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Stroke Survivor - male
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About edkel1

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    Associate Mentor
  • Birthday 09/24/1961

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  • Stroke Anniversary (first stroke)
  • Stroke Anniversary (second stroke)
  • Stroke Anniversary (third stroke)
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    United States
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    Cars, Boats , Racing love going fast, working with my hands, fixing things
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  1. Well I have to say things have changed for the better in my life the last few days. I had my right hip replaced 7-30-19, my surgery was at 9:30 and walked on it at 1:30, I was released at 2:45 so getting my bad hip taken care of was something I have been waiting on for about 8 mounts but what I never expected was a change is my eye sight, If I look to the left its normal but if I look to the right it seems to not focus and makes me dizzy and feel bad ????????? Why, I found that there were no pills that helped and going to eye therapy was a waste of time or was it ????? whats strange is I tried looking to the right a few days ago and guess what no more bouncing, I can focus now what the hell happened, I don't think it had anything to do with my hip replacement and personally I don't care. I'm thinking it was strictly coincidental, the vision is not perfect but before my hip replacement I would say my vision looking to the right was a 1-2 now its 8 so my point of telling everyone is don't give up, i'm not out of the woods yet but its looking promising. I sure would like to ask Kelly her thoughts so if your out there look me up, I have lots of questions. Ed
  2. edkel1

    Yes Happy Anniversary and sorry I was late acknowledging it Ed
  3. edkel1

    Ruby I can't add anything that other's haven't said, all I can say is sit back and read and read some more and when your tired or confused take a break but ask questions..........lots of them. May I ask how you are doing at 5 years, have you learned any tricks or lessons you care to share with the rest of us ????????????? Hope to chat with you soon Don't give up no matter what Again welcome to the club Ed
  4. edkel1

    Mary Tell me this can your husband walk, run do some or all of the things he did before the stroke ???????, does he still work, how long has it been since the stroke, the first 90 days are where you get most of what you had prior to the stroke back but everyone is different as are the type's and severity of the stroke. His life has been turned up side down and he is along for the ride of his life only problem its like ground hog day, only thing that changes is the calendar, not fun at all and sometimes nothing to look forward to. When I was at CNS in Bakersfield I had two room mates, one was a college professor 71 and the stroke made him seem like a little mouse, you could have woke him in the middle of the night and said Dennis its time for your bath and all he would do was lower his head and quietly say ok the reason I mention that is they tried that with me at 10:30 at night and I told them to stick it in there ass and get out of my room, point is every stroke patient reacts to there stroke differently. There are times I wish the stroke took my mind and just made me like Dennis a piece of clay, mold me into what ever they want and other times I wish the stroke had taken me away. All I can say its I wake up every morning hoping today things are going to change or get back to normal but I have been waiting 2 1/2 years and still SOS, now that's sucks. I know your having a hard time, so is he............ only difference is you can leave and still have your mind where he's on his own broken and stuck on this shity ride called life. I got left 4 weeks after I got out of Bakersfield and have been on my own for the last year and this is not what I worked my ass of to have after my stroke but that's just my view Its a hard decision and no one can make it but you ?????????? Good luck Ed
  5. Hi Paul Best one is Strokes SUCK
  6. becky1 Hate to say it but it's out of our hands other than living a healthy life style, don't let the hiccups make you crazy or sick just live life one day at a time and be happy your still with us Ed
  7. Deigh I wish the medical world would put in the time and effort for stroke research and recovery as they have for HIV I'm not saying to forget the HIV world but the consequences for HIV are very preventable where as strokes pick people for assorted reasons , some brought on by life style's and others are just the luck of the draw. Ed
  8. Yes I have been waiting for 2 1/2 years and still nothing, the fatigue is relentless, i'm surprised I never started drinking...........................but I keep hoping when I wake up in the morning things will change in a positive way.........when donkeys fly. Ed
  9. edkel1

    Hi Tracy Sorry about not getting back to you, but I think you understand Yes it looks great, nice having your won place where your thoughts and visions are what matter most. We will continue or conversation soon I promise Ed
  10. Thank You and i'm glad I could help you out. Remember all you need to do is just ask and someone will be along with an answer or idea that might help. Don't give up on him unless it turns violent and remember those vows we all took, " In sickness and in health " Good luck Ed
  11. Chris I can speak on behalf of your husband as I too had a stroke and spent 6 weeks in the hospital and another 6 weeks in rehab, i'm that guy that could work non stop, could fix anything and did, wife did not work and life was for the most part great other than little things that pop up unexpectedly, I feel terrible, I think I let my family down, I cant work, have practicality zero stamina, i'm dizzy all the time. I will tell you it does not make me feel like the man of the house, rather if make me feel like the one that caused it all and its tough living with that, one of my daughters understand but lives 550 miles away, I don't want her to worry about me she's got her own life, the other two are tired of hearing about how I don't feel good most of the time so I just hunker down and keep to myself. As far as my wife she told me 4-5 weeks after getting out of rehab she wanted to leave and to be honest she has a new significant other in her life that happens to be her best friend another women, I can deal with most of it but the last part tears me apart and I just stay home most days. Don't give up on him, I know its hard but without you and your smile he will be broken beyond repair unless you cant take it any more or he is violent, Hang in there because you have something, your husband and we have lost our souls or what makes us who we were Strokes are nasty and ruin lives, try to work thru it Ed
  12. edkel1

    All I can say is sorry and hope you get better soon. Never give up Ed
  13. Jim Welcome and all I can say is ask questions and read and when you think you have the answer read some more, its is hard but hope this makes it a little easier. Its a long strange journey,and take is slowly. Ed
  14. Honestly I just wish people or friends would treat me like they used to, some do but most are trying to make you feel better about yourself, that your are getting better............. no i'm not and in the long run they look stupid. Personally they don't know anything about my day to day life, if I could just to do things that I took for granted I would give away everything but this is the new me Happy Happy Joy Joy Ed
  15. edkel1

    Welcome Shorty None of us ever dreamed we would become members of this club but it sure does help knowing we are not alone, ask questions no matter how silly they may seam. I have found most Dr's don't have a clue to what or how our lives have changed and as far as depression and anxiety, the only person that know's that will be you, as far as owing the hospital try and not worry about it, tell them to hold there horses and to contact your insurance. Fatigue is common and a way of your body and brain healing so when you hit that wall relax and take a nap, it does help. I still get to a point after 2.5 years and hit that wall and i'm done. Just take one day at a time and hopefully things will get better. The best advise I got was from Steve, he started this board was to apply for SSDI as soon as possible and get the ball rolling because every stroke is different and affects people differently, have your Dr's fill out the paperwork completely so there is less of a chance of you being denied. Remember read and ask lots of questions. Ed