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alansd

Stroke Survivor - male
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    419
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    United States

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About alansd

  • Rank
    Associate Mentor

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  • Stroke Network Email
    Yes

Shared Information

  • Stroke Anniversary (first stroke)
    08-27-2017
  • How did you find us?
    Google Search

Registration Information

  • First Name
    Alan
  • State
    Ga

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  1. i bought a recumbent trike, its fun to ride and great exercise, the long hill in my neighborhood was a challenge but gets easier every time.We are going to modify the right brake control to work both front brakes. our gym just opened back up, i missed working out, and after my first post corona time there , i was so sore i couldn't move.Went again today and cut back a bit on the weight and feel way better.I try to work my affected arm with other arm assistance until it works the machine alone.Some moves require very little weight to start, like 5lbs.I then move up as I am able. Gives me new goals to shoot for.
  2. alansd

    cleaning out and selling stuff like crazy, its kind of saddening to see tools I've had for so many years go. but we are paring it down.this is hard, realizing what I cant do anymore, spent years restoring cars and trucks and motorcycles
  3. in this pandemic mess, my wife and I visited a new development just down the road from us and fell in love with the numerous attractive one story cottage like homes. Our present home is a farmhouse style and with our grown sons now in their own homes, it is way too big for just us two.Also i watch my wife struggle with maintaining it , though she enjoys the yard and garden work,it is too much. So, we struggled with the decision, then just went ahead as everything fell into place.The builder gave us a great deal, a realty company offered to buy our home for a good amount, and so on. The best thing is the zero entry shower with built in seat and grab bar, beautiful kitchen, tech upgrades like super insulated foamed walls, video doorbell, wifi enabled control over thermostat and lighting. Gas filled windows that are highly insulated. All on one level, no stairs.We are excited but now covered up in shaking off so many things we don't need, to downsize.It is a challenge but we've already committed and started.We close in mid to late June and move on. I am excited and mildly apprehensive, with the fact that this will likely be my last home, though suitable and comfortable.Meanwhile I got my new Trike to ride around our neighborhood. its all good .
  4. love the old hat

  5. alansd

    watched Contagion last night it is truly the situatuin we are now in.Its from 2003 on Amazon.Great cast.
  6. alansd

    yes sir! I just tried out and then ordered a recumbent trike for my birthday gift to myself. Cant wait to get out and cruise,My short trial ride on our rails to trails thing was so much fun, and no stress, glad i could comfortably and smoothly ride while steering with my right arm only. Getting the Trident trike...Spike.Now lool\king at helmets.gotta protect what I have left.
  7. alansd

    i will be 71 this coming week. Never truly thought Id make it, but a lot of men in my family didn't.The stroke deficits slow me down less and less and my Pt guy said I am ok to try Pickleball again. I miss doing that, especially in this great weather here in Georgia. We are also actively looking at downsizing to a sibe story home with adaptive bathroom.That would be excellent. Life goes on, we went to a religious service that was restricted to 25 people sitting far apart, and saw a friend just diagnosed with terminal stage 4 pancreatic cancer.His wife was a wreck and we all felt so badly for them.I offered some consolations and compassion, but it did not feel like near enough.Makes me feel lucky to be surviving.I emailed him afterwards and suggested he watch Dr Brian Weis' videos. I find them very ecouraging.Stay well all!
  8. alansd

    Ive gotten better, BP stabilized after adding new prescription for two weeks. One trick I learned ; put your thumb up in front of your face, look at it holding your eyes on it while turning your head.It may be hard , but keep at it with short head moves until dizziness passes,It works for me
  9. I am blessed family wise.My wife of 34 years is terrific.She's sewing masks righto Now for her school children and their families. My son wh o is 27 moved back in after 4 years at West Point and 5 in the Army. And during all the pandemic mess he got a great job and will buy a home near us. My older son who is 31 brought his girlfriend and her new 9 week old puppy over last night for a visit.Things are good here. (Older photo you can tell by the kids.)
  10. It has gone through my mind. But I want to see what God has for me.....
  11. I have sinus infection issues constantly on th e affected side of my nose and it makes me choke.
  12. Just today my blood pressure spiked and I got very scared.I DO NOT WANT ANOTHER STROKE!!!!! I WORK SO HARD EACH Day TO PROGRESS.,AND STAY POSITIVE. BBut this is all so hard.....you really learn how tough you can become.Yesterday I walked a half mile up.hill.Today I did stretching,mirror thetapy, meditation, squats and shoulder pulley.It's my life now.like it or not.
  13. alansd

    the daY OF.... My LIFE CHANGE..

