights came up and the play continued. I wish I had been able to get a copy of that video - it WAS pretty funny :-) Basically, I'm a big ham who will do almost anything on stage to get a laugh, and I've managed to build a career performing as a pianist/music director/choir director. Not always to get a laugh, but sometimes the opportunity's there (whether intentional or accidental), so why not go with it? I mean, having a job where you get to entertain people and hear them laugh at your jokes? Is that great or what!?! (If I had to choose to be someone else, I would be Victor Borge!)
  5. My friends and I took a personality test one time, it said that I am a person who likes to have fun and who likes people around me to have fun too, even if it means telling completely humiliating stories about myself to make them laugh. That's so true!! Like the time I fell off the stage in the middle of a play...I've gotten a lot of mileage out of that one :-)
  6. Benni - I have to correct my previous observation about Duolingo. Must have been a glitch that day I went on there, because tonight it's working perfectly. Pshew! Heathber - Yes, Babbel and Rosetta Stone are both very popular. Unfortunately, they're also expensive (about all I can afford right now is free!). Wish I had the money - I'd love to try either one of them!
  7. Yes, I'm working on it. Long way to go yet for perfection, but who knows? Probably won't make it there anyway, so might as enjoy where I'm at!
  8. Hi all! As if having a stroke wasn't bad enough in and of itself! That must have been horrible, being so far from home, and trying to work with a foreign medical system. My heart goes out to you (even though it's been many years ago). I love Duolingo! That's the main online piece I use, but I quickly discovered it isn't actually teaching, it's quizzing. I am constantly going to other websites to look up conjugations for verbs or trying to find rules about how to use certain words, and then I'm stuck with memorizing reference charts in order to gain vocabulary. It's a lot of work! I would love to find some way to make it all easier. Right now, I stepped away from Duolingo for a few months, and since I've recently come back, it's working differently than it used to. I used to be able to choose which level I wanted to work on (reviewing, strengthening, or learning something new), but now it just gives me the option of clicking "Strengthen" and it chooses which level I'll work on. Also, it doesn't tell me what we're working on until I finish the quiz. I don't like it this way! I wonder if I'm doing something wrong or missing something when I go there. Hehehe...that's why I had to quit ballet lessons when I was young. My mom wanted me to practice at home during the week, but I couldn't remember any of the dance steps without a teacher or something written down. I'm still bummed about it! Oh well, at least this way, I didn't lose years of dance skills to the stroke (always a bright side to everything)!
  9. Yes, Deigh, I'm eagerly awaiting your other trick! Love the pillow speaker - I didn't know they made such things! I live alone, so I have a Bluetooth speaker from my living room computer, and it helps me fall asleep if I can listen to something with a story line, like a movie (gives my brain one point to focus on). Otherwise, I'd mentally write a hundred books, solve multiple world problems, and tell off a handful of annoying people while the clock ticked on towards morning....
  10. I started teaching myself Spanish before I had my stroke, but fell away from it after a couple years (very part-time, I wasn't all that advanced, could only talk in present tense). Then, after my stroke, I decided I had all this time on my hands, so I picked it up again. But because of financial hardships, I didn't have any money to spend on more learning materials, so I've just been making do with free programs online and the materials I had already mastered earlier. I love the idea of being able to rattle off a conversation in Spanish, but I'm just not getting there. I hit the point where I had to start doing more advanced conjugations of verbs, and I'm completely overwhelmed by all the memorization! Plus, the best free website I've found is really only a series of quizzes - it doesn't really do the teaching. I can look at answers and look up things on other websites to teach myself (I'm pretty good at grasping language structure, grammar, spelling, etc.), but I'm only getting vocabulary that way and not much in the way of proper syntax or the subtleties of words and phrases that native speakers would know. The fun has gone out of it, and I've dropped it again, but I really would like to learn another language (besides English), and Spanish seems easy and useful (plus I pretty much rock the accent ). So to sum up: (1) Memorizing all the verb conjugations is driving me nuts! and (2) I need more guidance than just a vocab list. Anyone know of some fun (and cheap/free) ways to get past this?
  11. I have my passwords on the computer, but I've encoded them (and the names of the sites) so if someone else finds them, they won't be able to use them. The code is pretty random, and most of it only makes sense to me, like, I have a 10-digit go-to password for all those little sites where I'm not too concerned about security. I recorded the first digit and the last digit with "..." in between, so I'm the only one who knows what "..." means. And no, the document is not saved as "Passwords" - I'm no dummy! The title is encoded too so it won't make sense to anyone else thumbing through my computer. I even encoded my debit and credit card numbers so I don't have to keep getting up and going to the other end of the house when I'm shopping online (which I do a LOT since the stroke). Plus, I always seem to forget to put them back in my billfold before I leave the house, which is SO embarrassing when I reach for them at the check-out counter....
  12. I second what Becky said - that's hysterical! I know it's been 6 months since you posted it, but it's still funny
  13. Hi, edkel1, I just wanted to clarify that when I talked about using my stroke as an opportunity to grow closer to God, I wasn't trying to tell anyone else what to do. I was just saying that for me, I live with more of a sense of peace, safety, and comfort when I trust God to handle the outcome of all the things in my life. I hope I didn't offend anyone or imply that everyone should be doing this, and no, I wasn't offended by your statement of how you feel. I did want to add that I notice you are a little over a year post-stroke. I know at that point I was still trying to figure everything out and had lots of things going on that seemed horrible and maybe even insurmountable. Now, a year after that, I'm realizing that some things about my thinking and understanding of my condition are going through a new "reality check" - it's all part of coming to terms with where I am so I can move forward from there instead of getting stuck in the initial shock of the stroke. Yes, I still have times when I go back to thinking about how things were before, but I believe that's part of the grieving process we all have to go through. Someone extremely near and dear to us has died - the self we used to be, the self we've known for decades (our entire life). That's not something we'll process in an afternoon or a few weeks. When someone loses a spouse, they may grieve for them the rest of their lives. But fortunately, over time, the feelings associated with that loss change. They mellow and become manageable. They stop taking over our lives and our outlook on everything around us. So reality for us is not only a point of physical condition, it is the state of being in mourning for our losses. Like you said to Scott, hang in there - DON'T GIVE UP! Because if you keep pressing forward with this, you will come out the other end to a better place. It's just that it takes time to work through - RATS!!! Wouldn't mind the EASY Button right about now! :-)
  14. Hi, Zeita! Welcome to StrokeNet! I live alone too, so I can understand some of the struggles that go with that. OT can be a huge help in figuring out how to work through issues at home. Exercises to strengthen are good too, as the stronger we are, the more we can do. Even if all you strengthen is the muscles that are working normally, what's the harm in that? :-) I know you'll enjoy connecting with other stroke survivors and their caretakers here at StrokeNet. It's been a blessing to me since I don't really have contact with anyone else who's been through this. It's refreshing to come here and meet with people who "get" you. Glad to have you on board! Lisa
  15. Good - I'm glad! Thanks for letting me know.