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Husband

Stroke Caregiver - male
  • Content count

    4
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  • Country

    United States

About Husband

  • Rank
    New Member

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  • Stroke Network Email
    Yes

Registration Information

  • First Name
    John
  • State
    GA
  • Country
    United States
  1. Hi Michael, I understand and know the feeling of wanting to have a conversation with your best friend, your wife like ya'll used to have prior to any of the strokes. That's exactly how I feel and it's been a year and a month later. I'm trying to forget the timeline and to take it a day at a time but understand it's hard. My wife is still confined to a wheelchair and working hard at taking steps now and trying to stand for longer. If you can some how manage to get her to stand that's where it all needs to begin. My wife has probably stood a thousand times before she was able to take a step. She's working hard as I'm sure your wife is too. At the moment, my wife and myself's conversation consist of me asking her a question and her ability to express herself. The other side is the ability to express herself again by letting me know she needs a Kleenex or something else. I'm still unable to receive a "how are you doing today or how was work?" so her ability to speak is still expressive. However, I can't forget this was a miracle when it happened because it had been 8 months before a word was said. I understand and wish you and your wife strength and healing.
  2. Thank you all for your advise and comfort. Linnie, Thanks for the article you sent me and the suggestion of offering patience while she's practicing her speech. I can certainly see why if I spoke for her while she's attempting to speak that it could possibly lead to discouragement. The article was very helpful in identifying several things I had not thought much about.
  3. During her vasospasms (14 day journey), she experienced a stroke in her frontal lobe and another stroke on the right side of the hemisphere of the brain. When the pressure was escalating too high they also had to perform a hemicraniectomy to relieve pressure on that side. Unfortunately, they lost her for 10 seconds which was enough to deprive her brain from oxygen which caused the thalamus to experience stroke. Thank you Linnie, I was told to expect the worst but she has proved the best against the cards she had dealt. Language lost is currently her largest deficit and it has been a full year now, granted, she has had many set backs while being so close to leaping further. Thanks Sue, you're absolutely right on what I am feeling. You are also right that she can sing! There were times listening to her where I cried because it was the longest I've heard her speak. It's really amazing and I hope to see her in a choir some day as she get's stronger and better. I read there was a stroke choir in Australia but I have not looked to see if any are in the states. I was thinking through church she could participate as she gets better though.
  4. My wife at 24 whom I had married a few weeks before at the time experienced a ruptured aneurysm at a grade 5 Hunt and Hess grading system which eventually lead to multiple strokes. She was in the hospital for 4 months before spending another 5 months at a rehabilitation center. I was with her the whole time while I wasn't working, trained to take care of her, and etc. I don't know if she'll continue to progress because she continues to have set backs that don't seem to allow her to leap any further. An example could be that she get's so close to being able to stand for a good minute that they believe she could eventually walk but when she get's so close something causes her to experience hemiparesis which puts her in bed for a solid week while the doctors work on understanding what needs to be done which has required the shunt to be adjusted numerous times. It's not the ability to walk that concerns me but it's just an example of the progress she's made and has lost. Considering the hemorrhage she had experienced it's incredible the leaps she has made although it has taken quite a long time but we're all blessed. However, the set backs are certainly discouraging and I'm primarily concerned if she'll make further leaps in the expressive language area which would mean the most to me. Right now, she's able to tell you if she's cold or wants something but that alone probably took 7 months. I feel her intelligence is actually there but unable to call those expressive languages and I just have to wonder how much further will she get and unfortunately, we have yet to actually begin our marriage. I also feel that I've reached the most I can offer as a caregiver. She's my everything and I do feel at times that I need to move on but continue to be her best friend and offer to help in any way that I mentally can. The reason for my post is just to see if there is anyone else that has experienced this level of acquired brain injury and I would like to hear on how their doing because all I've been told are miracle stories and although she's been a miracle... I'm human and just want to see her progress so much more.
  5. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.

  6. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.