    I grew up in a beach town in New York city,only blocks from the ocean.It was the summer spot for many New yorkers, and my parents chose to make it their year round home. Rockaway was great for an active kid, who rode his trike and later a bike n the 8 mile long boardwalk by the sea.Unfortunately bad Governing turned the peninsula into a refuge for low income housing dwellers and for the mentally Ill in half way houses,which scared off residents to leave for greener pastures. I left for college 12 hours away, paid tuition with steady work in a number of bands as a guitar player and singer.Went onto a teaching career which I abandoned to try my luck as a song writer and guitarist in Nashville.I set year long goals for a 5 year period.I met all my goals in two years.So I stayed and got in a group that toured Nationwide as a remake of the Vogues vocal group.We were seen in a Nashville night club by a producer and his crew who offered us a contract yo record an album,but in Country music style, which our tight harmonies leaned into well. Amazingly our first song release went to #9 on the "charts: and we were off and run,ning literally aboard a bus for the next 5 years.The touring was one of my goals, to see the country and let my guitar pay the way, but I also got paid well to do it, so it was a bonus.This began in 1982 and lasted until 1987 when things went wrong due to changes ar our Record Label,MCA. I returned home to Atlanta and married my girlfriend, attempting to carve out a career to support a family.I returned to my education career and was able to get a job teaching elementary school special needs children.This lasted long enough, 20 years...so I could retire.Then this :Sorry about the caps, typing is stressful; ON ASemmingly Normal DAY SINCE RETIRING FROM MY EDUCATION CAREER, I WOKE AT 5am WHEN MY WIFE ROSE TO BEGIN HER WORKDAY. I go TO THE KITCHEN,to GET AN ESPRESSO AND OPEN my LAPTOP TO SEE WHAT MAY HAVE HAPPENED IN THE WORLD OVERNIGHT.THEN, ITS OFF TO THE GYM ABOUT 8AM AFTER THE SCHOOL TRAFFIC IS DONE. I SPEND AN HOUR THERE,THEN HOME FOR BREAKFAST But on this day, AUG 28 2017,WHILE ON THE VERY BUSY 2 LANE ROAD HEADING HOME, I FELT MY TRUCK PULL HARD LEFT TOWARDS ONCOMING TRAFFIC, I WAS NOT SURE WHAT WAS HAPPENENING TO THE TRUCK,SO I SLOWED TO 30MPH, THEN I REALIZED IT WAS MY LEFT ARM PULLING THE WHEEL OVER TO THE LEFT I pulled the fingers from around the STEERING wheel AND DROVE WITH MY RIGHT HAND UNTIL I GOT HOME,THEN IN THE DRIVEWAY I OPENED MY DOOR WITH MY RIGHT HAND AND STEPPED OUT ONTO A LEFT LEG THAT DID NOT HOLD ME, FELL HARD ONTO THE CONCRETE DRIVE. AND PANICKED MORE THAN A LITTLE I FORCED MYSELF OFF THE CONCRETE ONTO THE RUNNING BOARD AND TRIED TO CATCH MY BREATH, THEN WALKED INTO THE GARAGE AND TO THE HOUSE. I WENT TO THE SHOWER AND TOOK A WARM ONE TO RELAX. THEN I TOOK MY BLOOD PRESSURE TO SEE IF IT WAS HIGH,I FOUND THAT IT