My name is Ed I'm 55 married with 3 children, live in so/cal, I have been an electrical contractor for the last 34 years, I can fix or build almost anything and have way to many hobbies from being a Shriner, collect coins, hot wheels, love the desert in the winter quads and sand rails to the river and boats and jet skis, I also drive a super Comp Dragster love speed.
My life was going along great other that the normal day to day stuff then it all changed 11-16-16, I had a Cerebellar stroke on the right side problem I was on a 8 foot ladder, lost my balance and fell backwards about 9-10 feet. I went thru a tbar ceiling and landed on a desk then to the ground and was out for about 30-45 sec, when I came too I was trying to get up but someone told me to just relax and help was on its way, premedics were there in 5 min and I was at UCI in Orange Ca within 30 min as I side note there was no blood from the fall and all I remember is I was dizzy.
I spent the next week in ICU on the 6th floor getting poked and CT scans, that's when I found I could not stand or walk, I broke 6 ribs punctured my right lung , had a stroke and bruised my brain from the fall, could no laugh or cough and slept all the time.
I spent the next week at UCI on the 5th floor and was ever so slowly getting better but my side hurt so much.
My 3rd week I got moved to there rehabilitation center and spent the next 4 weeks there learning to do things again, it was hard learning so many every day tasks all over, I felt like a looser and it was hard, I was doing better but my walking was killing me , cant run or use ladder anymore and I live on a ladder.
Got out on 12-27-16 and was transferred to CNS in Bakersfield, they were very helpful but staying in the apts was hell, they have rules for any and everything and if they don't they make one of there rules fit.
They did get me walking but I got double vision the second day I was there and am still a little shaky walking but it keeps getting better, there other classes were good and everything was getting better.
I decided to leave on 2-3-17 but they wanted me to stay a few more weeks, at $1700.00 dollars a day I understand why. I am home now.
Things are getting better but am still dizzy and the double vision is all but gone, still get tired for the simplest of tasks from doing bills to light work.
I have questions.
When will the fogginess go away as I hate this
when will my balance be back if it will at all
How do I make family understand this is as close to hell as there is, they just think i'm out of shape and just need more PT and work to get in better shape and build up my stamina ????????? I keep telling them this might be it but I keep trying.
I go to all my Dr appointments and PT classes alone ( 26 of 29 ) and get little to no emotional support but I have to say my 15 year old son came in last night to say good night and today came in to hang out with me so maybe he is getting it.
My hands work good but my right hurts a little and is a little slower than the left, I climbed up a ladder today to get on a roof about 12 feet , was not easy but I did it, vision is not focused but working with the eye Dr so have my fingers crossed ( not my eyes )
When will I feel like my old self how about 80% of my old self I would be happy with that.
This is the hardest thing I have ever done, I never ask anyone for help I have only depended on myself but I can't do that right now and that is killing me.
I don't get the same enjoyment and satisfaction out of fixing thing anymore........ WHY
I don't know how long I can do this , anyone have any ideas
Tomorrow at 9:50 a.m. it will be 9 months and I'm scared that i'm done getting better
Thanks, there is so much more to say but i'm totally spent and going to go lay down and relax