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Stroke Survivor - male
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About JoeGuinn

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  • Birthday 05/05/1977

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  1. Thank you all for your replies. RonA thank you. I may be too critical of her at times. I do love her and she, no doubts, loves me for what she has gone through and done thus far. Even if it’s a different love, it’s still love. I’d much rather be under her care then a stranger. She has so much on her shoulders. I can understand the frustration from her side. I just feel like I’ve become a burden to my spouse. My level of care level is pretty high. Anyway, thanks! It’s nice to see a caregivers side. It puts things in perspective.
  2. I had a major brain stem stroke and literally rely on my wife to care for me. I’m very lucky that I didn’t lose the use of my left hand and still mentally stable. I do have anger problems since the stroke. This has been confirmed by a Dr. It’s been almost 4 years since the stroke. My wife(caregiver) takes great care of me, but treats me awful and everyone in my family thinks I’m just losing my mind. please, I assure you I’m not. i know my wife loves me, but it’s a different love. We have children together. I think it’s become a love like of someone you knew in the past. She sighs and spits when I need anything. I know I’m not the easiest person to deal with. When I get fed up and confront her. She is always like noooo I love you. So to me that means it’s involuntary and she dont even realize what’s going on. I have no one to talk to. My world has gotten so small since the stroke. i have zero support. I’m trying to get a hold on my anger, but when I tell my wife I’m getting frustrated she herself blows a gasket and starts to argue with me. This only makes me angrier. My brother is a smart and successful man. He is buying us a home as I can no longer work and to keep us out of government housing. I hope I’m nuts, but I think this has become a motivation for her to just tolerate my needs. She has everyone thinking I’m nuts and they blindly agree without speaking to or with me. I’m trapped in this crazy cycle. what should I do? i can except that she is no longer in love with me, I understand. Is there anyone reading that is in a care facility? How are you treated? i, by no means, want to be there. I get great care here, but treated very poorly and everyone thinks I’m losing it. I’m not, but that’s what everyone thinks that won’t talk to me. I just don’t want my brother to keep doing this huge thing for us if I would be better off elsewhere.
  3. Thanks y’all. I’m going to use this site to vent. Rather than blow up. You are all so very nice. Thank you.
  4. Hi everyone! I’ve been off for a bit as I have had surgeries on both ankles for drop foot and recovering slowly. Here recently I have found myself snapping out. First, it started with my wife in the home. Now, I’m freaking out on anybody anywhere. I have had a brain stem stroke. My dr claims it’s a normal side effect to develop for the type of stroke I’ve had. He prescribed Xanax to take when I lose it. I wanted, hoped, for something to stay ahead of my anger rather than take a drug that gives me a "buzz" med head. It is pretty bad and it’s like I’m always angry with no fuse. Anyway, I’m reaching out in hopes I’m not the only person experiencing this shift as a result of stroke. I should mention, I was cool and calm before the stroke. I feel like I may damage relationships with the people around me.
  5. Hi ladies. Just a quick update. The surgery is done on my right foot. By looking at it I would say it's a huge improvement. Especially having my left foot to compare. It's a true 90 degrees of my leg and I can wiggle it a bit. It's in a half cast splint so near as I can tell anyway. There is no chance of ankle roll as the two are now fused together. I'm really excited to have them both done and healed. i will say this, the pain, oh the pain. Let me tell you. I'm a 40 year old male. The pain has brought me to tears on several occasions. It's one of those things where the long term benefits outweigh the short term struggle. If anyone else is going to get this done. It's an amazing transformation, but it hurts bad, real bad.
  6. There aren't to many light subjects about my stroke, but one thing that sticks out immediately is how people's octave changes once they are told I had a stroke. They feel like they must yell at me like I "deffed" out....lol. I'm like please stop hollering at me. I had a stroke!
  7. Becky, no worries. I too was like that when my Dr recommended the surgery. I think I might be on the extreme side of foot drop. Both feet are affected. I have tried and have outer leg braces. No go. I have spent months in therapy learning to walk. We have now determined that I'll never walk without this procedure. It does not hender walking at all. Please look up ankle fusion range of motion on YouTube. It will give you a better understanding. It did me. My feet are literally almost as straight as they can be and stuck. I think I have tried pretty much everything which brings me here. If they can get my feet straight I will have a much better chance of learning to walk again. Right now I'm on the balls of my feet with weak hip flexors causeing me to fall forward. So right now I have no chance to walk again. I have been reassured by my therapist and foot doctor that I'll have a much better chance of walking after the surgery. I am having anxiety about the recovery and the pain associated with the surgery though. My Achilles has shortened to the point my feet are locked. AFO Boots do not work because my feet are stuck down and they are very painfull to wear. You can imagine. He says this is much better than lengthening on my Achilles because the feet can not roll over.
  8. I have tried AFO Braces to no avail. I have researched the surgery online and on YouTube. There are many joints in your feet other than the ankle that help the foot move. Range of motion is still pretty decent from what I have seen. It actually pretty common procedure. Mainly for arthritis. Foot drop also. My feet are really bad from having been in bed for so long. I can't walk right now because my drop is so bad. I do have a therapist that recommended the procedure to me. In the beginning, when I had my stroke, I nearly died and my feet were the least of my drs worries. Now I'm not so medically frail, we are finally getting to it. I had a major brain stem stroke in my Pons area. I was wondering if anyone has dealt with the pain associated with the surgery, recovering. It looks like it's a painful deal. Thank you for your response, it is no doubt "drastic."
  9. Next week I go in for my first foot, right, ankle fusion. I was told they will release my A. Tendon at my foot and raise my foot then fuse my ankle in position. Two weeks later I go in for my left foot. The Dr does it in two as it is 6 hrs. per foot. Has anyone else had this done? How's the pain/recovery? How long before you could bear weight for transfers? I have some anxiety going in.
  10. Welcome to StrokeNet. Please feel free to browse around and get to know the others. If you have any questions please don't hesitate to ask.