WAS 202 OVER 110. I TOOK 2 ASPIRIN ( SMARTbut late) AND CALLED A NEIGHBOR TO COME OVER, HE SAW ME, said I looked bad, and told me I To call 911. I ALSO TEXTED MY WIFE WHO SAID TO MAKE THAT CALL RIGHT AWAY!, SO OF COURSE,I DID NOW ,I WAS QUITE WORRIED, BECAUSE I HAD MADE IT TO 68 YEARS OLD HAVING NEVER BEEN HOSPITALIZED BEFORE, and knew it was coming. I TOLD MYSELF I WOULD TRY TO PAY ATTENTION TO THE new eXPERIENCE AND JUST to RELAX,and found THE EMT CREW so PROFESSIONAL THEY MADE ITeasier FOR ME.Then the EMERGENCY ROOM, WITH A BUSY GROUP IN BLUE SUITS ALL AROUND ME. , I KINDA FOUND IT HARD TO BREATHE, ANXIETY SET IN, AND THEY OFFERED ME OXYGEN AND A DRUG TO RELAX ME AND LOWER MY NOW 210/112 BP. I FELT WEIRD as the drug hit,AND WAS TOLD I WAS STROKING,, HAVING a TIA WHICH can COME IN waves . I HAD AGREED TO GET A ROUND OF TPA, THE CLOT BUSTING DRUG THAT PREVENTS MAJOR STROKES, WHICH CAN FOLLOW A TIA, SCARY BECAUSE IF I HAD ANY BLEEDING INTERNALLY, THE TPA COULD TURN 'EVIL" AND KILL ME. IT WORKEAND I WAS TAKEN TO GET A CT SCAN LOOKING FOR BLOOD AND CLOTS IN MY BRAIN,luckily NONE WERE FOUND AS REPORTED to THE NEUROLOGIST, SO I WAS IN THE CLEAR FOR AWHILE. PHEW! I THEN HAD MORE SCANS, including A FULL 45 MINUTE MRI, TALK ABOUT CLAUSTROPHOBIC! ALSO A CARDIAC SCAN AND NUCLEAR STRESS TEST, AS A GENETIC CANDIDATE FOR HEART DISEASE, I HAVE ALWAYS CARED FOR MY HEART, EXERCISING REGULARLY AND EATING HEALTHY. I ALSO Took SEVERAL HEART SUPPLEMENTS THAT ARE HELPFUL, SO ALL THE TESTS CAME BACK NEGATIVE FOR HEART DISEASE AND BLOCKAGES, OTHER THAN AN ELECTRICAL ISSUE, called a RIGHT BUNDLE BRANCH BLOCK WAS DISCOVERED, WHICH CAN CAUSE ATRIAL FIBRILLATION AND ULTIMATELY LEAD TO STROKE. I also had a full body MRI. I ultimately SPENT 3 NIGHTS IN EMERGENCY CARE THEN 5 MORE IN the ICU. I COULD HAVE BEEN RELEASED TO REHAB , BUT IT WAS THE FRIDAY BEFORE LABOR DAY WEEKEND AND THE REHAB CENTER WOULD NOT ADMIT A NEW PATIENT. SO I spent 3 MORE NIGHTS IN THE RECOVERY AREA OF ICU. FINALLY TUESDAY ARRIVED, AND I WAS TRANSFERRED TO IN- PATIENT REHAB, ON LEAVING THE HOSPITAL, I WAS STRUCK WITH HOW GREAT IT FELT TO BE OUTSIDE, IF EVEN IN AN AMBULANCE, THE REHAB CENTER WAS AnNOTHER NEW EXPERIENCE, A SMALL PRIVATE ROOM WITH very SMALL TV, a BED, LOUNGE CHAIR AND two ROLLING TABLES .THIS WAS TO BE MY HOME FOR 3 WEEKS. VERY DULL, EXCEPT FOR THE THERAPY SESSIONS WHEN MY WHEEL CHAIR WAS ROLLED INTO THE GYM, FOR TWO OR MORE HOURS OF LEG EXERCISES, AND LEARNING HOW YO USE A WALKER SAFELY. ONE DAY AFTER SEVERAL WEEKS I WAS INSTRUCTED TO TRANSFER TO A LOW MAT- TABLE , MY CHAIR WAS PLACED SEVERAL FEET AWAY, SO I STOOD AND WALKED,TO THE MAT. THIS WAS SUCCESSFUL BUT NOT VERY PRETTY. MY LEFT LEG WAS GAINING IN STRENGTH BUT NOT IN GOOD CONTROL, I REALIZED THOUGH THAT I HAD ACTUALLY WALKED AND WAS QUITE PROUD OF THAT ACTION. THE OT THERAPY CONCENTRATED ON MY LEFT ARM AND HAND USING VARIOUS TECHNIQUES