Jump to content


Stroke Survivor - female
  • Content count

  • Donations

  • Joined

  • Last visited

  • Country

    United States

About cons2g

  • Rank
    New Member
  • Birthday 06/13/1963

Contact Methods

  • Stroke Network Email

Shared Information

  • Stroke Anniversary (first stroke)
  • How did you find us?
    Google Search

Registration Information

  • First Name
  • State
  • Country
    United States

Recent Profile Visitors

207 profile views
  1. Here is a good article I found about CBD oil (goes into detail about how it works and other things): https://www.medicalnewstoday.com/articles/319475.php I agree about the big pharma and how they put money making over health care while we depend on them to provide things we need to survive. I feel the same way about the big food corporations that pump their "foods" full of sugar, sodium, GMO's, pesticides, antibiotics, trans fats, etc. It's amazing that all of us aren't half dead or worse! So that's why I'm looking for more natural methods of dealing with the pain from the stroke. If there are certain foods or supplements that help or aggravate the pain, or if there's some substance (like the CBD or other oils), or something like acupuncture (which works for some but didn't seem to help me) or a special type of massage, or something I haven't even imagined yet, I'd love to investigate it.
  2. Hi, I realize you asked this question about a month ago, but it probably doesn't hurt to hear it again: I had my stroke over two years ago, and I'm still improving. It's not as fast as the first few months, but it's definitely still happening. It's always exciting when I do something and think, "Oh, I couldn't do that before!" or when I think back to where I was six months or a year ago and realize how far I've come. And I've had stints in there when I just got tired of always working so hard and so I didn't really do any exercises or make much effort to try and improve, but then I'd get remotivated and start working again, and progress still happened. In one way, it's the same as it was before the stroke: If I decide to do the work, I'll see the progress. And, I have to agree with what someone else up above said: Make it fun and part of your everyday life, that's the easiest way to keep working on it. A lot of what I want to improve IS part of everyday life, so just practicing what I want to do can help make it better. Or sometimes it's an unexpected discovery, like when I went to the bowling alley with my family. I can't begin to bowl (though I love doing it), but I can lean against a pool table and shoot pool with my nephew! I'm terrible at pool because I have no idea what I'm doing, but I'm having a great time playing with my nephew :-) while I work on balance, stamina, bending and straightening, controlled arm movements, walking around the table, looking up instead of at my feet, etc. Doesn't even feel like work!
  3. I was put on warfarin...11 months after my stroke...because the doctors didn't know what caused the stroke, so they figured they'd better cover their bases. By the way, my cardiologist says my heart's in great shape. Anyway, my recent INR had been steady at 2.7 for a few months (supposed to be 2.0 to 3.0), then in a few weeks it went to 3.2, 3.8, and finally 4.3 last week. At 4.5, the protocol is "If you bump your head, go to the ER; if your stomach suddenly hurts, go to the ER; if your nose bleeds and won't stop, go to the ER" and so on. In other words, your blood's too thin and you're bleeding internally. Two days later, I was dizzy and then I started shaking (I'm diabetic, so I was sure my blood sugar was way too low, but I checked it and it was actually a little on the high side). So I ended up at the ER. They agreed it might be the high INR, so they checked that along with a whole bunch of other blood tests. My INR was at 3.0, and everything else was normal. Never did figure out what was going on, so they gave me some fluids and sent me home. Could have been a big problem, but thank God it wasn't. Kind of scary though, for a while there, especially for a drug (poison) no one's even sure I need to take.
  4. You might be interested in looking up Dr. Mark Hyman (if you're not already familiar with him). His most recently published book has to do with brain health and how it's at the basis of all sorts of modern medical problems, like Alzheimer's, traumatic brain injury, depression, ADHD, and so on. He is a strong proponent of eating a whole foods diet and allowing that to "heal" the body and brain. He also has a new DVD series (not sure what it costs) that covers the material in the book and is full of interviews with all sorts of experts. I was on a mailing list so I got to watch a portion of the series for free online, and it was fascinating! Anyway, it meshes with what you're bringing to everyone's attention, then expands that a hundredfold. Just wanted to share :-) (PS: He does have plenty of online information that you don't have to pay for.)
  5. cons2g

  6. I've been so encouraged by all the posts I've been reading in this CPS space, but I notice the only options anyone seems to suggest are PT and drugs. I've been starting to look into some alternative possibilities, and am wondering if anyone has ideas about that kind of thing, maybe even something they've tried that worked for them? I'm currently trying to eat more whole foods (instead of processed) and less sugar/starch. I'm also trying to find more info on a U of Minnesota study I saw mentioned that suggested Vitamin D in conjunction with coQ10 was effective at reducing pain after a stroke (no details given in the article about dosages or how the study was conducted, for how long, how many participants, etc.). I'm also curious about things like alternative massage (cranialsacral, myofascial, etc.) and essential oils (applied topically, some claim to reduce pain). There aren't many studies out there about CPS, but there are quite a few for fibromyalgia, which is also pain caused by the brain misunderstanding signals from the nerves, so I wonder if some of their methods would also work for CPS. What do all y'all think?
  7. Hey, Scott, I hope this doesn't sound too over-the-top, but I want you to know that there are certain people who post here who have stood out in my mind because I enjoyed reading what they had to say, and you're one of them. Sometimes I enjoy their ideas, sometimes it's just because it feels like relating to a familiar friend. I hope you keep posting - I appreciate what you add to this site! Besides, when we're hanging out with our friends, not everything we say is profound (and no one expects it to be), but we still come away feeling better for having connected with people who are on our side (and that flows both ways).
  8. I've always wanted to see the Northern Lights (I've seen them faintly, but they just looked like light clouds in the sky). I find it's a good idea to hang onto something before I tip my head back to look up. Sometimes, I even get dizzy just looking straight ahead of myself when I'm walking, so I have to look at the ground. My PT's don't like that! :-) Anyway, until I find a way to get WAY away from the city (Minneapolis), I'll just have to keep looking at beautiful pictures online and using my imagination.
  9. Wow! I'm impressed by your reading fortitude :-) This topic sounds interesting. I don't think I would want to read the whole book, but it would be interesting to skim over some time - I might check and see if the local library here has a copy (I'm often surprised at what they carry!). Thanks for sharing!