INCLUDING E-STIM, ELECTRONIC MUSCLE STIMUATION, WHICH AMAZED ME TO SEE MY HAND AND FINGERS MOVE ANIMATEDLY. I ALSO HAD SPEECH THERAPY TO IMPROVE MY VOICE CONTROL, AND WE SPENT SOME TIME SINGING WHICH FOR ME WAS A MAJOR PART OF MY LIFE PRIOR TO ALL THIS. I KNEW THAT THE POSSIBILITY OF REGAINING MY GUITAR PLAYING ABILITY WAS REMOTE AND WELL INTO THE FUTURE OF ALL THIS. DEPRESSING, BUT MY REALITY NO DOUBT.SINCE A STROKE CAN MAKE YOU VERY EMOTIONAL QUICKLY, often I WOULD BE OVERCOME WITH CRYING JAGS WHEN I BECAME truly AWARE OF my new REALITY, AND this ONLY ABATED WITH A PRESCRIPTION ANTI -DEPRESSANT PRESCRIBED FOR ME. THE THREE WEEKS DRAGGED ON WITH PROGRESS BEING HARD WON, AND MANY HOURS SPENT IN MY BORING ROOM., ALONE THANKFULLY I HAD MY LAPTOP BROUGHT IN, AND FOUND THE STROKE SUPPORT ONLINE NETWORK, WHICH GAVE ME INSIGHTS INTO WHAT OTHERS HAD EXPERIENCED WITH their STROKE AND AFTERWARDS. I ALSO STARTED READING A BOOK ON RECOVERY FROM STROKE WHICH WAS VERY EDUCATIONAL. I SAW THE POTENTIAL AND MY OPTIMISM INCREASED GREATLY. I JOINED AND EAGERLY READ THE POSTS FROM OTHER SURVIVORS. I RECEIVED A NUMBER OF VISITORS at rehab INCLUDING A FEW OLD FRIENDS I HAD NOT SEEN IN QUITE SOME TIME. MY WIFE CAME EVERY DAY AFTER WORK , ROLLING ME OUT TO THE COURTYARD FOR SOME AIR AND SUNSHINE. I LOOKED FORWARD TO SEEING HER EACH DAY, AND SHE PREPARED TO BE MY HOME CAREGIVER SOON. I WORRIED ABOUT BURDENING HER, BUT SHE WOULD NOT HEAR ANY OF THAT, MY SONS BOTH CAME TOO AND ONE STAYED THREE DAYS, SLEEPING ON THE COUCH IN THE ROOM I HAD. HE IS STRONG YOUNG MAN AND VERY POSITIVE , SO HIS VISIT WAS GREAT FOR MY MOTIVATION. I RELISHED THE TIMES I HAD ACCESS TO A HOT SHOWER AS THEY WERE FEW, BUT IT WAS WONDERFUL.BEING CLEAN AND FELT GREAT AFTERWARDS. Then the special joy of going home where a friend had supplied us with a ramp over the stairs to the door, and several bathroom grab bars thankfully.
  14. alansd

    Never give up

    My days are filled with new things to do, research into them and visits to either PT or OT where I get more things to try.Frustrated when I dont see the results, but motivated to keep searching and trying,I have much encouragement from my wife, which certainly helps. But its also a quest for recovery.There is so much out there to seek and find.If only stem cells were further along, but this is not their time yet.Other things work however.I just need to keep at it.My daily stretching routine helps to get e ready for the day, then a meditatation time mid- day helps me relax and take a break. I love to see what my wife will create for dinner, then the Netflix or PBS shows in the evening.I truly enjoy watching " Nova", and Planet Earth.We are only here for limited time in any scenario, so I try to use my time to learn and progress. Thankfully there is Internet and Brainhq, Youtube, Coursera and more.
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